Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 wondered, “How many of you have cfs/fms”. I have a moderate to high-moderate case of cfs. CFS can impact the nervous system – in fact there can be a significant overlap between CFS and MS symptoms. My case of vulvodynia/vestibulitis started two years after my CFS showed up. In my particular case, I responded very well to the interstim implant which works on spinal nerves 4-5 and the pudendal nerve. However, I no longer have the implant – I did not generate enough scar tissue to hold the leads in place – the leads are sutured in and have hooks, but scar tissue is still required. After two surgeries/attempts, we just had to give up. The leads would pop out of place within 6 months. But – the point is that at least in my particular case, the CFS CNS symptoms match up quite up well with vulvodynia and the pudendal nerve issues. And just a note regarding CFS – true CFS can occasionally go into remission, but doesn’t go away. There are numerous conditions that mimic CFS but the real mccoy is your life long companion. One can only hope to successfully manage it and keep on top of known triggers. Steph Quote Link to comment Share on other sites More sharing options...
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