Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Hello all! I am new to the group and feeling the " guilt " over my 6 month old son being diagosed with torticollis and positional plagiocephaly. We knew right away that my son definitely favored one side of his head but being a first time mom, I didn't really think it was a problem. I asked the pediatrican about it at our 4 week checkup and told us to try to use wedges and sleep positioners to help position his head. However, it didn't seem to work. It seemed that every time we went to the doctor, he told us to just encourage a lot of tummy time and keep using the wedges and that my son would eventually grow out of this problem. After several other problems with our pediatrican, we decided to switch pediatrican groups. At our first appointment with the new doctor, they immediately referred us to the plastic surgery dept. at Cincinnati Children's Hospital Medical Center. We had to wait 2 months for the first appointment! After seeing the doctors and physical therapists at CCHMC, they told us that my son should have been seeing a physical therapist for his torticollis since we first saw the problem. Because of his torticollis, it prevented him from turning his head fully and thus caused positional plagiocephaly. On top of this, my son is in the 98% for his head circumference. The doctors said that this also can contribute to plagiocephaly since his head weighs so darn much that it is hard for him to hold up. I feel like our first pediatrican " dropped the ball " --especially since they said that we should have been doing therapy for his neck for a couple of months now. I also feel like the doctors at CCHMC think that my son's plagiocephaly/torticollis was my fault. They told me that if my husband and I decide to have another child, we need to make sure that we give the baby a lot more tummy time. My son has been fitted for his helmet and will be getting it in the next week or two. Althought I hate the fact that he'll have to wear it and have people stare at him, I know that this is the best thing for him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 Welcome! I am sure as you start to read all the other posts - you will see you are not alone in this!!! It is NOT your fault! Sorry your 1st dr dropped the ball - alot of parents have had to fight for treatment - you are blessed to have the 2nd dr that was so proactive!!! Jen and Luli - 26 months Left tort - Right Plagio - Hanger Band Grad - CA http://www.babiesonline.com/babies/j/jens5th/ First time to group... Hello all! I am new to the group and feeling the "guilt" over my 6 month old son being diagosed with torticollis and positional plagiocephaly. We knew right away that my son definitely favored one side of his head but being a first time mom, I didn't really think it was a problem. I asked the pediatrican about it at our 4 week checkup and told us to try to use wedges and sleep positioners to help position his head. However, it didn't seem to work. It seemed that every time we went to the doctor, he told us to just encourage a lot of tummy time and keep using the wedges and that my son would eventually grow out of this problem. After several other problems with our pediatrican, we decided to switch pediatrican groups. At our first appointment with the new doctor, they immediately referred us to the plastic surgery dept. at Cincinnati Children's Hospital Medical Center. We had to wait 2 months for the first appointment! After seeing the doctors and physical therapists at CCHMC, they told us that my son should have been seeing a physical therapist for his torticollis since we first saw the problem. Because of his torticollis, it prevented him from turning his head fully and thus caused positional plagiocephaly. On top of this, my son is in the 98% for his head circumference. The doctors said that this also can contribute to plagiocephaly since his head weighs so darn much that it is hard for him to hold up. I feel like our first pediatrican "dropped the ball"--especially since they said that we should have been doing therapy for his neck for a couple of months now. I also feel like the doctors at CCHMC think that my son's plagiocephaly/torticollis was my fault. They told me that if my husband and I decide to have another child, we need to make sure that we give the baby a lot more tummy time. My son has been fitted for his helmet and will be getting it in the next week or two. Althought I hate the fact that he'll have to wear it and have people stare at him, I know that this is the best thing for him. More new features than ever. Check out the new AOL Mail! Quote Link to comment Share on other sites More sharing options...
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