Re: Does anyone know of a helpful doctor in Florida?

[Guest guest]

Even a surgery on your labia minora could be the straw that broke the camel's back with pelvic floor contracture. I never would have believed in a million years that I was tensing my pelvic floor. I could relax it, sure, I did it all the time. Yet, when I finally got the biofeedback machine, it was pegged at 10. There was just no way that I could get those numbers down. I swear when I finally was able to relax those muscles a bit I felt like I was prolapsing, it was awful. Eventually I got used to it and then really got in tune with my pelvic floor. There are also trigger points which refer pain. So a muscle in spasm can refer pain to say your clitoris or your pubic hair when those points aren't the problem at all, it's the trigger point on the muscle that is the problem. love, Molly I went to San Fran to see Prendergast and it was all out of

pocket, thank God for my mother (who really didn't have it to lend to me). It was the best thing I ever did for myself.Kristy Sokoloski wrote: Molly,She wasn't enlightened about my case unfortunately especially onthe Estrace issue.As for the PT she would have recommended it was someone over atthe hospital down the street from Mayo Clinic ville andeven if I had wanted to use her I couldn't because she wouldhave been out of network too like Mayo Clinic was at the time.But I

can see where for some the Levator Ani Syndrome would be abig component to the vulvodynia aspect. It just isn't in mycase. Oh well, how different we all are when it comes to howvulvodynia occurs. Mine was caused by a surgical procedure tothe left labia minora.Kristy __________________________________________________

[Guest guest]

Molly,

I do strongly believe that if I do have muscle issues it's

because of the surgery to the labia minora which makes sense.

What I can't figure out is how would removing a piece of excess

skin from the labia minora could affect the pelvic floor

muscles. This piece of skin was super long before I had it

removed. I had it removed because we were afraid the skin was

going to rip off (which I wished I had let it rip off on its own

or I wouldn't be dealing with vulvodynia). Because of the

length of the skin and where the doctor cut I don't understand

is how that would have affected the pelvic floor muscles unless

it had to do with the same reason that the surgery gave me the

nerve damage: the use of a retractor.

Now that could make some sense. Hmm, I'll have to think more

about that as far as a connection. Thanks for that info.

I do have the name of a PT here in ville that I can give

to that works on these issues if would like to

talk to her. This lady was very nice and told me when I talked

to her several years ago that if I did want to do this she would

respect my wish to stay external, but after talking to my

rheumatologist because of my unusual situation and being limited

to what I can and can't do and when can on how to do it he

agreed with my thought that a physiatrist would be a better

choice especially since the nerves are coming in to play as they

are.

And when my Pain Management doctor felt around my back it set

off a lot of nerves because of how low my pain threshold is in

general.

It's all very interesting. Just wish I didn't have such an

unusual situation going on along with knowing my body so well

(which I know can sometimes drive my doctors crazy too but they

understand well about that which is one reason I love them so

much, especially my gyn).

Thanks a lot Molly.

Kristy

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