Re: Now I don't know what to do...'

[Guest guest]

I would go with CT and band. His plagio is mild, but he also has some

brachy (flat in back). Our specialist (cranio facial plastic surgeon)

recommends banding at 90% and you're very close to that. Combine with

some asymmetry I would band. This is your only chance to fix this.

After age 2 it is totally out of your control. My daughter wore a

starband for brachy. She went from about 97% to about 86%. I would

have liked even more improvement - so if you're son is almost 90 - I

would band. Banding is much easier than you imagine, and most babies

adjust very quickly.

Also if you go with CT the band is slightly lighter than other bands,

and I don't think it generally makes tort worse (my daughter didn't

have tort, but i " ve been in the group about 1.5 yrs).

good luck making a hard decision.

-christine

sydney 2 yrs starband grad

-- In Plagiocephaly , " " <Mitchandjim@...> wrote:

>

> I now have two contradicting opinions and I dont know what to do...

>

> We had our consult earlier in the week at CT and they said he

> was " mild to moderate " and she said if we didnt do the band he might

> get better and it prob wouldnt be very noticable once he had hair.

> She recommended the band, but did seem on the fence about it. He has

> the facial asymmetry, so that helped with her recommending the band.

>

> Then, yesterday, we went to Childrens in Milwaulkee WI and saw

> the Physicians Assistant in Dr Jensens office. She said he doesnt

> need a band. Not really even close. Said his head was off a little,

> but not bad at all and repositioning as well as stretches (for the

> torticollis he has or doesnt have depending on who you talk to) will

> help it even out. I asked her about his eyes/ears asymmetry and she

> said its not that bad and that will get better too. She said the

> brain is growing and the head is still growing and moving. I told her

> what Cranial Tech said, but she still said she doesnt think he needs

> it. Then again, she also said they only usually recommend

> banding/helmets for moderate to severe, and she said he is mild.

>

> So now I dont know what to do. CT already got the go ahead from

> s pediatrician. Thats funny, cause he's the guy that each visit

> said it will take care of itself, dont worry, dont band. They faxed

> him the paperwork and had the prescription the next day. We havent

> even talked to him or seen him in a month..and I never told him we

> were going to CT. Wierd. Apparently the insurance will also cover

> it. They think at 100%. BUT...my husband, my MIL, my Mom, the

> Chiropractor, the Osteopath and the Cranialfacial clinic in Wisconsin

> all say he doesnt need the band. The clinician CT " seemed " on the

> fence but said its prob still best, and I look at his head and mostly

> his eyes and ears and can only pray that it would get better on its

> own. His head isnt the worst I guess, but his ears are off and his

> left eye is sligtly smaller looking and down/off to left more.

> Arrgghhh...

>

> So do I go against what most people think, or do I just trust it will

> get better if so many say it will? Plus, he has mild torticollis, and

> I have heard the weight of the band can make it worse.

>

> Here are the measurements I just got in the mail from CT:

>

> Cranial Width 123mm ~ mean

> Cranial Lenght 137mm ~ -2

> Cephalic Index 89.7 ~ +2

> Cranial Vault Asymmetry ~ 8mm

> Mid Face Asymmetry ~ 2mm

> Skull Base Asymmetry ~ 4mm

>

> And then at the bottom (fzR-euL)-(fzL-euR)= 6

>

> Not sure what that all means exactly, but what do you all think about

> the banding. Especially since Childrens said dont. sees an

> Osteopath and Chiro (mentioned to you before I think). The Osteo does

> Cranial Sacral manipulative Therapy on him. Gets the plates/bones in

> his head moving the right way. I am wondering if the band would

> conteract or impede the work she would be doing by " holding " his head

> a certain shape? She doesnt want him in a band either. Neither does

> the Chiropractor. Man, I feel like if I did band him I would be going

> against almost everyone else. Maybe hes not that bad and I am just

> being paranoid. I have a really good eye for things that are off. I

> look at border in our house, or walls or pictures, and can tell if

> its off even slightly.

>

> We have an appointment I set up 2 weeks ago for an evaulation with Dr

> Vicari at Childrens Glenview/Chicago. I was going to cancel, but

> maybe I will keep.

>

> So...what do you all think of his numbers? Should I band? Even with

> OSteo treatment?

>

> Sorry for the long long post.. I am just lost as to what I should do

> at this point. is 7 1/2 months old. I know I need to decide

> soon.

>

> Thanks,

> MIchelle

>

[Guest guest]

Without looking at our evaluation papers, I want to say that my

son's measurements were identical to the measurements you mentioned

for your child and we banded. We saw huge improvements and started

at 7.5 months.

Good luck.

lisa

> >

> > I now have two contradicting opinions and I dont know what to

do...

> >

> > We had our consult earlier in the week at CT and they said he

> > was " mild to moderate " and she said if we didnt do the band he

might

> > get better and it prob wouldnt be very noticable once he had

hair.

> > She recommended the band, but did seem on the fence about it. He

has

> > the facial asymmetry, so that helped with her recommending the

band.

> >

> > Then, yesterday, we went to Childrens in Milwaulkee WI and saw

> > the Physicians Assistant in Dr Jensens office. She said he

doesnt

> > need a band. Not really even close. Said his head was off a

little,

> > but not bad at all and repositioning as well as stretches (for

the

> > torticollis he has or doesnt have depending on who you talk to)

will

> > help it even out. I asked her about his eyes/ears asymmetry and

she

> > said its not that bad and that will get better too. She said the

> > brain is growing and the head is still growing and moving. I

told her

> > what Cranial Tech said, but she still said she doesnt think he

needs

> > it. Then again, she also said they only usually recommend

> > banding/helmets for moderate to severe, and she said he is mild.

> >

> > So now I dont know what to do. CT already got the go ahead from

> > s pediatrician. Thats funny, cause he's the guy that each

visit

> > said it will take care of itself, dont worry, dont band. They

faxed

> > him the paperwork and had the prescription the next day. We

havent

> > even talked to him or seen him in a month..and I never told him

we

> > were going to CT. Wierd. Apparently the insurance will also

cover

> > it. They think at 100%. BUT...my husband, my MIL, my Mom, the

> > Chiropractor, the Osteopath and the Cranialfacial clinic in

Wisconsin

> > all say he doesnt need the band. The clinician CT " seemed " on

the

> > fence but said its prob still best, and I look at his head and

mostly

> > his eyes and ears and can only pray that it would get better on

its

> > own. His head isnt the worst I guess, but his ears are off and

his

> > left eye is sligtly smaller looking and down/off to left more.

> > Arrgghhh...

> >

> > So do I go against what most people think, or do I just trust it

will

> > get better if so many say it will? Plus, he has mild

torticollis, and

> > I have heard the weight of the band can make it worse.

> >

> > Here are the measurements I just got in the mail from CT:

> >

> > Cranial Width 123mm ~ mean

> > Cranial Lenght 137mm ~ -2

> > Cephalic Index 89.7 ~ +2

> > Cranial Vault Asymmetry ~ 8mm

> > Mid Face Asymmetry ~ 2mm

> > Skull Base Asymmetry ~ 4mm

> >

> > And then at the bottom (fzR-euL)-(fzL-euR)= 6

> >

> > Not sure what that all means exactly, but what do you all think

about

> > the banding. Especially since Childrens said dont. sees

an

> > Osteopath and Chiro (mentioned to you before I think). The Osteo

does

> > Cranial Sacral manipulative Therapy on him. Gets the

plates/bones in

> > his head moving the right way. I am wondering if the band would

> > conteract or impede the work she would be doing by " holding " his

head

> > a certain shape? She doesnt want him in a band either. Neither

does

> > the Chiropractor. Man, I feel like if I did band him I would be

going

> > against almost everyone else. Maybe hes not that bad and I am

just

> > being paranoid. I have a really good eye for things that are

off. I

> > look at border in our house, or walls or pictures, and can tell

if

> > its off even slightly.

> >

> > We have an appointment I set up 2 weeks ago for an evaulation

with Dr

> > Vicari at Childrens Glenview/Chicago. I was going to cancel, but

> > maybe I will keep.

> >

> > So...what do you all think of his numbers? Should I band? Even

with

> > OSteo treatment?

> >

> > Sorry for the long long post.. I am just lost as to what I

should do

> > at this point. is 7 1/2 months old. I know I need to

decide

> > soon.

> >

> > Thanks,

> > MIchelle

> >

>

[Guest guest]

Thanks everyone for your replys and support. It is a hard decision

for me, but it seems everyone here thinks we should band. I am going

to let my hubby read your replys. I do have the appointment with Dr

Vicari at Chicago Childrens Hospital next month, and we are waiting

for pre-cert from insurance and going on vacation at very end of

month anyone, so I figure waiting 2 more weeks wont be the end of the

world so I can get one more opinion and measurements from Dr Vicari.

I hope the insurance will pay for the second opinion (Childrens WI,

and now Childrens Chicago) I am assuming CT doesnt count against my

insurance cause their eval was free. I wonder if ANYONE has banded

and regretted it.. or not banded and had the asymmetry fix on its

own.... maybe I will post that question.

Oh, I tried to post pics and had trouble. I will try again tomorrow.

If they post it will be under J. :-)

Thank you all again SOOO much. I have such trouble with decisions

lately....

>

> I now have two contradicting opinions and I dont know what to do...

>

> We had our consult earlier in the week at CT and they said he

> was " mild to moderate " and she said if we didnt do the band he

might

> get better and it prob wouldnt be very noticable once he had hair.

> She recommended the band, but did seem on the fence about it. He

has

> the facial asymmetry, so that helped with her recommending the band.

>

> Then, yesterday, we went to Childrens in Milwaulkee WI and saw

> the Physicians Assistant in Dr Jensens office. She said he doesnt

> need a band. Not really even close. Said his head was off a little,

> but not bad at all and repositioning as well as stretches (for the

> torticollis he has or doesnt have depending on who you talk to)

will

> help it even out. I asked her about his eyes/ears asymmetry and she

> said its not that bad and that will get better too. She said the

> brain is growing and the head is still growing and moving. I told

her

> what Cranial Tech said, but she still said she doesnt think he

needs

> it. Then again, she also said they only usually recommend

> banding/helmets for moderate to severe, and she said he is mild.

>

> So now I dont know what to do. CT already got the go ahead from

> s pediatrician. Thats funny, cause he's the guy that each

visit

> said it will take care of itself, dont worry, dont band. They faxed

> him the paperwork and had the prescription the next day. We havent

> even talked to him or seen him in a month..and I never told him we

> were going to CT. Wierd. Apparently the insurance will also cover

> it. They think at 100%. BUT...my husband, my MIL, my Mom, the

> Chiropractor, the Osteopath and the Cranialfacial clinic in

Wisconsin

> all say he doesnt need the band. The clinician CT " seemed " on the

> fence but said its prob still best, and I look at his head and

mostly

> his eyes and ears and can only pray that it would get better on its

> own. His head isnt the worst I guess, but his ears are off and his

> left eye is sligtly smaller looking and down/off to left more.

> Arrgghhh...

>

> So do I go against what most people think, or do I just trust it

will

> get better if so many say it will? Plus, he has mild torticollis,

and

> I have heard the weight of the band can make it worse.

>

> Here are the measurements I just got in the mail from CT:

>

> Cranial Width 123mm ~ mean

> Cranial Lenght 137mm ~ -2

> Cephalic Index 89.7 ~ +2

> Cranial Vault Asymmetry ~ 8mm

> Mid Face Asymmetry ~ 2mm

> Skull Base Asymmetry ~ 4mm

>

> And then at the bottom (fzR-euL)-(fzL-euR)= 6

>

> Not sure what that all means exactly, but what do you all think

about

> the banding. Especially since Childrens said dont. sees an

> Osteopath and Chiro (mentioned to you before I think). The Osteo

does

> Cranial Sacral manipulative Therapy on him. Gets the plates/bones

in

> his head moving the right way. I am wondering if the band would

> conteract or impede the work she would be doing by " holding " his

head

> a certain shape? She doesnt want him in a band either. Neither does

> the Chiropractor. Man, I feel like if I did band him I would be

going

> against almost everyone else. Maybe hes not that bad and I am just

> being paranoid. I have a really good eye for things that are off. I

> look at border in our house, or walls or pictures, and can tell if

> its off even slightly.

>

> We have an appointment I set up 2 weeks ago for an evaulation with

Dr

> Vicari at Childrens Glenview/Chicago. I was going to cancel, but

> maybe I will keep.

>

> So...what do you all think of his numbers? Should I band? Even with

> OSteo treatment?

>

> Sorry for the long long post.. I am just lost as to what I should

do

> at this point. is 7 1/2 months old. I know I need to decide

> soon.

>

> Thanks,

> MIchelle

>

[Guest guest]

I have heard of a few mom's who had problems with children adjusting

to the band - mostly due to allergies and skin problems. This is

pretty rare. Also from what I know nearly all of them wished that

their child had been able to wear the band, but it didn't work for

them. As for asymmetry correcting on its own, it does improve in some

cases, but certainly not always. There is a group called

OlderPlag where some parents will tell you they missed the chance to

band, and still see the problems that doctors said would go away on

its own. There are some who corrected enough that the parents are

okay with it.

Also for any mom you find who regrets banding, I would guess you would

find 100 that would do it again in an instant (like me). I know it is

tough to get used to the idea, but it is really no big deal after the

first few weeks. My daughter has been out of her band for over a year,

and it seems like she hardly wore it at all (even though it was 5 mo).

Good luck with the decision and enjoy your vacation.

-christine

sydney 2 yrs starband grad

> >

> > I now have two contradicting opinions and I dont know what to do...

> >

> > We had our consult earlier in the week at CT and they said he

> > was " mild to moderate " and she said if we didnt do the band he

> might

> > get better and it prob wouldnt be very noticable once he had hair.

> > She recommended the band, but did seem on the fence about it. He

> has

> > the facial asymmetry, so that helped with her recommending the band.

> >

> > Then, yesterday, we went to Childrens in Milwaulkee WI and saw

>

> > the Physicians Assistant in Dr Jensens office. She said he doesnt

> > need a band. Not really even close. Said his head was off a little,

> > but not bad at all and repositioning as well as stretches (for the

> > torticollis he has or doesnt have depending on who you talk to)

> will

> > help it even out. I asked her about his eyes/ears asymmetry and she

> > said its not that bad and that will get better too. She said the

> > brain is growing and the head is still growing and moving. I told

> her

> > what Cranial Tech said, but she still said she doesnt think he

> needs

> > it. Then again, she also said they only usually recommend

> > banding/helmets for moderate to severe, and she said he is mild.

> >

> > So now I dont know what to do. CT already got the go ahead from

> > s pediatrician. Thats funny, cause he's the guy that each

> visit

> > said it will take care of itself, dont worry, dont band. They faxed

> > him the paperwork and had the prescription the next day. We havent

> > even talked to him or seen him in a month..and I never told him we

> > were going to CT. Wierd. Apparently the insurance will also cover

> > it. They think at 100%. BUT...my husband, my MIL, my Mom, the

> > Chiropractor, the Osteopath and the Cranialfacial clinic in

> Wisconsin

> > all say he doesnt need the band. The clinician CT " seemed " on the

> > fence but said its prob still best, and I look at his head and

> mostly

> > his eyes and ears and can only pray that it would get better on its

> > own. His head isnt the worst I guess, but his ears are off and his

> > left eye is sligtly smaller looking and down/off to left more.

> > Arrgghhh...

> >

> > So do I go against what most people think, or do I just trust it

> will

> > get better if so many say it will? Plus, he has mild torticollis,

> and

> > I have heard the weight of the band can make it worse.

> >

> > Here are the measurements I just got in the mail from CT:

> >

> > Cranial Width 123mm ~ mean

> > Cranial Lenght 137mm ~ -2

> > Cephalic Index 89.7 ~ +2

> > Cranial Vault Asymmetry ~ 8mm

> > Mid Face Asymmetry ~ 2mm

> > Skull Base Asymmetry ~ 4mm

> >

> > And then at the bottom (fzR-euL)-(fzL-euR)= 6

> >

> > Not sure what that all means exactly, but what do you all think

> about

> > the banding. Especially since Childrens said dont. sees an

> > Osteopath and Chiro (mentioned to you before I think). The Osteo

> does

> > Cranial Sacral manipulative Therapy on him. Gets the plates/bones

> in

> > his head moving the right way. I am wondering if the band would

> > conteract or impede the work she would be doing by " holding " his

> head

> > a certain shape? She doesnt want him in a band either. Neither does

> > the Chiropractor. Man, I feel like if I did band him I would be

> going

> > against almost everyone else. Maybe hes not that bad and I am just

> > being paranoid. I have a really good eye for things that are off. I

> > look at border in our house, or walls or pictures, and can tell if

> > its off even slightly.

> >

> > We have an appointment I set up 2 weeks ago for an evaulation with

> Dr

> > Vicari at Childrens Glenview/Chicago. I was going to cancel, but

> > maybe I will keep.

> >

> > So...what do you all think of his numbers? Should I band? Even with

> > OSteo treatment?

> >

> > Sorry for the long long post.. I am just lost as to what I should

> do

> > at this point. is 7 1/2 months old. I know I need to decide

> > soon.

> >

> > Thanks,

> > MIchelle

> >

>