Kristy/ what/who to believe?-nne

September 22, 2007

Hi Kristy,

I don’t think I can answer your question without doing

research myself. Neuropathy, by definition is a disease or abnormality of the

nervous system/any and all disease or malfunction of

the nerves. “If one feels no pain it can mean that the

nerve is damaged”. I have never heard that statement and I don’t

know what it means. I know originally Dr. Conway told me that my pudendal nerve

was probably not just irritated, but compressed, but not damaged. There are

three words there that present three different scenarios’, but they all

fall into a condition that causes neuropathy. There are so many puzzle pieces

to this condition. A friend just had the surgery done whose primary cause of

pain was rectal, but she was only compressed on one side. Another friend who is

having surgery this coming Wednesday has all her pain in the clitoral area. She

has constant electrical zapping 24/7. I can’t imagine that as it is so

different from my symptoms. So I know you are always talking about your puzzle

pieces, and that is what PN/PNE is all about.

nne

The part about

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Kristy Sokoloski

Sent: Friday, September 21, 2007 6:56 PM

Subject: [sPAM] RE: [sPAM] Re: what/who to believe?-nne

nne,

How is entrapment different from actual neuropathy? The reason

I ask is because of something that Dr. Conway told me that I

thought was interesting. When I told him that the tech for the

EMG felt the clitoral base it didn't hurt at all, he said that. I

thought that was interesting.

I will probably have to do more research on nerve entrapment

because I know that my Pain Management doctor mentioned the

possibility to me but from the point of my genitofemoral nerve.

But was curious to know what you found out about the difference

between the two.

Kristy

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