Another new person to the group!!!

[Guest guest]

Hi everyone! My 2.5 month old daughter was diagnosed with positional

left side posterior plagiocephaly at her 2 month appointment and mild

torticollis. The ped is sending us to see a physical therapist

tomorrow for a torticollis eval, anyone know what we should expect

out of that meeting?

My ped is fairly conservative about the plagio and keeps telling me

that no one has the perfect head shape and everyone is a bit

asymetrical but it just doesn't sit well with me. My daughter's

plagio, while not shockingly obvious is messing with her facial

features by shoving her ear forward, her cheek on the flat side is

rounder and sticks out more and even the eye sockets seem different

to me. After getting the dx, it did not feel comfortable to me to

just sit around for 2 more months and see what happens so I called

the STARband orthoist in our area to ask him for specialist names

that I could go to. He was shocked to learn that the ped had dx her

but not taken any measurements so he offered to measure her himself

tomorrow to see where she falls on the mild to severe spectrum and if

she would even be a candidate for a band. I am going to predict that

she will fall into the low end of moderate since it is messing with

her facial features...

Is there anything else that I need to do or people I should contact

to get this started?

[Guest guest]

HI and Welcome! Your story is VERY familiar - all too many parents have to push and fight to get treatment for thier babies. I was also told that no one is asym - the dr then went on to point out my own asyms...thanks! :-P

I think you are making ALL the right choices. The ortho you see may have banding frenidly drs that he knows of where you could go and get an script. OR after you get the #'s you can take that info to your ped or to a craniofacial dr. to get a script for the band.

ALSO, before you plan on going with a band - if needed - make sure you research the orthos that may be treating your baby. Thier experience is ther key to success. A good band in bad hands can actually do harm. Find out how long they have been treating plagio, how many babies a year, a month? DO they have any pics of babies they have treated?

Hope this all helps!

Jen and Luli - 24 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

Another new person to the group!!!

Hi everyone! My 2.5 month old daughter was diagnosed with positional

left side posterior plagiocephaly at her 2 month appointment and mild

torticollis. The ped is sending us to see a physical therapist

tomorrow for a torticollis eval, anyone know what we should expect

out of that meeting?

My ped is fairly conservative about the plagio and keeps telling me

that no one has the perfect head shape and everyone is a bit

asymetrical but it just doesn't sit well with me. My daughter's

plagio, while not shockingly obvious is messing with her facial

features by shoving her ear forward, her cheek on the flat side is

rounder and sticks out more and even the eye sockets seem different

to me. After getting the dx, it did not feel comfortable to me to

just sit around for 2 more months and see what happens so I called

the STARband orthoist in our area to ask him for specialist names

that I could go to. He was shocked to learn that the ped had dx her

but not taken any measurements so he offered to measure her himself

tomorrow to see where she falls on the mild to severe spectrum and if

she would even be a candidate for a band. I am going to predict that

she will fall into the low end of moderate since it is messing with

her facial features...

Is there anything else that I need to do or people I should contact

to get this started?

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