Re: ct scan news, etc

[Guest guest]

Carmela I'm so glad you're getting some of the support you deserve! If they

won't do the CAT with the Val Salva, at least have them do it with

inspiration and expiration. Just about every place can do that even if

they're puzzled by the Val SAlva ( actually a Val Salva is just to take a

deep breath in and hold it and bear down as if you're going to have a bowel

movement -- of course you don't move but it increases the pressure inthe

chest). So it shouldn't be aproblem for them to do all of those really.

It's just like you say, for them to listen and take the time to understand.

Good luck! Mythoughts are with you (and the force too!)

Love

Carolyn

ct scan news, etc

> Hi all

>

> Here is my latest CT scan news, I'm having one done privately on Mon the

> 11th but also the hospital finally called me and gave me an appt for Jan.

I

> spoke to a technician wanting to clarify the procedure and asked if they

use

> the two breathing techniques suggested: Valsalva and Cineloop.. he said

that

> those two techniques are not used with CT scan but rather with x-ray

> swallowing a paste like substance.

>

> Anyway, he suggested that I can ask to speak to the radiologist when I go

in

> for the test and explain what my particular situation is and then go from

> there, since it is the radiologist who decides what kind of procedure to

> use, etc... I'm sure this is going to happen with my private CT scan test

on

> Monday also, but I'll be speaking to the radiologist and hope for the

best.

>

> Also on another note, I called the Employee Assistance we have here at the

> hospital and the consultant I spoke to was very nice. Although it's

> difficult to see her due to our conflicting schedules (she only works here

1

> day per week) she did ask what the problem was and I tried to explain as

> much as I could re: RP and everything that's been happening with my

health,

> I started getting emotional and she understood that it's potentially

serious

> and didn't press further... she is going to try to speak to some doctors

re

> this subject and she'll do what she can on her side... she mentioned

> speaking to a respirologist to get more info,.. I also mentioned the RP

> support group and was very impressed and happy I have a place to get the

> most recent info...however, I explained that having the doctors actually

> listen, believe and take me seriously is another problem.

>

> Which led her to mention that a friend of hers was once misdiagnosed and

> then eventually found out she had Lupus... so she suggested to find out if

> I've been tested for this, and if not, to do so... just in case... anyway,

I

> felt better having spoken with her and she will keep in touch with me by

> phone for now, until we can get together in person..

>

> that's it for now... hope everyone is having a good day... luv you all so

> much... I just want everyone to feel better and to see the light at the

end

> of this dark and scary tunnel

>

> Carmela

>

____________________________________________________________________________

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> Get more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

[Guest guest]

Thanks Carolyn

That's about all I could ask for... is to be listened to and try to

understand... I'll keep you posted.

luv

Carmela

*************************

>

>Reply-To: Rpolychondritis (AT) e

>To: Rpolychondritis (AT) e>

>Subject: Re: ct scan news, etc

>Date: Wed, 6 Dec 2000 10:46:46 -1000

>

>Carmela I'm so glad you're getting some of the support you deserve! If

>they

>won't do the CAT with the Val Salva, at least have them do it with

>inspiration and expiration. Just about every place can do that even if

>they're puzzled by the Val SAlva ( actually a Val Salva is just to take a

>deep breath in and hold it and bear down as if you're going to have a bowel

>movement -- of course you don't move but it increases the pressure inthe

>chest). So it shouldn't be aproblem for them to do all of those really.

>It's just like you say, for them to listen and take the time to understand.

>

>Good luck! Mythoughts are with you (and the force too!)

>Love

>Carolyn

> ct scan news, etc

>

>

> > Hi all

> >

> > Here is my latest CT scan news, I'm having one done privately on Mon the

> > 11th but also the hospital finally called me and gave me an appt for

>Jan.

>I

> > spoke to a technician wanting to clarify the procedure and asked if they

>use

> > the two breathing techniques suggested: Valsalva and Cineloop.. he said

>that

> > those two techniques are not used with CT scan but rather with x-ray

> > swallowing a paste like substance.

> >

> > Anyway, he suggested that I can ask to speak to the radiologist when I

>go

>in

> > for the test and explain what my particular situation is and then go

>from

> > there, since it is the radiologist who decides what kind of procedure to

> > use, etc... I'm sure this is going to happen with my private CT scan

>test

>on

> > Monday also, but I'll be speaking to the radiologist and hope for the

>best.

> >

> > Also on another note, I called the Employee Assistance we have here at

>the

> > hospital and the consultant I spoke to was very nice. Although it's

> > difficult to see her due to our conflicting schedules (she only works

>here

>1

> > day per week) she did ask what the problem was and I tried to explain as

> > much as I could re: RP and everything that's been happening with my

>health,

> > I started getting emotional and she understood that it's potentially

>serious

> > and didn't press further... she is going to try to speak to some doctors

>re

> > this subject and she'll do what she can on her side... she mentioned

> > speaking to a respirologist to get more info,.. I also mentioned the RP

> > support group and was very impressed and happy I have a place to get the

> > most recent info...however, I explained that having the doctors actually

> > listen, believe and take me seriously is another problem.

> >

> > Which led her to mention that a friend of hers was once misdiagnosed and

> > then eventually found out she had Lupus... so she suggested to find out

>if

> > I've been tested for this, and if not, to do so... just in case...

>anyway,

>I

> > felt better having spoken with her and she will keep in touch with me by

> > phone for now, until we can get together in person..

> >

> > that's it for now... hope everyone is having a good day... luv you all

>so

> > much... I just want everyone to feel better and to see the light at the

>end

> > of this dark and scary tunnel

> >

> > Carmela

> >

>____________________________________________________________________________

>_________

> > Get more from the Web. FREE MSN Explorer download :

>http://explorer.msn.com

> >

> >

> >

> > DISCLAIMER!!

> > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

>RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

>BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

>PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

>TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

> >

>

________________________________________________________________________________\

_____

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com