RE: [SPAM]Re: [SPAM] Finally got appt w/Neurosurgeon! Questions

[Guest guest]

Yes, I would check with your STARband provider to see if it is

possible for them to make a band given how mild the asymmetry is. They

should be able to tell you if there are enough holding points. There have

been people in this group who have banded at 8 mm so it is entirely possible to

do so. What it really comes down to is how you feel about your daughters

head shape. If you want to see some correction than by all means pursue

the band. Hopefully the neurosurgeon will write the prescription for

you. Is your paediatrician willing to write it? All you need is the

prescription from the doctor, it doesn’t necessarily need to be from a

specialist.

Molly

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of Dawn

Sent: 15 March 2008 02:10

Plagiocephaly

Subject: [sPAM]Re: [sPAM] Finally got appt w/Neurosurgeon!

Questions

Thanks for the quick reply!

We have a STARband person in our town, he was actually the one to do

our originally measurements. I guess I can see if we can go back and

get her measured again. The PT feels like her facial assy. is

definitely because of the plagio because the eye and cheek stick out

further and look much rounder on her flat side.

>

> Sometimes if the plagio is too mild a band won't work. The band

needs

> enough points to hold on the head to make it work. I believe that

Cranial

> Tech has turned people away because of this. I would think that a

band

> provider would be able to give you a better answer as to if a band

will work

> or not. Do you have a band provider near you that you can see for

an

> evaluation? Also keep in mind that that the facial asymmetry your

daughter

> is experiencing might be more from the torticollis and less from

the plagio.

> The same muscles that are tight in the neck also pull on the facial

muscles.

> As the torticollis improves you should see an improvement in the

facial

> features.

>

>

>

> Molly

>

> Novato, California

>

> Nicolas, 2, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

> Graduate!

>

> , 5

>

> , 8

>

>

>

> From: Plagiocephaly

[mailto:Plagiocephaly ]

> On Behalf Of Dawn

> Sent: 15 March 2008 01:46

> Plagiocephaly

> Subject: [sPAM] Finally got appt w/Neurosurgeon! Questions

>

>

>

> After 2 LONG months of repositioning my 4 month old has an appt

with

> the pediatric neurosurgeon March 24th. We have had CT scans and

know

> that she indeed has plagiocephaly and not something that will

require

> surgery...we have also seen a really good response to the

> respostioning and PT in terms of her head shape.(She is in PT

because

> of her torticollis which is improving SLOWLY!)

>

> Her ped feels like we could leave it alone and she would be fine

> but I can't help feeling like I would be doing her a disservice

later

> if I didn't pursue EVERY avenue on this plagiocephaly journey. Her

> original measurements put her in the mild catergory (8mm) her head

> HAS rounded out along the top half but the bottom is still very

flat

> looking and her facial assymetry is still very apparent.

>

> I have a fear the neurosurgeon is going to refuse to write us a

> prescription for a helmet since it is so mild...and to be honest

> maybe a helmet will do us no good BECAUSE of the mild nature of her

> plagio but I WANT a helmet(we are paying for this out of pocket

> because our insurance will not cover it). Even if the helmet does

> absolutely nothing for her because it is mild, I want to be able to

> tell her in the future that we did EVERYTHING in our power to

correct

> it...

>

> Am I crazy? Is it possible we will be denied the helmet even though

> we are not going through insurance? Is it true that a helmet will

> not improve mild cases of plagio? I guess I just need a reality

> check or some support

>

> Thanks!!

> Dawn

>