Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005. I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you. Are you on o2? Many of your problems can be because of a lack of O2 as well. I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTER SARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone. I started with one puzzle...moved up to 2 etc. I also read simpler books...the beach-novels( Nora , Higgens , ) They are easy to follow and I started with short periods of time and increased over weeks. As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 : I am curious as to why you stay on the 10 mg. so long. Is your goal to get off all together or does this amount keep you stable? I am down to 15 and will go down to 10 next Thursday but my goal is to stop all prednisone. Diane IPF June 07New Brunswick, Canada Re: Amy Dawn Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005.I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you.Are you on o2? Many of your problems can be because of a lack of O2 as well.I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTERSARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone.I started with one puzzle...moved up to 2 etc.I also read simpler books...the beach-novels( Nora , Higgens , )They are easy to follow and I started with short periods of time and increased over weeks.As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Hi : I noticed I did not put a subject I am bad about that sorry. Yes I am on O2 cannot be withour it except for the other day when it came off the bottle and I did not know for about 15 mins and began feeling faint. Thanks for the heads up on the reading even if I do a page or two at a time until I get on track and will try the word jumbles. Thanks Amy Re: Amy Dawn Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005.I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you.Are you on o2? Many of your problems can be because of a lack of O2 as well.I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTERSARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone.I started with one puzzle....moved up to 2 etc.I also read simpler books...the beach-novels( Nora , Higgens , )They are easy to follow and I started with short periods of time and increased over weeks.As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 Diane: I would love to get off all together (maybe take off some of this extra 25 pounds) I am told by a number of drs that my breathing would suffer. I have had this for 8 years so I do not want to take the chance. I worry about my immune system and all the other terrible side effects so I guess it is a doubled edge sword good breathing vs all of the above. Amy Re: Amy Dawn Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005.I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you.Are you on o2? Many of your problems can be because of a lack of O2 as well.I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTERSARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone.I started with one puzzle...moved up to 2 etc.I also read simpler books...the beach-novels( Nora , Higgens , )They are easy to follow and I started with short periods of time and increased over weeks.As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted… I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
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