question?

March 13, 2005

That is funny you should mention that. I was noticing how much clearer my

urine looks.

I saw my Neph this week, and I am still sticking around 18%, but seem to

have more symptoms of uremia which I don't really understand. If labs are

stable, I should not feel any different. The nausea is getting worse, BP

getting

higher and requiring more meds, and...very very sadly I must say, I have had

to give up my beloved running over the past month. I just can't do it

anymore. I am making a tremendous effort on eating, but I am not always

successful

keeping things down. My doctor said that because I am so small, perhaps my

body can't tolerate the uremia very well, or perhaps my body is more

sensitive.

PTH is climbing too high and he is now concerned about bone

complications..oh the joys of chronic renal insufficiency :-).

On an off topic note, for any of you that are prayer warriors, my husband's

best friend Jim has been missing without a trace since Thursday. He even

missed his daughters birthday party yesterday. No credit card or gas card

activity, just disappeared without a trace. He had only minimal cash on him

when

he left the house and there has not been any bank activity either. He has

been either unable or unwilling to check messages on his cell phone, and has

not

made any outgoing cell phone calls since Thursday either. We could really

use your prayers. We have had search teams out Friday and Saturday, and teams

have headed out today too. Searches at all area airports, bus stations,

train stations, and hospitals have come up empty. Police are involved and

searching as well. The more prayers the better.

Thanks!

In a message dated 3/12/2005 7:12:25 A.M. Pacific Standard Time,

pgl-groups@... writes:

No, you can't tell anything by looking at your urine (I mean, other than

when there's blood, or when there's infection). In fact, the more kidney

failure you have, the clearer your urine becomes (it's basically mostly

yellow-colored water at that point, since very little is being filtered,

even if the tubular portion of the nephrons are still producing urine for

you).

Mind you, never having much foam is a better sign than always having lots of

it. But there are other factors involved in whether there is foam or not,

so, I wouldn't use just that to interpret anything.

Pierre

March 13, 2005

Interestingly, , I too am near 20% or so and still am by recent

checkup...and am noticing many of the symptoms of uremia clearing....less

itching; rashes much more susceptible to clearing with hydrocortisone cream

(they were very refractory before) appetite improving, nausea is basically

gone, the whole 9 yards.

Not sure about bp, at least in the office its OK. Even the swelling of legs

and ankles is lessened enough that I don't take the lasix anymore.

This could be a function of the pollen/allergy situation, that is, down

regulation of immune system (complement) activation and so forth, but if so

function doesn't seem to have changed....I am clueless.

I did have to give up the 4 mi per most days I was treadmilling, I am so

tired much of the time.

I have kept my diet basically the same, and the pill regimine is the

same.....so I am REALLY confused by all of this. However, sadly, you seem

to be going in the other direction. I wish this weren't so. To be blunt

about it, sometimes I get a little angry with God, and this is one of those

times, and prayer is the only thing I know to get straight again. Good

people like you always seem to suffer most, while genuine ***holes seems to

live long, healthy lives.