Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Chuck- Yeah, the symptoms are what concerns me ... or rather things I would like to see improve: easily fatigued, shortness of breath (like pretty bad lol), dizziness (pretty bad too), weird curves in my nails ... Peace, --- Chuck B <gumboyaya@...> wrote: > , > > You wrote: > > > > My ferritin was a 14 and I think that the scale is > > like 11 - 100 something? My doctor said that that > was > > kinda low but that all the receptor type things > were > > full so it seemed okay. ... do you think there is > something to this? > > Unless you have other clear indications of anemia, > low ferritin is > actually healthy. High serum iron levels have been > associated with risks > for cardiac disease. > > Chuck > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 , Anemia can do all those things, but so do a lot of other conditions or combinations. Chuck >.... or rather > things I would like to see improve: easily fatigued, > shortness of breath (like pretty bad lol), dizziness > (pretty bad too), weird curves in my nails ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 , ferritin should be at least 70. Really really really. Sam (thyroidless since 1990) > > > > > > My ferritin was a 14 and I think that the scale is > > > like 11 - 100 something? My doctor said that that > > was > > > kinda low but that all the receptor type things > > were > > > full so it seemed okay. ... do you think there is > > something to this? > > > > Unless you have other clear indications of anemia, > > low ferritin is > > actually healthy. High serum iron levels have been > > associated with risks > > for cardiac disease. > > > > Chuck > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 HI Sam, How would one get their ferritin up? I think mine was at 40 or something like that. Thanks!! ;0) Sam <k9gang@...> wrote: , ferritin should be at least 70. Really really really. Sam (thyroidless since 1990) > > > > > > My ferritin was a 14 and I think that the scale is > > > like 11 - 100 something? My doctor said that that > > was > > > kinda low but that all the receptor type things > > were > > > full so it seemed okay. ... do you think there is > > something to this? > > > > Unless you have other clear indications of anemia, > > low ferritin is > > actually healthy. High serum iron levels have been > > associated with risks > > for cardiac disease. > > > > Chuck > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I would agree with Sam on this. My doc ( in fact two of them - GYN and thyroid doc) indicated that docs want to see this level at least at 70, even though the lab range is below that. If you are a menstruating woman - this will mean constant supervision of that number to keep it at the 70 level . Dusty Re: Re: Irony HI Sam, How would one get their ferritin up? I think mine was at 40 or something like that. Thanks!! ;0) Sam <k9gangopenaccess (DOT) <mailto:k9gang%40openaccess.org> org> wrote: , ferritin should be at least 70. Really really really. Sam (thyroidless since 1990) > > > > > > My ferritin was a 14 and I think that the scale is > > > like 11 - 100 something? My doctor said that that > > was > > > kinda low but that all the receptor type things > > were > > > full so it seemed okay. ... do you think there is > > something to this? > > > > Unless you have other clear indications of anemia, > > low ferritin is > > actually healthy. High serum iron levels have been > > associated with risks > > for cardiac disease. > > > > Chuck > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Dusty and Sam- That is what I thought. I've heard that before and my Mom has low iron too. Should I pursue this? Thanks for the input! Peace, --- Dusty <dusty@...> wrote: > I would agree with Sam on this. My doc ( in fact > two of them - GYN and > thyroid doc) indicated that docs want to see this > level at least at 70, even > though the lab range is below that. If you are a > menstruating woman - this > will mean constant supervision of that number to > keep it at the 70 level . > > Dusty > > > Re: Re: Irony > > > > HI Sam, > How would one get their ferritin up? I think mine > was at 40 or something > like that. > > Thanks!! > ;0) > > > Sam <k9gangopenaccess (DOT) > <mailto:k9gang%40openaccess.org> org> wrote: > , ferritin should be at least 70. > Really really really. > > Sam > (thyroidless since 1990) > > > > > > > > > > My ferritin was a 14 and I think that the > scale is > > > > like 11 - 100 something? My doctor said that > that > > > was > > > > kinda low but that all the receptor type > things > > > were > > > > full so it seemed okay. ... do you think there > is > > > something to this? > > > > > > Unless you have other clear indications of > anemia, > > > low ferritin is > > > actually healthy. High serum iron levels have > been > > > associated with risks > > > for cardiac disease. > > > > > > Chuck > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 My doc suggested I get OTC Slo-Fe (walmart - very cheap). In order not to get bowel or tummy troubles, I started out taking every other day till I knew I was okay and then started taking regularly. Got retested in 2 months or so - was finally at 65, then 4 months after than was 101! I now take about 3 x per week. Dusty Re: Re: Irony > > > > HI Sam, > How would one get their ferritin up? I think mine > was at 40 or something > like that. > > Thanks!! > ;0) > > > Sam <k9gangopenaccess (DOT) > <mailto:k9gang%40openaccess.org> org> wrote: > , ferritin should be at least 70. > Really really really. > > Sam > (thyroidless since 1990) > > > > > > > > > > My ferritin was a 14 and I think that the > scale is > > > > like 11 - 100 something? My doctor said that > that > > > was > > > > kinda low but that all the receptor type > things > > > were > > > > full so it seemed okay. ... do you think there > is > > > something to this? > > > > > > Unless you have other clear indications of > anemia, > > > low ferritin is > > > actually healthy. High serum iron levels have > been > > > associated with risks > > > for cardiac disease. > > > > > > Chuck > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile. <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> /;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Dusty- I will deffinitely check that out, thanks so much! Peace, --- Dusty <dusty@...> wrote: > My doc suggested I get OTC Slo-Fe (walmart - very > cheap). In order not to > get bowel or tummy troubles, I started out taking > every other day till I > knew I was okay and then started taking regularly. > Got retested in 2 > months or so - was finally at 65, then 4 months > after than was 101! I now > take about 3 x per week. > > Dusty > > > > Re: Re: Irony > > > > > > > > HI Sam, > > How would one get their ferritin up? I think mine > > was at 40 or something > > like that. > > > > Thanks!! > > ;0) > > > > > > Sam <k9gangopenaccess (DOT) > > <mailto:k9gang%40openaccess.org> org> wrote: > > , ferritin should be at least 70. > > Really really really. > > > > Sam > > (thyroidless since 1990) > > > > > > > > > > > > > > My ferritin was a 14 and I think that the > > scale is > > > > > like 11 - 100 something? My doctor said that > > that > > > > was > > > > > kinda low but that all the receptor type > > things > > > > were > > > > > full so it seemed okay. ... do you think > there > > is > > > > something to this? > > > > > > > > Unless you have other clear indications of > > anemia, > > > > low ferritin is > > > > actually healthy. High serum iron levels have > > been > > > > associated with risks > > > > for cardiac disease. > > > > > > > > Chuck > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile. > <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > /;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Thanks Dusty, I think you already gave this to me, but my brain fog kicked into high gear!! AGGGHHH. I am printing off the brand, and will check it out too. Thanks! Bradin <ebradi3951@...> wrote: Dusty- I will deffinitely check that out, thanks so much! Peace, --- Dusty <dusty@...> wrote: > My doc suggested I get OTC Slo-Fe (walmart - very > cheap). In order not to > get bowel or tummy troubles, I started out taking > every other day till I > knew I was okay and then started taking regularly. > Got retested in 2 > months or so - was finally at 65, then 4 months > after than was 101! I now > take about 3 x per week. > > Dusty > > > > Re: Re: Irony > > > > > > > > HI Sam, > > How would one get their ferritin up? I think mine > > was at 40 or something > > like that. > > > > Thanks!! > > ;0) > > > > > > Sam <k9gangopenaccess (DOT) > > <mailto:k9gang%40openaccess.org> org> wrote: > > , ferritin should be at least 70. > > Really really really. > > > > Sam > > (thyroidless since 1990) > > > > > > > > > > > > > > My ferritin was a 14 and I think that the > > scale is > > > > > like 11 - 100 something? My doctor said that > > that > > > > was > > > > > kinda low but that all the receptor type > > things > > > > were > > > > > full so it seemed okay. ... do you think > there > > is > > > > something to this? > > > > > > > > Unless you have other clear indications of > > anemia, > > > > low ferritin is > > > > actually healthy. High serum iron levels have > > been > > > > associated with risks > > > > for cardiac disease. > > > > > > > > Chuck > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile. > <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > /;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Thanks Dusty, I think you already gave this to me, but my brain fog kicked into high gear!! AGGGHHH. I am printing off the brand, and will check it out too. Thanks! Bradin <ebradi3951@...> wrote: Dusty- I will deffinitely check that out, thanks so much! Peace, --- Dusty <dusty@...> wrote: > My doc suggested I get OTC Slo-Fe (walmart - very > cheap). In order not to > get bowel or tummy troubles, I started out taking > every other day till I > knew I was okay and then started taking regularly. > Got retested in 2 > months or so - was finally at 65, then 4 months > after than was 101! I now > take about 3 x per week. > > Dusty > > > > Re: Re: Irony > > > > > > > > HI Sam, > > How would one get their ferritin up? I think mine > > was at 40 or something > > like that. > > > > Thanks!! > > ;0) > > > > > > Sam <k9gangopenaccess (DOT) > > <mailto:k9gang%40openaccess.org> org> wrote: > > , ferritin should be at least 70. > > Really really really. > > > > Sam > > (thyroidless since 1990) > > > > > > > > > > > > > > My ferritin was a 14 and I think that the > > scale is > > > > > like 11 - 100 something? My doctor said that > > that > > > > was > > > > > kinda low but that all the receptor type > > things > > > > were > > > > > full so it seemed okay. ... do you think > there > > is > > > > something to this? > > > > > > > > Unless you have other clear indications of > > anemia, > > > > low ferritin is > > > > actually healthy. High serum iron levels have > > been > > > > associated with risks > > > > for cardiac disease. > > > > > > > > Chuck > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile. > <http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > /;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Feosol seems to be a supplement that works fine. Sam > > > > > > > > My ferritin was a 14 and I think that the scale is > > > > like 11 - 100 something? My doctor said that that > > > was > > > > kinda low but that all the receptor type things > > > were > > > > full so it seemed okay. ... do you think there is > > > something to this? > > > > > > Unless you have other clear indications of anemia, > > > low ferritin is > > > actually healthy. High serum iron levels have been > > > associated with risks > > > for cardiac disease. > > > > > > Chuck > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Yes, I wish there was more information about long term developmental effects. I saw one small study that found 40% of boys with plagio present at birth required some type of special educational services (speech, etc.) once they were school age. (My own son was born with plagio/tort) My son hasn't had a single ear infection. He's only 8 months and has been banded 6 weeks. I'm in the process of weening him but now I'm wondering if I should hold off..? Also, I was told by the orthotist that my son's ear position wouldn't improve much if at all. Did you see a big change in your boy's ears? > > OK, I will first admit that I ap my children so I lay with kids until they > fall asleep and if they wake up in the night so sometimes I am laying around > waiting with nothing to do so I think about weird things if nothing else is > on my mind lol. I especially like little quirky isn't that weirds > > So here are my 2 for today as both pertain to Plagio. I wonder how ironic > it is that my only very late talker was my only plagio baby. There are so > little studies done and the few done are small scale and there are even > different ways plagio effects a child that would have to be taken into > account to do a study on everything. But in the few bits of reading it > talks about effecting ear and jaw but more implies fluid/ear infections. > Well my Plagio baby had Plagio pretty much from birth. Hearing tested fine > at birth, never tested after that but he passes all the milestones to assume > he doesn't have a hearing problem or at least not a chronic one. Yet all my > other children have said their 1st at least 3 words by their 1st bday. > said no words at 12 mo, no words at 15 mo even. He was banded from 9-12 mo > and had severe ear assymetry. > > But an interesting OTOH, he did not have a single ear issue before he was > banded. He didn't get his 1st ear infection until 15 mo (my 2nd got her 1st > at 6 mo, my 3rd at 5 mo and both by his age had had severel), so post band. > It was a bad double ear infection and now we are not even sure it went > completely away b/c it has been a month and he has a severe double ear > infection. As irony has it though, it was during the antibiotics from the > 1st one that he finally started talking. Of course this makes me wonder if > he has had fluid in the inner ear at all prior to this since that is not > something we would be able to know without testing for it and it would > effect speech. Which of course led me to, if it was in the inner ear and > now that we have straitened his ears has it somehow effected drainage so > that instead it is now in the middle ear thus causing ear infections? Even > with now knowing some words it isnt like my other kids learned words. His > are not comprehendable really, except mama. Not that my other kids spoke > perfectly, my 2nd had a lot of articulation issues. But most ppl could > guess what they were saying, I do not think anyone but me could guess what > he says except mama. dada was comprehendable too but he has said it less > than a handful of times and I havent heard it in weeks. But his other words > are weird. he says a sound like " oosch " which is " shoes " then he says a > sound like " eesch " which is cheese or keys depending on the context. then > he says the long i sound which is what he says for hi and bye. even more > interesting he also finally started signing at that time, signing dog and > fish and again he should have signed well before a year. > > Really makes you wonder > > Of course what I really believe is that the ear infections are due to a > lessening of his immune system and immunities b/c he stopped breastfeeding > at 14 mo, 1st ear infection within a month. But still interesting looking > and wondering about if Plagio can play any role > > > -- > SC SAHM to , , , , and what should we name our > baby girl? > > " We worry about what a child will become tomorrow, yet we forget that he is > someone today. " ~Stacia Tauscher > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 we were told by Hanger that they never see an improvement in ear assymetry but that was our main concern so we talked to CT which said it was harder to correct b/c it involves the smaller bones in the skull base but that you most certainly can get correction w/ a docband (not working w/ a hanger band she couldnt comment on it) so we opted to go w/ that instead and we did see a huge improvement in his ears as for weaning, of course the longer they get the immunities the better so by weaning you do run the risk of him getting sick but they also have to wean sooner or later. I dont know if i would want to risk it while in the band though but you gotta weigh the pros and cons On Wed, Mar 26, 2008 at 12:23 PM, sarah.watanabe <sarah.watanabe@...> wrote: Yes, I wish there was more information about long term developmental effects. I saw one small study that found 40% of boys with plagio present at birth required some type of special educational services (speech, etc.) once they were school age. (My own son was born with plagio/tort) My son hasn't had a single ear infection. He's only 8 months and has been banded 6 weeks. I'm in the process of weening him but now I'm wondering if I should hold off..? Also, I was told by the orthotist that my son's ear position wouldn't improve much if at all. Did you see a big change in your boy's ears? >> OK, I will first admit that I ap my children so I lay with kids until they > fall asleep and if they wake up in the night so sometimes I am laying around> waiting with nothing to do so I think about weird things if nothing else is> on my mind lol. I especially like little quirky isn't that weirds > > So here are my 2 for today as both pertain to Plagio. I wonder how ironic> it is that my only very late talker was my only plagio baby. There are so> little studies done and the few done are small scale and there are even > different ways plagio effects a child that would have to be taken into> account to do a study on everything. But in the few bits of reading it> talks about effecting ear and jaw but more implies fluid/ear infections. > Well my Plagio baby had Plagio pretty much from birth. Hearing tested fine> at birth, never tested after that but he passes all the milestones to assume> he doesn't have a hearing problem or at least not a chronic one. Yet all my > other children have said their 1st at least 3 words by their 1st bday. > said no words at 12 mo, no words at 15 mo even. He was banded from 9-12 mo> and had severe ear assymetry.> > But an interesting OTOH, he did not have a single ear issue before he was > banded. He didn't get his 1st ear infection until 15 mo (my 2nd got her 1st> at 6 mo, my 3rd at 5 mo and both by his age had had severel), so post band.> It was a bad double ear infection and now we are not even sure it went > completely away b/c it has been a month and he has a severe double ear> infection. As irony has it though, it was during the antibiotics from the> 1st one that he finally started talking. Of course this makes me wonder if > he has had fluid in the inner ear at all prior to this since that is not> something we would be able to know without testing for it and it would> effect speech. Which of course led me to, if it was in the inner ear and > now that we have straitened his ears has it somehow effected drainage so> that instead it is now in the middle ear thus causing ear infections? Even> with now knowing some words it isnt like my other kids learned words. His > are not comprehendable really, except mama. Not that my other kids spoke> perfectly, my 2nd had a lot of articulation issues. But most ppl could> guess what they were saying, I do not think anyone but me could guess what > he says except mama. dada was comprehendable too but he has said it less> than a handful of times and I havent heard it in weeks. But his other words> are weird. he says a sound like " oosch " which is " shoes " then he says a > sound like " eesch " which is cheese or keys depending on the context. then> he says the long i sound which is what he says for hi and bye. even more> interesting he also finally started signing at that time, signing dog and > fish and again he should have signed well before a year.> > Really makes you wonder> > Of course what I really believe is that the ear infections are due to a> lessening of his immune system and immunities b/c he stopped breastfeeding > at 14 mo, 1st ear infection within a month. But still interesting looking> and wondering about if Plagio can play any role> > > -- > SC SAHM to , , , , and what should we name our > baby girl?> > " We worry about what a child will become tomorrow, yet we forget that he is> someone today. " ~Stacia Tauscher> -- SC SAHM to , , , , and what should we name our baby girl? " We worry about what a child will become tomorrow, yet we forget that he is someone today. " ~Stacia Tauscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 , I've been on this site for a couple of months now and never written yet because I wasn't sure really what to say because I'd never even heard of plagio until just recently, I've never been on a group before but your story moved me to speak. My son is 8months old and will go for his first visit for a DOC band in New Jersey tommorow with someone named Pervi. Strangly enough he is going for a hearing test next week because although we know he hears how well is in question. At times he hears the smallest noises but at other times its almost like he hears very little. He's had 3 ear infections since he was born one a very serious double infection that was very hard to clear up. I do find irony in it and will for sure mention it to my ped next week when we go for the test. I'd love to hear more on any info you found on this subject. -C Detlefs Very Happy SAHM to , Anne, and " Sharing a life with children is sharing a life with lovers,explorers,scientists,pirates,poets. It makes for interesting mornings. " -AG > > OK, I will first admit that I ap my children so I lay with kids until they > fall asleep and if they wake up in the night so sometimes I am laying around > waiting with nothing to do so I think about weird things if nothing else is > on my mind lol. I especially like little quirky isn't that weirds > > So here are my 2 for today as both pertain to Plagio. I wonder how ironic > it is that my only very late talker was my only plagio baby. There are so > little studies done and the few done are small scale and there are even > different ways plagio effects a child that would have to be taken into > account to do a study on everything. But in the few bits of reading it > talks about effecting ear and jaw but more implies fluid/ear infections. > Well my Plagio baby had Plagio pretty much from birth. Hearing tested fine > at birth, never tested after that but he passes all the milestones to assume > he doesn't have a hearing problem or at least not a chronic one. Yet all my > other children have said their 1st at least 3 words by their 1st bday. > said no words at 12 mo, no words at 15 mo even. He was banded from 9-12 mo > and had severe ear assymetry. > > But an interesting OTOH, he did not have a single ear issue before he was > banded. He didn't get his 1st ear infection until 15 mo (my 2nd got her 1st > at 6 mo, my 3rd at 5 mo and both by his age had had severel), so post band. > It was a bad double ear infection and now we are not even sure it went > completely away b/c it has been a month and he has a severe double ear > infection. As irony has it though, it was during the antibiotics from the > 1st one that he finally started talking. Of course this makes me wonder if > he has had fluid in the inner ear at all prior to this since that is not > something we would be able to know without testing for it and it would > effect speech. Which of course led me to, if it was in the inner ear and > now that we have straitened his ears has it somehow effected drainage so > that instead it is now in the middle ear thus causing ear infections? Even > with now knowing some words it isnt like my other kids learned words. His > are not comprehendable really, except mama. Not that my other kids spoke > perfectly, my 2nd had a lot of articulation issues. But most ppl could > guess what they were saying, I do not think anyone but me could guess what > he says except mama. dada was comprehendable too but he has said it less > than a handful of times and I havent heard it in weeks. But his other words > are weird. he says a sound like " oosch " which is " shoes " then he says a > sound like " eesch " which is cheese or keys depending on the context. then > he says the long i sound which is what he says for hi and bye. even more > interesting he also finally started signing at that time, signing dog and > fish and again he should have signed well before a year. > > Really makes you wonder > > Of course what I really believe is that the ear infections are due to a > lessening of his immune system and immunities b/c he stopped breastfeeding > at 14 mo, 1st ear infection within a month. But still interesting looking > and wondering about if Plagio can play any role > > > -- > SC SAHM to , , , , and what should we name our > baby girl? > > " We worry about what a child will become tomorrow, yet we forget that he is > someone today. " ~Stacia Tauscher > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 THIS IS SO WEIRD! HI, this is Greta's Mommy, Marcy. Tuesday Greta was diagnosed with an ear infection! She is only 3 months old!!( I honestly thought a baby that young couldnt get ear infections!!) As I am reading all of your posts I am getting more and more nervous about her head. By looking at her pictures, the front of her head looks alot like Caroline's. Its long, and narrow. The back is still looking quite odd. But as she gets older, and the head grows, its getting more and more obvious. I thought for a couple of weeks it looked better...But it really doesnt! The one side definatley looks more flat than the other. UGH. This is so frustrating. I actually put her on her back to sleep tonight so I could help the front to round out more and to faltten the prominant occiput that she has been diagnosed with. We have an appt in NJ on Fri, April 4th. I am very curious/nervous to hear what they have to say. Just wanted to put my two cents in about the ear infections. Although I do have to say, I had many ear infections as a child, and had tubes. My sister had tubes twice. And my son has a "normal" shaped head, and had his first ear infection at 6 months and 5 more after that by the time he was 1. He recieved tubes this past Nov. And as of today we are on our 3rd day of amoxicillan for a DOUBLE EAR infection. (To the doctor, I was like, Whats the point of tubes?????) I am posting pics of Greta as of today... Take care everyone!!! ~marcy, Mommy to Miss Greta, and Mister Re: irony ,I've been on this site for a couple of months now and never written yet because I wasn't sure really what to say because I'd never even heard of plagio until just recently, I've never been on a group before but your story moved me to speak. My son is 8months old and will go for his first visit for a DOC band in New Jersey tommorow with someone named Pervi. Strangly enough he is going for a hearing test next week because although we know he hears how well is in question. At times he hears the smallest noises but at other times its almost like he hears very little. He's had 3 ear infections since he was born one a very serious double infection that was very hard to clear up. I do find irony in it and will for sure mention it to my ped next week when we go for the test. I'd love to hear more on any info you found on this subject.-C DetlefsVery Happy SAHM to , Anne, and "Sharing a life with children is sharing a life with lovers,explorers, scientists, pirates,poets. It makes for interesting mornings." -AG>> OK, I will first admit that I ap my children so I lay with kids until they> fall asleep and if they wake up in the night so sometimes I am laying around> waiting with nothing to do so I think about weird things if nothing else is> on my mind lol. I especially like little quirky isn't that weirds> > So here are my 2 for today as both pertain to Plagio. I wonder how ironic> it is that my only very late talker was my only plagio baby. There are so> little studies done and the few done are small scale and there are even> different ways plagio effects a child that would have to be taken into> account to do a study on everything. But in the few bits of reading it> talks about effecting ear and jaw but more implies fluid/ear infections.> Well my Plagio baby had Plagio pretty much from birth. Hearing tested fine> at birth, never tested after that but he passes all the milestones to assume> he doesn't have a hearing problem or at least not a chronic one. Yet all my> other children have said their 1st at least 3 words by their 1st bday. > said no words at 12 mo, no words at 15 mo even. He was banded from 9-12 mo> and had severe ear assymetry.> > But an interesting OTOH, he did not have a single ear issue before he was> banded. He didn't get his 1st ear infection until 15 mo (my 2nd got her 1st> at 6 mo, my 3rd at 5 mo and both by his age had had severel), so post band.> It was a bad double ear infection and now we are not even sure it went> completely away b/c it has been a month and he has a severe double ear> infection. As irony has it though, it was during the antibiotics from the> 1st one that he finally started talking. Of course this makes me wonder if> he has had fluid in the inner ear at all prior to this since that is not> something we would be able to know without testing for it and it would> effect speech. Which of course led me to, if it was in the inner ear and> now that we have straitened his ears has it somehow effected drainage so> that instead it is now in the middle ear thus causing ear infections? Even> with now knowing some words it isnt like my other kids learned words. His> are not comprehendable really, except mama. Not that my other kids spoke> perfectly, my 2nd had a lot of articulation issues. But most ppl could> guess what they were saying, I do not think anyone but me could guess what> he says except mama. dada was comprehendable too but he has said it less> than a handful of times and I havent heard it in weeks. But his other words> are weird. he says a sound like "oosch" which is "shoes" then he says a> sound like "eesch" which is cheese or keys depending on the context. then> he says the long i sound which is what he says for hi and bye. even more> interesting he also finally started signing at that time, signing dog and> fish and again he should have signed well before a year.> > Really makes you wonder> > Of course what I really believe is that the ear infections are due to a> lessening of his immune system and immunities b/c he stopped breastfeeding> at 14 mo, 1st ear infection within a month. But still interesting looking> and wondering about if Plagio can play any role> > > -- > SC SAHM to , , , , and what should we name our> baby girl?> > "We worry about what a child will become tomorrow, yet we forget that he is> someone today." ~Stacia Tauscher> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 My son got his first ear infection around 4 months and has gotten about 3 all together from 4 months to 7 months. I don't believe it has to do with the plagio because his ear infections were always in conjunction with a cold which makes sense because he gets all congested and it backs up into his estacian tubes ( sp???). This is common in children because their estacian tubes are more flat than adults or even older children so the fluid can get stuck in the ear. As children grow, the estacian tubes begin to slant so that the fluid can drain out easier and that's why older children usually don't get as many ear infections. Sybil marcy eiseman <marcyeiseman@...> wrote: THIS IS SO WEIRD! HI, this is Greta's Mommy, Marcy. Tuesday Greta was diagnosed with an ear infection! She is only 3 months old!!( I honestly thought a baby that young couldnt get ear infections!!) As I am reading all of your posts I am getting more and more nervous about her head. By looking at her pictures, the front of her head looks alot like Caroline's. Its long, and narrow. The back is still looking quite odd. But as she gets older, and the head grows, its getting more and more obvious. I thought for a couple of weeks it looked better...But it really doesnt! The one side definatley looks more flat than the other. UGH. This is so frustrating. I actually put her on her back to sleep tonight so I could help the front to round out more and to faltten the prominant occiput that she has been diagnosed with. We have an appt in NJ on Fri, April 4th. I am very curious/nervous to hear what they have to say. Just wanted to put my two cents in about the ear infections. Although I do have to say, I had many ear infections as a child, and had tubes. My sister had tubes twice. And my son has a "normal" shaped head, and had his first ear infection at 6 months and 5 more after that by the time he was 1. He recieved tubes this past Nov. And as of today we are on our 3rd day of amoxicillan for a DOUBLE EAR infection. (To the doctor, I was like, Whats the point of tubes?????) I am posting pics of Greta as of today... Take care everyone!!! ~marcy, Mommy to Miss Greta, and Mister Re: irony ,I've been on this site for a couple of months now and never written yet because I wasn't sure really what to say because I'd never even heard of plagio until just recently, I've never been on a group before but your story moved me to speak. My son is 8months old and will go for his first visit for a DOC band in New Jersey tommorow with someone named Pervi. Strangly enough he is going for a hearing test next week because although we know he hears how well is in question. At times he hears the smallest noises but at other times its almost like he hears very little. He's had 3 ear infections since he was born one a very serious double infection that was very hard to clear up. I do find irony in it and will for sure mention it to my ped next week when we go for the test. I'd love to hear more on any info you found on this subject.-C DetlefsVery Happy SAHM to , Anne, and "Sharing a life with children is sharing a life with lovers,explorers, scientists, pirates,poets. It makes for interesting mornings." -AG>> OK, I will first admit that I ap my children so I lay with kids until they> fall asleep and if they wake up in the night so sometimes I am laying around> waiting with nothing to do so I think about weird things if nothing else is> on my mind lol. I especially like little quirky isn't that weirds> > So here are my 2 for today as both pertain to Plagio. I wonder how ironic> it is that my only very late talker was my only plagio baby. There are so> little studies done and the few done are small scale and there are even> different ways plagio effects a child that would have to be taken into> account to do a study on everything. But in the few bits of reading it> talks about effecting ear and jaw but more implies fluid/ear infections.> Well my Plagio baby had Plagio pretty much from birth. Hearing tested fine> at birth, never tested after that but he passes all the milestones to assume> he doesn't have a hearing problem or at least not a chronic one. Yet all my> other children have said their 1st at least 3 words by their 1st bday. > said no words at 12 mo, no words at 15 mo even. He was banded from 9-12 mo> and had severe ear assymetry.> > But an interesting OTOH, he did not have a single ear issue before he was> banded. He didn't get his 1st ear infection until 15 mo (my 2nd got her 1st> at 6 mo, my 3rd at 5 mo and both by his age had had severel), so post band.> It was a bad double ear infection and now we are not even sure it went> completely away b/c it has been a month and he has a severe double ear> infection. As irony has it though, it was during the antibiotics from the> 1st one that he finally started talking. Of course this makes me wonder if> he has had fluid in the inner ear at all prior to this since that is not> something we would be able to know without testing for it and it would> effect speech. Which of course led me to, if it was in the inner ear and> now that we have straitened his ears has it somehow effected drainage so> that instead it is now in the middle ear thus causing ear infections? Even> with now knowing some words it isnt like my other kids learned words. His> are not comprehendable really, except mama. Not that my other kids spoke> perfectly, my 2nd had a lot of articulation issues. But most ppl could> guess what they were saying, I do not think anyone but me could guess what> he says except mama. dada was comprehendable too but he has said it less> than a handful of times and I havent heard it in weeks. But his other words> are weird. he says a sound like "oosch" which is "shoes" then he says a> sound like "eesch" which is cheese or keys depending on the context. then> he says the long i sound which is what he says for hi and bye. even more> interesting he also finally started signing at that time, signing dog and> fish and again he should have signed well before a year.> > Really makes you wonder> > Of course what I really believe is that the ear infections are due to a> lessening of his immune system and immunities b/c he stopped breastfeeding> at 14 mo, 1st ear infection within a month. But still interesting looking> and wondering about if Plagio can play any role> > > -- > SC SAHM to , , , , and what should we name our> baby girl?> > "We worry about what a child will become tomorrow, yet we forget that he is> someone today." ~Stacia Tauscher> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 I use Purvi in NJ and I really like her and she's the most experienced one at the NJ CT. My son is 8 months on the 30th and has had his band for just about 2 weeks. I can't believe it's been 2 weeks already, it went so fast. Good luck. detlefs5 <detlefs5@...> wrote: ,I've been on this site for a couple of months now and never written yet because I wasn't sure really what to say because I'd never even heard of plagio until just recently, I've never been on a group before but your story moved me to speak. My son is 8months old and will go for his first visit for a DOC band in New Jersey tommorow with someone named Pervi. Strangly enough he is going for a hearing test next week because although we know he hears how well is in question. At times he hears the smallest noises but at other times its almost like he hears very little. He's had 3 ear infections since he was born one a very serious double infection that was very hard to clear up. I do find irony in it and will for sure mention it to my ped next week when we go for the test. I'd love to hear more on any info you found on this subject.-C DetlefsVery Happy SAHM to , Anne, and "Sharing a life with children is sharing a life with lovers,explorers,scientists,pirates,poets. It makes for interesting mornings." -AG>> OK, I will first admit that I ap my children so I lay with kids until they> fall asleep and if they wake up in the night so sometimes I am laying around> waiting with nothing to do so I think about weird things if nothing else is> on my mind lol. I especially like little quirky isn't that weirds> > So here are my 2 for today as both pertain to Plagio. I wonder how ironic> it is that my only very late talker was my only plagio baby. There are so> little studies done and the few done are small scale and there are even> different ways plagio effects a child that would have to be taken into> account to do a study on everything. But in the few bits of reading it> talks about effecting ear and jaw but more implies fluid/ear infections.> Well my Plagio baby had Plagio pretty much from birth. Hearing tested fine> at birth, never tested after that but he passes all the milestones to assume> he doesn't have a hearing problem or at least not a chronic one. Yet all my> other children have said their 1st at least 3 words by their 1st bday. > said no words at 12 mo, no words at 15 mo even. He was banded from 9-12 mo> and had severe ear assymetry.> > But an interesting OTOH, he did not have a single ear issue before he was> banded. He didn't get his 1st ear infection until 15 mo (my 2nd got her 1st> at 6 mo, my 3rd at 5 mo and both by his age had had severel), so post band.> It was a bad double ear infection and now we are not even sure it went> completely away b/c it has been a month and he has a severe double ear> infection. As irony has it though, it was during the antibiotics from the> 1st one that he finally started talking. Of course this makes me wonder if> he has had fluid in the inner ear at all prior to this since that is not> something we would be able to know without testing for it and it would> effect speech. Which of course led me to, if it was in the inner ear and> now that we have straitened his ears has it somehow effected drainage so> that instead it is now in the middle ear thus causing ear infections? Even> with now knowing some words it isnt like my other kids learned words. His> are not comprehendable really, except mama. Not that my other kids spoke> perfectly, my 2nd had a lot of articulation issues. But most ppl could> guess what they were saying, I do not think anyone but me could guess what> he says except mama. dada was comprehendable too but he has said it less> than a handful of times and I havent heard it in weeks. But his other words> are weird. he says a sound like "oosch" which is "shoes" then he says a> sound like "eesch" which is cheese or keys depending on the context. then> he says the long i sound which is what he says for hi and bye. even more> interesting he also finally started signing at that time, signing dog and> fish and again he should have signed well before a year.> > Really makes you wonder> > Of course what I really believe is that the ear infections are due to a> lessening of his immune system and immunities b/c he stopped breastfeeding> at 14 mo, 1st ear infection within a month. But still interesting looking> and wondering about if Plagio can play any role> > > -- > SC SAHM to , , , , and what should we name our> baby girl?> > "We worry about what a child will become tomorrow, yet we forget that he is> someone today." ~Stacia Tauscher> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hey ...I will absolutley keep you informed! Thanks!~marcy Re: irony Hi Marcy-I looked at Greta's new photos and I can see why you are still concerned. I really thought her head was looking better too, when you posted pictures a while back, so I was surprised to see in these pictures that there is still definite flattening on both sides, with more on the right. I think you're definitely doing the right thing by seeking another opinion. Please keep us posted on the latest diagnosis. Good luck!Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)Jordan-4 > >> > OK, I will first admit that I ap my children so I lay with kids > until they> > fall asleep and if they wake up in the night so sometimes I am > laying around> > waiting with nothing to do so I think about weird things if nothing > else is> > on my mind lol. I especially like little quirky isn't that weirds> > > > So here are my 2 for today as both pertain to Plagio. I wonder how > ironic> > it is that my only very late talker was my only plagio baby. There > are so> > little studies done and the few done are small scale and there are > even> > different ways plagio effects a child that would have to be taken > into> > account to do a study on everything. But in the few bits of > reading it> > talks about effecting ear and jaw but more implies fluid/ear > infections.> > Well my Plagio baby had Plagio pretty much from birth. Hearing > tested fine> > at birth, never tested after that but he passes all the milestones > to assume> > he doesn't have a hearing problem or at least not a chronic one. > Yet all my> > other children have said their 1st at least 3 words by their 1st > bday. > > said no words at 12 mo, no words at 15 mo even. He was banded from > 9-12 mo> > and had severe ear assymetry.> > > > But an interesting OTOH, he did not have a single ear issue before > he was> > banded. He didn't get his 1st ear infection until 15 mo (my 2nd > got her 1st> > at 6 mo, my 3rd at 5 mo and both by his age had had severel), so > post band.> > It was a bad double ear infection and now we are not even sure it > went> > completely away b/c it has been a month and he has a severe double > ear> > infection. As irony has it though, it was during the antibiotics > from the> > 1st one that he finally started talking. Of course this makes me > wonder if> > he has had fluid in the inner ear at all prior to this since that > is not> > something we would be able to know without testing for it and it > would> > effect speech. Which of course led me to, if it was in the inner > ear and> > now that we have straitened his ears has it somehow effected > drainage so> > that instead it is now in the middle ear thus causing ear > infections? Even> > with now knowing some words it isnt like my other kids learned > words. His> > are not comprehendable really, except mama. Not that my other kids > spoke> > perfectly, my 2nd had a lot of articulation issues. But most ppl > could> > guess what they were saying, I do not think anyone but me could > guess what> > he says except mama. dada was comprehendable too but he has said > it less> > than a handful of times and I havent heard it in weeks. But his > other words> > are weird. he says a sound like "oosch" which is "shoes" then he > says a> > sound like "eesch" which is cheese or keys depending on the > context. then> > he says the long i sound which is what he says for hi and bye. > even more> > interesting he also finally started signing at that time, signing > dog and> > fish and again he should have signed well before a year.> > > > Really makes you wonder> > > > Of course what I really believe is that the ear infections are due > to a> > lessening of his immune system and immunities b/c he stopped > breastfeeding> > at 14 mo, 1st ear infection within a month. But still interesting > looking> > and wondering about if Plagio can play any role> > > > > > -- > > SC SAHM to , , , , and what should we > name our> > baby girl?> > > > "We worry about what a child will become tomorrow, yet we forget > that he is> > someone today." ~Stacia Tauscher> >> > > > > > ____________ _________ _________ _________ _________ _________ _____________ ___> Looking for last minute shopping deals? > Find them fast with Search. http://tools. search.. com/newsearch/ category. php?category=shopping> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Yes it is quite true that they talk about ear issues w/ plagio being a possibility a lot and even the therapist at CT mentioned that with his ears as bad as they were it would effect his jaw. But what I was really trying to point out in my post that was probably so long winded it was lost. Is that isn't it interesting that he didn't have a single ear infection before the band, only started after the band so after his ears were fixed. I guess it struck me as odd b/c my 2nd started ear infections at 6 mo and had 6 between 6 and 24 months, may have had more had she not been put on preventive antibiotics. My 3rd started ear infections at 5 mo old and had 5 from 5-18 mo. So I was ecstatic when made it to 1 without a single ear infection (or pretty much any illness) and thought I had another like my 1st on my hands. Then he got his band off so it struck me as ironic and I tried to think of how it could even be possible that fixing his head would mess up his eustachian (sp?) tubes. Obviously I didn't come up with a single way that was possible. The only even close conclusion I could come to was that his tubes were so messed up before that they were keeping fluid in his inner ear instead and now that they are fixed it can get to his middle ear and thus the infections. But that seemed far fetched so I just brushed it off as being b/c he stopped bfing. The only reason I didnt even go there first is that my 2nd who started at 6 mo was breastfed till 11 mo, at 6 mo old she hadnt even had solids, my 3rd was breastfed 13 mo and at 5 mo hadnt even had solids yet. My 3rd had not even ever had a bottle at 5 mo old. So to me there didn't seem to be a correlation between bfing and ear infections. Anyway when I came to the far fetched thought that there had possibly been fluid in his inner ear that was when I started thinkinga bout his hearing. Not ever having a boy I have, to this point brushed it off as that. I have a male cousin who was not understandable till he was 5 despite a lot of ST. His brother needed ST too. Whereas my girls all said their first words between 6 and 9 mo. Even my 2nd who ended up in speech therapy for articulation delays at 3½ said her first words before a year. Her speech problems were evident before she was 3 but it was just her pronunciation not that she didnt talk. She even knew 3 words by 12 mo, despite all the ear infections (and a couple failed hearing tests). My 1st was actually a later talker b/c she knew 3 words at 12 mo and 10 at 18 mo, she didnt know more than that or combine words until after 18 mo whereas my 2nd did, just not easily understood. But my 1st a 20 mo opened her mouth and paragraphs suddenly came out. My 3rd who also had the ear infections was a very early talker. So though articulation delays seem to be in our family, actually speech delays are not. My nephews were both early talkers but walked later than my kids (who walked between 8½ and 10½ months). But again I have always brushed this off as being a boy and he was another earlier walker (walked at 10 mo). The other thing that raised the ear question though for me was the fact that he finally started saying things a few days after he started antibiotics last month. Just seemed like an awful lot of coincidence. So though I really dont think there is anything to it, I will keep everyone posted since our ped is watching all this now. I just felt there was enough irony in it to share since so little is known about the effects of Plagio. -- SC SAHM to , , , , and what should we name our baby girl? " We worry about what a child will become tomorrow, yet we forget that he is someone today. " ~Stacia Tauscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi - I was just reading your note and thought I'd let you know about my son. We banded him at 5 months at 14mm and he was finished at 8 months with 3mm and his ears look so much better. He is now 11 now and his head and years look GREAT! I stopped nursing at 6 months and he has never had an ear infection. My orthotist was actually able to show us how much the ears moved...although she did say that not every baby will have the same ear movement. > > > > OK, I will first admit that I ap my children so I lay with kids until they > > fall asleep and if they wake up in the night so sometimes I am laying around > > waiting with nothing to do so I think about weird things if nothing else is > > on my mind lol. I especially like little quirky isn't that weirds > > > > So here are my 2 for today as both pertain to Plagio. I wonder how ironic > > it is that my only very late talker was my only plagio baby. There are so > > little studies done and the few done are small scale and there are even > > different ways plagio effects a child that would have to be taken into > > account to do a study on everything. But in the few bits of reading it > > talks about effecting ear and jaw but more implies fluid/ear infections. > > Well my Plagio baby had Plagio pretty much from birth. Hearing tested fine > > at birth, never tested after that but he passes all the milestones to assume > > he doesn't have a hearing problem or at least not a chronic one. Yet all my > > other children have said their 1st at least 3 words by their 1st bday. > > said no words at 12 mo, no words at 15 mo even. He was banded from 9-12 mo > > and had severe ear assymetry. > > > > But an interesting OTOH, he did not have a single ear issue before he was > > banded. He didn't get his 1st ear infection until 15 mo (my 2nd got her 1st > > at 6 mo, my 3rd at 5 mo and both by his age had had severel), so post band. > > It was a bad double ear infection and now we are not even sure it went > > completely away b/c it has been a month and he has a severe double ear > > infection. As irony has it though, it was during the antibiotics from the > > 1st one that he finally started talking. Of course this makes me wonder if > > he has had fluid in the inner ear at all prior to this since that is not > > something we would be able to know without testing for it and it would > > effect speech. Which of course led me to, if it was in the inner ear and > > now that we have straitened his ears has it somehow effected drainage so > > that instead it is now in the middle ear thus causing ear infections? Even > > with now knowing some words it isnt like my other kids learned words. His > > are not comprehendable really, except mama. Not that my other kids spoke > > perfectly, my 2nd had a lot of articulation issues. But most ppl could > > guess what they were saying, I do not think anyone but me could guess what > > he says except mama. dada was comprehendable too but he has said it less > > than a handful of times and I havent heard it in weeks. But his other words > > are weird. he says a sound like " oosch " which is " shoes " then he says a > > sound like " eesch " which is cheese or keys depending on the context. then > > he says the long i sound which is what he says for hi and bye. even more > > interesting he also finally started signing at that time, signing dog and > > fish and again he should have signed well before a year. > > > > Really makes you wonder > > > > Of course what I really believe is that the ear infections are due to a > > lessening of his immune system and immunities b/c he stopped breastfeeding > > at 14 mo, 1st ear infection within a month. But still interesting looking > > and wondering about if Plagio can play any role > > > > > > -- > > SC SAHM to , , , , and what should we name our > > baby girl? > > > > " We worry about what a child will become tomorrow, yet we forget that he is > > someone today. " ~Stacia Tauscher > > > Quote Link to comment Share on other sites More sharing options...
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