Re: lonely and miserable

[Guest guest]

what kind of pain do you have? is it 24/7, just on contact, itching,

burning? many of us have been and still are where you are today and

totally understand your feelings. They are totally normal and it

sounds as if you have so much on your plate! I am sorry you are

suffering, it hurts me to hear as I did for many years as well.

Even though I am a success story, I am still struggling with issues

since I have only been cured for less than a year. The weight

issues (gained 25 pounds since all this started), depression meds,

massive hormonal shifts, trying to rebuild my realtionship with

hubby as well as with myself and learning to like who I am again.

We are here for you and understand, you are not alone. Just keep

trying and learning as much as you can even if you have to see

doctor after doctor. It took me seeing 9 docs to get a diagnoses as

well as speaking on the phone with 42 docs (yes, I said 42, wrote

them all down for insurance purposes) who had no way of helping me

and didn't want to try. Hang in there and stay on the boards as you

may find something that will help!

>

> i think the title explains it all

>

> basically, I've been going to physical therapy for vestibulitis for

> about 3 months now. the pain is excruciating and towards the end of

> the session Im shaky and and slightly nauseous. I'm supposed to go

> back to my other doctor at the Rush center for pevic

pain/disorders on

> Monday to see if i can get Elavil or neurotin (sp?) to help with

the pain.

>

> everything just seems like its too much to handle. at the moment

I'm

> scheduled to graduate from college in a couple months, I'm working,

> I'm trying to loose weight (and failing horribly at it) and I

already

> have 2 other conditions to worry about, one thats horribly

> embarrassing, and the other no ones heard of and it causes me a

lot of

> pain every day.

>

> I've been sifting through success stories from everyone but i just

> don't know what to do or where to start. I'm just so busy and

annoyed

> and angry at myself that I feel like I'm going to explode! I try

> following restrictive diets, but i just can't: one food thats good

for

> one condition is bad for another!!! I've seen different doctors,

both

> in and out of my moms insurance network and its costing a fortune

and

> nothing is helping.

>

> on top of that I'm afraid to meet anyone new. my past relationships

> have gone really wrong. I've got so much going on that I think I

would

> send any respectable guy running away from me screaming.

>

> honestly i just want to sleep all day and all night and just not

think

> about anything.

>

> apologies if i seem a bit self centered or narcissistic...i just

> counted the number of " I's " I typed....

>

> GAAAAH#$%#^$@

> -katie

>