Re: New here and would love advice about torticollis and plagio

[Guest guest]

Here's my experience for treating my son's torticollis. at 5 month, 16

pounds and can already sit by himself, my son seldom look to the left

by himself, whenever I hold him, he will look at the right side and he

already sleeps to his right side too. We tried positioning, but no use

because he will IMMEDIATELY move to the right side back or cry!

One night, I decided to CO-SLEEP, having him sleep by my right side

and I hold him in my arm so that he sleep toward me at his left side.

I did this for 3 weeks and did some regular training like put all the

toys on his left side during the day, he responded amazingly well and

now I would say he is fully covered.

I hope this helps.

>

> Has anyone ever had a problem with their child not responding to

> therapy for torticollis? My 3 1/2 year old son was born with it but

> responded very well to the therapy. I'm now going through the same

> thing with my 4 mo. old daughter and she's extremely stubborn about

> it. She's already over 16 lbs and very strong for her age so she

> tenses up to the point that it's very difficult to turn her head and

> I'm afraid of hurting her. The physical therapist is telling me she

> thinks a helmet would be best for our daughter at this point because

> she will probably not stop sleeping on the left side of her head any

> time soon but our insurance does not cover it. I really had a

> difficult time getting Aetna to cover the helmet for my son and now

> the helmet place is telling me the our current insurance UHC doesn't

> cover the helmets at all. Anyone have any experience with this and

> how to get them to cover the helmet without me spending hours on the

> phone yelling at them? We don't see the plastic surgeon until the

> 22nd of this month but I have a feeling she is going to need the

> helmet and I'm dreading going through the whole process again. Any

> advice to make it easier this time around would be nice.

>

[Guest guest]

welcome to the group. I don't know about tort since my dd didn't have

it, but many babies do resist. As for UHC they are notorious for

denying,but do sometimes pay on appeal. I guess they figure most

people give up, and they save money.

the helmet process is really not bad. it takes parents much longer to

adjust than the babies. my dd wore a band from age 5 to 10 mo for

severe brachy and did great. it just becomes part of your routine. I

definitely am glad we did it.

-christine

sydney 2 yrs starband grad

>

> Has anyone ever had a problem with their child not responding to

> therapy for torticollis? My 3 1/2 year old son was born with it but

> responded very well to the therapy. I'm now going through the same

> thing with my 4 mo. old daughter and she's extremely stubborn about

> it. She's already over 16 lbs and very strong for her age so she

> tenses up to the point that it's very difficult to turn her head and

> I'm afraid of hurting her. The physical therapist is telling me she

> thinks a helmet would be best for our daughter at this point because

> she will probably not stop sleeping on the left side of her head any

> time soon but our insurance does not cover it. I really had a

> difficult time getting Aetna to cover the helmet for my son and now

> the helmet place is telling me the our current insurance UHC doesn't

> cover the helmets at all. Anyone have any experience with this and

> how to get them to cover the helmet without me spending hours on the

> phone yelling at them? We don't see the plastic surgeon until the

> 22nd of this month but I have a feeling she is going to need the

> helmet and I'm dreading going through the whole process again. Any

> advice to make it easier this time around would be nice.

>

[Guest guest]

We have UHC and were reimbursed 80% (which is what we thought we'd

get based on our policy). We were told the same thing...I think they

deny most people initially but a lot of people win on appeals.

Basically, you have to know your policy. If you email me

(lka_236@...) I will send you a copy of my successful appeal.

Your ped. can also write the prescription if you so desire. Good

luck.

>

> Has anyone ever had a problem with their child not responding to

> therapy for torticollis? My 3 1/2 year old son was born with it

but

> responded very well to the therapy. I'm now going through the

same

> thing with my 4 mo. old daughter and she's extremely stubborn

about

> it. She's already over 16 lbs and very strong for her age so she

> tenses up to the point that it's very difficult to turn her head

and

> I'm afraid of hurting her. The physical therapist is telling me

she

> thinks a helmet would be best for our daughter at this point

because

> she will probably not stop sleeping on the left side of her head

any

> time soon but our insurance does not cover it. I really had a

> difficult time getting Aetna to cover the helmet for my son and

now

> the helmet place is telling me the our current insurance UHC

doesn't

> cover the helmets at all. Anyone have any experience with this

and

> how to get them to cover the helmet without me spending hours on

the

> phone yelling at them? We don't see the plastic surgeon until the

> 22nd of this month but I have a feeling she is going to need the

> helmet and I'm dreading going through the whole process again.

Any

> advice to make it easier this time around would be nice.

>