Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Tigger- I hope today finds you better mind set on what happened,it's hard to not be bothered because he is your brother and not just a someone, much easier to brush off. I am at about the same place as you on where or how much pain going on. It is here and goes from bad to worse that is well put. I can't think or remember because if there were in my memory a good day, a day without a constant painfull moment I would hang on to it, it would be a positive vision to zero in on hoping, praying, waiting for another one of those days! I am in constant reminder of this disease, I go in the car on trip down to Ma. for Dr. appt's 6hr RT had to get right back and I just today have got rid of the terrible soreness pain in my legs, what did I do?, I didn't even drive so I changed positions, wasn't stressed with sitting frustrated with traffic etc. These are the things that people don't understand. I say give them a sack of cement to carry around put some 20lb weights on there ankles to walk around in all day and then report back how they feel. How sore they are, how unexpectedly they go to make a smallest of small moves and are wretched pain out of know where, and why, I don't know. Anyway I wish your pain was being better treated. Does the hydrocodone not work for you? My friend had Gastric bypass and she is on this for her pain. I know on that each can be differrent to but ??? I think you have my doctor's, they believe in living pain free, believe no one should have to have pain when there is med's out there, and though carefull, will work with you on finding the right med or med combination to get me to sleep and to at least take edge off because that is all I get med's and all. Heck I flew out in OCT to Ca to visit my daughter and g.kids my loves of my life and had to struggle with everything, and had a rough rough time to get to my g, sons school carnival,but I could not let him down I never get to see them enough, my daughter longs for me to do things with her, and I can't, but was able to help with the decline to go with her and hubby to dinner and stuff I would say I'll stay here and babysit! My daughter had to grow up with me like this, not knowing what was wrong, and in her mind probably thinking I am nutty, and they may still wonder, but NEVER have second questioned me and has always asked if I felt like, or was I sure I could do something she wanted me to. Maybe one day your bro will decide to really research and come to you with understanding, we talk about this out in the open, if we didn't it would continue to be put back on the shelf as just a made up lazy disease us couch potatoes are trying to claim. I hope you a better day. I think crying is in the air, I woke the other day and my husband was out in kitch, so could not here my call for help to sit up in bed, I was trying and trying to do it pulling from head of bed and couldn't, I just gave up and layed there in awful pain and sobbed. He never new. Take Care thinking of you Sharon Tigger wrote: ((((((((Angie)))))))) Yeah, I did enjoy my corned beef and cabbage and I enjoyed playing this new game (new for me). I did NOT need a lecture from my brother when I'm not getting the medical help that I need (how many of us do?). I'm so frustrated, angry, hurt and just lost that I can't stop crying. I know it shouldn't get me this badly, but it shows truly how little he does understand. I thought he had learned more. I have more difficulty with meds because of my gastric by-pass. I need higher doses and shorter time between them. the doctors don't get it. If it has to be broken down in the intestine I'm screwed. I don't have the intestine to break it down. I also don't have much acid in my stomach to break it down. I could scream right now. Everything you said is right. It's kind of like what I've been saying lately. the crises is over, so my brother either disappears or acts like a jerk. I think I'm going to have to take a break from him and just do what I need to do for me. I go from constant pain to really bad constant pain. Great choices, huh? I'm about at the end of my rope and there is very little I care about right now. except the fur kids. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of Angie Sent: Sunday, March 16, 2008 10:57 PM To: Fibromyalgia_Support_Group Subject: Re: My tigger Tigger, First of all, he's male. Second, he's been insensitive to you a lot in the past. He doesn't want to hear about the reality of your illness. I'll say this much; guys want to fix things. If they can't just fix it, they don't want to hear about it. I know this is a generalization but its not derogative. Men and Women have different traits. Generally, most men want to take charge and fix things. If they can't they don't want to be reminded of it. That's why your brother has been helpful to you when there was something he could do. I don't want to make excuses for him here. I just want you to find a place in your mind where he won't keep hurting you so deeply. Did you at least enjoy your corned beef and cabbage? Angie Harley Mama Double-D Carson City, NV; Single, five children (3 at home), 2 dogs, 4 cats, snow skiing, camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers member, LFA Advocate, independent, opinionated, outspoken, and open minded. " It's always something. " ~~~Gilda Radner " While we have the gift of life, it seems to me the only tragedy is to allow part of us to die - whether it is our spirit,our creativity, or our glorious uniqueness. " ~~~Gilda Radner http://www.mybloglo <http://www.mybloglog.com/buzz/members/AGBlog/> g.com/buzz/members/AGBlog/ http://360.yahoo. <http://360.yahoo.com/lovinglifeinnv> com/lovinglifeinnv http://www.myspace. <http://www.myspace.com/amkg> com/amkg http://doripost. <http://doripost.agrato.info/> agrato.info/ http://wine- <http://wine-and-chocolate.blogspot.com/> and-chocolate.blogspot.com/ http://weblog. <http://weblog.xanga.com/purplepassionate> xanga.com/purplepassionate http://www.revoluti <http://www.revolutionhealth.com/blogs/angiemg> onhealth.com/blogs/angiemg http://www.facebook <http://www.facebook.com/profile.php?id=592316375> ..com/profile.php?id=592316375 http://health. <http://health.groups.yahoo.com/group/LupusSurvivorsU/> groups.yahoo.com/group/LupusSurvivorsU/ My tigger Hugs my friend. I so understand. I cannot talk about it to my family either [Mr Wonderful and Mel} without eye rolling, shrugging me off or making a rude comment. I don't look sick, thus I must not be. I was called a pain pill seeker tonight. Is he for real? I am here if you need to talk. Email me anytime. [image: extrasBlessings abj StudyBear-vi] [image: 129] [image: 85] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Tigger- I hope today finds you better mind set on what happened,it's hard to not be bothered because he is your brother and not just a someone, much easier to brush off. I am at about the same place as you on where or how much pain going on. It is here and goes from bad to worse that is well put. I can't think or remember because if there were in my memory a good day, a day without a constant painfull moment I would hang on to it, it would be a positive vision to zero in on hoping, praying, waiting for another one of those days! I am in constant reminder of this disease, I go in the car on trip down to Ma. for Dr. appt's 6hr RT had to get right back and I just today have got rid of the terrible soreness pain in my legs, what did I do?, I didn't even drive so I changed positions, wasn't stressed with sitting frustrated with traffic etc. These are the things that people don't understand. I say give them a sack of cement to carry around put some 20lb weights on there ankles to walk around in all day and then report back how they feel. How sore they are, how unexpectedly they go to make a smallest of small moves and are wretched pain out of know where, and why, I don't know. Anyway I wish your pain was being better treated. Does the hydrocodone not work for you? My friend had Gastric bypass and she is on this for her pain. I know on that each can be differrent to but ??? I think you have my doctor's, they believe in living pain free, believe no one should have to have pain when there is med's out there, and though carefull, will work with you on finding the right med or med combination to get me to sleep and to at least take edge off because that is all I get med's and all. Heck I flew out in OCT to Ca to visit my daughter and g.kids my loves of my life and had to struggle with everything, and had a rough rough time to get to my g, sons school carnival,but I could not let him down I never get to see them enough, my daughter longs for me to do things with her, and I can't, but was able to help with the decline to go with her and hubby to dinner and stuff I would say I'll stay here and babysit! My daughter had to grow up with me like this, not knowing what was wrong, and in her mind probably thinking I am nutty, and they may still wonder, but NEVER have second questioned me and has always asked if I felt like, or was I sure I could do something she wanted me to. Maybe one day your bro will decide to really research and come to you with understanding, we talk about this out in the open, if we didn't it would continue to be put back on the shelf as just a made up lazy disease us couch potatoes are trying to claim. I hope you a better day. I think crying is in the air, I woke the other day and my husband was out in kitch, so could not here my call for help to sit up in bed, I was trying and trying to do it pulling from head of bed and couldn't, I just gave up and layed there in awful pain and sobbed. He never new. Take Care thinking of you Sharon Tigger wrote: ((((((((Angie)))))))) Yeah, I did enjoy my corned beef and cabbage and I enjoyed playing this new game (new for me). I did NOT need a lecture from my brother when I'm not getting the medical help that I need (how many of us do?). I'm so frustrated, angry, hurt and just lost that I can't stop crying. I know it shouldn't get me this badly, but it shows truly how little he does understand. I thought he had learned more. I have more difficulty with meds because of my gastric by-pass. I need higher doses and shorter time between them. the doctors don't get it. If it has to be broken down in the intestine I'm screwed. I don't have the intestine to break it down. I also don't have much acid in my stomach to break it down. I could scream right now. Everything you said is right. It's kind of like what I've been saying lately. the crises is over, so my brother either disappears or acts like a jerk. I think I'm going to have to take a break from him and just do what I need to do for me. I go from constant pain to really bad constant pain. Great choices, huh? I'm about at the end of my rope and there is very little I care about right now. except the fur kids. Tigger (Ruth) in Rhode Island _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of Angie Sent: Sunday, March 16, 2008 10:57 PM To: Fibromyalgia_Support_Group Subject: Re: My tigger Tigger, First of all, he's male. Second, he's been insensitive to you a lot in the past. He doesn't want to hear about the reality of your illness. I'll say this much; guys want to fix things. If they can't just fix it, they don't want to hear about it. I know this is a generalization but its not derogative. Men and Women have different traits. Generally, most men want to take charge and fix things. If they can't they don't want to be reminded of it. That's why your brother has been helpful to you when there was something he could do. I don't want to make excuses for him here. I just want you to find a place in your mind where he won't keep hurting you so deeply. Did you at least enjoy your corned beef and cabbage? Angie Harley Mama Double-D Carson City, NV; Single, five children (3 at home), 2 dogs, 4 cats, snow skiing, camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers member, LFA Advocate, independent, opinionated, outspoken, and open minded. " It's always something. " ~~~Gilda Radner " While we have the gift of life, it seems to me the only tragedy is to allow part of us to die - whether it is our spirit,our creativity, or our glorious uniqueness. " ~~~Gilda Radner http://www.mybloglo <http://www.mybloglog.com/buzz/members/AGBlog/> g.com/buzz/members/AGBlog/ http://360.yahoo. <http://360.yahoo.com/lovinglifeinnv> com/lovinglifeinnv http://www.myspace. <http://www.myspace.com/amkg> com/amkg http://doripost. <http://doripost.agrato.info/> agrato.info/ http://wine- <http://wine-and-chocolate.blogspot.com/> and-chocolate.blogspot.com/ http://weblog. <http://weblog.xanga.com/purplepassionate> xanga.com/purplepassionate http://www.revoluti <http://www.revolutionhealth.com/blogs/angiemg> onhealth.com/blogs/angiemg http://www.facebook <http://www.facebook.com/profile.php?id=592316375> ..com/profile.php?id=592316375 http://health. <http://health.groups.yahoo.com/group/LupusSurvivorsU/> groups.yahoo.com/group/LupusSurvivorsU/ My tigger Hugs my friend. I so understand. I cannot talk about it to my family either [Mr Wonderful and Mel} without eye rolling, shrugging me off or making a rude comment. I don't look sick, thus I must not be. I was called a pain pill seeker tonight. Is he for real? I am here if you need to talk. Email me anytime. [image: extrasBlessings abj StudyBear-vi] [image: 129] [image: 85] Quote Link to comment Share on other sites More sharing options...
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