My very unusual situation-Michele

[Guest guest]

Chelle,

I understand what you are trying to say but I can tell when I am

having problems down below because of how in tune I am with my

body. And I thank you for sharing what you have learned.

As for my surgeries, they have not affected my bladder. The

reason is because the incisions for my last 3 are nowhere near

the bladder, especially the suprapubic one. Thank goodness for

that. With my last 3 surgeries I only have two incisions unlike

the 4 from my very first lap in 1997 (the one that gave clues

about my endo).

I will gladly consider internal PT but only if done by a

physiatrist or a Nurse Practicioner, but my main issue is my

nerves because of the damage done to them. If I go to a regular

PT it can only be done externally if I were to do that (see

below one reason why I won't even for external work at this

time).

As for the treatment if I did want to do it with a regular PT

(which I have an opinion about them doing internal work but will

keep that to myself) it would actually make me worse and not

better because of how low of a pain threshold I have and also

the fact that I have fibromyalgia. I would need to have someone

that is also experienced at working on fibro patients if I ever

were to consider a regular PT for external work. Not having

someone that is also experienced with fibromyalgia can make the

condition worse.

I don't have many problems with scar tissue from my laps and the

reason why is because of the stuff my doctor uses to prevent

them from being a big problem. I even went adhesion free for 7

years until the endo caused some more to give me more problems

last year. And so far since that surgery last year no new

problems with adhesions thank goodness.

I can see where for some women though having surgeries a lot

could create a problem though. Makes sense based on what you

said. And my doctor and I do our best to avoid doing more

surgery but unfortunately for me with my endo as it is because

of the way my body deals with it I have to have surgery every so

many years to get its status checked out when it starts to act

up. But on the medication front I'm glad that both the pill and

the Zoladex (this one especially) work together to keep my endo

in check.

Thanks for the information. It's good to know about in case it

should become an issue later, but I do know that I have some

issues with my bladder in part because of the scare I had

earlier this year with the ultrasound. I also had some symptoms

7 years ago with my bladder that also indicated something is

wrong there.

I will let you know what happens and if I decide to go with any

internal work. But I will make sure that the one I choose is

aware of my fibro to make sure that whatever is done is done in

a way that won't make me worse.

It just makes it very hard (which is also why I'm able to be so

fine tuned as to tell what is going on in such detail with my

body) because I am very limited to what I can do and if there

are some things I can do I'm often limited to how I can go about

them. Because otherwise I would gladly try everything that is

available (I've done a ton of research on the issue, heard about

PT for the area even as far back as nearly 10 years ago for the

pelvic floor area and in relation to vulvodynia) to try and help

this.

I have some other reasons that come in to play for why I can't

let an actual physical therapist do internal work on me (one of

which ties in to an opinion on the subject that I'll keep to

myself), but they aren't as big as the reasons given here.

And I did talk to someone (a physical therapist that is) several

years ago at the time this discussion came up on the list and

someone tried to suggest it nearly 10 years ago. And she agreed

that if I came to her she would do it any way I wanted her to

which meant all the work would have to be external.

There were so many things I wanted to try even 5 years after the

diagnosis but couldn't then just like I can't now. Being

limited for a lot of reasons can be hard at times which is why

I'm always checking with all my doctors to see what they say.

My rheumatologist feels that for me a physiatrist would be a

better choice overall and I'm considering consulting one for my

nerve issues.

Thanks for the information. I truly appreciate it and I'm sorry

if I sounded irritated earlier. The weather was getting to me a

bit because it started to rain. Above all thanks for caring.

Kristy

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