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Kim, I am sorry about your father and that you are having some of the symptoms

of ALS. I admire those who are care takers of people with ALS. My husband has

PLS and it seems I am jumping constanly to make sure he doesn't fall or worring

if he might fall. I would think you might be able to get into a study of ALS?PLS

or some sort if you could, like at a hospital and tell them your situation.

Maybe you could explain that to your doctor and see what they might be able to

do. I know that if we can't afford something we pay alittle at a time and our

doctor understands. If you go to the same doctor as your father did he might

understand better than a new doctor. I am sure you have tried these things

already sorry I didn't help but I willl be praying for you and that things work

out really soon for you. R.E.D.

itzallgood58 wrote:

Greetings! I have a Q about how some may have dealt with NO INSURANCE-

My father died in 2000 of ALS, under my care...but anyway I am now

showing many signs and symptoms and I have no $ or insurance. The

medicaid situation is that they will not cover without a diagnosis, I

cannot afford the testing which is required for a Dx , around and

around it goes! Anybody out there have a similar situation or any tips

for moving forward with this thing? In all my research there is really

nothing addressing this problem. Many thanx, and good thoughts to you

all, Kim (Southern Illinois)

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