Re: Introduction

[Guest guest]

let me tell you all something that might make you give up your diet coke

i drank that since it came out and before that other diet sodas.. i was up

to four or five a day .. my dad had been nagging my my whole life that

aspartame is not good for you . he is a chemical engineer and participated

in the testing and manufacture of the substance ..he also does a great deal

of research into nutrition.. artificial sweetners especially aspartame can

fool the body into thinking they are sugar and can actually produce an

insulin response and can cause you to gain weight. when i think back i did

not have a weight problem until i started drinking diet soda.. so making my

mind think of all the bad things those chemicals were doing to my body i was

finally able to give it up.i had spent years saying its my only vice .and

rationalizing it that way ..it was not easy but. all i drink now is water,

tea and decaf coffee and once in a while i will have a diet soda for a

treat

catherine

-----

[Guest guest]

I hear ya, . All I drink is water, too, and very occasionally I

will have a bottled crystal light or crystal bay... like one or two per

month! In fact, I was at a church luncheon at someone's home last Sunday

and the ONLY thing she had out to drink was lemonade (sugar sweetened, of

course). I asked for a simple glass of water and folks looked at me like I

was asking for hard-liquor or something! LOL Well, you know how I just don't

care what people think or say about my WOE... I just smiled sweetly and

waited for that glass of water :-) :-) :-)

-Marlena

>

>all i drink now is water,

>tea and decaf coffee and once in a while i will have a diet soda for a

>treat

>catherine

>-----

>

_________________________________________________________________

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[Guest guest]

Marlena....

What a wonderful report. In my life I have made many bad decisions,

simply because I didn't have the nerve to stand up for what was good for me.

Your sharing makes it easier for all of us.

/mike/

Re: introduction

>I asked for a simple glass of water and folks looked at me like I

> was asking for hard-liquor or something! LOL Well, you know how I just

don't

> care what people think or say about my WOE... I just smiled sweetly and

> waited for that glass of water :-) :-) :-)

>

> -Marlena

[Guest guest]

> month! In fact, I was at a church luncheon at someone's home last Sunday

> and the ONLY thing she had out to drink was lemonade (sugar sweetened, of

> course). I asked for a simple glass of water and folks looked at me like I

> was asking for hard-liquor or something!

Yeah! I'm in the washington chorus (yes, Marlena, I'm practically a

neighbor!) and at every rehearsal we have a breaktime, and at that

breaktime they serve lemonade and a bunch of high-carb snacks (though

occasionally they have cheese & crackers)

I ask for water and they're like, well, here's a cup, you can get some

from the sink over there... nasty tap water that tastes like old pipes &

chlorine, blech! And I'm always forgetting to bring my own, dang.

Now, after an hour and a half of singing and before another hour of it,

lemonade sounds soooooo good...

maybe I'll get some of that new lemonade mix that I read about in the

Atkins magazine-- has anyone tried it?

BTW, if any of y'all are interested, we did a benefit " Concert For

America " at the Kennedy Center in DC on Monday, and it's playing tonight

at 9pm EST on PBS; I think it might be delayed for pacific/mountain, check

listings. Was a great concert, included Chapin Carpenter and

Sir Galway and many others... the combined voices of the 3 major

choirs in DC did Mahler's 2nd Symphony finale.

--jen

[Guest guest]

Hi ,

Sounds like you are on the right track. Keep up the good work and stick to this WOE, it really does work.

Working out is great way to help the weight loss. If you start to lift weights, you might see a increase in muscle mass. With all the protein you are eating, it helps build muscle and more muscle burns more fat.

Nice to meet you and looking forward to hearing about your progress.

155/151/140

[Guest guest]

Hi ,

Sounds like you are on the right track. Keep up the good work and stick to this WOE, it really does work.

Working out is great way to help the weight loss. If you start to lift weights, you might see a increase in muscle mass. With all the protein you are eating, it helps build muscle and more muscle burns more fat.

Nice to meet you and looking forward to hearing about your progress.

155/151/140

[Guest guest]

Hi ,

Sounds like you are on the right track. Keep up the good work and stick to this WOE, it really does work.

Working out is great way to help the weight loss. If you start to lift weights, you might see a increase in muscle mass. With all the protein you are eating, it helps build muscle and more muscle burns more fat.

Nice to meet you and looking forward to hearing about your progress.

155/151/140

[Guest guest]

you got it kevin and welcome to atkins

catherine

[Guest guest]

you got it kevin and welcome to atkins

catherine

[Guest guest]

you got it kevin and welcome to atkins

catherine

[Guest guest]

and others,

It's nice to meet all of you too.

By the way, what do the three numbers mean at the bottom of many of

your notes? I'm guessing it's start/current/goal. Is that correct?

> Hi ,

> Sounds like you are on the right track. Keep up the good work and

stick to this WOE, it really does work.

>

> Working out is great way to help the weight loss. If you start to

lift weights, you might see a increase in muscle mass. With all the

protein you are eating, it helps build muscle and more muscle burns

more fat.

>

> Nice to meet you and looking forward to hearing about your progress.

>

>

> 155/151/140

[Guest guest]

and others,

It's nice to meet all of you too.

By the way, what do the three numbers mean at the bottom of many of

your notes? I'm guessing it's start/current/goal. Is that correct?

> Hi ,

> Sounds like you are on the right track. Keep up the good work and

stick to this WOE, it really does work.

>

> Working out is great way to help the weight loss. If you start to

lift weights, you might see a increase in muscle mass. With all the

protein you are eating, it helps build muscle and more muscle burns

more fat.

>

> Nice to meet you and looking forward to hearing about your progress.

>

>

> 155/151/140

[Guest guest]

and others,

It's nice to meet all of you too.

By the way, what do the three numbers mean at the bottom of many of

your notes? I'm guessing it's start/current/goal. Is that correct?

> Hi ,

> Sounds like you are on the right track. Keep up the good work and

stick to this WOE, it really does work.

>

> Working out is great way to help the weight loss. If you start to

lift weights, you might see a increase in muscle mass. With all the

protein you are eating, it helps build muscle and more muscle burns

more fat.

>

> Nice to meet you and looking forward to hearing about your progress.

>

>

> 155/151/140

[Guest guest]

Dear Naomi,

Welcome to the GBIC website and email group! I'm soo glad you found

us.

Don't worry about losing weight when you switch to pureed foods/soft

foods. You're going to do just fine.

Are you drinking protein shakes? Have you read/heard about them on

the list...? I encourage you to visit Mom at <A

HREF= " http://www.vitalady.com/ " >Vitalady.com - Protein

Supplements, Vitamins & Minerals, and Safe Snacks!</A> and check out her story,

information and protein powder sample packs. You can try different

flavors/brands without buying a large canister.

Take good care and congrats on your weight loss!

Love,

Trace in Va. Beach, VA

Dr. Schechner, Va. Beach, VA

Open RNY -- 9/5/02

Height -- 5' 9 1/2 "

Starting weight -- 351.2

Current weight -- 261

Minus -- 90.2 pounds gone!

Gal. 2:20

[Guest guest]

Dear Naomi,

Welcome to the GBIC website and email group! I'm soo glad you found

us.

Don't worry about losing weight when you switch to pureed foods/soft

foods. You're going to do just fine.

Are you drinking protein shakes? Have you read/heard about them on

the list...? I encourage you to visit Mom at <A

HREF= " http://www.vitalady.com/ " >Vitalady.com - Protein

Supplements, Vitamins & Minerals, and Safe Snacks!</A> and check out her story,

information and protein powder sample packs. You can try different

flavors/brands without buying a large canister.

Take good care and congrats on your weight loss!

Love,

Trace in Va. Beach, VA

Dr. Schechner, Va. Beach, VA

Open RNY -- 9/5/02

Height -- 5' 9 1/2 "

Starting weight -- 351.2

Current weight -- 261

Minus -- 90.2 pounds gone!

Gal. 2:20

[Guest guest]

Dear Naomi,

Welcome to the GBIC website and email group! I'm soo glad you found

us.

Don't worry about losing weight when you switch to pureed foods/soft

foods. You're going to do just fine.

Are you drinking protein shakes? Have you read/heard about them on

the list...? I encourage you to visit Mom at <A

HREF= " http://www.vitalady.com/ " >Vitalady.com - Protein

Supplements, Vitamins & Minerals, and Safe Snacks!</A> and check out her story,

information and protein powder sample packs. You can try different

flavors/brands without buying a large canister.

Take good care and congrats on your weight loss!

Love,

Trace in Va. Beach, VA

Dr. Schechner, Va. Beach, VA

Open RNY -- 9/5/02

Height -- 5' 9 1/2 "

Starting weight -- 351.2

Current weight -- 261

Minus -- 90.2 pounds gone!

Gal. 2:20

[Guest guest]

Hi , welcome!! Looks like you have a WW partner with your

hubby, good for you.. all the best...Kallie

------------------------------------------------------------------

In Serious-Weight-Watchers , " Brunetti "

<cynthia@m...> wrote:

> My husband and I started WW again a couple of months ago. He has

lost 20lbs

> and I have lost 6.

> We both need to lose about 40lbs.

>

[Guest guest]

Thanks for the warm welcome! BTW Sandy, I am not doing core I am

doing FP.

[Guest guest]

>

> Thanks for the warm welcome! BTW Sandy, I am not doing core I am

> doing FP.

>

>

Okey dokey! =0)

Sandy

[Guest guest]

She does them all. I've been bad and I have not gotten a copy of the

last two labs. She found it on the antibody test. I'll get teh nurse

to fax those on Monday and I'll post to see what others think.

Thanks,

Kate

> In a message dated 12/3/2004 6:23:28 PM Eastern Standard Time,

> kguynn@t... writes:

>

> > Two days ago the nurse called to tell me my latest

> > labs have me in the " normal " range

>

> Kate,

> make sure you get a Free T4 and Free T3 test. don't let the doc

dose you by

> the TSH.

> Cindi

>

>

>

[Guest guest]

She does them all. I've been bad and I have not gotten a copy of the

last two labs. She found it on the antibody test. I'll get teh nurse

to fax those on Monday and I'll post to see what others think.

Thanks,

Kate

> In a message dated 12/3/2004 6:23:28 PM Eastern Standard Time,

> kguynn@t... writes:

>

> > Two days ago the nurse called to tell me my latest

> > labs have me in the " normal " range

>

> Kate,

> make sure you get a Free T4 and Free T3 test. don't let the doc

dose you by

> the TSH.

> Cindi

>

>

>

[Guest guest]

Hi ,

You are just down the road from me. I have a dear friend in Angleton

who is a breast cancer survivor and probably has some Thyroid issues now.

I go to a FP doctor in Sugarland Family Practice, Her name is Dr

Cantu. I just pay my co-pay but I think if she is not on insurance it

is probably about $35-$40 for the visit. Labs are a different story.

They have a lab (Quest Diagnostics) in there. They bill you

separatly. Probably a couble of hundred w/o insurance.

Thanks for your welcome!

Kate

> Kate, Welcome

>

> And I live in Angleton, Tx and would like to know who your doctor is

that

> never even brought up the sbjct of $ynthroid. Cost and all that.

Welcome

> aboard.

>

>

>

[Guest guest]

Hi Elloise,

A very warm welcome to you! I am glad you found your way here. I also had

to have two biopsies the first in 87 and the second in 97. I know how hard

it is to wait for the results of a biopsy.

I pray all goes well on Tuesday.

Welcome again and we look forward to getting to know you too.

In a message dated 6/9/2005 8:32:02 A.M. Pacific Daylight Time,

MrsElly@... writes:

With that said, however, I am a bit nervious about this second biopsy

(scheduled for Tuesday) and it's results. I'm really happy to have

found a group of people who are in the same " boat " and I can talk

about this without having to explain everything we know or don't know

about IGAN.

I look forward to getting to know you all better.

Elloise

[Guest guest]

Hi Elloise,

Welcome to the group, I'm glad you found us. Good luck with the second

biopsy and I hope your new doctor has some insights for you regarding your rise

in numbers once it's complete.

I've been on steroid therapy since Sept '03....don't let that scare you, most

people are on and then off within 6-8 months. I was diagnosed with the

aggressive form of IgAN going from normal labs to roughly 35% function in less

than 6 months. My biopsy showed so much damage, 80% scarring and crescents,

that some of my nephs associates felt I was untreatable. My neph figured we had

nothing to lose and perhaps time to gain by trying a course of steroids. So far

it has kept me stable for 21 months, though my IgA has become steroid dependent

so I am currently unable to wean off them completely....this is a rare

occurrence though so don't freak out about that part. Steroid therapy can do

wonderful things but you truly have to weigh the risks and side effects of the

steroids with what they will do for your disease. If you are spilling high

amounts of protein 3+g/24hrs then the benefits of brining that under control are

worth doing the steroids, if your function is near normal and you don't have a

high protein spill then the biopsy might show some other reasoning to try a

course of steroid treatment. Ask your neph what he is looking to get out of the

steroids and then ask about a timeline for dosing and weaning off them. They

are not fun drugs to be on, but enough of us here have been there so we can and

will help you thru it.

I'm also on Lisinopril, fish oil, calcium tabs, and acidophilus to keep the

stomach damage from the prednisone down to a minimum.

Our sister site, as you've found, is a great place to send family so they can

learn about this disease from a patients point of view. Our founder Pierre has

done a wonderful job with it.

Welcome again,

Amy G.

Introduction

Hello everyone -

I just wanted to post a quick introduction. I've been reading about

all of you and thought it rude to not say hello.

I was diagnosed with IGAN in 2001 after a kidney biopsy. Doctors

said chances were I had had it much longer, but that it seemed I was

being treated for individual symptons instead of anyone looking at me

as a whole. (sudden high blood pressure, swelling in the legs and

ankles, extreme headaches and fatigue) At that time I was started on

Lisinopril, Lipitor, and fish oil. Since then we have added Lasix to

the list along with Potassium. Diagnosis was we seemed to have

caught it early and vist every six months.

Well, went to the doc on Monday and it seems that all the levels that

had been stable every six months have decided to increase this last

set of labs. It's a new doc so we spent a lot of time going over

past labs and history. He wants to do another biopsy to see what the

damage difference is between 2001 and now and if we need to add

steroid treatment or something else.

I found this group via the website Pierre has on IGAN - a lot of good

information and I've sent the link to my family. They are all in the

first few stages of acceptance (anger, denial, etc). I've come to

accept what's going on and as long as the doc hasn't said dialysis

I'm okay with this.

With that said, however, I am a bit nervious about this second biopsy

(scheduled for Tuesday) and it's results. I'm really happy to have

found a group of people who are in the same " boat " and I can talk

about this without having to explain everything we know or don't know

about IGAN.

I look forward to getting to know you all better.

Elloise

To edit your settings for the group, go to our Yahoo Group

home page:

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To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

------------------------------------------------------------------------------

[Guest guest]

Amy,

Welcome to the group. It is a great group of people. Warm and supportive.

All communication modalities are used by the people in this group. Some are

oral, some sign, some are aided, some are implanted with CIs. Our son is oral

simply because he was born hearing. But now that he is older and interested, we

are learning ASL as a family.

The general idea for this list is that there is no one right choice for all

D/HIOH kids. We make our choices based on what our kids need. Everyone is

different, even when there are similarities. And the people here help support

those choices, help each other find resources ... and share stories about

parenting our kids.

I am Jill, mother of 2. I work from home in my studio that currently has

more roller blades and hooded sweatshirts than artwork strewn about. My older

child is Ian, 15, and a high school sophomore, mainstreamed in our local

district. (Where did the years go?!) He has a progressive (degenerative)

bilateral

conductive moderate loss. He is aided, uses a personal FM system at school

and has the service of a TOD (teacher of the deaf). A TOD can also be called a

HI (hearing itinerant) or HIRS (hearing impaired related services). We

learned of Ian's hearing loss when he was in second grade -- when he was about

7½.

My other child is , 11, and while she has normal hearing, we have an

official diagnosis of selective hearing for her. When she seemed to not be

hearing us, we took her to the audiologist. I figured if I had one child with a

loss, I might have two. The audiologist gave her the full booth test routine

and then laughing informed me that we now had his first official diagnosis of

" selective hearing " but he doubted that the school would take it seriously.

(grin)

I did not have any luck getting our insurance company to pay for Ian's aids

the first time around, but now that we have gotten to our second set of aids,

I am going to give it more of a try. I doubt it will work, but it's certainly

worth the effort. Those little devils are expensive!

Welcome to the group!

Jill

In a message dated 10/21/2005 8:20:37 A.M. Eastern Daylight Time,

ednamy4@... writes:

Hi everyone,

My name is Amy and I'm the mom of 4 daughters - my almost 6 year old

has a moderate/severe, mixed, unilateral loss. We are currently in the

process of getting her aided - and fighting with the insurance company. ;-)

Hmmmm...what else about us? We homeschool (for other reasons), I'm a

former speech-langauage pathologist but have forgotten more than I learned

, my other girls are almost 8, 2, and 5 months. Looking forward to

getting to know everyone!

Amy