Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Has anyone not used the DOC band and just did the repositioning. If so, did this work? I have been told that my son's head should form okay without the helmet, but am so afraid that if it doesn't I would have missed this opportunity while he is still young. Any feedback would be so appreciated. Thanks, Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 How old is your son? Repo can work for some younger babies with milder cases of plagio. But it didn't work for us and there was very little natural change over a year's time, so we did end up banding my son at 17 months old. The earlier you can start the process the better. But I agree with , that you can try repo if he is younger than 6 months and then set a deadline to see if a helmet will still be needed. My son fell into the high moderate category for severity at 16 months old, so he was even worse a year ago. We were told it would round out on its own as well, but it didn't. Again, for some milder cases it may. Has his asymmetry been measured at all. That is sometimes a good place to start, to see where he falls in severity, and also to chart his progress if you do try repo for a while. Good luck! Jake-18m (tort resolved/rt plagio/DocBand 7 weeks) Jordan-4 > > Has anyone not used the DOC band and just did the repositioning. If so, did this work? I > have been told that my son's head should form okay without the helmet, but am so afraid > that if it doesn't I would have missed this opportunity while he is still young. > > Any feedback would be so appreciated. > > Thanks, Jenn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 Hi, I did not to the docband for my daughter, even though she had severe plagio. she was at 30mm. I took my chances, did serious aggressive repo, and did every sort of alternative therapy i could find, and she has done awesome! She was 4mo when I started all my treatments for her, and at her 8mo re-evaluations she measured at 15mm, and had caught up on all her motor skills, strengthened her neck for no more tort, etc. I am going back for a 12mo re-eval. I am very pleased with her results. Jen -- In Plagiocephaly , " jenniferrettew " <jenniferrettew@...> wrote: > > Has anyone not used the DOC band and just did the repositioning. If so, did this work? I > have been told that my son's head should form okay without the helmet, but am so afraid > that if it doesn't I would have missed this opportunity while he is still young. > > Any feedback would be so appreciated. > > Thanks, Jenn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 30mm? I have never heard of plagio that severe. I think the worst I've heard is 23 or maybe 25. Was it really that bad (I'm no expert, the numbers I've see are just what other moms have posted here)? Where did you have her evaluated? You must have worked really hard. When is her 12 mo check? -christine sydney 2 yrs starband grad > > > > Has anyone not used the DOC band and just did the repositioning. > If so, did this work? I > > have been told that my son's head should form okay without the > helmet, but am so afraid > > that if it doesn't I would have missed this opportunity while he is > still young. > > > > Any feedback would be so appreciated. > > > > Thanks, Jenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 evaluated at cranial tech in IL. It was severe, and I worked crazy hard. human helmet, and tons of alternative therapies. Her re-eval at cranial tech is in May, I can't wait. I will be sure to post the results. Jen > > > > > > Has anyone not used the DOC band and just did the repositioning. > > If so, did this work? I > > > have been told that my son's head should form okay without the > > helmet, but am so afraid > > > that if it doesn't I would have missed this opportunity while he is > > still young. > > > > > > Any feedback would be so appreciated. > > > > > > Thanks, Jenn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 30mm is very severe...Wow, 15mm improvement sounds great. Hopefully, you will have more results when you go in May. Please keep us posted. lisa > > > > > > > > Has anyone not used the DOC band and just did the > repositioning. > > > If so, did this work? I > > > > have been told that my son's head should form okay without the > > > helmet, but am so afraid > > > > that if it doesn't I would have missed this opportunity while > he is > > > still young. > > > > > > > > Any feedback would be so appreciated. > > > > > > > > Thanks, Jenn > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 I will definetely update in May. > > > > > > > > > > Has anyone not used the DOC band and just did the > > repositioning. > > > > If so, did this work? I > > > > > have been told that my son's head should form okay without > the > > > > helmet, but am so afraid > > > > > that if it doesn't I would have missed this opportunity > while > > he is > > > > still young. > > > > > > > > > > Any feedback would be so appreciated. > > > > > > > > > > Thanks, Jenn > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 What is " human helmet " ? I'll be hoping for good numbers next month. I would have loved to avoid a helmet, but having done it I don't regret it at all. I only wish I had done more research when we started noticing the flatness. Instead we just listened to our ped who said " don't worry " . -christine sydney 2 yrs starband grad -- In Plagiocephaly , " Jen " <jad74@...> wrote: > > evaluated at cranial tech in IL. It was severe, and I worked crazy > hard. human helmet, and tons of alternative therapies. Her re-eval > at cranial tech is in May, I can't wait. I will be sure to post the > results. > > Jen > > > > > > > > > > Has anyone not used the DOC band and just did the > repositioning. > > > If so, did this work? I > > > > have been told that my son's head should form okay without the > > > helmet, but am so afraid > > > > that if it doesn't I would have missed this opportunity while > he is > > > still young. > > > > > > > > Any feedback would be so appreciated. > > > > > > > > Thanks, Jenn > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 My sons first sign was that his front right plates (i guess) overlapped. I pointed that out to her doc. He told me to try repositing (but didn't really say how). That got better but the spot in the back worsened. He told me to try turning him around in bed and other places. We saw some improvement, but it just went right back to what it was. I just wish our ped had all the tips I've found since reading. I'm going to take them to him, so he can pass on more to other parents. > > > > > > > > > > Has anyone not used the DOC band and just did the > > repositioning. > > > > If so, did this work? I > > > > > have been told that my son's head should form okay without the > > > > helmet, but am so afraid > > > > > that if it doesn't I would have missed this opportunity while > > he is > > > > still young. > > > > > > > > > > Any feedback would be so appreciated. > > > > > > > > > > Thanks, Jenn > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 We attempted repositions for 4 - 5 months and it did not correct our son's plagio. Although, it did probably help prevent it from getting even worse. We will be banding next week to correct his plagio. Good luck and I hope repositioning helps for you guys. jenn > > Has anyone not used the DOC band and just did the repositioning. If so, did this work? I > have been told that my son's head should form okay without the helmet, but am so afraid > that if it doesn't I would have missed this opportunity while he is still young. > > Any feedback would be so appreciated. > > Thanks, Jenn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Repositioning wasn't sufficient. Our son will have a helmet at 10 months. > > > > Has anyone not used the DOC band and just did the repositioning. > If so, did this work? I > > have been told that my son's head should form okay without the > helmet, but am so afraid > > that if it doesn't I would have missed this opportunity while he is > still young. > > > > Any feedback would be so appreciated. > > > > Thanks, Jenn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Amy, I feel that your story is similar to mine. My boy is 6 months old now. My mom told me about the fact that baby's head is really soft so i should be careful with him, so I was extra careful and I kept asking my doctor since day one if everything is fine. Then I noticed that his head is a little pointy and flat on the back but the doctor kept laughing at me and saying that nobody has perfect head, etc, and everything will round out once he starts sitting. But my instinct was telling me that I should do something about it. I researched online and found the CT in NJ, before I even found this group I called CT and scheduled free consultation. Then I discovered this group and everybody encourage me to go for the valuation and take it from there. He was diagnosed with brachy, and they said that he is a good candidate. At the time I was not sure what I wanted to do, but asked them to start with the process about the insurance, and in the mean time I will continue and try even harder repositioning. For the last 3 weeks I have been doing extreme repositioning, and I see results. Last week we got the call that actually my doctor (the one that was laughing) actually wrote the letter for necessity, and we were approved by the insurance. I went to see our pediatrics again and ask him what he thinks, but their (they are a group of doctors, so we see different one every time) answer was the same, it will fix on its own, but if this is going to bother me so much to go for it. Everybody around me is against it, but I convinced my husband and we are going for casting tomorrow. We will not be able to be in the band for more that 10-11 weeks (as we need to leave the country), but I am hoping to see good results as he is still young. Long story short, everybody tells me that he is adorable and I am the only one who notice it, but I trust my mother instinct and I am going to do it. Hopefully we will see good results and I will get some peace and start enjoying my baby, rather than keep worrying about his head. Every situation is different, but I would recommend, schedule appointment with CT to see what the reality is and they will tell you what they think. From there is your decision, but I highly recommend going there, even if only to see what is the actual asymmetry. Hope it helps, Tottiaderry5 <aderry5@...> wrote: HI~I have a son who was diagnosed with plagio and brachio around 6 mo, but I noticed it earlier and started repositioning. When we went to the check-up she recomfirmed my fears that his head was flat. I have been repositioning for almost 2 months and I think that it is better. But I still am bothered b/c it looks flat to me. I insisted on a referrel to a craniofacial specialist and my pediatrician was annoyed. She said all they will do is surgery which I knew better. The cranio dr. said to just keep reposition that it would be painful to me to do helmet treatment in the summer. However, I will do anything to fix it. I have seen the results on the iternet and they are amazing. Has anybody else encountered the negative reactions to helmeting? I still am interested in it if it will help. I just don't know if I should just keep repositioning and wait...(however it might not help) or insist on a helmet. (I still am not sure if he needs one). Any advice> Thanks, Amy Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Lots of people band who live in hot climates so that shouldn't stop you. I find it odd that a doctor would use that as a reason for not banding. A lot of parents on this board have had doctors being negative about the band but the results are hard to argue. Also, I don't believe repositioning works as well after 6 months. I repoed until my son was 6.5 months then got the band. He is 9 months now and has been in his band 6 weeks. I'm so glad we decided to do it because I already see great progress. Sybil Son Adam, 9 months, 6 weeks in DOCband, CT in NJ From: aderry5 <aderry5@...>Subject: repositioningPlagiocephaly Date: Thursday, May 1, 2008, 3:35 PM HI~I have a son who was diagnosed with plagio and brachio around 6 mo, but I noticed it earlier and started repositioning. When we went to the check-up she recomfirmed my fears that his head was flat. I have been repositioning for almost 2 months and I think that it is better. But I still am bothered b/c it looks flat to me. I insisted on a referrel to a craniofacial specialist and my pediatrician was annoyed. She said all they will do is surgery which I knew better. The cranio dr. said to just keep reposition that it would be painful to me to do helmet treatment in the summer. However, I will do anything to fix it. I have seen the results on the iternet and they are amazing. Has anybody else encountered the negative reactions to helmeting? I still am interested in it if it will help. I just don't know if I should just keep repositioning and wait...(however it might not help) or insist on a helmet. (I still am not sure if he needs one). Any advice> Thanks, Amy Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Hi Totti~ That is very helpful! Do you have to have a precription for the free consult? I don't know if my peds would do it b/c she keeps saying it will go back on its own. But like you all I do is worry about his head and never let him lie on it. I would feel so much better if I new for sure it would either fix itself on its own or he needed a helmet. Hope the casting went well! Amy Re: repositioning Amy, I feel that your story is similar to mine. My boy is 6 months old now. My mom told me about the fact that baby's head is really soft so i should be careful with him, so I was extra careful and I kept asking my doctor since day one if everything is fine. Then I noticed that his head is a little pointy and flat on the back but the doctor kept laughing at me and saying that nobody has perfect head, etc, and everything will round out once he starts sitting. But my instinct was telling me that I should do something about it. I researched online and found the CT in NJ, before I even found this group I called CT and scheduled free consultation. Then I discovered this group and everybody encourage me to go for the valuation and take it from there. He was diagnosed with brachy, and they said that he is a good candidate. At the time I was not sure what I wanted to do, but asked them to start with the process about the insurance, and in the mean time I will continue and try even harder repositioning. For the last 3 weeks I have been doing extreme repositioning, and I see results. Last week we got the call that actually my doctor (the one that was laughing) actually wrote the letter for necessity, and we were approved by the insurance. I went to see our pediatrics again and ask him what he thinks, but their (they are a group of doctors, so we see different one every time) answer was the same, it will fix on its own, but if this is going to bother me so much to go for it. Everybody around me is against it, but I convinced my husband and we are going for casting tomorrow. We will not be able to be in the band for more that 10-11 weeks (as we need to leave the country), but I am hoping to see good results as he is still young. Long story short, everybody tells me that he is adorable and I am the only one who notice it, but I trust my mother instinct and I am going to do it. Hopefully we will see good results and I will get some peace and start enjoying my baby, rather than keep worrying about his head. Every situation is different, but I would recommend, schedule appointment with CT to see what the reality is and they will tell you what they think. From there is your decision, but I highly recommend going there, even if only to see what is the actual asymmetry. Hope it helps, Tottiaderry5 <aderry5 (DOT) com> wrote: HI~I have a son who was diagnosed with plagio and brachio around 6 mo, but I noticed it earlier and started repositioning. When we went to the check-up she recomfirmed my fears that his head was flat. I have been repositioning for almost 2 months and I think that it is better. But I still am bothered b/c it looks flat to me. I insisted on a referrel to a craniofacial specialist and my pediatrician was annoyed. She said all they will do is surgery which I knew better. The cranio dr. said to just keep reposition that it would be painful to me to do helmet treatment in the summer. However, I will do anything to fix it. I have seen the results on the iternet and they are amazing. Has anybody else encountered the negative reactions to helmeting? I still am interested in it if it will help. I just don't know if I should just keep repositioning and wait...(however it might not help) or insist on a helmet. (I still am not sure if he needs one). Any advice> Thanks, Amy Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Amy, You do not need a prescription or anything at all for that appointment. They will take pictures and measurements and will explain to you what they believe is the problem, if there is any at all, and what is their opinion about repositioning, etc. The lady we met was really nice and she did agree that we could try repositioning until he is 6 months old, but if we are not really happy with results at that point, we should consider banding. She also explained whether repositioning will work at all for some kind of problems, etc. They are really nice and will not push you to make any decission, but will just give you their professional unbiased opinion, and this is all I needed. Keep us posted how everything goes. TottiAmy Derry <aderry5@...> wrote: Hi Totti~ That is very helpful! Do you have to have a precription for the free consult? I don't know if my peds would do it b/c she keeps saying it will go back on its own. But like you all I do is worry about his head and never let him lie on it. I would feel so much better if I new for sure it would either fix itself on its own or he needed a helmet. Hope the casting went well! Amy Re: repositioning Amy, I feel that your story is similar to mine. My boy is 6 months old now. My mom told me about the fact that baby's head is really soft so i should be careful with him, so I was extra careful and I kept asking my doctor since day one if everything is fine. Then I noticed that his head is a little pointy and flat on the back but the doctor kept laughing at me and saying that nobody has perfect head, etc, and everything will round out once he starts sitting. But my instinct was telling me that I should do something about it. I researched online and found the CT in NJ, before I even found this group I called CT and scheduled free consultation. Then I discovered this group and everybody encourage me to go for the valuation and take it from there. He was diagnosed with brachy, and they said that he is a good candidate. At the time I was not sure what I wanted to do, but asked them to start with the process about the insurance, and in the mean time I will continue and try even harder repositioning. For the last 3 weeks I have been doing extreme repositioning, and I see results. Last week we got the call that actually my doctor (the one that was laughing) actually wrote the letter for necessity, and we were approved by the insurance. I went to see our pediatrics again and ask him what he thinks, but their (they are a group of doctors, so we see different one every time) answer was the same, it will fix on its own, but if this is going to bother me so much to go for it. Everybody around me is against it, but I convinced my husband and we are going for casting tomorrow. We will not be able to be in the band for more that 10-11 weeks (as we need to leave the country), but I am hoping to see good results as he is still young. Long story short, everybody tells me that he is adorable and I am the only one who notice it, but I trust my mother instinct and I am going to do it. Hopefully we will see good results and I will get some peace and start enjoying my baby, rather than keep worrying about his head. Every situation is different, but I would recommend, schedule appointment with CT to see what the reality is and they will tell you what they think. From there is your decision, but I highly recommend going there, even if only to see what is the actual asymmetry. Hope it helps, Tottiaderry5 <aderry5 (DOT) com> wrote: HI~I have a son who was diagnosed with plagio and brachio around 6 mo, but I noticed it earlier and started repositioning. When we went to the check-up she recomfirmed my fears that his head was flat. I have been repositioning for almost 2 months and I think that it is better. But I still am bothered b/c it looks flat to me. I insisted on a referrel to a craniofacial specialist and my pediatrician was annoyed. She said all they will do is surgery which I knew better. The cranio dr. said to just keep reposition that it would be painful to me to do helmet treatment in the summer. However, I will do anything to fix it. I have seen the results on the iternet and they are amazing. Has anybody else encountered the negative reactions to helmeting? I still am interested in it if it will help. I just don't know if I should just keep repositioning and wait...(however it might not help) or insist on a helmet. (I still am not sure if he needs one). Any advice> Thanks, Amy Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 We were fortunate and didn't experience anything negative about banding. But unfortunately many doctors are still not plagio educated. Do you know if you have any banding facilities near you??? Many will do free evaluations. Or if you want you can add pictures in the photos section of the group. Good luck with your decision. Angie and Jenna STAR grad and KYLIE repositioned repositioning HI~I have a son who was diagnosed with plagio and brachio around 6 mo, but I noticed it earlier and started repositioning. When we went to the check-up she recomfirmed my fears that his head was flat. I have been repositioning for almost 2 months and I think that it is better. But I still am bothered b/c it looks flat to me. I insisted on a referrel to a craniofacial specialist and my pediatrician was annoyed. She said all they will do is surgery which I knew better. The cranio dr. said to just keep reposition that it would be painful to me to do helmet treatment in the summer. However, I will do anything to fix it. I have seen the results on the iternet and they are amazing. Has anybody else encountered the negative reactions to helmeting? I still am interested in it if it will help. I just don't know if I should just keep repositioning and wait...(however it might not help) or insist on a helmet. (I still am not sure if he needs one). Any advice> Thanks, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Amy, I would go for the free consult at a Cranial Tech to see what they think. Banding was wonderful for us as repo was not working due to Torticollis in my son. He got PT and with time and the helmet, no longer suffers from plagio or Tort. Please take it really serious and go for a consult if you can. If your mommy gut says go for it, do it you will not regret banding and getting the most correction you can. Tammy HI~I have a son who was diagnosed with plagio and brachio around 6 mo, but I noticed it earlier and started repositioning. When we went to the check-up she recomfirmed my fears that his head was flat. I have been repositioning for almost 2 months and I think that it is better. But I still am bothered b/c it looks flat to me. I insisted on a referrel to a craniofacial specialist and my pediatrician was annoyed. She said all they will do is surgery which I knew better. The cranio dr. said to just keep reposition that it would be painful to me to do helmet treatment in the summer. However, I will do anything to fix it. I have seen the results on the iternet and they are amazing. Has anybody else encountered the negative reactions to helmeting? I still am interested in it if it will help. I just don't know if I should just keep repositioning and wait...(however it might not help) or insist on a helmet. (I still am not sure if he needs one). Any advice> Thanks, Amy Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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