Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Kris, How old is your son? I think as they get older they tend to fight the stretches even more since they become stronger and are more aware of what is going on around them. Also when they are sick, teething or going thru a new developmental milestone they do tend to tilt more since that is the comfort position for babies with Tort. My son will be 18mo old tomorrow and was in PT from the age of 5mo-17mo. I basically got fed up with PT since his tilt was at a stand still and not getting better. He did improve some in PT but I couldnt see that it was helping getting rid of the last remaining tilt. I decided to try chiro apx 1 mo ago. He goes 2x week (actually he has been going 1x/week mostly because he has been sick) and we have had excellent results!! The first few visits he actaully tilted even more (which I was told was normal) and now I would say he is pretty straight about 95% of the day so I will continue with the chiro since this is what we have had the best results with so far. If you are interested in finding a chiro near you that is experienced with treating children I found my chiro off of this website www.icpa4kids.com. Hope this info helps!! Best of luck 2 you. - Mom to CJ- 18 mo old - 9/1 Doc Band Graduate to be - 9/5!!!!!! Tort- almost resolved! > > I was just reading that sometime the Torticollis can be triggered by a > cold. My son has been in therapy for his Torticollis but in the last > few days he has been really tight and fighting the stretching even > more. He has developed a cold and I thought maybe there was a > corellation between the two. Has anyone else experienced that? Also > has anyone gone to a chiropractor for their child's tort? > > -Kris > Sam Doc Band 7/20 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 hello there, my son has just been diagnosed with congenital torticollis and plagiocephaly he is 3 months old bless him! After trying to do some research about it i cant seem to find a website that states that it will correct itself back to normal after physiotherapy. As im new on here are there any other members that are going through the same thing that could offer me more info on torticollis and possibly show me pictures of before treatment and after treatment. I am (when i get time as i have 4 children) going to upload some pics of kaen. Thanks and hope to hear from any of you soon Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Hi Lynn, My daughter who is now 5.5 months had congenital tort (quite advanced) and it was resolved with PT alone, in only three sessions (but then again the PT teaches you exercises and streches to do at home, which you should do regularly). The tort is now completely gone (though the plagio remains and we are in teh process of treating that now). So, if our tort which was very bad is gone after just a few sessions, so should your kid's (provided it is indeed muscular only, as one post said). I live in Belgium and it's the same here - everyone - friends, colleagues, even doctors give you the " i have never hear of that " , so it's like you are making smth up... it's quite annoying. Good luck with the PT. all the best ivanka > > > > My dd also has tort and plagio.? Her tort is caused by spinal > abnormalities... but if your baby has CMT (congenital muscular tort) > then it should respond well to PT.? > > There is?a Tort group here on . > Torticolliskids/ > > > > Here's a few site to read up on it. > > > > http://www.oandp.org/jpo/library/2004_04S_018.asp > > http://www.med.umich.edu/1libr/pa/pa_conmusto_hhg.htm > > http://www.torticolliskids.org/faq's.htm > > > > > > > > > > ?Jen and Luli - 28 months > > Left tort - Right Plagio - Hanger Band Grad - CA > > http://www.babiesonline.com/babies/j/jens5th/ > > > > > > torticollis > > > > > > > > > > > > > > hello there, > > my son has just been diagnosed with congenital torticollis and > > plagiocephaly he is 3 months old bless him! After trying to do some > > research about it i cant seem to find a website that states that it > > will correct itself back to normal after physiotherapy. > > As im new on here are there any other members that are going > through > > the same thing that could offer me more info on torticollis and > > possibly show me pictures of before treatment and after treatment. > > I am (when i get time as i have 4 children) going to upload some > pics > > of kaen. > > Thanks and hope to hear from any of you soon > > > > Lynn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hi Ivanka, Thankyou for the reply its very reassuring! i am so amazed at how much i have got out of this group already and i only joined a few days ago! Many thanks Lynn > > > > > > My dd also has tort and plagio.? Her tort is caused by spinal > > abnormalities... but if your baby has CMT (congenital muscular > tort) > > then it should respond well to PT.? > > > There is?a Tort group here on . > > Torticolliskids/ > > > > > > Here's a few site to read up on it. > > > > > > http://www.oandp.org/jpo/library/2004_04S_018.asp > > > http://www.med.umich.edu/1libr/pa/pa_conmusto_hhg.htm > > > http://www.torticolliskids.org/faq's.htm > > > > > > > > > > > > > > > ?Jen and Luli - 28 months > > > Left tort - Right Plagio - Hanger Band Grad - CA > > > http://www.babiesonline.com/babies/j/jens5th/ > > > > > > > > > torticollis > > > > > > > > > > > > > > > > > > > > > hello there, > > > my son has just been diagnosed with congenital torticollis and > > > plagiocephaly he is 3 months old bless him! After trying to do > some > > > research about it i cant seem to find a website that states that > it > > > will correct itself back to normal after physiotherapy. > > > As im new on here are there any other members that are going > > through > > > the same thing that could offer me more info on torticollis and > > > possibly show me pictures of before treatment and after treatment. > > > I am (when i get time as i have 4 children) going to upload some > > pics > > > of kaen. > > > Thanks and hope to hear from any of you soon > > > > > > Lynn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 Hey thanks for that , I have sent her an email so hopefully should get a reply soon Cheers Lynn > > > > My dd also has tort and plagio.? Her tort is caused by spinal > abnormalities... but if your baby has CMT (congenital muscular tort) > then it should respond well to PT.? > > There is?a Tort group here on . > Torticolliskids/ > > > > Here's a few site to read up on it. > > > > http://www.oandp.org/jpo/library/2004_04S_018.asp > > http://www.med.umich.edu/1libr/pa/pa_conmusto_hhg.htm > > http://www.torticolliskids.org/faq's.htm > > > > > > > > > > ?Jen and Luli - 28 months > > Left tort - Right Plagio - Hanger Band Grad - CA > > http://www.babiesonline.com/babies/j/jens5th/ > > > > > > torticollis > > > > > > > > > > > > > > hello there, > > my son has just been diagnosed with congenital torticollis and > > plagiocephaly he is 3 months old bless him! After trying to do some > > research about it i cant seem to find a website that states that it > > will correct itself back to normal after physiotherapy. > > As im new on here are there any other members that are going > through > > the same thing that could offer me more info on torticollis and > > possibly show me pictures of before treatment and after treatment. > > I am (when i get time as i have 4 children) going to upload some > pics > > of kaen. > > Thanks and hope to hear from any of you soon > > > > Lynn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 hi swanna- i'm 32 and can totally relate to all the things you said you feel.. i too have your symptoms and was explanted about a month ago but my ps left in the capsules, even though i wanted them out. i went from a happy, healthy, social person to well, the opposite in a nutshell.. i was a successful hairdresser booked 5 days a week supporting my husband and i while he got his new career off the ground, to all the sudden sick as a dog and barely able to feed myself. i am continually blown away when i read the things doctors say and do.. he perscribed you the anti depressants not for pain but because he thinks you're depressed and all the other symptoms come along with it. he is obviously clueless. people can DIE of toxic mold exposure, why can't they understand...they have linked mold to cancer for goodness sake...i am so sorry you have to live around it and especially being a massage therapist. you used to make people healthy! so did dr kolb have any advice on why you're still ill? did you take the anti fungals after explant? and do the whole detox program? i am not familiar with hers but i've heard it's pretty successful. i am on my own detox with my chiro. here in CA . and as i was telling another girl on here. my new attempt is thanks to dede's message about some people having or not having i should say, the genetics to get rid of biotoxins in their liver so the toxins are recirculated in our bodies thru the bloodstream. there is a medication to help, but i'm sticking to the natural stuff which my doc translated to Chlorella. it binds the biotoxins and then pulls them out of the body . any prescription medications have some sort of chemicals that our liver and kidneys have to strain to get out and they're already under enough stress. it sounds like you still have a lot of toxicity going on...of course you're in a bad mood poor thing... i would definitely not focus on taking prescriptions to help the pain, but continue to detox to get rid of the root of the problem. i've learned from these girls that nothing is a quick fix we just have to persevere so stay close for support. i think it's always good to share what's working and what's not because we are all on the same path and that is to regain our health!hopes of healing bev. ---------- Original Message ----------From: "swanna" <od_1488@...> Subject: TorticollisDate: Mon, 18 Oct 2010 14:01:19 -0000hello all! it's been probably two years since i wrote on here. i had my explant by dr kolb april of 08. she diagnosed me with hypothyroidism and an eye test proved positive for mold exposure. unfortunately it wasn't from my implants. the mold is in my parents house, where i HAVE to live right now. i can't afford to live on my own for having to pay for my surgery and other bills. so i know consistent exposure to unclean air is probably a lot of my problem. i have also had worsening neck pain and widespread pain since the surgery. as well as, fatigue, depression, memory loss, off balance, lightheaded, dizzy, problems getting thoughts together and speaking them, numbness and tingling. i was trying to get massage 2x a month and the chiropractor 1x but massage started to irritate more than relax. i am an ex licensed massage therapist, so to me, massage fixes almost everything. in my case, i'm very disappointed. i had seen my family dr and told him of all my symptoms i had been having all my blood work came back ok. he suggested i see a neurologist. with a $50 co pay i waited. i started having numbness and burning pain in my right forearm and my chiro said may be a slipped disk and he also said see a neurologist. i had one more visit with him one eve after work and by the 11 the next morning i could barely move my head. that's when i finally went to the neurologist. through NO extensive testing at all he diagnoses me with fibromyalgia and mild cervical dystonia (aka torticollis or wryneck). i had feared the fibro sense i had read that it often coexists with hypothyroidism and generally if you have one autoimmune disease your risk is higher of developing another. i recently read that they think torticollis may be autoimmune related as well. when i told him about my implants and my experience with dr kolb and the eye test for mold he rolled his eyes and shook his head and said he didn't believe it. that it didn't even matter because we're all exposed to mold. yeah, i get that but a certain amount CAN BE too much. it grows on my clothes, shoes, and anything paper in my bedroom. so after TOTALLY dismissing the eye test for mold he does a little test of his own. i sit in a chair and he asks me to close my eyes (yall are gonna love this) he then asks me who the current president is. now, i'm not very political but i'm not THAT stupid either. but i'm sure most of you on here can relate. when put on the spot, my mind went completely blank (as it so often does) and i couldn't think of anything. i felt so STOOOOOPID! lol then it came to me and i told him. then he asks me who the president was before that. i told him. then he asked the one before that. i told him. he then asks me to open my eyes. he steps back and says "you have mild cervical dystonia." i'm like....."uhhhhhhhhhh......and how is it exactly you came to that conclusion?" and he said "when you answered the questions your head pulled to the left". it was all i could do to not bust out laughing. here's a guy that don't believe in an eye test for mold exposure but yet he's gonna ask me about stupid presidents to diagnosed me with a disease that could possibly leave me disfigured in the future? i don't get it. he also said he didn't believe that the environment had any connection to the demise of our immune system. that the human immune system was strong enough to fight off almost anything. i was dumbfounded by his stupidity. had i not paid 50 bucks i would have walked out of his office but i figured i'd hang out and see what else he had to say. so from what i understand my only other option besides oral meds is botox injections in my neck. which i DO NOT want to do. i just received an FDA botox warning last wk in my inbox about what its doing to people when it travels away from the injection site to other areas of the body. how do they get away with doing this crap to us? he gave me a prescription for a low does of muscle relaxer and an antidepressant used for fibro pain. one of which i recently read on the spasmodictorticollis.org website is on the "medications to avoid" list saying it may cause or worsen the condition. so either this dr wants me to get worse or he just hasn't really educated himself very much on the condition. either way it's aggravating. i've only been taking the medication for about a month. it seemed to help with the pain but the side effects are just ridiculous and it's making me more depressed. has anyone on here had the same experience with dystonia or know someone who has or is? i haven't been able to sleep on my right side in months. i wake up every morning and the pain in my neck is so bad. it hurts to stretch my shoulder away from my head. i'm showering in the eve and then again in the morning JUST to try and relax my muscles. i am currently reading a book some of you may have heard of or would like to read. it's called "the autoimmune epidemic" by donna jackson nakazawa. it talks mainly about how our environment and the things (chemicals,heavy metals etc) we come in contact with are killing us. i am currently doing a heavy metal detox. i am desperate. 34 yrs old and i barely care about anything anymore. i rarely leave the house or care to talk to anyone. i'm in so much pain and in such a bad mood all the time i don't want to be around anyone. any advice from anyone? ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 ohh noooo bev! i hate to hear that about the capsules. will they have to go in and do another surgery? from everything i've read it seems thats always the case because they cause so many problems. what a mess we get ourselves into just to look better and feel more accepted. it's still hard after two years to accept what i see in the mirror after what i was so used to seeing for like 8 yrs. i'm so angry at myself because after i had them put in i had a lot of nerve damage on my right side. my right nipple is numb and can only feel sharp shooting pains when touched or squeezed to hard. i even have numbness in my left arm ever since. but i am thankful they're no longer in my body doing more damage. i used to be really close friends with a naturopath (debbie). when i got my massage certification her and i worked together. in one building she had her herb shop and done muscle response monitor testing and put programs together for people and i had my massage business. she helped me and my family with so much and i learned A LOT from her about natural medicine. she got me into aromatherapy as well so i incorporated it into my business. she died of cancer years back and now i really need her and miss her. she saved me so many dr visits with her knowledge. it IS true that everyone comes into our life for a reason. if it weren't for her i wouldn't believe in herbs as much as i do. she was a nature's sunshine distributor so that's where i get most of my stuff. i'm doing their heavy metal and yeast/fungal detox now. i stopped taking the antidepressant. i've had a couple of headaches but it's probably my body ridding itself of other crap too. not to mention i haven't had coffee, chocolate, white starchy carbs or sugar for a week now. i'm currently weaning myself from the muscle relaxer. the withdrawl symptoms are more severe being, seizures and hallucinations. so i'm gonna be careful with that. it's just irritating to do all this good for myself and still have to live in a toxic environment. not to mention i work in a very old, very dusty warehouse that use to be a stroh's brewery. every time it rains there are puddles of water everywhere. so i can only imagine what i breath here as well. we have heat but the other side is not heated so the doors are lifted frequently for the forklifts and the heat escapes. so naturally what does the body do to heat itself? shiver. muscles contract which aggravates my neck and shoulder condition. i'm sitting here now w a space heater under my desk at my feet. but my hands and nose are freezing. see what i gotta deal with here? LOL GEEEZ! well the dr said all my problems were coming from the fibromyalgia and me not getting enough restful sleep. so the combo of the antidepressant and muscle relaxers at bedtime were helping with that also. i've always been a light sleeper. now i'm back to waking in the middle of the night and tossing and turning. Grrrrr... i'd like to do more relaxation techniques and get back to the things i learned in massage therapy school. BEFORE the implants. meditation, yoga and tai chi. but it's kinda pointless and doesn't feel very healthy to pull out my little mat and take in all these deep breaths of moldy air. LOL i'm lying there the whole time imagining all these little mold spores being sucked up into my nose. and that reminds me of what you said about mold being linked to cancer. i read sometime back about that roman oncologist that discovered cancer IS fungus and he's curing it with baking soda and ticking off all these drs. i watched him on this video and i couldn't believe it. but it does makes sense. then i get paranoid thinking as many issues as i had with yeast all my life i'm probably eat up with cancer and don't know it yet. my friend debbie had tested me on the muscle response monitor and she said i had systematic candida worst than anyone she had ever seen. and a lot of it was probably from all the ear infections i had as a kid and all the stupid antibiotic i had to take. i haven't had chocolate in a week. i'm bout to go nuts. my mom fixed oatmeal chocolate chip cookies last night and then broke out all this chocolate candy making halloween baggies for the little kids. i could have choked her with all the temptation. LOL what's real funny is wed we had a benefit fair at our company and i won the door prize from sam's club. guess what the prize was? a christmas sled full of ghirardelli dark chocolates (MY FAV!) and hot cocoa mix. LMAO! i was like " WHAT is goin on here? it's like a conspiracy to ruin my life. " but i was estatic at the same time because i have the worst luck and never win anything. i almost stopped at the store on the way home and bought a lottery ticket. but i was too tired and lazy so just drove home. LOL i gotta get back into working out again. the meds made me so tired all i wanted to do was go home and go to bed. hopefully i'll start getting some energy back soon. thanks bev for the reply. guess i'll shut my mouf now. lol i wish you well. swanna =) > > hi swanna- i'm 32 and can totally relate to all the things you said you feel.. i too have your symptoms and was explanted about a month ago but my ps left in the capsules, even though i wanted them out. i went from a happy, healthy, social person to well, the opposite in a nutshell.. i was a successful hairdresser booked 5 days a week supporting my husband and i while he got his new career off the ground, to all the sudden sick as a dog and barely able to feed myself. > i am continually blown away when i read the things doctors say and do.. he perscribed you the anti depressants not for pain but because he thinks you're depressed and all the other symptoms come along with it. he is obviously clueless. people can DIE of toxic mold exposure, why can't they understand...they have linked mold to cancer for goodness sake...i am so sorry you have to live around it and especially being a massage therapist. you used to make people healthy! so did dr kolb have any advice on why you're still ill? did you take the anti fungals after explant? and do the whole detox program? i am not familiar with hers but i've heard it's pretty successful. i am on my own detox with my chiro. here in CA . and as i was telling another girl on here. my new attempt is thanks to dede's message about some people having or not having i should say, the genetics to get rid of biotoxins in their liver so the toxins are recirculated in our bodies thru the bloodstream. there is a medication to help, but i'm sticking to the natural stuff which my doc translated to Chlorella. it binds the biotoxins and then pulls them out of the body . any prescription medications have some sort of chemicals that our liver and kidneys have to strain to get out and they're already under enough stress. it sounds like you still have a lot of toxicity going on...of course you're in a bad mood poor thing... i would definitely not focus on taking prescriptions to help the pain, but continue to detox to get rid of the root of the problem. i've learned from these girls that nothing is a quick fix we just have to persevere so stay close for support. i think it's always good to share what's working and what's not because we are all on the same path and that is to regain our health! > hopes of healing > bev. > > ----- Torticollis > Date: Mon, 18 Oct 2010 14:01:19 -0000 > > hello all! it's been probably two years since i wrote on here. i had my explant by dr kolb april of 08. she diagnosed me with hypothyroidism and an eye test proved positive for mold exposure. unfortunately it wasn't from my implants. the mold is in my parents house, where i HAVE to live right now. i can't afford to live on my own for having to pay for my surgery and other bills. so i know consistent exposure to unclean air is probably a lot of my problem. i have also had worsening neck pain and widespread pain since the surgery. as well as, fatigue, depression, memory loss, off balance, lightheaded, dizzy, problems getting thoughts together and speaking them, numbness and tingling. i was trying to get massage 2x a month and the chiropractor 1x but massage started to irritate more than relax. i am an ex licensed massage therapist, so to me, massage fixes almost everything. in my case, i'm very disappointed. i had seen my family dr and told him of all my symptoms i had been having all my blood work came back ok. he suggested i see a neurologist. with a $50 co pay i waited. i started having numbness and burning pain in my right forearm and my chiro said may be a slipped disk and he also said see a neurologist. i had one more visit with him one eve after work and by the 11 the next morning i could barely move my head. that's when i finally went to the neurologist. through NO extensive testing at all he diagnoses me with fibromyalgia and mild cervical dystonia (aka torticollis or wryneck). i had feared the fibro sense i had read that it often coexists with hypothyroidism and generally if you have one autoimmune disease your risk is higher of developing another. i recently read that they think torticollis may be autoimmune related as well. when i told him about my implants and my experience with dr kolb and the eye test for mold he rolled his eyes and shook his head and said he didn't believe it. that it didn't even matter because we're all exposed to mold. yeah, i get that but a certain amount CAN BE too much. it grows on my clothes, shoes, and anything paper in my bedroom. so after TOTALLY dismissing the eye test for mold he does a little test of his own. i sit in a chair and he asks me to close my eyes (yall are gonna love this) he then asks me who the current president is. now, i'm not very political but i'm not THAT stupid either. but i'm sure most of you on here can relate. when put on the spot, my mind went completely blank (as it so often does) and i couldn't think of anything. i felt so STOOOOOPID! lol then it came to me and i told him. then he asks me who the president was before that. i told him. then he asked the one before that. i told him. he then asks me to open my eyes. he steps back and says " you have mild cervical dystonia. " i'm like..... " uhhhhhhhhhh......and how is it exactly you came to that conclusion? " and he said " when you answered the questions your head pulled to the left " . it was all i could do to not bust out laughing. here's a guy that don't believe in an eye test for mold exposure but yet he's gonna ask me about stupid presidents to diagnosed me with a disease that could possibly leave me disfigured in the future? i don't get it. he also said he didn't believe that the environment had any connection to the demise of our immune system. that the human immune system was strong enough to fight off almost anything. i was dumbfounded by his stupidity. had i not paid 50 bucks i would have walked out of his office but i figured i'd hang out and see what else he had to say. so from what i understand my only other option besides oral meds is botox injections in my neck. which i DO NOT want to do. i just received an FDA botox warning last wk in my inbox about what its doing to people when it travels away from the injection site to other areas of the body. how do they get away with doing this crap to us? he gave me a prescription for a low does of muscle relaxer and an antidepressant used for fibro pain. one of which i recently read on the spasmodictorticollis.org website is on the " medications to avoid " list saying it may cause or worsen the condition. so either this dr wants me to get worse or he just hasn't really educated himself very much on the condition. either way it's aggravating. i've only been taking the medication for about a month. it seemed to help with the pain but the side effects are just ridiculous and it's making me more depressed. has anyone on here had the same experience with dystonia or know someone who has or is? i haven't been able to sleep on my right side in months. i wake up every morning and the pain in my neck is so bad. it hurts to stretch my shoulder away from my head. i'm showering in the eve and then again in the morning JUST to try and relax my muscles. i am currently reading a book some of you may have heard of or would like to read. it's called " the autoimmune epidemic " by donna jackson nakazawa. it talks mainly about how our environment and the things (chemicals,heavy metals etc) we come in contact with are killing us. i am currently doing a heavy metal detox. i am desperate. 34 yrs old and i barely care about anything anymore. i rarely leave the house or care to talk to anyone. i'm in so much pain and in such a bad mood all the time i don't want to be around anyone. any advice from anyone? > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 so what did they do for it dede? do you sleep with a mask. i am waking up gasping for air during the night..every few nights, not all the time my mom said her husband had one and it was like $3000 or so..----- Torticollis> Date: Mon, 18 Oct 2010 14:01:19 -0000> > hello all! it's been probably two years since i wrote on here. i had my explant by dr kolb april of 08. she diagnosed me with hypothyroidism and an eye test proved positive for mold exposure. unfortunately it wasn't from my implants. the mold is in my parents house, where i HAVE to live right now. i can't afford to live on my own for having to pay for my surgery and other bills. so i know consistent exposure to unclean air is probably a lot of my problem. i have also had worsening neck pain and widespread pain since the surgery. as well as, fatigue, depression, memory loss, off balance, lightheaded, dizzy, problems getting thoughts together and speaking them, numbness and tingling. i was trying to get massage 2x a month and the chiropractor 1x but massage started to irritate more than relax. i am an ex licensed massage therapist, so to me, massage fixes almost everything. in my case, i'm very disappointed. i had seen my family dr and told him of all my symptoms i had be en having all my blood work came back ok. he suggested i see a neurologist. with a $50 co pay i waited. i started having numbness and burning pain in my right forearm and my chiro said may be a slipped disk and he also said see a neurologist. i had one more visit with him one eve after work and by the 11 the next morning i could barely move my head. that's when i finally went to the neurologist. through NO extensive testing at all he diagnoses me with fibromyalgia and mild cervical dystonia (aka torticollis or wryneck). i had feared the fibro sense i had read that it often coexists with hypothyroidism and generally if you have one autoimmune disease your risk is higher of developing another. i recently read that they think torticollis may be autoimmune related as well. when i told him about my implants and my experience with dr kolb and the eye test for mold he rolled his eyes and shook his head and said he didn't believe it. that it didn't even matter because we're all expo sed to mold. yeah, i get that but a certain amount CAN BE too much. it grows on my clothes, shoes, and anything paper in my bedroom. so after TOTALLY dismissing the eye test for mold he does a little test of his own. i sit in a chair and he asks me to close my eyes (yall are gonna love this) he then asks me who the current president is. now, i'm not very political but i'm not THAT stupid either. but i'm sure most of you on here can relate. when put on the spot, my mind went completely blank (as it so often does) and i couldn't think of anything. i felt so STOOOOOPID! lol then it came to me and i told him. then he asks me who the president was before that. i told him. then he asked the one before that. i told him. he then asks me to open my eyes. he steps back and says "you have mild cervical dystonia." i'm like....."uhhhhhhhhhh......and how is it exactly you came to that conclusion?" and he said "when you answered the questions your head pulled to th e left". it was all i could do to not bust out laughing. here's a guy that don't believe in an eye test for mold exposure but yet he's gonna ask me about stupid presidents to diagnosed me with a disease that could possibly leave me disfigured in the future? i don't get it. he also said he didn't believe that the environment had any connection to the demise of our immune system. that the human immune system was strong enough to fight off almost anything. i was dumbfounded by his stupidity. had i not paid 50 bucks i would have walked out of his office but i figured i'd hang out and see what else he had to say. so from what i understand my only other option besides oral meds is botox injections in my neck. which i DO NOT want to do. i just received an FDA botox warning last wk in my inbox about what its doing to people when it travels away from the injection site to other areas of the body. how do they get away with doing this crap to us? he gave me a prescription for a lo w does of muscle relaxer and an antidepressant used for fibro pain. one of which i recently read on the spasmodictorticollis.org website is on the "medications to avoid" list saying it may cause or worsen the condition. so either this dr wants me to get worse or he just hasn't really educated himself very much on the condition. either way it's aggravating. i've only been taking the medication for about a month. it seemed to help with the pain but the side effects are just ridiculous and it's making me more depressed. has anyone on here had the same experience with dystonia or know someone who has or is? i haven't been able to sleep on my right side in months. i wake up every morning and the pain in my neck is so bad. it hurts to stretch my shoulder away from my head. i'm showering in the eve and then again in the morning JUST to try and relax my muscles. i am currently reading a book some of you may have heard of or would like to read. it's called "the autoimm une epidemic" by donna jackson nakazawa. it talks mainly about how our environment and the things (chemicals,heavy metals etc) we come in contact with are killing us. i am currently doing a heavy metal detox. i am desperate. 34 yrs old and i barely care about anything anymore. i rarely leave the house or care to talk to anyone. i'm in so much pain and in such a bad mood all the time i don't want to be around anyone. any advice from anyone?> > > > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
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