New to this Group and Plagiocephaly

[Guest guest]

HI!!! I am very afraid that my daughter might have Plagio. At her

2mos 'well baby' visit the Ped said 'it's not too bad' and left it at

that. Now she is almost 4mos and I think it REALLY needs to be

evaluated by a Specialist. My insurance does not require referrals,

so I am going to take her to see someone regardless of what the Ped

says - Mom's always know, right??

What type of Specialist should I be looking for? Is it Pediatric

Neurology? I am already so confused about " who " she should be seeing -

I am so anxious about this and am so afraid we're somehow to blame

for this happening to her, although even at birth her right ear seemed

a little " off " - which is still the issue now - plus now the back of

her head is pretty flat too. UGH - the stress. My son had 'none' of

these problems, but I still feel so guilty that I've done something

wrong.

ANY help anyone here can give me would be GREATLY GREATLY APPRECIATED.

THANK YOU THANK YOU THANK YOU

[Guest guest]

this sounds so much like the experience i've been through! at my daughter's 2 mo check-up, it was noticed, but ped said it wasn't bad. At 4 mos, not better and I began aggressive repositioning. yes, mom's know. trust yourself. i took my daughter to CT for an eval, went to a neurosurgeon to rule out craniosyntosis sp?, and began cranial sacral therapy. she is not banded, repositioning is working for us. my older daughter did not have any issues, my baby has tort and plagio. she grew too big in me, and also had shoulder dystocia at birth. i have struggled a lot with guilt and wondering what i could have done. please email me offline if you want to chat more. Jenhomedmp <homedmp@...> wrote: HI!!! I am very afraid that my daughter might have Plagio. At her 2mos 'well baby' visit the Ped said 'it's not too bad' and left it at that. Now she is almost 4mos and I think it REALLY needs to be evaluated by a Specialist. My insurance does not require referrals, so I am going to take her to see someone regardless of what the Ped says - Mom's always know, right??What type of Specialist should I be looking for? Is it Pediatric Neurology? I am already so confused about "who" she should be seeing -I am so anxious about this and am so afraid we're somehow to blame for this happening to her, although even at birth her right ear

seemed a little "off" - which is still the issue now - plus now the back of her head is pretty flat too. UGH - the stress. My son had 'none' of these problems, but I still feel so guilty that I've done something wrong.ANY help anyone here can give me would be GREATLY GREATLY APPRECIATED.THANK YOU THANK YOU THANK YOU

[Guest guest]

Hello and welcome to the group. Your sitution sounds like ours. At 2

mo we were told " don't worry " at 4 mo she said " well I think it is

okay, but I'll refer you just in case " (my daughter's head was

considered severe brachy). we saw a cranio facial plastic surgeon -

who dealt with plagio/brachy a lot. I've heard plastic surgeons are

more open to banding that neurosurgeons (who sometimes just want to

rule out premature fusion of the skull).

Let us know what happens next.

-christine

sydney 2 yrs starband grad

>

> HI!!! I am very afraid that my daughter might have Plagio. At her

> 2mos 'well baby' visit the Ped said 'it's not too bad' and left it at

> that. Now she is almost 4mos and I think it REALLY needs to be

> evaluated by a Specialist. My insurance does not require referrals,

> so I am going to take her to see someone regardless of what the Ped

> says - Mom's always know, right??

>

> What type of Specialist should I be looking for? Is it Pediatric

> Neurology? I am already so confused about " who " she should be seeing -

> I am so anxious about this and am so afraid we're somehow to blame

> for this happening to her, although even at birth her right ear seemed

> a little " off " - which is still the issue now - plus now the back of

> her head is pretty flat too. UGH - the stress. My son had 'none' of

> these problems, but I still feel so guilty that I've done something

> wrong.

>

> ANY help anyone here can give me would be GREATLY GREATLY APPRECIATED.

>

> THANK YOU THANK YOU THANK YOU

>

[Guest guest]

We went to CT and had them fax over their measurements to our ped.

Then based on that, I called our ped. and said that we really wanted

to band and that CT faxed over measurements. He wrote the

prescription to band that day. We didn't see any

other 'specialist.' I completely trusted CT's input and was fine

with not seeing a neurosurgeon or another doctor. Good luck.

> >

> > HI!!! I am very afraid that my daughter might have Plagio. At

her

> > 2mos 'well baby' visit the Ped said 'it's not too bad' and left

it at

> > that. Now she is almost 4mos and I think it REALLY needs to be

> > evaluated by a Specialist. My insurance does not require

referrals,

> > so I am going to take her to see someone regardless of what the

Ped

> > says - Mom's always know, right??

> >

> > What type of Specialist should I be looking for? Is it

Pediatric

> > Neurology? I am already so confused about " who " she should be

seeing -

> > I am so anxious about this and am so afraid we're somehow to

blame

> > for this happening to her, although even at birth her right ear

seemed

> > a little " off " - which is still the issue now - plus now the

back of

> > her head is pretty flat too. UGH - the stress. My son

had 'none' of

> > these problems, but I still feel so guilty that I've done

something

> > wrong.

> >

> > ANY help anyone here can give me would be GREATLY GREATLY

APPRECIATED.

> >

> > THANK YOU THANK YOU THANK YOU

> >

>