Re: Very Angry with this whole process. Also three year old has flat spot.

[Guest guest]

He has Starband

>

> What type of helmet does Conner have?

> Very Angry with this whole process. Also three

year old

> has flat spot.

>

>

> Ok. So my son Connor Is already 5 months. Two weeks ago we had to

get a

> new casting of his helmet because the first one was just not

working.

> We started wearing it and it was to close to his eye and two

tight in

> the wrong places. Then I think they shaved to much of it off and

it was

> then slipping off his forhead. Well they told my one week I

should get

> my new one. Well it has been two. I feel that he is going though a

> growth spirt so I want it now. This has been so frusterating for

me. I

> just want to get this going. I feel like his face is getting

worse.

>

> Also my three year old has a flat spot in the same place my 5

month old

> does. He never had tort. But I think if he was a half a pound

bigger

> like connor then he would have. But my point it. Kaden my 3 year

old

> ped. Kinda blew it off like nothing and said it will fix it self.

> Wrong!! He has a really bad cross bite. Now Me learning all this

stuff

> about Connor I have come to Realize that Kaden's cross bite is

due to

> his flat spot. So how do I fix it at this age? Has anyone else

been

> though this? I am doing sacral cranial therapy for Connor for his

tort

> and plagio. They said it might help Kaden if he lets them touch

him.

> Please give me your opinons. I was just going to wait untill

Kaden got

> older and do like head gear or something.

> I will put some pictures up in the K folder.

>

[Guest guest]

I can understand your frustration. I would feel the same way if we

were having problems with the band fitting and prolonging the

treatment. It's not completely uncommon to wait 2 weeks for a band,

but I thought that was more common for older children, since there's

not as much change/growth in a 2-week period. We waited 2 weeks for

our band, but my son was 17 months old, so I wasn't too concerned.

At 5 months old, there could be a lot of growth in that 2 weeks, so

I would have thought they would make more of an effort to get it in

closer to a week. I would now be concerned that this one might not

fit the best either, especially if you end up waiting LONGER than 2

weeks for it. Have you heard anything from them about the delay?

The good news is that I think your son is still plenty young enough

to get great correction, regardless of when he finally ends up with

a good fitting band. But I know it's tough to sit and wait when you

so desperately want to get it all started and over with. Hang in

there!

As far as Kaden is concerned, is his flat spot severe? Because I

wonder if a mild-moderate flat spot would cause a cross bite. My son

is high end moderate and had distinct facial assymetry (most of

which he outgrew) and does not have a cross bite (not that every

child would, but I wonder how severe it would have to be to develop

one). I would be interested to see what other moms think about that.

But to answer your question, I think braces and head gear will

correct the problem when he's older. That's probably not the most

comforting thought, but at least it can be corrected.

Good luck with everything! I really hope Connor gets his band soon

and all this aggrevation you are going through will be worth it in

the end!

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

>

> Ok. So my son Connor Is already 5 months. Two weeks ago we had to

get a

> new casting of his helmet because the first one was just not

working.

> We started wearing it and it was to close to his eye and two tight

in

> the wrong places. Then I think they shaved to much of it off and

it was

> then slipping off his forhead. Well they told my one week I should

get

> my new one. Well it has been two. I feel that he is going though a

> growth spirt so I want it now. This has been so frusterating for

me. I

> just want to get this going. I feel like his face is getting worse.

>

> Also my three year old has a flat spot in the same place my 5

month old

> does. He never had tort. But I think if he was a half a pound

bigger

> like connor then he would have. But my point it. Kaden my 3 year

old

> ped. Kinda blew it off like nothing and said it will fix it self.

> Wrong!! He has a really bad cross bite. Now Me learning all this

stuff

> about Connor I have come to Realize that Kaden's cross bite is due

to

> his flat spot. So how do I fix it at this age? Has anyone else

been

> though this? I am doing sacral cranial therapy for Connor for his

tort

> and plagio. They said it might help Kaden if he lets them touch

him.

> Please give me your opinons. I was just going to wait untill Kaden

got

> older and do like head gear or something.

> I will put some pictures up in the K folder.

>

[Guest guest]

Ok so Connor got his helmet today (STARBAND). It seems to fit good

but I think tommorrow I will have a better idea. Thanks for all that

has responded it had been a long 5 months. I hope things start to

calm down. I think I have been to some kind of doctor everyweek or

other week in the last five months. I will keep you guys posted with

everything. I think I am really tired so Goodnight. I can't even

think of what I wanted to say.

Hello....I will have

to say that I am sorry you are going thru the bad fit of the band.

Anabel was 7.5 months old when she was banded just 2 weeks ago. I

thought that 2 weeks from the time of having the scan and getting the

band would mean that she might grow too much for the band to fit

right. I was so pleased with the fit...and the adjustments the

technician had made to make it fit her better. She took time to do

it.

>

> My son is 3 years old and now that I know what Plagio is...I think

my son had it and well his head is quite mis-shapen...but being the

first time mom and the doctors never mentioned it...I kind of figured

that everything was ok. Now My husband and I both notice it...while

others don't and I think that's mainly because of the issues that we

are dealing with for Anabel. Had we known I would have at least had

Diego evaluated!!! To tell you the truth...we might have believed

the doctor when he said that everything would round itself out with

Anabel by the time she was 3, but luckily my son was in the room and

I had him check his head to prove that my sons had not self-corrected

by the time he was 3. Does this make sense? So the doctor was more

willing to make the referral.

>

> Back to Anabel....yes the had to make minor adjustments, but even

at 7.5 months she still is growing at a rapid rate and I want to say

that I have noticed (more than expected) some improvement in the

first 2 weeks as we go back for a re-check tomorrow or thursday (I

had better check on that).

>

> I hope that they make a good fit this time around and take the

time. Good luck!

>

> Kerica

>

>

>

>

>

> ---------------------------------

> Plagiocephaly

> From: katiegpatrick@...

> Date: Mon, 10 Mar 2008 20:55:36 +0000

> Subject: Very Angry with this whole process. Also three

year old has flat spot.

>

> Ok. So my son Connor Is already 5 months. Two weeks ago we

had to get a

> new casting of his helmet because the first one was just not

working.

> We started wearing it and it was to close to his eye and two tight

in

> the wrong places. Then I think they shaved to much of it off and it

was

> then slipping off his forhead. Well they told my one week I should

get

> my new one. Well it has been two. I feel that he is going though a

> growth spirt so I want it now. This has been so frusterating for

me. I

> just want to get this going. I feel like his face is getting worse.

>

> Also my three year old has a flat spot in the same place my 5 month

old

> does. He never had tort. But I think if he was a half a pound

bigger

> like connor then he would have. But my point it. Kaden my 3 year

old

> ped. Kinda blew it off like nothing and said it will fix it self.

> Wrong!! He has a really bad cross bite. Now Me learning all this

stuff

> about Connor I have come to Realize that Kaden's cross bite is due

to

> his flat spot. So how do I fix it at this age? Has anyone else been

> though this? I am doing sacral cranial therapy for Connor for his

tort

> and plagio. They said it might help Kaden if he lets them touch

him.

> Please give me your opinons. I was just going to wait untill Kaden

got

> older and do like head gear or something.

> I will put some pictures up in the K folder.

>

>

>

>

>

>

>

> ---------------------------------

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with star power. Play now!

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

[Guest guest]

All I can offer is to say hang in there . I can relate to your

frustration as we had lots of problems with my son's first helmet

and finally ended up going to another orthotist and diff. helmet

altogether. I was beyond frustrated and felt like we were losing so

much valuable time. Hope this new helmet works out better for you.

Hello....I will have

> to say that I am sorry you are going thru the bad fit of the

band.

> Anabel was 7.5 months old when she was banded just 2 weeks ago. I

> thought that 2 weeks from the time of having the scan and getting

the

> band would mean that she might grow too much for the band to fit

> right. I was so pleased with the fit...and the adjustments the

> technician had made to make it fit her better. She took time to

do

> it.

> >

> > My son is 3 years old and now that I know what Plagio is...I

think

> my son had it and well his head is quite mis-shapen...but being

the

> first time mom and the doctors never mentioned it...I kind of

figured

> that everything was ok. Now My husband and I both notice

it...while

> others don't and I think that's mainly because of the issues that

we

> are dealing with for Anabel. Had we known I would have at least

had

> Diego evaluated!!! To tell you the truth...we might have believed

> the doctor when he said that everything would round itself out

with

> Anabel by the time she was 3, but luckily my son was in the room

and

> I had him check his head to prove that my sons had not self-

corrected

> by the time he was 3. Does this make sense? So the doctor was

more

> willing to make the referral.

> >

> > Back to Anabel....yes the had to make minor adjustments, but

even

> at 7.5 months she still is growing at a rapid rate and I want to

say

> that I have noticed (more than expected) some improvement in the

> first 2 weeks as we go back for a re-check tomorrow or thursday (I

> had better check on that).

> >

> > I hope that they make a good fit this time around and take the

> time. Good luck!

> >

> > Kerica

> >

> >

> >

> >

> >

> > ---------------------------------

> > Plagiocephaly

> > From: katiegpatrick@

> > Date: Mon, 10 Mar 2008 20:55:36 +0000

> > Subject: Very Angry with this whole process. Also three

> year old has flat spot.

> >

> > Ok. So my son Connor Is already 5 months. Two weeks ago we

> had to get a

> > new casting of his helmet because the first one was just not

> working.

> > We started wearing it and it was to close to his eye and two

tight

> in

> > the wrong places. Then I think they shaved to much of it off and

it

> was

> > then slipping off his forhead. Well they told my one week I

should

> get

> > my new one. Well it has been two. I feel that he is going though

a

> > growth spirt so I want it now. This has been so frusterating for

> me. I

> > just want to get this going. I feel like his face is getting

worse.

> >

> > Also my three year old has a flat spot in the same place my 5

month

> old

> > does. He never had tort. But I think if he was a half a pound

> bigger

> > like connor then he would have. But my point it. Kaden my 3 year

> old

> > ped. Kinda blew it off like nothing and said it will fix it

self.

> > Wrong!! He has a really bad cross bite. Now Me learning all this

> stuff

> > about Connor I have come to Realize that Kaden's cross bite is

due

> to

> > his flat spot. So how do I fix it at this age? Has anyone else

been

> > though this? I am doing sacral cranial therapy for Connor for

his

> tort

> > and plagio. They said it might help Kaden if he lets them touch

> him.

> > Please give me your opinons. I was just going to wait untill

Kaden

> got

> > older and do like head gear or something.

> > I will put some pictures up in the K folder.

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Climb to the top of the charts! Play the word scramble

challenge

> with star power. Play now!

> >

> >

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with

Mobile.

> Try it now.

> >

>