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Hi group:

Haven't been connected to the group in a long time and miss corresponding

with you all.

I have been taking Enbril for the last four months and it seems to be helping

the side effects are less than when I took Methotrexate. However, I have

had a new problem and I am wondering if others with RP have experienced

this.

I have had lung involvement for the past year and half. I gradually become

short of breath over a period of a week or so. I cough, etc., but it comes on

gradually.

Last Saturday night I was breathing fine and all of a sudden I started

coughing, that barking coughing and within 15 minutes or so I was having a

hard time breathing. I took 60 mg of prednisone and it helped within an hour

or so. My question is, has anyone else with RP had the lung symptoms come on

so fast.

Thanks hope someone will be able to help.

Donna from CA

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Hi group:

Haven't been connected to the group in a long time and miss corresponding

with you all.

I have been taking Enbril for the last four months and it seems to be helping

the side effects are less than when I took Methotrexate. However, I have

had a new problem and I am wondering if others with RP have experienced

this.

I have had lung involvement for the past year and half. I gradually become

short of breath over a period of a week or so. I cough, etc., but it comes on

gradually.

Last Saturday night I was breathing fine and all of a sudden I started

coughing, that barking coughing and within 15 minutes or so I was having a

hard time breathing. I took 60 mg of prednisone and it helped within an hour

or so. My question is, has anyone else with RP had the lung symptoms come on

so fast.

Thanks hope someone will be able to help.

Donna from CA

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Hi group:

Haven't been connected to the group in a long time and miss corresponding

with you all.

I have been taking Enbril for the last four months and it seems to be helping

the side effects are less than when I took Methotrexate. However, I have

had a new problem and I am wondering if others with RP have experienced

this.

I have had lung involvement for the past year and half. I gradually become

short of breath over a period of a week or so. I cough, etc., but it comes on

gradually.

Last Saturday night I was breathing fine and all of a sudden I started

coughing, that barking coughing and within 15 minutes or so I was having a

hard time breathing. I took 60 mg of prednisone and it helped within an hour

or so. My question is, has anyone else with RP had the lung symptoms come on

so fast.

Thanks hope someone will be able to help.

Donna from CA

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Oh Donna, so good to hear from you girlfriend. How's the ocean?????

I'm sorry I can't help with your question, I have SOB but no real breathing

or coughing problems. I'm sure there will be input from the rest, I just had

to respond because it's so good to hear from you again. Glad you are having

some improvement with the Enbrel. I'm going to ask to come off the metho

next week, doing no good.

Hope all is well at your house, and again really missed you and glad to hear

from you.

Hugs

C

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Hi ,

It feels good to be back with the group. I needed to take a break as I needed

time to adjust to being a person who is sick often.

The weather here has been like fall. Most days are close to the 60s.

I was on the Methotrexate for over a year and I think that it helped

me

but I was always tired. The Enbril doesn't affect me so bad. I'm lucky to

have

insurance to pay as it cost almost $200.00 per injection. I take 2

injections per week.

Stay in touch,

Donna CA

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