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I have been living with a PSC diagnosis for 4 years (I lurk here,

sometimes). I have cirrhosis, enlarged spleen, have had one

significant biliary infection and recently a few esophageal ligatures

to deal with varices. I have mild-to-moderate chronic fatigue -- but

it is chronic. I eat well, exercise and take my meds. I'm in my

mid-thirties, and while my spouse and I have ruled out trying to get

pregnant -- there's enough problems internally to make this unlikely--

the question of adoption or surrogacy (legal in Canada) is still

before us.

The specialist stressed that this will get worse, that I'm doing well

enough but it is progressing, and as things stand I can probably

expect to end up needing a transplant. He says other symptoms will get

worse. Not all next week, or even in five years, but. Yeah.

I have a lot of reservations about the demands of raising kids, about

how much of a physical toll it would take on me, and how much of the

primary caregiving my spouse would have to assume as time goes on. I

am selfish enough to want to hang on to my health as long as I can,

and I'm also unselfish enough to not want to become a parent if I am

going to be the cranky fatigued lady, or worse yet, the in and out of

hospital lady.

So. Yeah. Insights appreciated.

B

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