New to Group...

[Guest guest]

,

You have described my grandson. He is six years old now. He is finally

beginning to answer some questions. He still tends to tune you out when you try

to talk to him. He is also very good with numbers, letters, and words. He has

been diagnosed as PDD.

Ann

[Guest guest]

I believe you are doing the right thing by having an evaluation.

The important thing is to find someone with experience DIAGNOSING

developmental disorders and autism. A pediatrician might not be the

best to diagnose, but can point you in the direction of someone who

is qualified.

If you are dairy free, I'd continue to stay that way.

I am hoping someone in Australia can help you find the proper place

to go for the evaluation.

Good luck

Pam in Washington

> Hi I am from Australia, we have an almost 4 year old son who

> has not been diagnosed with anything yet, but his carer at day

care

> suggested we see a paediatrician about the possibility of mild

autism.

> From the outside he acts like a normal toddler who is VERY active,

> but not loud and destructive, just never sits down. And seemingly

> difficult to understand and behind in sentencing and communication

> skills. He repeats everything and will never answer a question,

only

> repeats what you have asked him, acts unresponsive, but has no

> hearing problems, basically you can not have a conversation with

> hime, he just rattles off things around him and fragments of what

has

> been going on around him. Intelligence wise we are told he is

above

> average, amazing memory skills with numbers, the alphabet,

> recognising letters, puzzles etc...We can tell him something once

ie

> the types of tropical fish in the fish tank, or countries on the

> world map...and that is all he needs to know them and repeat them,

> yet to ask him a simple question like 'how old are you?' He just

> mimics you back. We are about to find out what to do next when we

> see the doctor, I just wanted to find out if we are on the right

> track with thinking it is autism, and what is considered 'mild'

and

> if there are other conditions it may be ? I am vey curious about

diet

> and how it affects autism...our son has a dairy protein

intolerance

> It is getting better but there are still things we have to watch

out

> for...I would appreciate any feedback...KATIE

[Guest guest]

Above average intelligence sounds about right. It's amazing the other skills

these children posses either naturally or to compensate for other deficits.

Autism doesn't mean dumb, just developmentally delayed, and the areas of delay

often come with their own labels on the spectrum. Congratulations on spotting

the dairy issue, this alone helps these kids come out of their mental fog to a

degree. I wouldn't get too hung up on the label, a psychiatrist, psychologist,

speech pathologist and occupational therapist all have different labels for my

son. It's good to get the evaluations if they're not too intrusive, because

often the advice and therapy gets you working on the symptoms. I say symptoms,

because the base of the problem is often medical. But maybe that's just the

circles I'm socializing in. There are some great books out there, and reading

them often helps you pinpoint your child more accurately than the professionals

can, because you can say, " ooh I remember when that became a problem at 14 mo.

and now it's progressed to this.. " " I didn't realize that's not normal.. " ABA

therapy has some good methods for getting past the echolalia, or at least

turning it into something productive. Echolalia is the repeating your son does

when you ask him a question. He doesn't understand the question, but wants to

communicate, wants to please you, so he repeats what you just said right back to

you. Good luck to you and your family.

new to group...

Hi I am from Australia, we have an almost 4 year old son who

has not been diagnosed with anything yet, but his carer at day care

suggested we see a paediatrician about the possibility of mild autism.

From the outside he acts like a normal toddler who is VERY active,

but not loud and destructive, just never sits down. And seemingly

difficult to understand and behind in sentencing and communication

skills. He repeats everything and will never answer a question, only

repeats what you have asked him, acts unresponsive, but has no

hearing problems, basically you can not have a conversation with

hime, he just rattles off things around him and fragments of what has

been going on around him. Intelligence wise we are told he is above

average, amazing memory skills with numbers, the alphabet,

recognising letters, puzzles etc...We can tell him something once ie

the types of tropical fish in the fish tank, or countries on the

world map...and that is all he needs to know them and repeat them,

yet to ask him a simple question like 'how old are you?' He just

mimics you back. We are about to find out what to do next when we

see the doctor, I just wanted to find out if we are on the right

track with thinking it is autism, and what is considered 'mild' and

if there are other conditions it may be ? I am vey curious about diet

and how it affects autism...our son has a dairy protein intolerance

It is getting better but there are still things we have to watch out

for...I would appreciate any feedback...KATIE

[Guest guest]

Hi ,

> Hi I am from Australia, we have an almost 4 year old son who

> has not been diagnosed with anything yet, but his carer at day care

> suggested we see a paediatrician about the possibility of mild

autism.

Autism was first brought up to me by a preschool teacher when my son

was three.

> From the outside he acts like a normal toddler who is VERY active,

> but not loud and destructive, just never sits down. And seemingly

> difficult to understand and behind in sentencing and communication

> skills. He repeats everything and will never answer a question,

only

> repeats what you have asked him, acts unresponsive, but has no

> hearing problems, basically you can not have a conversation with

> hime, he just rattles off things around him and fragments of what

has

> been going on around him. Intelligence wise we are told he is above

> average, amazing memory skills with numbers, the alphabet,

> recognising letters, puzzles etc...We can tell him something once

ie

> the types of tropical fish in the fish tank, or countries on the

> world map...and that is all he needs to know them and repeat them,

> yet to ask him a simple question like 'how old are you?' He just

> mimics you back.

We went through this, too. The preschool teacher he had when he was

four asked me if he could hear. He also did the echolalia until

enzymes and had excellent memory for certain things, but not the

practical stuff. Did not ask " Why " questions for years past when

most kids are expected to do that. He went through a stage of

communicating by repeating sentences from his videos and applied them

appropriately; only my husband and I realized the comments were

scripted.

We are about to find out what to do next when we

> see the doctor, I just wanted to find out if we are on the right

> track with thinking it is autism, and what is considered 'mild' and

> if there are other conditions it may be ?

It could be many things, but you can read about Asperger Syndrome at

my site http://www.enzymestory.com/Aspergers_Syndrome.html

I am vey curious about diet

> and how it affects autism...our son has a dairy protein intolerance

> It is getting better but there are still things we have to watch

out

> for...I would appreciate any feedback...KATIE

I noticed my son had a problem a dairy when I stopped breastfeeding

him at 14 months and gave him cow's milk. He responded well to the

gfcf diet at age 6, then we tried enzymes at age 7 and he did even

better.

After years of trying to figure out what the problem was and fearing

much worse things than autism, I was actually happy when we knew

that's what it was.

[Guest guest]

I strongly urge you to look into getting a DAN! Dr. I hesitated,

went through the " usual " channels and they generally do not have

anything to offer other than therapy. You need to get to the

underlying cause, traditional practicioners can not/ will not

acknowledge the possiblity of toxicity.

If I were you, and I was just 2 years ago (my boy still to this day

will not drink out of a cup, can not jump, can not ride a bike) I

would start the omega protocal described on this group to the

letter. I would also point you to posts from , she is

a ped/mom ... look for her posts etc. And read, read, read..

go back into the archives and read the discussions. You wills start

to " get it " .

My boy has been finally tested and re tested with an active DAN! Dr.

He is heavy metal toxic (as I suspect many children on this list

are), but to a lesser degree than today's ASD kids. I strongly

believe ONE MORE " assult " (vaccine) to his immune system would have

taken him over the edge. No question in my mind. Note: I started

to see a slow down in development already at 6 mos. We stopped at

that point. He went from a very normal, strong and alert baby to one

that woudn't progress to solid food, didn't crawl until 13 mos,

didn't walk until 20 mos and didn't talk until (starting biomeds) at

3.5. In the meantime, I learned a lot. I am hardened to the All

mightly mainstream medical community who offered me only HARM from

DAY 1 and continues to this day. They don't want to know, they are

part of the cover up and they make me very angry now that my eyes

have been opened.

READ what other parents are talking about.... EOH@... -

excellent group, chelatingkids2@..., there are more.. just read

and read..do searches - you can learn a lot in a short amount of

time. Which is KEY, you need to put in the time now.

Here are some other highly recommended:

http://discovermagazine.com:80/2007/apr/autism-it2019s-not-just-in-

the-head

This months Discovery Magazine is an outstanding account of what's

going on with these kids.

>

> I'm new to this group and have a couple of questions for parents of

children with similar

> developmental concerns as mine.

>

> Briefly.... My 26 month daughter was diagnosed with a speech delay

and having some

> sensory processing issues. She reached all of her physical

milestones timely, if not early.

> No one has formally said it's oral apraxia, but we believe it is.

She is receiving EI speech 2x

> a week and occupational 1x. Oddly, she cannot drink out of a cup

(tongue sticks out), but

> has no problem sucking out of a straw -- even those loopy ones.

She's afraid to walk into

> elevators and on escalators, but likes them if I hold her. Her

imaginative and age

> appropriate play is also delayed, but improving.

>

> Although her speech is slowly getting better and her attention span

has increased, I want

> to try the EFA approach to see if even more dramatic advances can

be made. Reading all

> of your responses has given me renewed hope and enthusiam.

>

> From what I've read in emails I've received today, is that I should

start with the NN Omega

> Complete 3-6-9 and a Vitamin E. Do you recommend the liquid or

capsul variety? Should I

> start with 1 pill a day of each for a couple of weeks to see if

there's any response? Do kids

> take it straight out of the bottle (pill), or does it need to be

mixed into food? I have a picky

> eater so I'll have my work cut out for me.

>

> Secondly, does anyone have a name of a good

neurologist/developemental pediatrition in

> Chicago? My pediatrition doesn't support the use of EFAs so I'm

looking for someone in

> the area who I can consult with.

>

> Many thanks!

> LRN

>

[Guest guest]

LRN's daughter and my son could be twinsin some ways. My son is also 26

months old, was typically 2 weeks behind in most milestones. We started

EI in Nov. (he was 21 months). At first he received OT 1x per week and

DI 1x per week. For a month now he has seen a private speech therapist

for 2 1/2 hour sessions per week and he is supposed to be getting EI

speech one per week (has only happened once due to illness but it should

start again). No one has said it but I suspect apraxia for the following

reasons: weak trunk, late walker (18.5 mos), still does not jump and is

generally cautious, we had trouble getting him on solids and he does

drool amd chokes on liquid if too much comes at him too soon. He pointed

late (2 years) and had been delayed on imaginative play (he may be where

he needs to be now or close). He was, before EI, very timid but now has

really come out of his shell. He makes good eye contact and always has.

I am curious about EFA's and the plan is to supplement after seeing a

doctor to help with doseage. I know this is not FDA approved but I

believe the success stories and I'm not particularly impressed with some

of the FDA's approvals anyway. With that said, I'd like to wait for

medical supervision, the problem is I will have to wait at least 6

months to get into the neuro developmental specialist, get the blood

testing and go from there. I will likely wait but in general, even if I

am stuck waiting, I was curious as to where to get the best

supplements? I know there's a lot of junk out there. Also, any tips for

working around a picky eater? Lastly, any diets you can recommend?

Thanks a million! So glad I found this site. It helps to not be alone.

Liz

lrtapper wrote:

>I'm new to this group and have a couple of questions for parents of children

with similar

>developmental concerns as mine.

>

>Briefly.... My 26 month daughter was diagnosed with a speech delay and having

some

>sensory processing issues. She reached all of her physical milestones timely,

if not early.

>No one has formally said it's oral apraxia, but we believe it is. She is

receiving EI speech 2x

>a week and occupational 1x. Oddly, she cannot drink out of a cup (tongue sticks

out), but

>has no problem sucking out of a straw -- even those loopy ones. She's afraid to

walk into

>elevators and on escalators, but likes them if I hold her. Her imaginative and

age

>appropriate play is also delayed, but improving.

>

>Although her speech is slowly getting better and her attention span has

increased, I want

>to try the EFA approach to see if even more dramatic advances can be made.

Reading all

>of your responses has given me renewed hope and enthusiam.

>

>>From what I've read in emails I've received today, is that I should start with

the NN Omega

>Complete 3-6-9 and a Vitamin E. Do you recommend the liquid or capsul variety?

Should I

>start with 1 pill a day of each for a couple of weeks to see if there's any

response? Do kids

>take it straight out of the bottle (pill), or does it need to be mixed into

food? I have a picky

>eater so I'll have my work cut out for me.

>

>Secondly, does anyone have a name of a good neurologist/developemental

pediatrition in

>Chicago? My pediatrition doesn't support the use of EFAs so I'm looking for

someone in

>the area who I can consult with.

>

>Many thanks!

>LRN

>

>

>

>

[Guest guest]

Hi Everyone:

Since my son was two months, I noticed a problem with the shape of his

head and the doctors ignored me. Now five months later, he needs a DOC

band. I wish it could have done sooner because now I worry that when

he moving more and trying to crawl, he has to wear a helmet.

Can anyone tell me how wearing the helmet affected their child's

movement? Do you have any advice of information for me since I am not

sure what to expect? Lastly, I see on the Cranial's website about

decorating the helmets. Do they do that or just tell you what options

you have available?

THANK YOU for your time as well as have such a group for parents.