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No I did not I was a snow bunny today. Got a new appointment for Jan.

the 8 .the Dr. office is on a hill too.

but most of Tulsa was shut down anyway. Ja we got about

8 to 12 Inches .LOL Ja that is way to much for us here.

I think the city of Tulsa has only about 4 or 6 snowplow's.

So I should have lots of fun going to work. LOL O well

that is what makes life very interesting. LOL Love you all.

I am going nighty night. LOL

Heidi

Heidi

> Heidi,

> Did you get to go to your doctor today??? If so, what'd he say?

> W

>

>

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

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  • 1 month later...

Hallo Heidi,

meine besten Wünsche an Don! Ich habe mit Schrecken gelesen, dass er einen

Unfall hatte. Es freut mich, wenn es jetzt besser geht!

Zu dieser Zeit waren wir in Urlaub. Wir waren eine Woche in den Alpen zum

Skifahren. Ich wusste vorher nicht, ob es mir gelingen würde, mit der

Krankheit diesen Sport zu betreiben. Aber es hat doch viel Spass gemacht! Es

ging zwar alles etwas langsamer, aber ich es ging!

Nochmal alles Gute für Don! Und Grüße von Gaby

Werner

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  • 4 weeks later...

Hi Heidi, I've been hiding in the wings for a while- do you have any infro on me? Would you like some?

Kathy

Fritag

Hallo Everyone!!!

Wow, we are sure growing .I am so glad all the new

ones found us. Yup, let me tell you " Herzlich Willkommen "

to the greatest group. You will be surprised and how

much you will learn here. Just ask all the ? you want.

Remember there is no such thing as a stupid ?.

Bridget, Ronda, Sharon ,Betty ,. I would like to

ask you something . We have a e mail list with Home

addresses and Phone # here. I sure would like to add

you to this list.All I need from you is your Full name, Home address ,Phone # and if you like your Birthday. You do

not have to give the year .I in return would send you a list

with everyone's Name and address too. The only thing I

ask in return that you know you may NOT give out this

information from the list to anyone out site this group.

I can send it to you by e mail if you have excel ,Lotus 1 2 3

or quarto programs. Or I also send it by snail mail. It is

really nice to have . You never know when you just might want to call someone and just talk to them. We are also having

our first get to gether this September the 1 and 2 here

in Tulsa Oklahoma. You sure are invited to come and join us.

I will send the post again right after I get this post done. So please think about it and let me know . OK Now I also have a ?

for some of you that been here a while. I am needing your

Information for our list. If you have send it already once I have not

received it . Here are the ones I need

Dawn = DMZAS@...

Kathleen Krussell

Christy = MCSB52@...

= Hawaii

Shanin

Marlyn Kucera

And of course from all our new members. So please be kind and send it to me ASP. I am hoping you also would like to join us as a member in our Foundation. You will hear more about this from

she is handling the member ship for everyone that

joins. So please think about all this we just love to have you .

This group is really great here we tell jokes and also learn about

RP> Just remember RP is only a part of your life. OK We also would like to hear on how does your Family copes with your

RP.

Sheila I send you today a list with snail mail hopefully you will get this one . do you want one by E mail or snail mail ??? Well I guess I better hush for now . Please send me the information .

One more thing to all Did you take your Medicine and Vitamins

on time today??? You better so you get to feeling better .

sending you all a gentle Hug from Okie land.

Mrs. Nosey here.

heidi@...

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Thank you Kathy ,

YES I need the information from you ,

Wow that would be so nice. I hope everyone

will send it too me .Please all new members

send me your information too. I need your

full name , Home address and Phone #

And you birthday .Thanks again

Heidi

Fritag

Hallo Everyone!!!

Wow, we are sure growing .I am so glad all the new

ones found us. Yup, let me tell you "Herzlich Willkommen "

to the greatest group. You will be surprised and how

much you will learn here. Just ask all the ? you want.

Remember there is no such thing as a stupid ?.

Bridget, Ronda, Sharon ,Betty ,. I would like to

ask you something . We have a e mail list with Home

addresses and Phone # here. I sure would like to add

you to this list.All I need from you is your Full name, Home address ,Phone # and if you like your Birthday. You do

not have to give the year .I in return would send you a list

with everyone's Name and address too. The only thing I

ask in return that you know you may NOT give out this

information from the list to anyone out site this group.

I can send it to you by e mail if you have excel ,Lotus 1 2 3

or quarto programs. Or I also send it by snail mail. It is

really nice to have . You never know when you just might want to call someone and just talk to them. We are also having

our first get to gether this September the 1 and 2 here

in Tulsa Oklahoma. You sure are invited to come and join us.

I will send the post again right after I get this post done. So please think about it and let me know . OK Now I also have a ?

for some of you that been here a while. I am needing your

Information for our list. If you have send it already once I have not

received it . Here are the ones I need

Dawn = DMZAS@...

Kathleen Krussell

Christy = MCSB52@...

= Hawaii

Shanin

Marlyn Kucera

And of course from all our new members. So please be kind and send it to me ASP. I am hoping you also would like to join us as a member in our Foundation. You will hear more about this from

she is handling the member ship for everyone that

joins. So please think about all this we just love to have you .

This group is really great here we tell jokes and also learn about

RP> Just remember RP is only a part of your life. OK We also would like to hear on how does your Family copes with your

RP.

Sheila I send you today a list with snail mail hopefully you will get this one . do you want one by E mail or snail mail ??? Well I guess I better hush for now . Please send me the information .

One more thing to all Did you take your Medicine and Vitamins

on time today??? You better so you get to feeling better .

sending you all a gentle Hug from Okie land.

Mrs. Nosey here.

heidi@...

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Rhonda- I was in Albany until 2 yrs. ago- and the other day someone indicated they were close to Albany. Is there something in the water?? I had been saying it must be something down south- cause I had no idea about RP till I moved here. Anyways, I still have a house on Oneida Lake in NY- and my neighbors are from Voorheesville- it's a small world after all !!!!

Re: Heidi Heidi, My name is Rhonda Farley I joined in late Jan. my address is 7 Sky Terrace Voorheesville, NY 12186 Phone DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Here ya go:

Kathy -Cather DOB: 7/12/57

209 Sulphur Springs Rd.

Winchester, VA 22602

Re: Heidi

Thank you Kathy ,

YES I need the information from you ,

Wow that would be so nice. I hope everyone

will send it too me .Please all new members

send me your information too. I need your

full name , Home address and Phone #

And you birthday .Thanks again

Heidi

Fritag

Hallo Everyone!!!

Wow, we are sure growing .I am so glad all the new

ones found us. Yup, let me tell you " Herzlich Willkommen "

to the greatest group. You will be surprised and how

much you will learn here. Just ask all the ? you want.

Remember there is no such thing as a stupid ?.

Bridget, Ronda, Sharon ,Betty ,. I would like to

ask you something . We have a e mail list with Home

addresses and Phone # here. I sure would like to add

you to this list.All I need from you is your Full name, Home address ,Phone # and if you like your Birthday. You do

not have to give the year .I in return would send you a list

with everyone's Name and address too. The only thing I

ask in return that you know you may NOT give out this

information from the list to anyone out site this group.

I can send it to you by e mail if you have excel ,Lotus 1 2 3

or quarto programs. Or I also send it by snail mail. It is

really nice to have . You never know when you just might want to call someone and just talk to them. We are also having

our first get to gether this September the 1 and 2 here

in Tulsa Oklahoma. You sure are invited to come and join us.

I will send the post again right after I get this post done. So please think about it and let me know . OK Now I also have a ?

for some of you that been here a while. I am needing your

Information for our list. If you have send it already once I have not

received it . Here are the ones I need

Dawn = DMZAS@...

Kathleen Krussell

Christy = MCSB52@...

= Hawaii

Shanin

Marlyn Kucera

And of course from all our new members. So please be kind and send it to me ASP. I am hoping you also would like to join us as a member in our Foundation. You will hear more about this from

she is handling the member ship for everyone that

joins. So please think about all this we just love to have you .

This group is really great here we tell jokes and also learn about

RP> Just remember RP is only a part of your life. OK We also would like to hear on how does your Family copes with your

RP.

Sheila I send you today a list with snail mail hopefully you will get this one . do you want one by E mail or snail mail ??? Well I guess I better hush for now . Please send me the information .

One more thing to all Did you take your Medicine and Vitamins

on time today??? You better so you get to feeling better .

sending you all a gentle Hug from Okie land.

Mrs. Nosey here.

heidi@...

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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Rhonda do you mean me ??? I have no clue here Sorry LOL

Where is Voorheesville ???

Heidi

From: RLadywolf@...

To: Rpolychondritis

Sent: Friday, February 16, 2001 8:15 PM

Subject: Re: Heidi

Who are your neighbors? How long have they been out of Voorheesville? I've lived here off and on my whole life. It's a small town. I might know them. Rhonda DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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