So happy!

January 30, 2008

Rose was diagnosed with plagio at 2m, and went to CT for an eval at

4m. She had severe plagio w/30mm, 3mm facial asymetry. I decided to

reposition and do every alternative therapy I could think of. It's

been so hard to keep the faith, and to lose sleep as I act as a human

helmet of sorts. This has been a grueling 4 months, but I am so happy

to report today's success. We went back to CT for re-measurements

(which they were great about). Rose's facial asymetry went down to

2mm, and her overall down to 15mm. The orthotist said that Rose had

progressed as much as they may have expected in a band. I'm so

thrilled. Thanks for listening! Now we just have to decide what path

to take, she is 8m and growth is slowing down. Once again, more tough

decisions. But, that can wait until tomorrow. For today, hurray for

repo! (and all things alternative that live under the radar)

Jen

January 31, 2008

I am happy for you but would still consider banding if you think it will help that last little bit. What type of repo did you do? My son would never stay in a wedge and moves so much that I could never find a product for us. Any advice would be great as we are now out of the helmet and i do not want to see regression. He is 7 months old sitting not crawling yet. TammyJen <jad74@...> wrote: Rose was diagnosed with plagio at 2m, and went to CT for an eval at 4m. She had severe plagio w/30mm, 3mm facial asymetry. I

decided to reposition and do every alternative therapy I could think of. It's been so hard to keep the faith, and to lose sleep as I act as a human helmet of sorts. This has been a grueling 4 months, but I am so happy to report today's success. We went back to CT for re-measurements (which they were great about). Rose's facial asymetry went down to 2mm, and her overall down to 15mm. The orthotist said that Rose had progressed as much as they may have expected in a band. I'm so thrilled. Thanks for listening! Now we just have to decide what path to take, she is 8m and growth is slowing down. Once again, more tough decisions. But, that can wait until tomorrow. For today, hurray for repo! (and all things alternative that live under the radar)Jen

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January 31, 2008

Congratulations!!! That is awesome repositioning. Good luck with deciding your next path.

Angie

So happy!

Rose was diagnosed with plagio at 2m, and went to CT for an eval at 4m. She had severe plagio w/30mm, 3mm facial asymetry. I decided to reposition and do every alternative therapy I could think of. It's been so hard to keep the faith, and to lose sleep as I act as a human helmet of sorts. This has been a grueling 4 months, but I am so happy to report today's success. We went back to CT for re-measurements (which they were great about). Rose's facial asymetry went down to 2mm, and her overall down to 15mm. The orthotist said that Rose had progressed as much as they may have expected in a band. I'm so thrilled. Thanks for listening! Now we just have to decide what path to take, she is 8m and growth is slowing down. Once again, more tough decisions. But, that can wait until tomorrow. For today, hurray for repo! (and all things alternative that live under the radar)Jen

January 31, 2008

I would think at this point, you should still probably band as 15mm

is still considered severe. That is great though that she improved

15mm in 4 months time. We were told our son was high-end moderate

and that was 8mm. he was 7.5 months when banded and graduated at

9.5 months with 3mm assymetry.

>

> Rose was diagnosed with plagio at 2m, and went to CT for an eval

at

> 4m. She had severe plagio w/30mm, 3mm facial asymetry. I decided

to

> reposition and do every alternative therapy I could think of.

It's

> been so hard to keep the faith, and to lose sleep as I act as a

human

> helmet of sorts. This has been a grueling 4 months, but I am so

happy

> to report today's success. We went back to CT for re-measurements

> (which they were great about). Rose's facial asymetry went down

to

> 2mm, and her overall down to 15mm. The orthotist said that Rose

had

> progressed as much as they may have expected in a band. I'm so

> thrilled. Thanks for listening! Now we just have to decide what

path

> to take, she is 8m and growth is slowing down. Once again, more

tough

> decisions. But, that can wait until tomorrow. For today, hurray

for

> repo! (and all things alternative that live under the radar)

>

> Jen

>

January 31, 2008

The band is still a consideration. I would get it for her today if

it wasn't for the casting procedure. I know that lots of parents

have been through it with their children, and that it's not a big

deal, but dd is so very attached to me, doesn't even like strangers

to touch her. I am very concerned about how the casting procedure

will make her feel. I know that cognitively she will not remember

the event, but I also know that she has real and true feelings as an

infant, and I would hate to cause her emotional distress. Such a

tough decision!

Jen

-- In Plagiocephaly , " lka_236 " <lka_236@...> wrote:

>

> I would think at this point, you should still probably band as 15mm

> is still considered severe. That is great though that she improved

> 15mm in 4 months time. We were told our son was high-end moderate

> and that was 8mm. he was 7.5 months when banded and graduated at

> 9.5 months with 3mm assymetry.

>

> >

> > Rose was diagnosed with plagio at 2m, and went to CT for an eval

> at

> > 4m. She had severe plagio w/30mm, 3mm facial asymetry. I

decided

> to

> > reposition and do every alternative therapy I could think of.

> It's

> > been so hard to keep the faith, and to lose sleep as I act as a

> human

> > helmet of sorts. This has been a grueling 4 months, but I am so

> happy

> > to report today's success. We went back to CT for re-

measurements

> > (which they were great about). Rose's facial asymetry went down

> to

> > 2mm, and her overall down to 15mm. The orthotist said that Rose

> had

> > progressed as much as they may have expected in a band. I'm so

> > thrilled. Thanks for listening! Now we just have to decide what

> path

> > to take, she is 8m and growth is slowing down. Once again, more

> tough

> > decisions. But, that can wait until tomorrow. For today, hurray

> for

> > repo! (and all things alternative that live under the radar)

> >

> > Jen

> >

>

January 31, 2008

I think the best part of my repo was co-sleeping. I sleep next to dd

every night to police her head movements. She is in my bed on memory

foam, and if I have to I just nurse her all night while I sleep. It

took a lot of getting used to, and I was very tired at first, but now

she doesn't even move, and sleeps all night next to me. I sleep

great knowing I don't have to get up to check her position. I found

that if I put a rolled up burp cloth in her pjs and/or rolled a

blanket for her back, and put a pillow behind the blanket, she stays

still. when i propped her head to the side, she actually resisted

that more.

Jen

Rose was diagnosed with plagio at

2m, and went to CT for an eval at

> 4m. She had severe plagio w/30mm, 3mm facial asymetry. I decided to

> reposition and do every alternative therapy I could think of. It's

> been so hard to keep the faith, and to lose sleep as I act as a

human

> helmet of sorts. This has been a grueling 4 months, but I am so

happy

> to report today's success. We went back to CT for re-measurements

> (which they were great about). Rose's facial asymetry went down to

> 2mm, and her overall down to 15mm. The orthotist said that Rose had

> progressed as much as they may have expected in a band. I'm so

> thrilled. Thanks for listening! Now we just have to decide what

path

> to take, she is 8m and growth is slowing down. Once again, more

tough

> decisions. But, that can wait until tomorrow. For today, hurray for

> repo! (and all things alternative that live under the radar)

>

> Jen

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

February 1, 2008

great tip to place something in the pjs like a burp cloth to try to repo never thought of that one. I will try it. Thanks, TammyJen <jad74@...> wrote: I think the best part of my repo was co-sleeping. I sleep next to dd every night to police her head movements. She is in my bed on memory foam, and if I have to I just nurse her all night while I sleep. It took a lot of getting used to, and I was very tired at first, but now she doesn't even move, and sleeps all night next to me. I sleep great knowing I don't have to

get up to check her position. I found that if I put a rolled up burp cloth in her pjs and/or rolled a blanket for her back, and put a pillow behind the blanket, she stays still. when i propped her head to the side, she actually resisted that more. Jen Rose was diagnosed with plagio at 2m, and went to CT for an eval at > 4m. She had

severe plagio w/30mm, 3mm facial asymetry. I decided to > reposition and do every alternative therapy I could think of. It's > been so hard to keep the faith, and to lose sleep as I act as a human > helmet of sorts. This has been a grueling 4 months, but I am so happy > to report today's success. We went back to CT for re-measurements > (which they were great about). Rose's facial asymetry went down to > 2mm, and her overall down to 15mm. The orthotist said that Rose had > progressed as much as they may have expected in a band. I'm so > thrilled. Thanks for listening! Now we just have to decide what path > to take, she is 8m and growth is slowing down. Once again, more tough > decisions. But, that can wait until tomorrow. For today, hurray for > repo! (and all things alternative that live under the radar)> > Jen> > > > > >

> ---------------------------------> Never miss a thing. Make your homepage.>

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February 1, 2008

I would weigh the short term discomfort with the long term emotional impact that not having it done might have. I dont know if or how bad her asymmatry is... Just something to think about. We do a lot of things that cause short term discomfort to prevent long term problems... shots, etc. Plus are you sure they dont have the scanner? JMTC Kami Kiley 3 Keenan 5.5 months 4 weeks doc bandJen <jad74@...> wrote: The band is still a consideration. I would get it for her today if

it wasn't for the casting procedure. I know that lots of parents have been through it with their children, and that it's not a big deal, but dd is so very attached to me, doesn't even like strangers to touch her. I am very concerned about how the casting procedure will make her feel. I know that cognitively she will not remember the event, but I also know that she has real and true feelings as an infant, and I would hate to cause her emotional distress. Such a tough decision!Jen-- In Plagiocephaly , "lka_236" <lka_236@...> wrote:>> I would think at this point, you should still probably band as 15mm > is still considered severe. That is great though that she improved > 15mm in 4 months time. We were told our son was high-end moderate > and that was 8mm. he was 7.5 months when banded and graduated at

> 9.5 months with 3mm assymetry.> > > > > >> > Rose was diagnosed with plagio at 2m, and went to CT for an eval > at > > 4m. She had severe plagio w/30mm, 3mm facial asymetry. I decided > to > > reposition and do every alternative therapy I could think of. > It's > > been so hard to keep the faith, and to lose sleep as I act as a > human > > helmet of sorts. This has been a grueling 4 months, but I am so > happy > > to report today's success. We went back to CT for re-measurements > > (which they were great about). Rose's facial asymetry went down > to > > 2mm, and her overall down to 15mm. The orthotist said that Rose > had > > progressed as much as they

may have expected in a band. I'm so > > thrilled. Thanks for listening! Now we just have to decide what > path > > to take, she is 8m and growth is slowing down. Once again, more > tough > > decisions. But, that can wait until tomorrow. For today, hurray > for > > repo! (and all things alternative that live under the radar)> > > > Jen> >>

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November 25, 2009

YAY!!! Congratulations!!!

You will feel more like crap than you've ever felt before. And you

will also feel better than you can remember since forever. Sometimes

both will happen in the space of 24 hours.

It'll be a ride -- but for most of us who've taken it, it's been worth

it.

At least now you know. It's hard to overestimate what an important

step just that much is.....

Sara

On Nov 25, 2009, at 1:55 50PM, bridget wrote:

> So I just got back from a LLMD in my area, and he clinically

> diagnosed me with late stage neuro lyme, but not technically, since

> I don't have a positive test yet, but he said at this point since

> I've ruled everything else out and with my symptoms, he was very

> sure I had it. I am so happy, it's like the cloud is lifting a

> little, I still feel like crap, but at least now I know and have a

> diagnosis. He gave me medicine to start for candida and is running

> the Igenex test, and is going to go over all my stuff this weekend

> and call me on monday with a game plan, he said I might end up

> needing Iv antibiotics, but at this point, I will do anything to get

> better.

> Bridget

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources

> around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

November 25, 2009

Hey Bridget,

That's so great about finally getting a diagnosis... it really helps to know

you're not crazy, huh?

Anyway, since you do have late stage neurolyme, you might want to consider

teasel flower essences. I have found they're making a huge difference - my son

and I both have late stage neuro-lyme and Bartonella and can't do antibiotics.

IMHO, starting them late stage, as if you just got diagnosed, usually means a

lot of antibiotics and very sketchy true recovery. Even if we could do them, I

wouldn't because the time to hit it heavy was years ago. I was so grateful to

read about 's experience with teasel essences and that's what got me onto

it... her Bartonella is virtually gone, as is her lyme and it's with the teasel

protocol.

Teasel brings the lyme into harmony with the body, instead of it being a big

fight with all kinds of killing attempts going on. When it's more harmonized

with the body, core adrenal and immune function gets stronger and then all kinds

of good things start happening. I'll attach my story... I need to update it

with current results and you'll get the idea of where I started. You can't do

it with antibiotics and it may prevent you from having to take them... the

antibiotics do all sorts of damage to the body, which weakens an already

weakened system, and lyme, etc. goes into hiding to escape the drugs. That

hiding doesn't happen with teasel; in fact, the lyme feels safe and will come

out of cyst/l shape forms.

Give a call if you want info, especially before starting drugs ... I've been

researching all of this for a very long time and trying things for the last 23

years... the teasel flower essences and a couple of other things we're doing

(whole body nutritional cleanse and alkaline water) are the only things that've

truly made a difference.

Take good care and again, I'm so happy for you that you finally " know " , even

though you probably knew before. Happy Thanksgiving.

Cindi

[ ] SO happy!

So I just got back from a LLMD in my area, and he clinically diagnosed me with

late stage neuro lyme, but not technically, since I don't have a positive test

yet, but he said at this point since I've ruled everything else out and with my

symptoms, he was very sure I had it. I am so happy, it's like the cloud is

lifting a little, I still feel like crap, but at least now I know and have a

diagnosis. He gave me medicine to start for candida and is running the Igenex

test, and is going to go over all my stuff this weekend and call me on monday

with a game plan, he said I might end up needing Iv antibiotics, but at this

point, I will do anything to get better.

Bridget

November 26, 2009

Bridget,

Congratulations on your diagnosis, soirt of, I think. I completely understand

the need to put a name to what ails you, but I would never want to wish this

horrible disease on anyone or congratulate them for having it, either. I took PO

abx for a year and a half and saw about 10 different doctors. I finally settled

with my current doctor about 10 months ago and she also diagnosed me, through

blood work and clinical assessment with Lyme, Bartonella, Babesia and

Erlichiosis, along with Fibromyalgia and CFS. She had me on numerous orals for 9

months and then finally decided that it was time for the IV therapy. I have had

my PICC line in for 3 weeks now and I did not go through the horrible herx from

the Rocephin at all. I felt almost immediately better. I am not 100%, but I am

better. The soreness from the PICC beoing inserted was most bothersome to me. I

hope that whatever course your treatment takes that you feel better soon. I know

how hard it is to be a full-time mommy and horribly ill. Good luck to you and

Happy Thanksgiving to everyone.

Lissa

>

> Hey Bridget,

>

> That's so great about finally getting a diagnosis... it really helps to know