Thank you

[Guest guest]

I was just thinking the same thing and would like to

second that. Thank you, ! Everytime I read

your posts I am so impressed with your attitude

regarding banding late. I have a nearly 9 month old

son with severe brachy and we are currently in the

process of getting him banded (getting fitted in 11

days). I have just been a mess about this whole

thing. It feels like I am the only one out there that

even knows what plagio/brachy is, but it is so nice to

hear other moms that have gone through this whole

experience and have good things to say. I am so

jealous of the moms that were able to band at 4 or 5

months. I know that 9 months is not too old, but I

still regret not doing something sooner. I was

another victim of listening to my doctor, and everyone

else I know, tell me that it will round out on its

own. In fact, my mother-in-law thinks I am a

hypochondriac and am crazy for even considering

banding my son, but that is a whole other topic.

Thanks again for all of the support.

Cincinnati, OH

, 9 months- severe brachy

> Hi ,

> Just wanted to write to you as I see how much

> encouragement you give

> to other moms on this board and wanted to let you

> know that I was

> another mom that banded her son late. My son started

> his Doc Band at

> the age of 14 months and graduated at 18months. ( I

> wish he could

> have worn it longer but due to the life span of 4mo

> of the Doc Band

> he only wore it this amount of time. He actually

> wore an ill-fitting

> Hanger Band from the age of 5mo-10mo (long story)

> and then I listened

> to his dr who said nothing else could be done at

> that point due to

> his age. Decided on my own apx when he was 12 months

> to go on my own

> to C.T. Then demanded a rx so that he could wear the

> Doc Band. Even

> tho I banded late as well he did receive moderate

> improvement, of

> course not 100%, (partially my fault since I should

> have went with my

> gut and went w/C.T. from the get go) but def.

> improvement. My son is

> now 2 years old (just turned 2 on 3/1) and has been

> out of his band

> for 6 months and even tho little I have seen a

> little bit post

> rounding. I do not scrutizize his head as much as I

> did when he first

> graduated and only notice his flat spot in the bath

> when his head is

> wet and completely matted down. IMO I really dont

> think it will be

> noticeable when he is older. His before and after

> pics are posted

> under C.J. Photo Study (C photos) in case your

> interested in seeing

> them. Just wanted to give you some encouragement

> from one late

> banding mom to another!!

>

> Best of luck 2 you!

> - Mom to CJ (2 years old, 3/1)

> Doc Band Graduate, 9/2007

>

>

>

> > >

> > > I've had a very tough day. I visited the

> specialist at Hanger

> > today, who said that my daughter

> > > 's assemetry was 15 mm. The Hanger

> specialist didn't want to

> > say severe or moderate,

> > > just that she would qualify for a helmet. As

> I've been visiting

> > the site, someone said that

> > > 15+mm was considered severe. However, before

> this appointment,

> > when I went to see the

> > > referring physician, he acted like she was a

> non-issue and he

> said

> > she was considered a mild

> > > case. Being someone that is wishy-washy, I am

> completely torn

> > about what to do. I don't

> > > know whether to hold more weight to an actual

> physician, or a

> > helmet specialist. Who's

> > > evaluation do I put more weight on? I feel like

> I'm getting

> > conflicting information and it's very

> > > frustrating! Is there anyone out there who did

> not band their

> > child and then regretted it, or

> > > felt the decision was ok? I worry about little

> things, like her

> > being able to wear a ponytail in

> > > her hair and not feel awkward about it. I just

> want to make the

> > best decision for her now, and

> > > don't know how big of an impact it will be on

> her later. Thanks

> > for letting me vent.

> > >

> >

>

>

>

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