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Re: New Lab Results

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Kuke,

Great to hear your situation is stable enough not to need monthly visits!

Let's hope they can eventually forget about you completely :-)

Pierre

New Lab Results

>

>

> So finally, my monthly visits are coming to an end. The protein and blood

in my urine is

> slight and for the first time in a year and half, my creatine is below 2.

I personally am

> rather excited about this since it's more than a point improvement since

this time last

> year. (Last year 2.8, Today 1.6). I'm getting placed back on the Lotesin

(sp?) and Cozaar

> combo that rocked my K to the unspeakable levels I spoke of last year.

Though my

> prognosis is still very poor (50% cresents) I'm responding to the

outragously expensive

> cellcept treatment. So yea.....I think.

>

> Can I just add that I'm a huge gadget freak, but that home hemo machine

gives me the

> heepie-jeepies. Pierre, you'll have to give us updates so we can hear how

it works out. I

> hope it works smashingly well, and you can be more comfortable at home.

>

> -Luke

>

>

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Guest guest

Congratulations on the great results Luke! I know how those mixed emotions

go...I'm at 80% crescents and only take the 'improvement' from the prednisone as

sort of a stay of execution. I was very excited to go from monthly visits to

every 3 months though. :-) Figure if I can hold out for at least 5.5 more

years my oldest daughter will be able to drive me the 45 minutes to the nearest

dialysis clinic.

At 50% you have a lot of mileage left in those kidneys....hopefully your labs

will stay stable for a long time to come.

Amy G.

New Lab Results

So finally, my monthly visits are coming to an end. The protein and blood in

my urine is

slight and for the first time in a year and half, my creatine is below 2. I

personally am

rather excited about this since it's more than a point improvement since this

time last

year. (Last year 2.8, Today 1.6). I'm getting placed back on the Lotesin

(sp?) and Cozaar

combo that rocked my K to the unspeakable levels I spoke of last year. Though

my

prognosis is still very poor (50% cresents) I'm responding to the outragously

expensive

cellcept treatment. So yea.....I think.

Can I just add that I'm a huge gadget freak, but that home hemo machine gives

me the

heepie-jeepies. Pierre, you'll have to give us updates so we can hear how it

works out. I

hope it works smashingly well, and you can be more comfortable at home.

-Luke

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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Guest guest

Hi Luke,

Congratulations! I am rejoicing with you :-) I think you have THE best

Cellcept story so far.

Thanks for sharing the good news.

In a message dated 3/2/2005 11:03:23 P.M. Pacific Standard Time,

lukelittle@... writes:

So finally, my monthly visits are coming to an end. The protein and blood

in my urine is

slight and for the first time in a year and half, my creatine is below 2. I

personally am

rather excited about this since it's more than a point improvement since

this time last

year. (Last year 2.8, Today 1.6). I'm getting placed back on the Lotesin

(sp?) and Cozaar

combo that rocked my K to the unspeakable levels I spoke of last year.

Though my

prognosis is still very poor (50% cresents) I'm responding to the

outragously expensive

cellcept treatment. So yea.....I think.

Can I just add that I'm a huge gadget freak, but that home hemo machine

gives me the

heepie-jeepies. Pierre, you'll have to give us updates so we can hear how

it works out. I

hope it works smashingly well, and you can be more comfortable at home.

-Luke

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Guest guest

Hi Luke,

Congratulations! I am rejoicing with you :-) I think you have THE best

Cellcept story so far.

Thanks for sharing the good news.

In a message dated 3/2/2005 11:03:23 P.M. Pacific Standard Time,

lukelittle@... writes:

So finally, my monthly visits are coming to an end. The protein and blood

in my urine is

slight and for the first time in a year and half, my creatine is below 2. I

personally am

rather excited about this since it's more than a point improvement since

this time last

year. (Last year 2.8, Today 1.6). I'm getting placed back on the Lotesin

(sp?) and Cozaar

combo that rocked my K to the unspeakable levels I spoke of last year.

Though my

prognosis is still very poor (50% cresents) I'm responding to the

outragously expensive

cellcept treatment. So yea.....I think.

Can I just add that I'm a huge gadget freak, but that home hemo machine

gives me the

heepie-jeepies. Pierre, you'll have to give us updates so we can hear how

it works out. I

hope it works smashingly well, and you can be more comfortable at home.

-Luke

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Guest guest

Jozef it's just the ratio of crescent scarred glomeruli you have. Since you

had 7 out of 32 with crescents that would translate into roughly 21%

scarring.

When they did my biopsy 19 out of 20-25 glomeruli showed crescents....giving

them a rough estimate of about 80% scarring.

Hope that clears it up. Having crescents is one of the many indicators they

use for your prognosis.

Amy G.

New Lab Results

>

>

>

> So finally, my monthly visits are coming to an

> end. The protein and blood in my urine is

> slight and for the first time in a year and half,

> my creatine is below 2. I personally am

> rather excited about this since it's more than a

> point improvement since this time last

> year. (Last year 2.8, Today 1.6). I'm getting

> placed back on the Lotesin (sp?) and Cozaar

> combo that rocked my K to the unspeakable levels I

> spoke of last year. Though my

> prognosis is still very poor (50% cresents) I'm

> responding to the outragously expensive

> cellcept treatment. So yea.....I think.

>

> Can I just add that I'm a huge gadget freak, but

> that home hemo machine gives me the

> heepie-jeepies. Pierre, you'll have to give us

> updates so we can hear how it works out. I

> hope it works smashingly well, and you can be more

> comfortable at home.

>

> -Luke

>

>

>

>

>

> To edit your settings for the group, go to our

> Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The

> site is entirely supported by donations. If you

> would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

>

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Guest guest

Yes, it's possible for crescents to disappear on a repeat biopsy later on.

It doesn't necessarily mean the IgAN is gone though, but it's certainly a

good sign if the person was thought to have rapidly-progressive IgAN.

We have to keep in mind that not very many IgAN patients get repeat

biopsies, so, the value of this kind of information is kind of limited.

Pierre

Re: New Lab Results

>

> Thank You Amy.

> My neph. told me that after prednisone treatment they

> can disapear. Is this posible?.

> Thanks for answering to anyone who know.

> Jozef

>

>

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  • 5 years later...
Guest guest

Thanks Ann and Nick!

Amy

>

> >Your dosing seems like a good plan. You need to chart your average daily

temperatures. When your temps are stable within .2 degrees for three or four

days, you can increase cynomel

>

> The temperature stability critteria is an adrenal function test, not a

> signal for increasing T3

>

> Nick

>

> --

>

> for more information on RT3 and Thyroid Resistance go to

>

> www.thyroid-rt3.com

>

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