Kristy/Update on my PN specialist/nerve block trip

[Guest guest]

Kristy,

I am glad you

were able to talk to Dr. Conway and get some of your questions answered. I am

also glad that he was able to give you some insight, and also that you will

have some follow-up additional questions to ask your own gynecologist. I

wish you lived closer so that you could see him in person. I am so glad he is

able to talk to women about PN issues – I don’t know of any other

doctor that provides free advice like this. As I mentioned he is a truly compassionate

doctor who wants to help women with this awful condition. I have been going to

him monthly now for eighteen months, and on Monday he agreed to take over all

my regular GYN issues, besides just PN problems. He provides excellent

aftercare – I have seen him three times since my surgery a month ago, and

I have an appointment again in two weeks. Most doctors just don’t want to

be bothered with you anymore following surgery.

Best of luck,

and I hope someday you will have all your medical issues solved and I hope for

the best for your mother too,

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Kristy Sokoloski

Sent: Wednesday, September 19, 2007 6:20 PM

To: VulvarDisorders

Subject: [sPAM] Re: Update on my PN specialist/nerve block trip

,

I hope the blocks work for you hon. I got to talk to Dr. Conway

on Mon about the issue of the pudenal nerve from a different

standpoint: my endometriosis. One thing he did tell me that I

found interesting is that the sciatic nerve and the way it runs

is very close to the pudenal nerve. I thought that was

interesting. Also, he told me that if someone has damage to the

pudenal nerve (because I told him about when I almost had an EMG

done of that nerve back in the Spring with the EMG tech I talked

to) that they may actually not feel any kind of pain when the

tech is trying to feel around the clitoral base.

I have had trigger point injections to the pudenal nerve done

twice to try and block it but it didn't work which tells me as

confirmation that my vulvodynia issues are higher up. He agreed

that I am as he put it a " mixed bag " because I don't fall in to

just one category. Asked about my bowel and bladder and I did

mention the IBS and also the symptoms I have had with my bladder

over the years (for 2 months 7 years ago and again when I had a

pelvic ultrasound done back in March). But as I told him I

can't get my bladder checked at this time til I know what's

going on with my mom and may not be able to get in to a

urologist til probably Nov or Dec but we shall see.

Please keep us posted on how these blocks do for you hon. And I

agree that Dr. Conway was very nice. He told me that if I did

want to come up (which I can't and unfortunately he doesn't know

anyone in my area-I'm in FL-that he could refer me to) that to

schedule it would be around 2 months.

But after my discussion with him, whenever I talk to my

gynecologist again I'm going to ask her some additional

questions, one of them to maybe go back on the medicine I did

last year after my surgery to check the status of my endo but

for a longer period of time than just the 6 months I've been

doing it for.

Kristy

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[Guest guest]

Hi nne,

I was glad I got to talk to him as well. I was glad that I saw

his site to notice that he has knowledge about endometriosis.

And that was another thing he did tell me is that yes it is

possible that endo could grow on the pudenal nerve and even the

other nerves I have a problem with. My conversation with him is

causing me to think maybe about going ahead and having that EMG

done any way with the tech I talked to in the Spring.

I will weigh that possibility over the next few months once I

know what's going on with my mom. She was told earlier this

year that she has breast cancer but we took her to Mayo Clinic

ville to the breast clinic they have there. We have

asked them to run the tests again and it's a good thing that

they asked for the slides too when we sent stuff over the week

before because we found out last week that the pathologist at

the hospital where she had the biopsy done read one of the

slides wrong.

But for now we are going to have the tests done again to make

sure that once and for all this is cancer and if it is (we know

that it may not change the initial finding but still sometimes

things happen where the biopsy can be wrong) so that we can plan

our strategy for her treatments and whatnot. Then once we know

what's going on with that I can focus on myself again to finish

putting some other pieces of my puzzle in to place.

Glad to hear you are doing well with your surgery hon. I know

someone that had the surgery you did with a doctor in the

Houston area and when I last talked to her (which was over a

year ago) she did not have good results. If I hear from her

again I will let you know what I find out from her as to how

she's doing.

I'm especially glad that you have found the answer to your

problem. Trying to find an answer no matter how long it is to

do so can be very stressful while waiting, but it's always

wonderful when the answer comes and not only relief but peace

all the way around.

Continue to do well hon.

Kristy

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