Re: Hi everyone! (new member)

[Guest guest]

, I kind of know how you feel. Alayna (almost 1) had an odd head shape in her earlier months and the doctors told me that most likely it would correct itself. I had a hunch however that it was getting worse and with her delays I knew she wasn't a "typical" developing baby. She isn't sitting up yet on her own. So, we demanded to be referred to a specialist and she just got her STARband this past week. And I'm a new member to this group too. Let us know how your appointment goes and what the doctor recommends. You aren't alone and we can do this!! Angie - mom to Alayna (1p36 deletion and almost 1) - from Illinois <leo_angel03@...> wrote: Hi EveryoneJust thought i would say hello.I am from Yorkshire in the UK and i am a mummy to 2 little monkeys and Jenson i have just found out my son Jenson 5 months has plagiocephaly. I thought Jensons head shape looked a bit odd around 3 weeksbut everyone just said it was normal and it would round out but to me it seemed to be getting worse. So with no help from my doctor i took matters into my own hands and consulted a specialist. He told me Jenson had something called Plagiocephaly and it would be fine his hair will cover it up if i grew it and it may even pop out as he grows! So as soon as home i looked it up and i was horrified. He had not told me anything i was reading. It was really too late to use repo but i am doing the

best i can at this late stage. Me and my husband did some reserch and lots of thinking and found a private clinic (the uk health service does not fund this treatment!) not too far away STARBAND and i have an appointment on tuesday for a consultation with Steve Mottram so we will see what happens from there. Its all happened so quick and i have never heard of this before even though i have seen plenty of babys with the same thing. I feel i have no support as i know no one who is in the same situation so i hope this is going to do the trick lol!Well i am so sorry to go on and on (I kinda do that alot lol)Take care

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

> Hi Everyone

>

> Just thought i would say hello.

> I am from Yorkshire in the UK and i am a mummy to 2 little monkeys

> and Jenson i have just found out my son Jenson 5 months

has

> plagiocephaly. I thought Jensons head shape looked a bit odd

around

> 3 weeksbut everyone just said it was normal and it would round out

> but to me it seemed to be getting worse. So with no help from my

> doctor i took matters into my own hands and consulted a

specialist.

> He told me Jenson had something called Plagiocephaly and it would

be

> fine his hair will cover it up if i grew it and it may even pop

out

> as he grows! So as soon as home i looked it up and i was

horrified.

> He had not told me anything i was reading. It was really too late

to

> use repo but i am doing the best i can at this late stage. Me and

my

> husband did some reserch and lots of thinking and found a private

> clinic (the uk health service does not fund this treatment!) not

too

> far away STARBAND and i have an appointment on tuesday for a

> consultation with Steve Mottram so we will see what happens from

> there.

> Its all happened so quick and i have never heard of this before

even

> though i have seen plenty of babys with the same thing. I feel i

> have no support as i know no one who is in the same situation so i

> hope this is going to do the trick lol!

>

> Well i am so sorry to go on and on (I kinda do that alot lol)

> Take care

>

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

Mobile. Try it now.

>

Hi Angie

Thanks for that its made me feel much happier.

Ive been reading some messages and not feeling so isolated now its

made me feel tones beter and im glad we have decided to go down the

helmet route. At least im doing somthing that can help even if only

a little bit.

Thanks again