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In a message dated 5/1/2006 1:53:17 P.M. Eastern Daylight Time,

lalvarez1022@... writes:

Sooooo I had a question for all parents..... How do you communicate with

your child? Is sign language very very important?

Don't feel stupid about signing or not signing. The choice for communication

style is what suits your child and your family's needs, not what the rest of

the world think is " right. " You make that choice based on what works for

your family.

Our son is the only D/HOH member in it on either side of our family --

unless we count his grandmother who got her aids at 78. We are an oral because

we

are hearing and have had no opportunity or reason to learn sign. The only

sign I knew was from 3rd grade when we use to finger spell across the classroom

under our desks, thinking we were so smart and " talking " without the teacher

knowing. (She knew and figured it was good spelling practice for us.) I

didn't even remember most of the letters.

So, we talk. Our primary mode of communication is verbal. We make sure we

face Ian, we repeat as needed, and are very conscious of places where it is hard

to hear. Ian's services at school are orally based, all supports are to

support him in an oral fashion. No interpreters -- he doesn't sign well enough

to

be instructed using ASL.

His loss was found when he was 7 and he was/is so verbal that no one

suspected a hearing loss, including several very good doctors who were seeing

him

for other reasons. He lip read his way through his first booth test (stupid

doctor!!) so this kid had been developing lip reading skills for quite a while.

He's really good at it and he speaks as clearly as any hearing person. He had

us all fooled.

When I found out about his hearing loss, I quickly found the online

dictionaries and started to sign to him. He HATED it. He wanted to hear, not to

sign.

I stopped because signing made him very sad and sometimes angry. The only

time I used sign was at the pool or beach. After a while -- several years, he

became more receptive about signing. He started to sign with me a little so I

went back online and taught myself more signs. Ian expressed interest in

learning ASL instead of our pidgen signing of ASL signs in English-word-order

as

we spoke.

So, after a long process, I found us a tutor and we're now learning ASL.

It's been a little over a year and my new challenge is finding people around

here to sign with. There's not much in the way of an organized Deaf population.

Besides, being as oral as we are, we're not always warmly welcomed.

Signing can be as important or unimportant as you choose for it to be. Is

signing important for our family? Depends on how you interpret " important. " On

a day-to-day living basis: no, it is not at all necessary or important. We

can easily live without it and life is just fine. But we are choosing to learn

because our son wants to learn. ASL and signing are becoming part of who he

is, so we are choosing to support that.

My husband and I rarely ever sign with each other. My daughter signs in

stores and noisy places where we don't want to yell over the crowd, or in

museums

or church where talking is rude. Ian and I sign all the time.

But as a family, we have to work to remember to use our signing. Talking is

so much easier and quicker for us. Locally, we have almost no one to sign

with except each other. But Ian wants to learn. He likes to be able to " talk "

without working so hard at listening. Sometimes in public, he gets shy and

refuses to sign with me. Other times he gets impatient when I answer him

orally.

Signing is becoming more a part of what we do, but it is also something we

could easily do without. Someday perhaps we will need to sign, but for now, it

is something we choose to do.

Best -- Jill

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In a message dated 5/1/2006 1:53:17 P.M. Eastern Daylight Time,

lalvarez1022@... writes:

Sooooo I had a question for all parents..... How do you communicate with

your child? Is sign language very very important?

Don't feel stupid about signing or not signing. The choice for communication

style is what suits your child and your family's needs, not what the rest of

the world think is " right. " You make that choice based on what works for

your family.

Our son is the only D/HOH member in it on either side of our family --

unless we count his grandmother who got her aids at 78. We are an oral because

we

are hearing and have had no opportunity or reason to learn sign. The only

sign I knew was from 3rd grade when we use to finger spell across the classroom

under our desks, thinking we were so smart and " talking " without the teacher

knowing. (She knew and figured it was good spelling practice for us.) I

didn't even remember most of the letters.

So, we talk. Our primary mode of communication is verbal. We make sure we

face Ian, we repeat as needed, and are very conscious of places where it is hard

to hear. Ian's services at school are orally based, all supports are to

support him in an oral fashion. No interpreters -- he doesn't sign well enough

to

be instructed using ASL.

His loss was found when he was 7 and he was/is so verbal that no one

suspected a hearing loss, including several very good doctors who were seeing

him

for other reasons. He lip read his way through his first booth test (stupid

doctor!!) so this kid had been developing lip reading skills for quite a while.

He's really good at it and he speaks as clearly as any hearing person. He had

us all fooled.

When I found out about his hearing loss, I quickly found the online

dictionaries and started to sign to him. He HATED it. He wanted to hear, not to

sign.

I stopped because signing made him very sad and sometimes angry. The only

time I used sign was at the pool or beach. After a while -- several years, he

became more receptive about signing. He started to sign with me a little so I

went back online and taught myself more signs. Ian expressed interest in

learning ASL instead of our pidgen signing of ASL signs in English-word-order

as

we spoke.

So, after a long process, I found us a tutor and we're now learning ASL.

It's been a little over a year and my new challenge is finding people around

here to sign with. There's not much in the way of an organized Deaf population.

Besides, being as oral as we are, we're not always warmly welcomed.

Signing can be as important or unimportant as you choose for it to be. Is

signing important for our family? Depends on how you interpret " important. " On

a day-to-day living basis: no, it is not at all necessary or important. We

can easily live without it and life is just fine. But we are choosing to learn

because our son wants to learn. ASL and signing are becoming part of who he

is, so we are choosing to support that.

My husband and I rarely ever sign with each other. My daughter signs in

stores and noisy places where we don't want to yell over the crowd, or in

museums

or church where talking is rude. Ian and I sign all the time.

But as a family, we have to work to remember to use our signing. Talking is

so much easier and quicker for us. Locally, we have almost no one to sign

with except each other. But Ian wants to learn. He likes to be able to " talk "

without working so hard at listening. Sometimes in public, he gets shy and

refuses to sign with me. Other times he gets impatient when I answer him

orally.

Signing is becoming more a part of what we do, but it is also something we

could easily do without. Someday perhaps we will need to sign, but for now, it

is something we choose to do.

Best -- Jill

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Hi Robin,

I've read alot of parents talking about LVAS. Do doctors check for that

automatically or do I have to request it? I really don't remember anyone telling

me about it. What happens when the test come back positive?

Also, my daughter knows alot of sign language at school but they also use

verbal communication. At home we use verbal, as well as our family, she does

very well understanding us but I want to learn sign language to make her feel

better. They offered classes at her school but I only when to a couple because

of the schedule. Sometimes I feelt very guilty but at times I just feel like

there is always a next class and is not that bad because she does so well with

verbal communication and she really does not need it. Everybody that we meet the

first question they ask me is " do you know sign language " ?. I just feel really

stupid saying " a little " .

Sooooo I had a question for all parents..... How do you communicate with your

child? Is sign language very very important?

Robin Tomlinson wrote:

,

Have they told you she has LVAS (large vestibular aquaduct syndrome)? Our

daughter does, they THINK. ????? She did not pass her hearing test in her

left ear when born, but our pediatrician later told us she was fine, so we

never had any more testing until she was 3 years old and suddenly we noticed

she was reading our lips or " ignoring " us during an infection in her other

ear. Now they say her vestibular aquaducts are slightly enlarged (but it's

larger in her better ear--????). She has had no more hearing loss, thank

goodness, like a lot of children with LVAS . . . who knows if she even has

it. I am kind of wondering if her umbilical cord caused her hearing loss,

because I distinctly remember the nurse stating that it was good that she

came out when she did because she had two very bad knots in her cord.

???????

Blessings,

Robin

>

> Hi,

> My name is Alvarez. I have 3 children; Alyanna 7, severe-profound

> hearing loss; 4, hearing & 1, hearing. First of all, I would

> like to say this is amazing. It feels good knowing there is so much support

> out there.

>

> Let me tell a little (I hope) about my daughter. Alyanna passed the

> hearing test when she born, but had alot of ear infections from newborn till

> she was one. I kept pushing the fact to her pediatrician that my daughter

> wouldn't respond to my voice, unless I clapped my hand very loud or yelled

> her name. He then send me to an ENT. The ENT recommended ear tubes since she

> had alot of fluid in her ears. After the tubes I still insisted that my

> daughter would not respond. They finally send us to get another hearing

> test, which confirmed that she had severe-profound loss in one ear and

> moderate-severe on the other. She is now 7 and in 1st grade.She is in a

> regular class, but gets pulled out for Language Arts. There is about 7 kids

> in her class that are hearing impared, but the entire class use sign

> language and verbal communication. She is doing great in some of her work

> but not so good in others....actually they only problem is in reading and

> understading what she just read.

> Alyanna goes to an excellent school that had a great DHH program, but at

> her last IEP they were actually considering on keeping her in 1st grade. I

> wasn't too pleased with the idea just because I didn't feel it was necessay

> to repeat an entire grade for one subject. I really don't know what to do. I

> feel that she tries so hard but is not getting it, but everything else she

> is amazing. I'm actually thinking in looking for a tutor with experience

> with hearing loss and getting her speech therapy. If anyone has any

> suggestions I'm very open to them.

>

> Also, I went for a follow up with her audiologist a couple of weeks ago

> and she mentioned the fact that one ear is getting worst than the other (she

> has over 90% hearing loss on her right ear). She said that when she gets

> older she might not even want to bother with a hearing aide on that ear

> since it doesn't help much. I asked her about cochlear implants but she said

> she doesn't know if they do it in just one ear. She said to do alot of

> research before getting it done.

> Did I mention she also a great soccer player :))

>

> I also wanted to ask Selena where can I get information regarding

> ADHD-LD. I have a 14 year cousin that was diagnosed with it since she was

> little but we feel there is more to it. The doctors also mentioned TMH.

>

> Thank you so much for getting to know my family and helping us with some

> situations.

> God Bless!!!

>

>

>

>

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!

> Messenger with Voice.

>

>

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Guest guest

When we noticed the loss during an ear infection, we took her to a

children's hospital, and they ran a CT scan which showed fine cochleas and

everything . . . just slightly enlarged aquaducts. The doctor said she

PROBABLY had LVAS. All I have learned about LVAS has been on the internet

and on these lists I'm part of. It's a relatively new diagnosis with little

research behind it, so the doctor was not joking when he told me I knew

probably as much as he did about it! If your child has LVAS, she should

probably not engage in any extreme contact sports as jars to the head and

bad falls can make hearing progressively worse. No heading in soccer, no

tuba playing, no scuba diving . . . nothing that causes pressure problems.

Our daughter has not been affected so far by any falls or trampoline jumping

or airplane rides . . . some people do not even let their children jump much

or take plane rides. Supposedly, though, commercial rides are pressurized

fine and okay . . . I think little private planes might be bad.

Don't feel guilty about anything. Our daughter has always had fine speech

(big reason we never knew she had a loss or when or if it got progressively

worse or was always like this) . . . we have not aided her yet, and I have

not taken any sign language courses or anything. I think we are out of the

shocked & overwhelmed stage now . . . so we are planning to take her to

Chapel Hill and see what the specialists say about her future in school and

hearing aids/FM systems/etc.

Blessings,

Robin

>

> Hi Robin,

> I've read alot of parents talking about LVAS. Do doctors check for that

> automatically or do I have to request it? I really don't remember anyone

> telling me about it. What happens when the test come back positive?

>

> Also, my daughter knows alot of sign language at school but they also

> use verbal communication. At home we use verbal, as well as our family, she

> does very well understanding us but I want to learn sign language to make

> her feel better. They offered classes at her school but I only when to a

> couple because of the schedule. Sometimes I feelt very guilty but at times I

> just feel like there is always a next class and is not that bad because she

> does so well with verbal communication and she really does not need it.

> Everybody that we meet the first question they ask me is " do you know sign

> language " ?. I just feel really stupid saying " a little " .

>

> Sooooo I had a question for all parents..... How do you communicate with

> your child? Is sign language very very important?

>

>

> Robin Tomlinson wrote:

> ,

>

> Have they told you she has LVAS (large vestibular aquaduct syndrome)? Our

> daughter does, they THINK. ????? She did not pass her hearing test in

> her

> left ear when born, but our pediatrician later told us she was fine, so we

> never had any more testing until she was 3 years old and suddenly we

> noticed

> she was reading our lips or " ignoring " us during an infection in her other

> ear. Now they say her vestibular aquaducts are slightly enlarged (but

> it's

> larger in her better ear--????). She has had no more hearing loss, thank

> goodness, like a lot of children with LVAS . . . who knows if she even has

> it. I am kind of wondering if her umbilical cord caused her hearing loss,

> because I distinctly remember the nurse stating that it was good that she

> came out when she did because she had two very bad knots in her cord.

>

> ???????

>

> Blessings,

> Robin

>

>

>

>

>

>

> >

> > Hi,

> > My name is Alvarez. I have 3 children; Alyanna 7,

> severe-profound

> > hearing loss; 4, hearing & 1, hearing. First of all, I

> would

> > like to say this is amazing. It feels good knowing there is so much

> support

> > out there.

> >

> > Let me tell a little (I hope) about my daughter. Alyanna passed the

> > hearing test when she born, but had alot of ear infections from newborn

> till

> > she was one. I kept pushing the fact to her pediatrician that my

> daughter

> > wouldn't respond to my voice, unless I clapped my hand very loud or

> yelled

> > her name. He then send me to an ENT. The ENT recommended ear tubes since

> she

> > had alot of fluid in her ears. After the tubes I still insisted that my

> > daughter would not respond. They finally send us to get another hearing

> > test, which confirmed that she had severe-profound loss in one ear and

> > moderate-severe on the other. She is now 7 and in 1st grade.She is in a

> > regular class, but gets pulled out for Language Arts. There is about 7

> kids

> > in her class that are hearing impared, but the entire class use sign

> > language and verbal communication. She is doing great in some of her

> work

> > but not so good in others....actually they only problem is in reading

> and

> > understading what she just read.

> > Alyanna goes to an excellent school that had a great DHH program, but at

> > her last IEP they were actually considering on keeping her in 1st grade.

> I

> > wasn't too pleased with the idea just because I didn't feel it was

> necessay

> > to repeat an entire grade for one subject. I really don't know what to

> do. I

> > feel that she tries so hard but is not getting it, but everything else

> she

> > is amazing. I'm actually thinking in looking for a tutor with experience

> > with hearing loss and getting her speech therapy. If anyone has any

> > suggestions I'm very open to them.

> >

> > Also, I went for a follow up with her audiologist a couple of weeks

> ago

> > and she mentioned the fact that one ear is getting worst than the other

> (she

> > has over 90% hearing loss on her right ear). She said that when she gets

> > older she might not even want to bother with a hearing aide on that ear

> > since it doesn't help much. I asked her about cochlear implants but she

> said

> > she doesn't know if they do it in just one ear. She said to do alot of

> > research before getting it done.

> > Did I mention she also a great soccer player :))

> >

> > I also wanted to ask Selena where can I get information regarding

> > ADHD-LD. I have a 14 year cousin that was diagnosed with it since she

> was

> > little but we feel there is more to it. The doctors also mentioned TMH.

> >

> > Thank you so much for getting to know my family and helping us with

> some

> > situations.

> > God Bless!!!

> >

> >

> >

> >

> >

> > ---------------------------------

> > Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!

> > Messenger with Voice.

> >

> >

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Guest guest

For us sign was the key to Hailey learning speech. We have found that the way

she learns speech is that she first will mater the sign for a new word, then

when she is comfortable witht he sign she will then attempt to say the word. I

think for her becasue she was dxed late and was so frustrated with not being

able to communicate she learned that the sign is always the same no matter who

signs it, we're always going to know what she means if she signs it. If she says

the word we may not always be able to understand her and that frustrates her. So

sign for us has been the key in helping her communicate. I'm not saying it's the

only way for everychild, but it works for us.

Oh and a really dumb question what LVAS stand for?

Selena

Mom to:

8 1/2, LD

7, DSI, Kidney issues and Child Onset Bipolar Disorder

6, ODD, ADHD, LD

5, DSI and Physcomotor Eppliepsy

Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

6-4-05)

and the 16 wonderful special ed kids I teach everyday! Go NORTHWOOD!!!!!!

---------------------------------

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min

with Yahoo! Messenger with Voice.

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Guest guest

we haven't explored signing because she has always heard and always spoken

with no deficits . . . so we never had to think about it . . . should her

hearing loss start to worsen, it might become an option for us, too

LVAS is large vestibular aquaduct syndrome

>

> For us sign was the key to Hailey learning speech. We have found that the

> way she learns speech is that she first will mater the sign for a new word,

> then when she is comfortable witht he sign she will then attempt to say the

> word. I think for her becasue she was dxed late and was so frustrated with

> not being able to communicate she learned that the sign is always the same

> no matter who signs it, we're always going to know what she means if she

> signs it. If she says the word we may not always be able to understand her

> and that frustrates her. So sign for us has been the key in helping her

> communicate. I'm not saying it's the only way for everychild, but it works

> for us.

>

> Oh and a really dumb question what LVAS stand for?

>

>

>

>

>

> Selena

> Mom to:

> 8 1/2, LD

> 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> 6, ODD, ADHD, LD

> 5, DSI and Physcomotor Eppliepsy

> Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

> 6-4-05)

> and the 16 wonderful special ed kids I teach everyday! Go

> NORTHWOOD!!!!!!

>

>

>

>

>

>

> ---------------------------------

> Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just

> 2¢/min with Yahoo! Messenger with Voice.

>

>

>

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Guest guest

we haven't explored signing because she has always heard and always spoken

with no deficits . . . so we never had to think about it . . . should her

hearing loss start to worsen, it might become an option for us, too

LVAS is large vestibular aquaduct syndrome

>

> For us sign was the key to Hailey learning speech. We have found that the

> way she learns speech is that she first will mater the sign for a new word,

> then when she is comfortable witht he sign she will then attempt to say the

> word. I think for her becasue she was dxed late and was so frustrated with

> not being able to communicate she learned that the sign is always the same

> no matter who signs it, we're always going to know what she means if she

> signs it. If she says the word we may not always be able to understand her

> and that frustrates her. So sign for us has been the key in helping her

> communicate. I'm not saying it's the only way for everychild, but it works

> for us.

>

> Oh and a really dumb question what LVAS stand for?

>

>

>

>

>

> Selena

> Mom to:

> 8 1/2, LD

> 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> 6, ODD, ADHD, LD

> 5, DSI and Physcomotor Eppliepsy

> Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

> 6-4-05)

> and the 16 wonderful special ed kids I teach everyday! Go

> NORTHWOOD!!!!!!

>

>

>

>

>

>

> ---------------------------------

> Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just

> 2¢/min with Yahoo! Messenger with Voice.

>

>

>

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Guest guest

I think that it just points back to the best way is what works for your

child and your family. That's excellent!

LVAS (sometimes called EVAS) is Enlarged Vestibular Aqueduct Syndrome.

it means the channel connecting the inner ear to the cranium is larger

than normal - this enlargement can cause hearing loss. There are

several listmates who can tell you more about it than I can!

Barbara

Selena Fain wrote:

> For us sign was the key to Hailey learning speech. We have found that the way

she learns speech is that she first will mater the sign for a new word, then

when she is comfortable witht he sign she will then attempt to say the word. I

think for her becasue she was dxed late and was so frustrated with not being

able to communicate she learned that the sign is always the same no matter who

signs it, we're always going to know what she means if she signs it. If she says

the word we may not always be able to understand her and that frustrates her. So

sign for us has been the key in helping her communicate. I'm not saying it's the

only way for everychild, but it works for us.

>

> Oh and a really dumb question what LVAS stand for?

>

>

>

>

>

> Selena

> Mom to:

> 8 1/2, LD

> 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> 6, ODD, ADHD, LD

> 5, DSI and Physcomotor Eppliepsy

> Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

6-4-05)

> and the 16 wonderful special ed kids I teach everyday! Go NORTHWOOD!!!!!!

>

>

>

>

>

> ---------------------------------

> Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min

with Yahoo! Messenger with Voice.

>

>

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Guest guest

I think that it just points back to the best way is what works for your

child and your family. That's excellent!

LVAS (sometimes called EVAS) is Enlarged Vestibular Aqueduct Syndrome.

it means the channel connecting the inner ear to the cranium is larger

than normal - this enlargement can cause hearing loss. There are

several listmates who can tell you more about it than I can!

Barbara

Selena Fain wrote:

> For us sign was the key to Hailey learning speech. We have found that the way

she learns speech is that she first will mater the sign for a new word, then

when she is comfortable witht he sign she will then attempt to say the word. I

think for her becasue she was dxed late and was so frustrated with not being

able to communicate she learned that the sign is always the same no matter who

signs it, we're always going to know what she means if she signs it. If she says

the word we may not always be able to understand her and that frustrates her. So

sign for us has been the key in helping her communicate. I'm not saying it's the

only way for everychild, but it works for us.

>

> Oh and a really dumb question what LVAS stand for?

>

>

>

>

>

> Selena

> Mom to:

> 8 1/2, LD

> 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> 6, ODD, ADHD, LD

> 5, DSI and Physcomotor Eppliepsy

> Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing Loss (aided

6-4-05)

> and the 16 wonderful special ed kids I teach everyday! Go NORTHWOOD!!!!!!

>

>

>

>

>

> ---------------------------------

> Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min

with Yahoo! Messenger with Voice.

>

>

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Guest guest

>

> Hi Robin,

> I've read alot of parents talking about LVAS. Do doctors check

for that automatically or do I have to request it? I really don't

remember anyone telling me about it. What happens when the test come

back positive?

>

Hi ,

My son is also diagnosed with LVAS. I think it is standard

procedure to do a CT scan for any child with unexplained hearing

loss. That is how they diagnose the Large Vestibular Aqueduct. It

is important to know, because LVAS can be progressive and the

progression can be triggered by various actions, including but not

limited to head trauma. The syndrome has not been identified for

that long (1978, I think), and the research has been limited

(although there is an extensive study being done at NIH right now.

One person that has gone the extra mile and composed an article is

Dr. Neil Bauman. He is a biologist or something. Not a medical

Dr. But he has been hard of hearing or perhaps deaf his entire

life, and has devoted himself full time to developing a Hearing Loss

Help Center, in Pennsylvania I believe? Here is a link to his

article, which to this day is the only article out there that does a

reasonable job of explaining LVAS.

http://www.hearinglosshelp.com/articles/lvas.htm

Gotta run. Good luck.

Tracey

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Guest guest

>

> Hi Robin,

> I've read alot of parents talking about LVAS. Do doctors check

for that automatically or do I have to request it? I really don't

remember anyone telling me about it. What happens when the test come

back positive?

>

Hi ,

My son is also diagnosed with LVAS. I think it is standard

procedure to do a CT scan for any child with unexplained hearing

loss. That is how they diagnose the Large Vestibular Aqueduct. It

is important to know, because LVAS can be progressive and the

progression can be triggered by various actions, including but not

limited to head trauma. The syndrome has not been identified for

that long (1978, I think), and the research has been limited

(although there is an extensive study being done at NIH right now.

One person that has gone the extra mile and composed an article is

Dr. Neil Bauman. He is a biologist or something. Not a medical

Dr. But he has been hard of hearing or perhaps deaf his entire

life, and has devoted himself full time to developing a Hearing Loss

Help Center, in Pennsylvania I believe? Here is a link to his

article, which to this day is the only article out there that does a

reasonable job of explaining LVAS.

http://www.hearinglosshelp.com/articles/lvas.htm

Gotta run. Good luck.

Tracey

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In a message dated 5/2/2006 10:34:24 A.M. Eastern Daylight Time,

beat4girl@... writes:

I have noticed on the days that he is struggling with the

momory retrieval stuff he might as me to cue. Isn't that odd?

We have similar oddities ... Ian has a slower than normal processing speed

and sometimes signing seems to bypasses some places in his brain and he

understands more quickly. We've also found that when he can type essays, they

emerge more fluidly and clearly stated. Again, I think this is because he is

bypassing some section of the brain that doesn't work quite right for him.

I find that I can type more fluidly as well ... thoughts go directly to the

" paper " whereas if I am physically writing, it has a different feel. Thoughts

are slower because of the process of getting them through the pen/pencil in

my hands first.

I find the way the brain works all very intriguing!

Best -- Jill

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In a message dated 5/2/2006 10:34:24 A.M. Eastern Daylight Time,

beat4girl@... writes:

I have noticed on the days that he is struggling with the

momory retrieval stuff he might as me to cue. Isn't that odd?

We have similar oddities ... Ian has a slower than normal processing speed

and sometimes signing seems to bypasses some places in his brain and he

understands more quickly. We've also found that when he can type essays, they

emerge more fluidly and clearly stated. Again, I think this is because he is

bypassing some section of the brain that doesn't work quite right for him.

I find that I can type more fluidly as well ... thoughts go directly to the

" paper " whereas if I am physically writing, it has a different feel. Thoughts

are slower because of the process of getting them through the pen/pencil in

my hands first.

I find the way the brain works all very intriguing!

Best -- Jill

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Hi Robin - I brought up sign because you had wondered if it was a

strain on your daughter to listen. Lots of parents do learn to sign

to facilitate communication with their kids (deaf/hh and hearing)

but I can see you do a lot of research, so you probably know

this :). Once at a dept store, a mom told me she was learning some

sign because it seemed nicer than yelling for her hearing kids when

they were out. And I think some of the parents here have found that

with their hard of hearing kids, that it is helpful at swimming

pools in the summer.

Selena - I have a Hayley, also, soon to be 14 and an eighth grader

at Western PA school for the Deaf.

> >

> > For us sign was the key to Hailey learning speech. We have found

that the

> > way she learns speech is that she first will mater the sign for

a new word,

> > then when she is comfortable witht he sign she will then attempt

to say the

> > word. I think for her becasue she was dxed late and was so

frustrated with

> > not being able to communicate she learned that the sign is

always the same

> > no matter who signs it, we're always going to know what she

means if she

> > signs it. If she says the word we may not always be able to

understand her

> > and that frustrates her. So sign for us has been the key in

helping her

> > communicate. I'm not saying it's the only way for everychild,

but it works

> > for us.

> >

> > Oh and a really dumb question what LVAS stand for?

> >

> >

> >

> >

> >

> > Selena

> > Mom to:

> > 8 1/2, LD

> > 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> > 6, ODD, ADHD, LD

> > 5, DSI and Physcomotor Eppliepsy

> > Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing

Loss (aided

> > 6-4-05)

> > and the 16 wonderful special ed kids I teach everyday! Go

> > NORTHWOOD!!!!!!

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries

for just

> > 2¢/min with Yahoo! Messenger with Voice.

> >

> >

> >

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Hi Robin - I brought up sign because you had wondered if it was a

strain on your daughter to listen. Lots of parents do learn to sign

to facilitate communication with their kids (deaf/hh and hearing)

but I can see you do a lot of research, so you probably know

this :). Once at a dept store, a mom told me she was learning some

sign because it seemed nicer than yelling for her hearing kids when

they were out. And I think some of the parents here have found that

with their hard of hearing kids, that it is helpful at swimming

pools in the summer.

Selena - I have a Hayley, also, soon to be 14 and an eighth grader

at Western PA school for the Deaf.

> >

> > For us sign was the key to Hailey learning speech. We have found

that the

> > way she learns speech is that she first will mater the sign for

a new word,

> > then when she is comfortable witht he sign she will then attempt

to say the

> > word. I think for her becasue she was dxed late and was so

frustrated with

> > not being able to communicate she learned that the sign is

always the same

> > no matter who signs it, we're always going to know what she

means if she

> > signs it. If she says the word we may not always be able to

understand her

> > and that frustrates her. So sign for us has been the key in

helping her

> > communicate. I'm not saying it's the only way for everychild,

but it works

> > for us.

> >

> > Oh and a really dumb question what LVAS stand for?

> >

> >

> >

> >

> >

> > Selena

> > Mom to:

> > 8 1/2, LD

> > 7, DSI, Kidney issues and Child Onset Bipolar Disorder

> > 6, ODD, ADHD, LD

> > 5, DSI and Physcomotor Eppliepsy

> > Hailey 4, DSI, and Severe Bilatereal Sensory-neural Hearing

Loss (aided

> > 6-4-05)

> > and the 16 wonderful special ed kids I teach everyday! Go

> > NORTHWOOD!!!!!!

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries

for just

> > 2¢/min with Yahoo! Messenger with Voice.

> >

> >

> >

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In a message dated 5/2/2006 11:28:42 A.M. Eastern Daylight Time,

lalvarez1022@... writes:

This might so dumb.....but was cued speech?

Not dumb at all. There is SO much to learn about D/HOH stuff that the only

way to find out is to ask. We've all asked that question at some point.

It is another form of signing -- there are several signing modalities out

there. When choosing to sign with our kids, ASL is not our only choice. There

are different methods (modalities) and parents on this list use a variety of

them. Again, it's what works best for your child and family.

We don't use Cued Speech so my basic explanation may be a bit off, but I

know someone will jump in with a better explanation. From what I understand it

is a phonetic signing structure where there are hand signs for different

sounds. (ASL uses hands signs to represent individual words/concepts.)

Best -- Jill

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In a message dated 5/2/2006 7:31:27 A.M. Eastern Daylight Time,

maryemapa@... writes:

Once at a dept store, a mom told me she was learning some

sign because it seemed nicer than yelling for her hearing kids when

they were out.

Yes! .... this is one way I use sign with my 12-year-old hearing daughter.

She is at an age when she is pushing the limits of the rules, as well as my

patience. In public, and with her friends, I can ask/sign if she really wants to

push me until I'm very mad, until she's grounded, loses tv or telephone

rights, etc. And I'm doing it in semi-privacy, her friends don't know what's

being said and she can chose whether or not to translate. But she always gets

the

point.

Also, I now sign (usually voice on) with my Girl Scout troop and they are

catching on. We went roller skating Saturday night and signing was just more

efficient than trying to scream across a noisy crowded rink. They'd already

caught on to signs like " watch " " look " " help " and more. They think it's fun, so

I sign on our trips, usually with a quiet whisper of a voice, but sometimes wi

thout any voice at all. When we were at the Science museum I asked them

(voice off) to find which turtles in the exhibit lived in the water and to

count

them. It was loud and crowded in there, and most of them figured it out based

on the signs for turtle and water, and did what I asked. It was really fun.

My sister signed with both her kids as babies, neither has a hearing loss.

Yet they were able to communicate their basic wants better and long before

their cousins who hadn't learned signs. Also, when we went to visit, my hearing

daughter also knew what they " said. " It was kid of fun.

Best -- Jill

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In a message dated 5/2/2006 7:31:27 A.M. Eastern Daylight Time,

maryemapa@... writes:

Once at a dept store, a mom told me she was learning some

sign because it seemed nicer than yelling for her hearing kids when

they were out.

Yes! .... this is one way I use sign with my 12-year-old hearing daughter.

She is at an age when she is pushing the limits of the rules, as well as my

patience. In public, and with her friends, I can ask/sign if she really wants to

push me until I'm very mad, until she's grounded, loses tv or telephone

rights, etc. And I'm doing it in semi-privacy, her friends don't know what's

being said and she can chose whether or not to translate. But she always gets

the

point.

Also, I now sign (usually voice on) with my Girl Scout troop and they are

catching on. We went roller skating Saturday night and signing was just more

efficient than trying to scream across a noisy crowded rink. They'd already

caught on to signs like " watch " " look " " help " and more. They think it's fun, so

I sign on our trips, usually with a quiet whisper of a voice, but sometimes wi

thout any voice at all. When we were at the Science museum I asked them

(voice off) to find which turtles in the exhibit lived in the water and to

count

them. It was loud and crowded in there, and most of them figured it out based

on the signs for turtle and water, and did what I asked. It was really fun.

My sister signed with both her kids as babies, neither has a hearing loss.

Yet they were able to communicate their basic wants better and long before

their cousins who hadn't learned signs. Also, when we went to visit, my hearing

daughter also knew what they " said. " It was kid of fun.

Best -- Jill

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In a message dated 5/2/2006 7:31:27 A.M. Eastern Daylight Time,

maryemapa@... writes:

Once at a dept store, a mom told me she was learning some

sign because it seemed nicer than yelling for her hearing kids when

they were out.

Yes! .... this is one way I use sign with my 12-year-old hearing daughter.

She is at an age when she is pushing the limits of the rules, as well as my

patience. In public, and with her friends, I can ask/sign if she really wants to

push me until I'm very mad, until she's grounded, loses tv or telephone

rights, etc. And I'm doing it in semi-privacy, her friends don't know what's

being said and she can chose whether or not to translate. But she always gets

the

point.

Also, I now sign (usually voice on) with my Girl Scout troop and they are

catching on. We went roller skating Saturday night and signing was just more

efficient than trying to scream across a noisy crowded rink. They'd already

caught on to signs like " watch " " look " " help " and more. They think it's fun, so

I sign on our trips, usually with a quiet whisper of a voice, but sometimes wi

thout any voice at all. When we were at the Science museum I asked them

(voice off) to find which turtles in the exhibit lived in the water and to

count

them. It was loud and crowded in there, and most of them figured it out based

on the signs for turtle and water, and did what I asked. It was really fun.

My sister signed with both her kids as babies, neither has a hearing loss.

Yet they were able to communicate their basic wants better and long before

their cousins who hadn't learned signs. Also, when we went to visit, my hearing

daughter also knew what they " said. " It was kid of fun.

Best -- Jill

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We don't know a bunch of sign but having a little bit is so nice for

across the room or at the swimming pool... It really does help a

bunch! Also, when Sam plays sports - we teach the coach a few signs and

that helps Sammy immensely.

Barbara

wrote:

> Hi Robin - I brought up sign because you had wondered if it was a

> strain on your daughter to listen. Lots of parents do learn to sign

> to facilitate communication with their kids (deaf/hh and hearing)

> but I can see you do a lot of research, so you probably know

> this :). Once at a dept store, a mom told me she was learning some

> sign because it seemed nicer than yelling for her hearing kids when

> they were out. And I think some of the parents here have found that

> with their hard of hearing kids, that it is helpful at swimming

> pools in the summer.

>

> Selena - I have a Hayley, also, soon to be 14 and an eighth grader

> at Western PA school for the Deaf.

>

>

>

>

>

>

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Speaking of sign language, the middle school Jake was SUPPOSED to go to

had an elective in sign language so I was going to sign him and his

brother up for it.

We use cued speech but I thought they may like to learn it.

Jake doesn't really use cued speech anymore, I am not sure he can read

the cues sometimes but then out of the blue he will tell me to use cued

speech when we are talking and he does not get it. However, this is

not when he does not here it is those days that his processing seems to

be more off. I have noticed on the days that he is struggling with the

momory retrieval stuff he might as me to cue. Isn't that odd?

Elaine

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This might so dumb.....but was cued speech?

elaine_blackford wrote:

Speaking of sign language, the middle school Jake was SUPPOSED to go to

had an elective in sign language so I was going to sign him and his

brother up for it.

We use cued speech but I thought they may like to learn it.

Jake doesn't really use cued speech anymore, I am not sure he can read

the cues sometimes but then out of the blue he will tell me to use cued

speech when we are talking and he does not get it. However, this is

not when he does not here it is those days that his processing seems to

be more off. I have noticed on the days that he is struggling with the

momory retrieval stuff he might as me to cue. Isn't that odd?

Elaine

All messages posted to this list are private and confidential. Each post is the

intellectual property of the author and therefore subject to copyright

restrictions.

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This might so dumb.....but was cued speech?

elaine_blackford wrote:

Speaking of sign language, the middle school Jake was SUPPOSED to go to

had an elective in sign language so I was going to sign him and his

brother up for it.

We use cued speech but I thought they may like to learn it.

Jake doesn't really use cued speech anymore, I am not sure he can read

the cues sometimes but then out of the blue he will tell me to use cued

speech when we are talking and he does not get it. However, this is

not when he does not here it is those days that his processing seems to

be more off. I have noticed on the days that he is struggling with the

momory retrieval stuff he might as me to cue. Isn't that odd?

Elaine

All messages posted to this list are private and confidential. Each post is the

intellectual property of the author and therefore subject to copyright

restrictions.

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This might so dumb.....but was cued speech?

elaine_blackford wrote:

Speaking of sign language, the middle school Jake was SUPPOSED to go to

had an elective in sign language so I was going to sign him and his

brother up for it.

We use cued speech but I thought they may like to learn it.

Jake doesn't really use cued speech anymore, I am not sure he can read

the cues sometimes but then out of the blue he will tell me to use cued

speech when we are talking and he does not get it. However, this is

not when he does not here it is those days that his processing seems to

be more off. I have noticed on the days that he is struggling with the

momory retrieval stuff he might as me to cue. Isn't that odd?

Elaine

All messages posted to this list are private and confidential. Each post is the

intellectual property of the author and therefore subject to copyright

restrictions.

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-

Sign language is important in our family. Hayley was raised

signing. She is 13. She also wears a CI and a hearing aid and

receives speech therapy at her school. She signs and speaks but

does much better signing only.

It is really hard sometimes to get to sign classes. There are a

whole host of books you can buy as well as if you type ASL browser -

well, go here:

http://commtechlab.msu.edu/sites/aslweb/browser.htm

that might help you. But please don't feel bad and take your cues

from Alyanna; maybe she would enjoy you learning some signs and then

maybe not!

Where are you? I can help point you to resources in CA and PA.

Now, about the other things you mention - cochlear implant - this

would be up to you and your family and I agree, you need to research

this before any decision is made. I know a lot of deaf kids since

my daughter goes to deaf school and they are all profoundly deaf and

they all wear hearing aids, so it must help. (38 have CIs out of

200). The school has audiologists that get the kids earmolds, etc,

so there must be some reason why all these kids wear aids! Is your

daughter only deaf in the one ear? Never mind, I went back and

read. With a severe - profound loss in one ear, that ear can be

implanted and the moderate - severe ear can be helped by a hearing

aid.

About holding Alyanna the daughter back. I kept mine in

Kindergarten for 1/2 day and then the other half day, she went to

first grade. It was a good move. I am also considering asking her

school about keeping her one more year where she is now. I think

its likely better to keep them back younger vs. when they are

older. Just my two cents about that.

Hope this helps you,

mary

->

> Also, my daughter knows alot of sign language at school but they

also use verbal communication. At home we use verbal, as well as our

family, she does very well understanding us but I want to learn sign

language to make her feel better. They offered classes at her school

but I only when to a couple because of the schedule. Sometimes I

feelt very guilty but at times I just feel like there is always a

next class and is not that bad because she does so well with verbal

communication and she really does not need it. Everybody that we

meet the first question they ask me is " do you know sign language " ?.

I just feel really stupid saying " a little " .

>

> Sooooo I had a question for all parents..... How do you

communicate with your child? Is sign language very very important?

>

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