Re: Joyce Dalton update 9/13/08

[Guest guest]

Kerry, may God be with you and Joyce and your daughters through this difficult time. I certainly will be with you in my thoughts. Jack79/IPF - UIP/dx06/05 Maine

Joyce Dalton update 9/13/08

Hi Group,I just got off the phone w/ Lucian. Joyce had been in ICU since she went into the hospital and she's been moved to a different unit. I was thinking/hoping this meant there was improvement in her health. Lucian explained that the reason she was moved was because she signed the do not resucitate order so this move reflects that change only. He said they have her on about 30 liters coming from the wall units, basically the same they were piecing together between her home unit and the tank w/ mask. For her to move at all just completely drops her oxygen out. He said she just can't move at all except to lay or sit up. She had been able to walk into the doctors every time before this last Wednesday. He said she has been sleeping mostly. Nausea has been a big problem (and any food she could stomach would go right thru her) and now no movement to work up any appetite or help w/ strength.

She's burning calories with every movement and not able to offset it. They have added 3 viagra a day to her Flolan to try to open up more blood vessels to get the oxygen in. Of course that's also causing headaches. Gretchen is there w/ Lucian now and just left and will be back. They are taking turns helping out along w/ some other friends. They want to get her home as soon as possible. Lucian is not happy w/ the level of care they take w/ her Flolan and the bandages and all the work he knows it takes to keep germs away from the ports, etc. We all know Joyce wants to be at home. They have a very close friend w/ Hospice who's as close as a daughter per Lucian and they are talking w/ her. They will do what it takes, nurses in home or whatever to take care of her. He specifically asked me to update the group here online and said he was going to call Peggy. Peggy, he said a call to you was in the

list earlier today but he got sidetracked. Also Leanne, he said he can't get calls thru to you. Joyce is in Jewish Hospital in Louisville, KY. I don't have direct info, but the main line is .Also, while I'm updating... Judy Walling was released from Clarian Methodist on Thursday she's doing well. I finally got to meet her in person today at the Heart/Lung Transplant Reunion picnic. No news on me... just waiting on my lungs.Everyone... Prayers and love for Joyce,Kerry38 IPF '01S. IN

[Guest guest]

Thank you Kerry.......

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Joyce Dalton update 9/13/08

KerryThanks. I know that was a difficult message to deliver. Just let herknow we're all here with her....hoping her pain is controlled as much aspossible.>> Hi Group,>> I just got off the phone w/ Lucian. Joyce had been in ICU since she> went into the hospital and she's been moved to a different unit. I> was thinking/hoping this meant there was improvement in her health.> Lucian explained that the reason she was moved was because she> signed the do not resucitate order so this move reflects that change> only. He said they have her on about 30 liters coming from the wall> units, basically the same they were piecing together between her> home unit and the tank w/ mask. For her to move at all just> completely drops her oxygen out. He said she just can't move at all> except to lay or sit up. She had been able to walk into the doctors> every time before this last Wednesday. He said she has been> sleeping mostly. Nausea has been a big problem (and any food she> could stomach would go right thru her) and now no movement to work> up any appetite or help w/ strength. She's burning calories with> every movement and not able to offset it. They have added 3 viagra> a day to her Flolan to try to open up more blood vessels to get the> oxygen in. Of course that's also causing headaches. Gretchen is> there w/ Lucian now and just left and will be back. They are> taking turns helping out along w/ some other friends. They want to> get her home as soon as possible. Lucian is not happy w/ the level> of care they take w/ her Flolan and the bandages and all the work he> knows it takes to keep germs away from the ports, etc. We all know> Joyce wants to be at home. They have a very close friend w/ Hospice> who's as close as a daughter per Lucian and they are talking w/> her. They will do what it takes, nurses in home or whatever to take> care of her. He specifically asked me to update the group here> online and said he was going to call Peggy. Peggy, he said a call> to you was in the list earlier today but he got sidetracked. Also> Leanne, he said he can't get calls thru to you. Joyce is in Jewish> Hospital in Louisville, KY. I don't have direct info, but the main> line is .>> Also, while I'm updating... Judy Walling was released from Clarian> Methodist on Thursday she's doing well. I finally got to meet her> in person today at the Heart/Lung Transplant Reunion picnic. No> news on me... just waiting on my lungs.>> Everyone... Prayers and love for Joyce,> Kerry> 38 IPF '01> S. IN>

[Guest guest]

Kerry,

We are grateful to you for the update on Joyce i constantly think

about her and hope she is getting better she is in a bad place now

and i fervently hope things take a turn for the better she is a

brave soldier in the field.

Peggy, do convey my prayers and love to Joyce if you can

Geeta

-- In Breathe-Support , " Kerry "

wrote:

>

> Hi Group,

>

> I just got off the phone w/ Lucian. Joyce had been in ICU since

she

> went into the hospital and she's been moved to a different unit.

I

> was thinking/hoping this meant there was improvement in her

health.

> Lucian explained that the reason she was moved was because she

> signed the do not resucitate order so this move reflects that

change

> only. He said they have her on about 30 liters coming from the

wall

> units, basically the same they were piecing together between her

> home unit and the tank w/ mask. For her to move at all just

> completely drops her oxygen out. He said she just can't move at

all

> except to lay or sit up. She had been able to walk into the

doctors

> every time before this last Wednesday. He said she has been

> sleeping mostly. Nausea has been a big problem (and any food she

> could stomach would go right thru her) and now no movement to work

> up any appetite or help w/ strength. She's burning calories with

> every movement and not able to offset it. They have added 3

viagra

> a day to her Flolan to try to open up more blood vessels to get

the

> oxygen in. Of course that's also causing headaches. Gretchen is

> there w/ Lucian now and just left and will be back. They

are

> taking turns helping out along w/ some other friends. They want

to

> get her home as soon as possible. Lucian is not happy w/ the

level

> of care they take w/ her Flolan and the bandages and all the work

he

> knows it takes to keep germs away from the ports, etc. We all

know

> Joyce wants to be at home. They have a very close friend w/

Hospice

> who's as close as a daughter per Lucian and they are talking w/

> her. They will do what it takes, nurses in home or whatever to

take

> care of her. He specifically asked me to update the group here

> online and said he was going to call Peggy. Peggy, he said a call

> to you was in the list earlier today but he got sidetracked. Also

> Leanne, he said he can't get calls thru to you. Joyce is in

Jewish

> Hospital in Louisville, KY. I don't have direct info, but the

main

> line is .

>

> Also, while I'm updating... Judy Walling was released from Clarian

> Methodist on Thursday she's doing well. I finally got to meet her

> in person today at the Heart/Lung Transplant Reunion picnic. No

> news on me... just waiting on my lungs.

>

> Everyone... Prayers and love for Joyce,

> Kerry

> 38 IPF '01

> S. IN

>