Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Hi, Joan - Yes, that's what it was... Basically, ALL my hypo symptoms came back with a vengeance and my temps dropped, I got all out of whack again. The other problem with the generic is that I couldn't do it sublingually - it just sat there and never dissolved! The name brand Cytomel, as well as Mexican Cynomel, both work FINE sublingually, which I prefer so I don't have to worry about when I take it with supplements, etc., plus I feel I get more into my system w/o it having to go through the digestive tract... Personally, I'd forget the general and just go with Cynomel especially since you have it already Ok, this is what my doctor put me on. Is this not good? SHOULD I take my Mexican Cynomel instead? I don't want to waste any time here! Jacki, is the Liothyronine the generic they made you switch to? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi Jacki, If you go to Holtorf's site, there is an article that says somethng to the effect: " Is everyone with CFS low thryoid? " And I am 100% positive the answer is yes. So you're on the right track! I bet it will fix at least 80% of your problems, the other 20% MAY be due to nasty things that get us when we don't have enough t3 or cortsiol, like infections, Lymes, EBV, etc. But as one doc told me, when you're strong from t3, then the body can get rid of the other stuff! Anyway, about the air hunger. I had it, too, and it IS scary, especially as we live in high altitude and just going up the stairs I couldn't breathe. Or I'd wake up and felt like I couldn't get deep enough breaths and I do NOT have sleep apnea. Anyway, it's one of those things that just goes away while on t3 and one day you just realize it's gone. That's what happened with me anyway. I just suddenly realized, hey, it's been months since I had that air hunger thing! :-) Dr. Lowe talks about keeping a symptoms chart and once a week rating the severity/improvememnt. I wish I had done that because then I would have seen when the air hunger left. It's also for lifting spirits because when we get better, we tend to forget how bad we used to be. :-) Kathleen > >> > >>> > >>> > >>> I switched over to the Cynomel yesterday afternoon for my dose. For > >>> some reason, I felt a bit anxious last night. Is that normal? So far, this > >>> a.m., it's not doing me like that, but we'll see! If it's stronger, I > >>> wonder if I will have to lower my dose? I'm just on week two of clearance, > >>> and I'm at 30 mcg/day. Dealing with getting ferritin levels up, too! > >>> > >>> > >> > >> > >> > >> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 I was also diagnosed with CFS. Funny, but once I started HC and T3 treatment halt of the CFS symptoms seem to disappear. So, I tend to agree with what is said at the Holtorf site - maybe the CFS symptoms are from low thyroid. I hope that getting rid of the rt3 will diminish me from all CFS/hypothyroid symptoms. Just think about the thousand of people that think they have CFS and actually it is all hormonal! If they only knew...What a scandal, ha? > > >> > > >>> > > >>> > > >>> I switched over to the Cynomel yesterday afternoon for my dose. For > > >>> some reason, I felt a bit anxious last night. Is that normal? So far, this > > >>> a.m., it's not doing me like that, but we'll see! If it's stronger, I > > >>> wonder if I will have to lower my dose? I'm just on week two of clearance, > > >>> and I'm at 30 mcg/day. Dealing with getting ferritin levels up, too! > > >>> > > >>> > > >> > > >> > > >> > > >> > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Yes, I met the criteria for CFS, but I don't actually believe in " CFS " except that it just means you have a ton of things wrong with you that they need to fix, lol. There are specific things causing the " CFS " ; it isn't some stand alone disease. I get sad every time I meet someone who claims to have fibromyalgia because I know they likely just have low t3. But I quit trying to save the world a while ago -- unless the person shows an interest in what I have to say. I also think that hypo adrenal is a huge factor in " CFS " , and almost hand in hand with hypoT, but Holtorf recognzies that, too, although they don't let people take enough HC to get better, restricting everyone to 20 in most cases. But at least they do let them take HC! The one thing I don't see enough on Holtorf's site is the food intolerances/allergies aspect. Most people with thyroid issue have Hashi's to some degree, even if the lab says they don't because they actually give ranges now for antibodies, like antibodies are supposed to be normal somehow. *roll eyes* I can tell you that eliminating gluten made a huge improvement for me. I think it's a huge strain on the adreanals to deal with food intolerances/allergies constantly and celiac's causes malabsorption, so that could even lead to the low ferritin that also causes rt3. It is unfortunate for the majority of people with CFS who are just given pain meds and antidepressants by their GP. :-(( Hopefully, with the internet, more and more people will get into the know. I would not be feeling better today if it were not for this forum. Kathleen > > > >> > > > >>> > > > >>> > > > >>> I switched over to the Cynomel yesterday afternoon for my dose. For > > > >>> some reason, I felt a bit anxious last night. Is that normal? So far, this > > > >>> a.m., it's not doing me like that, but we'll see! If it's stronger, I > > > >>> wonder if I will have to lower my dose? I'm just on week two of clearance, > > > >>> and I'm at 30 mcg/day. Dealing with getting ferritin levels up, too! > > > >>> > > > >>> > > > >> > > > >> > > > >> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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