Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! So, before I suggest the protocol outlined by Nick, I would like to know: a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! Thank you for any assistance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 I just want to say that I commend you on your willingness to learn more for the benefit of your patients. Not many physicians are willing to do " their homework " for us. I want to address your second question. If it means I have to take 5 pills a day forever to avoid feeling the way I felt with Thyroid Resistance/blocked receptor sites I will do it. I don't think people understand how awful it really is. I am new on this journey but have to say that I cannot imagine what would happen to myself and many others were this information not provided to us via this group. If you are willing to learn and work with your patients, your practice will be bursting at the seams. Wishing you the best. > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hi there! First let me say I am overjoyed to have you here! And I applaud you coming to the patients for aid in dealing with this issue. We HAVE found some answers. I think the percentage of patients form this group has been abotu 80% that have felt better or maybe higher.There has only been a couple I know for certain stopped the protocol as they did not feel improvements. I am really not sure that T3 only is for life, but for soime of us it certainly is. I am Diabetic and have found some studies indicating even a slightly high Glucose can cause RT3 issues an maybe that is why my own readily returns when I try to go back to natural thyroid, BUT I can tell you this compared to how I felt for over 30 years of Syncrap, Armour and then Armoru & T3 I will take my four times a day doses with glee! LOL I think most of us here feel the same that the multi-dosing is a small price to pay for getting our lives and health back. It would be wonderful if they could manufacture a slow release product that actually worked, but I have not found it yet and I have tried 5 different kinds myself and heard from many on this group that the slow release did NOT work well for that had great results whe slowly ramping up the regular Cytomel or Cynomel form Mexico. Of the two people I know of that did well on SRT3, one was on 300mcg and the other 250mcg so that shows me the potency issues it has. http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://faqhelp.webs.com/ http://health.groups.yahoo.com/group/RT3_T3/ http://www.thyroid-rt3.com/ http://groups.yahoo.com/group/HypoPets/ http://artisticgrooming.net/ > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > > > > ------------------------------------ > > We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Yahoo! Groups Links > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hello I am so glad to see a physician here asking questions. Good for you! Well, basically, in my experience, I do take cytomel/T3 a few times a day. I think a patient can manage on dosing twice daily if the T3 dose is lower, but for resistance the dose tends to be higher, so I have to dose 4 times a day. It really does not bother me at all, particularly compared to the feeling of being exhausted due to the RT3. If you are using sustained release then you should not need to dose more than twice daily, right? One thing I have noticed in my own experience is that sustained release T3 simply does not work very well. I have seen other patients say the same thing here. It seems like if you use it, you need a much higher dose that you would with cytomel. I agree with Nick that it is often a life-long thing for some people. Maybe we just don't know enough about what causes it yet. I think that almost everyone who does the protocol feels better on it. Once the RT3 is no longer there blocking the active T3, then you feel more energy. It is basically like going from having very low thyroid levels to normal. It is pretty hard not to feel better. I also think T4 should be added very slowly. These are all just my observations as an RT3 patient and member of the board. I am not a moderator Good luck liz > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hi, wish you were my doctor, LOL. that would take away 90% of the stress, not having to build a case for myself to get support from my doctor. my physician tried to insist using srT3 to ward against palpitations and for the reason you mentioned, that people generally cannot be bothered with taking pills that often, and on such a strict schedule. but i said i was going to do it anyway, and by my next appointment he apologized and marvelled at my ability to remember to take all that t3 spread out. i understand where he is coming from, as it is nothing to take lightly, BUT as val said, i would pay that price 1,000times over to feel like i am alive again. i am week 15 on t3 only and i feel a million times better than i did before. I think though, that if you have other issues going on that demand to be rectified, this process sort of exposes those issues one by one.... so i cant say i have found my stopping point or that i feel 100%, but i would never go back. i am a 31 year old female and so many doctors told me i was too young to have issues and replace hormones, well tell that to my body that decided differently, lol! my doctor isnt necessarily a BAD one, he is just stuck on certain ideas that dont do me any good and i dont have the energy or finances to try to explain things to him in hopes he'll turn around. i need help at this point, not a dead weight. and since labwork out of pocket costs about as much as his appointments out of pocket, i just cut out the middle man. i would love to have a doctor though, along for this ride, so it warms my heart to see ones like you. so, thank you for researching, on behalf of all your patients!!!! warm regards, alexis > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Dr. Katygrippin: I would also like to HIGHLY commend you. I would give anything to have an open-minded, knowledgable, and supportive physician to be working and carefully experimenting with on my high RT3. RE: SRT3---Have you heard of the Holtorf Clinic in California? If not, they are a group of endocrinologists specializing in complex endocrine issues--especially high RT3. They are having success with SRT3 because they have their own compounders who have developed a compounding method that apparently works. People are flying from all over the world to their clinic to get RT3 help. Since you are a physician, you may be able to get the info and support you need from them on compounding SRT3 and patient compliance with this program. Here is their link: http://www.holtorfmed.com/ Val and Nick have amazing experience with RT3, the underlying causes, and the other associated health problems we get along with high RT3. I have been watching many members here under their guidance and protocol find success, and have seen no heart attacks or severe health problems ensue. I wish you all the success possible in your practice--we need more doctors like yourself! Warmly, Kate .. > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 What a nice surprise to see a physician here! Congratulations on your curiosity and your quest to benefit your patients. This forum is FULL of people who would love to have a willing and knowledgeable doctor to work with.I cannot speak for others, but I think taking meds four times a day is NOTHING! I have spent nearly a decade trying to restore my health, with many false paths and much misinformation. Clearing RT3 according to the guidelines on this forum was easy by comparison. I will happily dose 4x daily for the rest of my life because I so appreciate having my life back.I hope you will be able to spend some time reading all the posts here. You will be enlightened by the information, and discouraged when reading reports of some of your professional colleagues.Best wishes,AnnTo: RT3_T3 Sent: Wed, June 30, 2010 2:15:02 PMSubject: General results I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! So, before I suggest the protocol outlined by Nick, I would like to know: a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! Thank you for any assistance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 "I will happily dose 4x daily for the rest of my life because I so appreciate having my life back." ME TOO!!!!! There are so many people in this group that are so much better with a T3 only regimen and have no problem dosing 4-5 times a day in order to get their lives back! Glad to see an interested Physician aboard!! Subject: Re: General resultsTo: RT3_T3 Date: Wednesday, June 30, 2010, 8:37 PM What a nice surprise to see a physician here! Congratulations on your curiosity and your quest to benefit your patients. This forum is FULL of people who would love to have a willing and knowledgeable doctor to work with.I cannot speak for others, but I think taking meds four times a day is NOTHING! I have spent nearly a decade trying to restore my health, with many false paths and much misinformation. Clearing RT3 according to the guidelines on this forum was easy by comparison. I will happily dose 4x daily for the rest of my life because I so appreciate having my life back.I hope you will be able to spend some time reading all the posts here. You will be enlightened by the information, and discouraged when reading reports of some of your professional colleagues.Best wishes,Ann From: katygrippin <katygrippin@ yahoo.com>To: RT3_T3 (AT) yahoogroups (DOT) comSent: Wed, June 30, 2010 2:15:02 PMSubject: General results I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3!So, before I suggest the protocol outlined by Nick, I would like to know:a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day!Thank you for any assistance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Hi Katy, I have been on T3 only since Sept'08. Initially I dosed the T3 4-5 times a day. It took me 4 months to clear the Rt3 & I got to 140-150mcg Tertroxin in order to do that. Apparently according to the experience of this group Tertroxin is not as quite as potent as Cytomel or Cynomel. After clearing the Rt3 I have been on a dose between 80-100mcg T3. I need more in Winter than I do in Summer. Over the course of the next 12 months I had many improvements. Some immediate & some more gradual but continuing to improve. I was able to reduce my dosing frequency to 3 times a day & then to twice a day. I did try once a day dosing but that did not work well. Almost 2 years later I remain on twice daily dosing & it works very well for me I dose on waking & at bedtime & have always taken the T3 buccally. I also have Secondary Adrenal Insufficiency & am on steroids for that. I was on a relatively high dose of 10mg Prednisolone (40mg HC equiv) but use HC as required for stress dosing. Initially I had to dose Pred 3 times a day but was able to reduce that to twice a day too. I had improved so much after a year on T3 only over the course of 3 months I was able to gradually reduce my dose of Pred down to 7.5mg (30mg HC equiv). After 4 months on that dose I am again reducing my Pred dose as I feel myself a little over replaced due no doubt to a much more stable less stressed body. I do not hesitate to stress dose small amounts of HC (usually 4mg) as required which I do if I am very active or out for a long period of time. Thankfully I AM able to be a lot more active now. At my worst I slept 18-20 hours a day. I may change back to NTH at some point but I am not ready to try that quite yet. One reason I hesitate to do so is that in Australia the only NTH available is compounded & there seems to be real issues with compounded meds. After 10 nightmare years I am extremely happy with where I am now. I no longer need daily rx high dose pain meds for extreme Fibromyalgia & daily headaches. I don't have either anymore. I have been able to reduce ADD meds from 10 tabs a day to 3-4 a day & fully expect to be able to gradually reduce & stop altogether. I don't need constant antifungals for recurrent Candida, or antibiotics for recurrent Staph infections. I no longer have... -Hypoglycemia, -IBS -cea -constipation or diarreah -extreme insomnia (unable to sleep for up to 3-5 days at a time) -extreme sleepiness (slept up to 18-20 hours) -tachycardia -extremely reactive high BP spikes -brain fog so bad could not read a book or follow a movie plot -extreme light & noise sensitivity- -abdominal ascites,Fatty Liver & 2 suspect Liver Adenomas/Hemangiomas gone -very thickened Myxedemous skin significantly improved & continuing to do so -am able to do cooking, housework, yardwork, bookwork & now starting to want to go out & socialise It has taken a decade from when my health took a dramatic turn for the worse (following Gallbladder Surgery). Most of that time was spent getting properly tested & dxed. It's been 3 years since I started Thyroid meds & 2 & a bit years since I started Adrenal meds. So a lot of damage to undo but I am definitely getting there. (Not so) Lethal Lee > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Dr Katy...WELCOME! Glad to have you with us for all the reasons stated in the previous emails. ;-) Just a note on the Holtorf SRT3 compounding... I am being treated by a doctor at Holtorf. The SRT3 is both VERY expensive (and non-reimbursable by insurance) and MUCH weaker than Cynomel from Mexico. I switched about a month ago and am much happier with my treatment. Holtorf also is notorious for using an extreme hard-sell on their proprietary supplements (I paid $180 for one supplement 2 days ago). The doctor I am seeing also tried to sell me a " miracle weight loss cure " involving weekly injections and a 500-calorie per day diet. No thanks! While Dr. Holtorf himself is on the leading edge of this research, his associates are less knowledgeable, less compassionate, and less willing, in general, to listen to and work WITH patients. (My doctor refused to do tests for ferritin, electrolytes, and COMPLETE thyroid panels and is now saying that my TSH is too low at 0.2 and my T3 too high at 4.5 on 62.5 SRT3.) I'm afraid that other than treating RT3 with T3, for actual patients, it's just another sad story of endo's gone wrong! I am not planning to go back. > > Dr. Katygrippin: > > I would also like to HIGHLY commend you. I would give anything to have an open-minded, knowledgable, and supportive physician to be working and carefully experimenting with on my high RT3. > > RE: SRT3---Have you heard of the Holtorf Clinic in California? If not, they are a group of endocrinologists specializing in complex endocrine issues--especially high RT3. They are having success with SRT3 because they have their own compounders who have developed a compounding method that apparently works. People are flying from all over the world to their clinic to get RT3 help. > Since you are a physician, you may be able to get the info and support you need from them on compounding SRT3 and patient compliance with this program. Here is their link: > http://www.holtorfmed.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 I feel much better on T3 only. The multiple dosing does sometimes trip me up, but I just go back to it. Medicine dosing for anything can trip up a patient. I don't think that means that it should be abandoned. It's great to see a physician on here. I have had great difficulty getting a doctor to treat me for this condition. My medicare does not cover NDs, although in my state all the other insurances are required to cover them. Do you have any suggestions as to how to locate a physician who is willing to treat and is knowledgeable about this? I live on the East Side of Seattle. Thank you for any help you could give. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> Subject: Re: General resultsTo: RT3_T3 Date: Wednesday, June 30, 2010, 8:37 PM What a nice surprise to see a physician here! Congratulations on your curiosity and your quest to benefit your patients. This forum is FULL of people who would love to have a willing and knowledgeable doctor to work with.I cannot speak for others, but I think taking meds four times a day is NOTHING! I have spent nearly a decade trying to restore my health, with many false paths and much misinformation. Clearing RT3 according to the guidelines on this forum was easy by comparison. I will happily dose 4x daily for the rest of my life because I so appreciate having my life back.I hope you will be able to spend some time reading all the posts here. You will be enlightened by the information, and discouraged when reading reports of some of your professional colleagues.Best wishes,Ann From: katygrippin <katygrippin@ yahoo.com>To: RT3_T3 (AT) yahoogroups (DOT) comSent: Wed, June 30, 2010 2:15:02 PMSubject: General results I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3!So, before I suggest the protocol outlined by Nick, I would like to know:a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day!Thank you for any assistance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 I just had a thought. Since T3 is not bothereed by food, patients can take first dose upon waking, keep a tiny pill box with them for lunch and dinner dosing, and then before bed. I think new patients to T3 only are still trying to keep it away from food, which is not necessary now. Hope this helps. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> Subject: Re: General resultsTo: RT3_T3 Date: Thursday, July 1, 2010, 7:25 AM Hi Katy,I have been on T3 only since Sept'08. Initially I dosed the T3 4-5 times a day. It took me 4 months to clear the Rt3 & I got to 140-150mcg Tertroxin in order to do that. Apparently according to the experience of this group Tertroxin is not as quite as potent as Cytomel or Cynomel. After clearing the Rt3 I have been on a dose between 80-100mcg T3. I need more in Winter than I do in Summer.Over the course of the next 12 months I had many improvements. Some immediate & some more gradual but continuing to improve. I was able to reduce my dosing frequency to 3 times a day & then to twice a day. I did try once a day dosing but that did not work well. Almost 2 years later I remain on twice daily dosing & it works very well for me I dose on waking & at bedtime & have always taken the T3 buccally.I also have Secondary Adrenal Insufficiency & am on steroids for that.I was on a relatively high dose of 10mg Prednisolone (40mg HC equiv) but use HC as required for stress dosing. Initially I had to dose Pred 3 times a day but was able to reduce that to twice a day too. I had improved so much after a year on T3 only over the course of 3 months I was able to gradually reduce my dose of Pred down to 7.5mg (30mg HC equiv). After 4 months on that dose I am again reducing my Pred dose as I feel myself a little over replaced due no doubt to a much more stable less stressed body.I do not hesitate to stress dose small amounts of HC (usually 4mg) as required which I do if I am very active or out for a long period of time. Thankfully I AM able to be a lot more active now. At my worst I slept 18-20 hours a day.I may change back to NTH at some point but I am not ready to try that quite yet. One reason I hesitate to do so is that in Australia the only NTH available is compounded & there seems to be real issues with compounded meds.After 10 nightmare years I am extremely happy with where I am now.I no longer need daily rx high dose pain meds for extreme Fibromyalgia & daily headaches. I don't have either anymore. I have been able to reduce ADD meds from 10 tabs a day to 3-4 a day & fully expect to be able to gradually reduce & stop altogether. I don't need constant antifungals for recurrent Candida, or antibiotics for recurrent Staph infections.I no longer have...-Hypoglycemia, -IBS-cea -constipation or diarreah -extreme insomnia (unable to sleep for up to 3-5 days at a time)-extreme sleepiness (slept up to 18-20 hours)-tachycardia-extremely reactive high BP spikes-brain fog so bad could not read a book or follow a movie plot-extreme light & noise sensitivity--abdominal ascites,Fatty Liver & 2 suspect Liver Adenomas/Hemangiomas gone-very thickened Myxedemous skin significantly improved & continuing to do so-am able to do cooking, housework, yardwork, bookwork & now starting to want to go out & socialiseIt has taken a decade from when my health took a dramatic turn for the worse (following Gallbladder Surgery). Most of that time was spent getting properly tested & dxed. It's been 3 years since I started Thyroid meds & 2 & a bit years since I started Adrenal meds. So a lot of damage to undo but I am definitely getting there.(Not so) Lethal Lee>> I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3!> > So, before I suggest the protocol outlined by Nick, I would like to know:> a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance?> Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day!> > Thank you for any assistance.>------------------------------------We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 I personally do well dosing T3 3 times per day - with each meal. But if it meant taking it every 30 minutes to have my life back, I'd do it With most people using cell phones these days, perhaps you could encourage them to set alarms as medication reminders until it becomes a habit. Aren't there several diseases out there that require taking meds multiple times a day? I figure if those patients can do it, so can we. And we'd be happy to provide horror stories of what can happen for those who refuse...lol ~Rainbow~ 30 year old Female 5'6 " 139lbs Dx: Hashi's, AF, Wheat Sensitivity Rx/OTC: Cynomel 68.75mcg, HC 20mg, Florinef 1tab, Potassium 90mEq, Sea Salt 3/4tsp My Log and Labs: http://tinyurl.com/pvgjmb My Blog: http://hyporainbow.wordpress.com > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Dear Dr. I want to say a big THANK YOU for being here and learning what works for patients. There are so many of us that are forced to take our health into our own hands, paying out of pocket for blood work that would be covered by our insurance, but unable to get a doctor to write the order, and I'm sure that you have read, getting medications from other countries. In my experience with doctors, and there have been many - I can't get them to even perform a Reverse T3 test. I have no problem taking T3 meds 4 times a day. IMHO, I wonder if your patients are getting fatigued due to low ferritin or adrenal fatigue. Pati > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Yes, welcome indeed! I also have to comment on the Holtorf Clinic, as I have NOT heard positive reports nor success stories from patients who have gone. They have turned up on this and other forums angry about having been pressured to buy supplements from doctors and buy presciptions from their pharmacy that does not accept ANY insurance. There is a huge amount of hype surrounding the clinics, and people have spent big bucks there and have still not gotten well. Caveat emptor! Kerry > > > > Dr. Katygrippin: > > > > I would also like to HIGHLY commend you. I would give anything to have an open-minded, knowledgable, and supportive physician to be working and carefully experimenting with on my high RT3. > > > > RE: SRT3---Have you heard of the Holtorf Clinic in California? If not, they are a group of endocrinologists specializing in complex endocrine issues--especially high RT3. They are having success with SRT3 because they have their own compounders who have developed a compounding method that apparently works. People are flying from all over the world to their clinic to get RT3 help. > > Since you are a physician, you may be able to get the info and support you need from them on compounding SRT3 and patient compliance with this program. Here is their link: > > http://www.holtorfmed.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 I've noticed while I've been on this and other forums over the last 6 months that people who are on the sustained release T3 generally don't do nearly as well as those who aren't. Those who are on Cytomel and its generics are in the majority by far. I've had no problem dosing my T3 4x/day--never could go 5. I was couch bound before I found 's Thyroid/Adrenal site and this site. I was so brain fogged I couldn't think my way out of a paper bag, but I was motivated to get well! It took me some time to get my Ferritin up from 19. I'd worked on it for 6 months to no avail before finding the adrenal forum where they recommended 150-200 mg of Bluebonnet 27 mg Albion iron with C for absoption and it went up to 35 within 6 weeks. Completely non constipating and no stomach pain (I could do an ad for it, as you can tell!). I'm betting if you switched them to regular T3 they'd feel better as long as their Ferritin was at a decent level ( says 50 minimum, 70-90 optimum), but I started at 35 with 25 mcg (don't tell her). Kerry > > I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3! > > So, before I suggest the protocol outlined by Nick, I would like to know: > a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance? > Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day! > > Thank you for any assistance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Dr Katy count me also GLAD you're here ....because these senior group members are so unbelievably smart they sure beat the heck out of any endo I have been too in perhaps 33 years!!! and if you listen and learn from various ones " in the know " ..... you'll be way ahead in knowledge...and hopefully in health as well. many years ago I was a member of a 35 member group of volunteers to make decisions as a Homeless Family task force for Sacramento county CA .....to determine HOW to distribute and utilize a humungous money grant from the state and/or the feds. I LEARNED THERE .... that many heads (with earnest thinking ability) perfect the plans ......and as a result....the group IQ is much higher than any one person's IQ....because they EACH have different strengths and weaknesses...and together..... they accelerate progress....especially when members have a vested life-history of once being homeless, mostly through poor health. tHIS INFO THAT i GRADUALLY ACQUIRED through reading the responses of members various problems...has helped me immensely .....to improve my health ...;.....from being ready to go to a hospice...to where I am now...not completely well....but much imptroved......with hopes of continued improvement. ------- Original Message ------- From : kerry95959 Sent : 7/1/2010 5:52:12 PM To : RT3_T3 Cc : Subject : RE: Re: General results Yes, welcome indeed! I also have to comment on the Holtorf Clinic, as I have NOT heard positive reports nor success stories from patients who have gone. They have turned up on this and other forums angry about having been pressured to buy supplements from doctors and buy presciptions from their pharmacy that does not accept ANY insurance. There is a huge amount of hype surrounding the clinics, and people have spent big bucks there and have still not gotten well. Caveat emptor! Kerry > > > > Dr. Katygrippin: > > > > I would also like to HIGHLY commend you. I would give anything to have an open-minded, knowledgable, and supportive physician to be working and carefully experimenting with on my high RT3. > > > > RE: SRT3---Have you heard of the Holtorf Clinic in California? If not, they are a group of endocrinologists specializing in complex endocrine issues--especially high RT3. They are having success with SRT3 because they have their own compounders who have developed a compounding method that apparently works. People are flying from all over the world to their clinic to get RT3 help. > > Since you are a physician, you may be able to get the info and support you need from them on compounding SRT3 and patient compliance with this program. Here is their link: > > http://www.holtorfmed.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Kerry, how many of the bluebonnet 27 mg albion iron were you taking a day? Sharon Remember! Dolls are people, too....have you hugged your dolls today? Visit my website! http://ohyoubeautifuldoll.webs.com--- Subject: Re: General resultsTo: RT3_T3 Date: Thursday, July 1, 2010, 9:12 PM I've noticed while I've been on this and other forums over the last 6 months that people who are on the sustained release T3 generally don't do nearly as well as those who aren't. Those who are on Cytomel and its generics are in the majority by far.I've had no problem dosing my T3 4x/day--never could go 5. I was couch bound before I found 's Thyroid/Adrenal site and this site. I was so brain fogged I couldn't think my way out of a paper bag, but I was motivated to get well! It took me some time to get my Ferritin up from 19. I'd worked on it for 6 months to no avail before finding the adrenal forum where they recommended 150-200 mg of Bluebonnet 27 mg Albion iron with C for absoption and it went up to 35 within 6 weeks. Completely non constipating and no stomach pain (I could do an ad for it, as you can tell!). I'm betting if you switched them to regular T3 they'd feel better as long as their Ferritin was at a decent level ( says 50 minimum, 70-90 optimum), but I started at 35 with 25 mcg (don't tell her).Kerry>> I am a physician that has not had success trying to lower RT3 levels, and I just discovered this group. FYI I was using sustained-release T3 twice or three times a day, and was adding T4 back in when patients became incredibly fatigued. Most patients could not remember to take the second dose of T3!> > So, before I suggest the protocol outlined by Nick, I would like to know:> a) do you have any idea what percentage of patients actually feel better after overcoming RT3 resistance?> Nick implied that a T3 only regime is then for the long term...does that mean taking pills 5 times a day forever, if one cannot successfully switch back to natural thyroid, for eg.? > If so, I find it hard to believe that many patients could or would want to do that, given that I could not get them to take T3 twice a day!> > Thank you for any assistance.> Quote Link to comment Share on other sites More sharing options...
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