Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Your doctor doesn't sound that great. Unless he's much better with everything else I would seriously consider changing doctors. He should at least address your concerns clearly. Unfortunately many doctors do not take plagio seriously and often recommend waiting for it to correct itself. It may or many not, partially depending on severity and sometime unresolved tort. I have never heard anything to suggest that 95% of plagio fixes itself and I think your doctor is just winging it. If you are seeing results with repo, you do have some time. I would take pics every week and see if you're continuing to make progress. Also I would look for a band friendly doctor to see in your area. If you are near a cranial technologies office (www.cranialtech.com) they will do a free assessment for you. Some other band providers will as well. This may give you more data to work with so you can decide how aggressively you need to look for a new doctor. -christine sydney 2 yrs starband grad > > Hi All, > Just wanted to let you all know we weren't too pleased with Kaylie's > appointment with her pediatrician. We have really worked with her for > 2 full weeks now on repo & stretching exercises that we thought we > would help, & she has had major improvement with her right sided > tort. My husband explained to her Pediatrician that we had been doing > the exercises & we weren't sure if what we were doing was correct, as > we have never received professional instruction & he said " well what > you are doing is definetly working, we don't need Physical therapy or > anything " . My husband then said well take a look at the assymetry on > the right side of the face and the Doc said " well you are right " then > no joke, completely changed the subject. And that's all we got! He > did say her head shape was fine & 95% of babies with these issues get > correction from repo. I have no idea where to go from here now! > > & Kaylie 4 1/2 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Actually, my biggest concern is not that he brushed off the plagio (because I've come to learn that that's pretty standard amongst peds), but that he is brushing off the tort without any real assessment from an actual pediatric physical therapist. Our ped took a look at my son, diagnosed him with tort, and then gave me the phone number of the PT to set up an appointment, which I did for 2 days later. I would not have felt comfortable doing any exercises without someone who knew what they were doing advising me on the proper techniques. In one aspect, if you don't know to force the stretch all the way, then you're not really doing enough to help. Conversely, if you do it completely wrong, I would be worried about hurting the baby worse. My ped was also quick to refer us to a neurosurgeon to check out my son's head shape (and rule out cranio), but then once we got the all- clear, we started hearing that it would round itself out on it's own. I've NEVER heard 95% of plagio babies self-correct. That's really stretching it. I've done a lot of research on the subject and from what I've heard, no studies have been done because they can't get a control group (babies who would be tested for self-correction) because they can't find parents who are willing to bypass the band and go with the " wait and see " approach. So my first suggestion is to go to a physical therapist and get an assessment. I'm not sure if you need a referral (based on your insurance), but we didn't and for us it was just a $15 co-pay for each visit (we went once a week for about 5 weeks, then every other week). It will be hard for the plagio to improve if the tort isn't taken care of first. Good luck! Jake-18m (tort resolved/rt plagio/DocBand 2/11/08) Jordan-4 > > Hi All, > Just wanted to let you all know we weren't too pleased with Kaylie's > appointment with her pediatrician. We have really worked with her for > 2 full weeks now on repo & stretching exercises that we thought we > would help, & she has had major improvement with her right sided > tort. My husband explained to her Pediatrician that we had been doing > the exercises & we weren't sure if what we were doing was correct, as > we have never received professional instruction & he said " well what > you are doing is definetly working, we don't need Physical therapy or > anything " . My husband then said well take a look at the assymetry on > the right side of the face and the Doc said " well you are right " then > no joke, completely changed the subject. And that's all we got! He > did say her head shape was fine & 95% of babies with these issues get > correction from repo. I have no idea where to go from here now! > > & Kaylie 4 1/2 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 My husband said we are now switching Doc's, this isn't the 1st time we've gotten brushed off by him, time for a 2nd opinion.... I hate when a Doc throws out a " made Up " statistic like 95% of plagio cases fix themselves, just another example of him not taking the proper time with Kaylie & my husband finally got fed up with it. & Kaylie 4 1/2 months > > > > Hi All, > > Just wanted to let you all know we weren't too pleased with > Kaylie's > > appointment with her pediatrician. We have really worked with her > for > > 2 full weeks now on repo & stretching exercises that we thought we > > would help, & she has had major improvement with her right sided > > tort. My husband explained to her Pediatrician that we had been > doing > > the exercises & we weren't sure if what we were doing was correct, > as > > we have never received professional instruction & he said " well > what > > you are doing is definetly working, we don't need Physical therapy > or > > anything " . My husband then said well take a look at the assymetry > on > > the right side of the face and the Doc said " well you are right " > then > > no joke, completely changed the subject. And that's all we got! > He > > did say her head shape was fine & 95% of babies with these issues > get > > correction from repo. I have no idea where to go from here now! > > > > & Kaylie 4 1/2 months > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Thanks for the great info. We are now searching for other resources, but in our area I am coming up short, no cranial tech, etc.. I definetly want a 2nd opinion. & Kaylie > > I'm sorry your dr didn;t listen to you.? WE repeatedly had the same thing happen.? But Ours was from the ped AND the craniofacial drs.? It wasn't until I threated to take her " out of network " that they suddenly acknowledged the problem and wrote the script. > If you have a band provider in your area - go and get an eval - CT does them for free - Then armed with that info you can go see your ped again - or see a Craniofacial dr.? They can also write?a script. > Like I wrote earlier, you have to listen to your gut - and do what you can for your baby. > > > ?Jen and Luli - 27 months > Left tort - Right Plagio - Hanger Band Grad - CA > http://www.babiesonline.com/babies/j/jens5th/ > > > Kaylie's Appointment > > > > > > > Hi All, > Just wanted to let you all know we weren't too pleased with Kaylie's > appointment with her pediatrician. We have really worked with her for > 2 full weeks now on repo & stretching exercises that we thought we > would help, & she has had major improvement with her right sided > tort. My husband explained to her Pediatrician that we had been doing > the exercises & we weren't sure if what we were doing was correct, as > we have never received professional instruction & he said " well what > you are doing is definetly working, we don't need Physical therapy or > anything " . My husband then said well take a look at the assymetry on > the right side of the face and the Doc said " well you are right " then > no joke, completely changed the subject. And that's all we got! He > did say her head shape was fine & 95% of babies with these issues get > correction from repo. I have no idea where to go from here now! > > & Kaylie 4 1/2 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Where are you located? Maybe someone knows a good dr in your area! Jen and Luli - 27 months Left tort - Right Plagio - Hanger Band Grad - CA http://www.babiesonline.com/babies/j/jens5th/ Kaylie's Appointment > > > > > > > Hi All, > Just wanted to let you all know we weren't too pleased with Kaylie's > appointment with her pediatrician. We have really worked with her for > 2 full weeks now on repo & stretching exercises that we thought we > would help, & she has had major improvement with her right sided > tort. My husband explained to her Pediatrician that we had been doing > the exercises & we weren't sure if what we were doing was correct, as > we have never received professional instruction & he said "well what > you are doing is definetly working, we don't need Physical therapy or > anything". My husband then said well take a look at the assymetry on > the right side of the face and the Doc said "well you are right" then > no joke, completely changed the subject. And that's all we got! He > did say her head shape was fine & 95% of babies with these issues get > correction from repo. I have no idea where to go from here now! > > & Kaylie 4 1/2 months > Planning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 I am in Indiana, close to Indianapolis. One of the gals on here used AOI for her helmet, but i am not sure if a Doc would need to refer us there 1st? > > > > I'm sorry your dr didn;t listen to you.? WE repeatedly had the > same thing happen.? But Ours was from the ped AND the craniofacial > drs.? It wasn't until I threated to take her " out of network " that > they suddenly acknowledged the problem and wrote the script. > > If you have a band provider in your area - go and get an eval - CT > does them for free - Then armed with that info you can go see your > ped again - or see a Craniofacial dr.? They can also write?a script. > > Like I wrote earlier, you have to listen to your gut - and do what > you can for your baby. > > > > > > ?Jen and Luli - 27 months > > Left tort - Right Plagio - Hanger Band Grad - CA > > http://www.babiesonline.com/babies/j/jens5th/ > > > > > > Kaylie's Appointment > > > > > > > > > > > > > > Hi All, > > Just wanted to let you all know we weren't too pleased with > Kaylie's > > appointment with her pediatrician. We have really worked with her > for > > 2 full weeks now on repo & stretching exercises that we thought we > > would help, & she has had major improvement with her right sided > > tort. My husband explained to her Pediatrician that we had been > doing > > the exercises & we weren't sure if what we were doing was correct, > as > > we have never received professional instruction & he said " well > what > > you are doing is definetly working, we don't need Physical therapy > or > > anything " . My husband then said well take a look at the assymetry > on > > the right side of the face and the Doc said " well you are right " > then > > no joke, completely changed the subject. And that's all we got! He > > did say her head shape was fine & 95% of babies with these issues > get > > correction from repo. I have no idea where to go from here now! > > > > & Kaylie 4 1/2 months > > > Quote Link to comment Share on other sites More sharing options...
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