Re: Thoughts on thyroid hormone resistance NOT caused by RT3

[Guest guest]

Hey Todd,

What an amazing and inspiring story you've shared with us. The best part is that you didn't give up, you did your own research, figured things out and made a plan to move forward. Many doctors (endo's and uro's in particular) do not see a person underneath the symptoms and have an almost robotic approach to treatment. Congratulations on how far you've come and good luck and much success in achieving the best of health. Keep everyone posted, I think charting your progress will be as interesting as what we've heard from you to date.

Stan

Yeah it seems i was born with genetic resistance, i then compensated for my lack of 'usable' thyroid with increased nervous system activity.. i was always very nervous growing up. With elevated T4 i became very skinny and my body probably created RT3 in order to slow things down. So i feel i am similar to you in that i have resistance underneath the RT3. Lab tests don't work for us because it is happening at cellular level. There are hundreds of gene mutations that can interfere with T3 absorption. I would definitely need to stay on it permanently, seeing as i have been moderately thyroid resistant since birth.I will keep you updated. I only hope that one the treatment works and two that i can reverse most of the damage it has caused over the past 21 years.Todd> > >> >I've always considered myself a bit unique/weird. But many thyroid experts consider this to be much more common than you think. > >> >Good stuff Nick, i hope my story helps to shed some light.> > Thanks for that, good luck on your journey, with that FT4 level you> will have a lot of RT3 about and T3 only will make a big difference to> you.> > You may well need to stay on it permanently, it's worth it. Please let> us know how you do on T3 only.> > You sound like me as a youngster, I'm 54 now and wish I had found this> years ago.> > Nick> > -- > > for more information on RT3 and Thyroid Resistance go to > > www.thyroid-rt3.com>

[Guest guest]

Yeah it seems i was born with genetic resistance, i then compensated for my lack

of 'usable' thyroid with increased nervous system activity.. i was always very

nervous growing up. With elevated T4 i became very skinny and my body probably

created RT3 in order to slow things down. So i feel i am similar to you in that

i have resistance underneath the RT3.

Lab tests don't work for us because it is happening at cellular level. There are

hundreds of gene mutations that can interfere with T3 absorption.

I would definitely need to stay on it permanently, seeing as i have been

moderately thyroid resistant since birth.

I will keep you updated. I only hope that one the treatment works and two that i

can reverse most of the damage it has caused over the past 21 years.

Todd

>

> >

> >I've always considered myself a bit unique/weird. But many thyroid experts

consider this to be much more common than you think.

> >

> >Good stuff Nick, i hope my story helps to shed some light.

>

> Thanks for that, good luck on your journey, with that FT4 level you

> will have a lot of RT3 about and T3 only will make a big difference to

> you.

>

> You may well need to stay on it permanently, it's worth it. Please let

> us know how you do on T3 only.

>

> You sound like me as a youngster, I'm 54 now and wish I had found this

> years ago.

>

> Nick

>

> --

>

> for more information on RT3 and Thyroid Resistance go to

>

> www.thyroid-rt3.com

>

[Guest guest]

Stan,

I have a bio identical hormone specialist. It took me a while but i did finally

find a doctor who listens and understands. He did all of the hormone testing and

explained how testing doesn't mean a great deal. The only problem is there is NO

perfect doctor and in this case he doesn't regard RT3 as a relevant issue. He

only prescribes natural dessicated thyroid. So i have had to do much more work

on the side as any patient do when confronted with these conditions.

My advice to anyone is don't look for the perfect doctor. Find someone who is on

your side that will get you tested.. i.e someone like my doctor and then do your

own research and experimentation along with it.

Your book sounds interesting. If you are interested in resistance try and pick

up a copy of Dr Starr's type 2 hypothyroidism book. I don't agree with all of it

particularly his treatment methods but he discusses a lot of groundbreaking

information on cellular level hypothyroidism.

Cheers

>

>

> Todd - right now I am reading the hormones book by Dr. Brownstein. After I

> finish it, if I find something there that might be useful for you, I'll

> pass on whatever I've learned. It's a general book on basic physiology and the

> role of various hormones in good health and his ideas on treatment

> approaches for various hormone issues. I'm not sure that his methods are held

in

> much regard by the wider medical or endo community, probably not.

>

> But why not consult with a doctor who primarily treats hormone issues and

> is open to natural, bioidentical treatment modalities and take all your

> research and references with you when you go to see the doctor. I think

> Shomon's site has a link to doctors all over the country who are thought to

> be open to non-standard natural approaches based on feedback from patients.

> I used it recently and found references to 2 doctors in my area near

> Philadelphia-New Jersey.

>

> Stan

>

>

>

> In a message dated 5/31/2010 1:02:21 P.M. Eastern Daylight Time,

> todd_barefootdays@... writes:

>

>

>

>

> Thanks Stan,

>

> Most people don't understand what i have been through so young. I think

> after researching and seeing specialist after specialist and trialling

> different things that i have found my problem.

>

> My only worry is about my low growth hormone levels which was found in my

> urine test. My IGF-1 was just below mid range in serum, but urine was very

> low. I have never felt my sleep to be restorative so i think i must have

> had this for a while. The curious thing is i am 6 ft 3! And my parents aren't

> overly tall! Weird.

>

> I am hoping that the T3 can lift my growth hormone levels. I have heard

> Val say that this can happen. Fingers crossed. Any thoughts?

>

> Todd

>

[Guest guest]

Maureen,

Yes i totally agree with you.

So many people on this board need to take supraphysiological doses of T3 in

order to function. I know in my case that i have had high levels of thyroxine T4

for a long time in my blood and i could only assume that this caused me harm

over the years. To be honest i find it amazing how the body barely even uses T4

and yet we create so much of it.

In your case (just my non expert opinion) it sounds like you probably have some

T4 to T3 conversion issues leaving you with RT3 after so many years of Hashi's.

Hey you never know there could be some peripheral resistance there as well. The

T3 only sounds like a really good idea for you, it definitely sounds like you

weren't getting enough T3 in your previous replacement. Most of us on here need

T3 asap and more of it, i say screw t4 just get to the good stuff!

all the best

> >

> > Yeah it seems i was born with genetic resistance, i then compensated for my

lack of 'usable' thyroid with increased nervous system activity.. i was always

very nervous growing up. With elevated T4 i became very skinny and my body

probably created RT3 in order to slow things down. So i feel i am similar to you

in that i have resistance underneath the RT3.

> >

> > Lab tests don't work for us because it is happening at cellular level. There

are hundreds of gene mutations that can interfere with T3 absorption.

> >

> > I would definitely need to stay on it permanently, seeing as i have been

moderately thyroid resistant since birth.

> >

> > I will keep you updated. I only hope that one the treatment works and two

that i can reverse most of the damage it has caused over the past 21 years.

> >

> > Todd

>

>

> Todd,

>

> I have a little theory about thyroid resistance. Maybe it has been discussed

before. We know that the thyroid gland stores t4 and t3 and releases them into

the blood stream as needed. Now my idea is that blood may not be a very

effective place to contain all the t4 and t3 that some people need, so all sorts

of funky things start to happen, such as rt3 and tissue resistance. In my case,

my thyroid gland is non existent due to 25 years of Hashi's and replacement

therapy so I need a very large dose to function. Maybe my blood freaks out with

this large dose and doesn't know what to do with so much. This is why I have

high hopes in moving to T3 only divided into many small doses. It makes so much

sense to me.

>

> Maureen

> >

>