Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Hi Shana, Welcome to the board. I'm very happy to hear that your brother seems to have a very mild form of IgA. I for one do have achy legs...along with restless leg syndrome. Sometimes it's difficult getting to sleep because it's impossible to get comfortable. Does your brother take any meds that may cause muscle type pain and has he mentioned this to his neph? Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Hi Shana, Welcome to the board. I'm very happy to hear that your brother seems to have a very mild form of IgA. I for one do have achy legs...along with restless leg syndrome. Sometimes it's difficult getting to sleep because it's impossible to get comfortable. Does your brother take any meds that may cause muscle type pain and has he mentioned this to his neph? Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 Welcome to the group, Shana. I was about your brother's age when my symptoms of IgAN were first discovered. I don't think there is anything about mild IgAN by itself that would cause achy legs. More advanced chronic renal failure could, but it doesn't sound like you brother has that. Maybe medications though. Blood pressure meds can do all sorts of things. Pierre Pierre (unknown) > Hello, my name is Shana and I am a new member. I joined because my > brother who is 22 has been diagnosed with IgaN. We have known for about a > year and a half now. He is doing very well, but it has not been easy to > grasp. His labs are excellent, and he had his tonsils taken out a couple > of months ago. He has normal protein levels and all else is good, no > crescents on biopsy and his doctor calls his a mild form of the disease. > However, one thing that he has each month is very achy legs. Do any of > you suffer from this, or know someone who does? His doctor keeps saying > it's unrelated, but we are unsure. Any ideas from anyone would be > awesome! I hope that all of you are doing well! > Shana > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi Shana, A very warm welcome to you! I am sorry your brother has IgAN. He is blessed to have a sister that takes such an interest in his health. Sounds like he is in excellent shape right now with normal labs and protein levels. I pray that continues for decades to come. I do not know of any association between IgAN and achy legs. Welcome again! In a message dated 5/30/2005 4:17:31 P.M. Pacific Daylight Time, shanajamison@... writes: Hello, my name is Shana and I am a new member. I joined because my brother who is 22 has been diagnosed with IgaN. We have known for about a year and a half now. He is doing very well, but it has not been easy to grasp. His labs are excellent, and he had his tonsils taken out a couple of months ago. He has normal protein levels and all else is good, no crescents on biopsy and his doctor calls his a mild form of the disease. However, one thing that he has each month is very achy legs. Do any of you suffer from this, or know someone who does? His doctor keeps saying it's unrelated, but we are unsure. Any ideas from anyone would be awesome! I hope that all of you are doing well! Shana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi Shana, A very warm welcome to you! I am sorry your brother has IgAN. He is blessed to have a sister that takes such an interest in his health. Sounds like he is in excellent shape right now with normal labs and protein levels. I pray that continues for decades to come. I do not know of any association between IgAN and achy legs. Welcome again! In a message dated 5/30/2005 4:17:31 P.M. Pacific Daylight Time, shanajamison@... writes: Hello, my name is Shana and I am a new member. I joined because my brother who is 22 has been diagnosed with IgaN. We have known for about a year and a half now. He is doing very well, but it has not been easy to grasp. His labs are excellent, and he had his tonsils taken out a couple of months ago. He has normal protein levels and all else is good, no crescents on biopsy and his doctor calls his a mild form of the disease. However, one thing that he has each month is very achy legs. Do any of you suffer from this, or know someone who does? His doctor keeps saying it's unrelated, but we are unsure. Any ideas from anyone would be awesome! I hope that all of you are doing well! Shana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi Shana, A very warm welcome to you! I am sorry your brother has IgAN. He is blessed to have a sister that takes such an interest in his health. Sounds like he is in excellent shape right now with normal labs and protein levels. I pray that continues for decades to come. I do not know of any association between IgAN and achy legs. Welcome again! In a message dated 5/30/2005 4:17:31 P.M. Pacific Daylight Time, shanajamison@... writes: Hello, my name is Shana and I am a new member. I joined because my brother who is 22 has been diagnosed with IgaN. We have known for about a year and a half now. He is doing very well, but it has not been easy to grasp. His labs are excellent, and he had his tonsils taken out a couple of months ago. He has normal protein levels and all else is good, no crescents on biopsy and his doctor calls his a mild form of the disease. However, one thing that he has each month is very achy legs. Do any of you suffer from this, or know someone who does? His doctor keeps saying it's unrelated, but we are unsure. Any ideas from anyone would be awesome! I hope that all of you are doing well! Shana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 > Hi Shana, > > Welcome to the board. I'm very happy to hear that your brother seems to > have a very mild form of IgA. I for one do have achy legs...along with > restless leg syndrome. Sometimes it's difficult getting to sleep because it's > impossible to get comfortable. Does your brother take any meds that may cause > muscle type pain and has he mentioned this to his neph? Rita > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 > Hi Shana, > > Welcome to the board. I'm very happy to hear that your brother seems to > have a very mild form of IgA. I for one do have achy legs...along with > restless leg syndrome. Sometimes it's difficult getting to sleep because it's > impossible to get comfortable. Does your brother take any meds that may cause > muscle type pain and has he mentioned this to his neph? Rita > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 > Hi Shana, > > Welcome to the board. I'm very happy to hear that your brother seems to > have a very mild form of IgA. I for one do have achy legs...along with > restless leg syndrome. Sometimes it's difficult getting to sleep because it's > impossible to get comfortable. Does your brother take any meds that may cause > muscle type pain and has he mentioned this to his neph? Rita > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , You are correct that Motrin is definitely to be avoided, and also that only trace protein is a good thing. Spilling large amounts of protein is very hard on kidneys so keeping that in check is important. It seems like his Neph is following him closely and he is in good hands. I am glad that your son is doing well and able to be a normal 8 year old. Hopefully those flare-ups will be few and far between. In a message dated 5/31/2005 12:26:25 P.M. Pacific Daylight Time, valmond@... writes: Hi , My 8 year old son had his biopsy about 18 months ago. When he was initially diagnosed, he was tired and sometimes dizzy. He was actually anemic due to blood loss. He began taking iron pills and fish oil and after a few months, he was no longer anemic. He now sees the nephrologist every 3 months but he is a normal 8 yr old. I try not to be overprotective as he plays all sports. He knows to tell me if he's dizzy or tired and not to flush dark, foamy urine until we've seen it. I'm watching for " flare ups " per the nephs suggestion. This is where blood is visible and the foam indicates protein. He has had 2 flare ups since diagnosis, but his normal urinalysis has microscopic blood and trace protein. At this stage, they monitor his kidney function but there is no real treatment. We have banned motrin from the house. His pediatrician says it works better but the neph says he is absolutely not to have any motrin as it can have adverse effects on kidneys. I hope you find answers soon and that your son does well. It is my belief that only trace protein is a good thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , You are correct that Motrin is definitely to be avoided, and also that only trace protein is a good thing. Spilling large amounts of protein is very hard on kidneys so keeping that in check is important. It seems like his Neph is following him closely and he is in good hands. I am glad that your son is doing well and able to be a normal 8 year old. Hopefully those flare-ups will be few and far between. In a message dated 5/31/2005 12:26:25 P.M. Pacific Daylight Time, valmond@... writes: Hi , My 8 year old son had his biopsy about 18 months ago. When he was initially diagnosed, he was tired and sometimes dizzy. He was actually anemic due to blood loss. He began taking iron pills and fish oil and after a few months, he was no longer anemic. He now sees the nephrologist every 3 months but he is a normal 8 yr old. I try not to be overprotective as he plays all sports. He knows to tell me if he's dizzy or tired and not to flush dark, foamy urine until we've seen it. I'm watching for " flare ups " per the nephs suggestion. This is where blood is visible and the foam indicates protein. He has had 2 flare ups since diagnosis, but his normal urinalysis has microscopic blood and trace protein. At this stage, they monitor his kidney function but there is no real treatment. We have banned motrin from the house. His pediatrician says it works better but the neph says he is absolutely not to have any motrin as it can have adverse effects on kidneys. I hope you find answers soon and that your son does well. It is my belief that only trace protein is a good thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , You are correct that Motrin is definitely to be avoided, and also that only trace protein is a good thing. Spilling large amounts of protein is very hard on kidneys so keeping that in check is important. It seems like his Neph is following him closely and he is in good hands. I am glad that your son is doing well and able to be a normal 8 year old. Hopefully those flare-ups will be few and far between. In a message dated 5/31/2005 12:26:25 P.M. Pacific Daylight Time, valmond@... writes: Hi , My 8 year old son had his biopsy about 18 months ago. When he was initially diagnosed, he was tired and sometimes dizzy. He was actually anemic due to blood loss. He began taking iron pills and fish oil and after a few months, he was no longer anemic. He now sees the nephrologist every 3 months but he is a normal 8 yr old. I try not to be overprotective as he plays all sports. He knows to tell me if he's dizzy or tired and not to flush dark, foamy urine until we've seen it. I'm watching for " flare ups " per the nephs suggestion. This is where blood is visible and the foam indicates protein. He has had 2 flare ups since diagnosis, but his normal urinalysis has microscopic blood and trace protein. At this stage, they monitor his kidney function but there is no real treatment. We have banned motrin from the house. His pediatrician says it works better but the neph says he is absolutely not to have any motrin as it can have adverse effects on kidneys. I hope you find answers soon and that your son does well. It is my belief that only trace protein is a good thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , Welcome to the board. It's so sad to hear of little ones afflicted with this disease. My heart goes out to you. It is good to hear though that your little boys proteinurea is now down to a trace. Spilling significant amounts of protein is very hard on the kidneys. I can attest to the fact that I do tire easily and I do suffer from flank pain on occasion. I know others here do as well. Welcome again, Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , Welcome to the board. It's so sad to hear of little ones afflicted with this disease. My heart goes out to you. It is good to hear though that your little boys proteinurea is now down to a trace. Spilling significant amounts of protein is very hard on the kidneys. I can attest to the fact that I do tire easily and I do suffer from flank pain on occasion. I know others here do as well. Welcome again, Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , Welcome to the board. It's so sad to hear of little ones afflicted with this disease. My heart goes out to you. It is good to hear though that your little boys proteinurea is now down to a trace. Spilling significant amounts of protein is very hard on the kidneys. I can attest to the fact that I do tire easily and I do suffer from flank pain on occasion. I know others here do as well. Welcome again, Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Shana: I want to add my welcome to the board for you and your brother. This can be a lot to absorb, so while you learn about IgAN at te rocket pace, let your brother take his own pace. Sometimes too much info all at once is not the best for the patient. I never had really bad aches (only on occasions), so I cannot help you there, but I look forward to chatting... Shana Jamison wrote: Hello, my name is Shana and I am a new member. I joined because my brother who is 22 has been diagnosed with IgaN. We have known for about a year and a half now. He is doing very well, but it has not been easy to grasp. His labs are excellent, and he had his tonsils taken out a couple of months ago. He has normal protein levels and all else is good, no crescents on biopsy and his doctor calls his a mild form of the disease. However, one thing that he has each month is very achy legs. Do any of you suffer from this, or know someone who does? His doctor keeps saying it's unrelated, but we are unsure. Any ideas from anyone would be awesome! I hope that all of you are doing well! Shana --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Shana: I want to add my welcome to the board for you and your brother. This can be a lot to absorb, so while you learn about IgAN at te rocket pace, let your brother take his own pace. Sometimes too much info all at once is not the best for the patient. I never had really bad aches (only on occasions), so I cannot help you there, but I look forward to chatting... Shana Jamison wrote: Hello, my name is Shana and I am a new member. I joined because my brother who is 22 has been diagnosed with IgaN. We have known for about a year and a half now. He is doing very well, but it has not been easy to grasp. His labs are excellent, and he had his tonsils taken out a couple of months ago. He has normal protein levels and all else is good, no crescents on biopsy and his doctor calls his a mild form of the disease. However, one thing that he has each month is very achy legs. Do any of you suffer from this, or know someone who does? His doctor keeps saying it's unrelated, but we are unsure. Any ideas from anyone would be awesome! I hope that all of you are doing well! Shana --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 Rest to sure you are....You reached me here in NJ. Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 Rita, Yes I get you. Jane Anne (unknown) > Am I getting thru? > > Rita > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 I am 40 and have type 1 diabetes and I am on the Paradigm Pump by Mini-Med. I love it. I also know of a 3 1/2 year old on this pump too. She is having very good results. It took awhile to make the infusion site injections less stressful for her. But she doesn't mind them much now. She is to young to control the pump herself, but your daughter would probably get the hang of it pretty quick. It would make it easier at school too. The monitor that tests the BS feeds information into the pump automatically and after the pump is set up correctly, it will tell the user how much insulin they need for the amount of carbs they eat. It's great Shellie jbdreams2000 wrote: MY 6 YEAR OLD DAUGHTER IS DIABETIC. I AM READING INFORMATION REGARDING THE PUMP AND IT SOUNDS LIKE YOU CAN GET REALLY GOOD RESULTS. DOES ANYONE HAVE CHILD USING THE PUMP? Diabetes homepage: http://groups.yahoo.com/group/diabetes/ To unsubscribe to this group, send an email to: diabetes-unsubscribe Hope you come back soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 We live in the DFW area. Our daughter is 17 mos old. She has bilateral cochlear implants. We use Bliss ()for AVT therapy & there is another AVT therapist in town s that I know of. The Callier center - which is affiliated with the Univ of Texas at Dallas - fitted our daughter with hearing aids (before she received her implant) and also adjusts her cochlear implant has a HOH preschool program, but I don't know too much about it. The Callier Center's phone number is and they are located on 1966 Inwood Rd in Dallas (off hwy 35E.) They also have a location in North Dallas if you are moving to that part of town. --- Walden wrote: > Our family is moving to Dallas, Texas and I'm > wondering if anyone can help > me find information about services there. > Especially for therapy and > preschool. > > Thanks! > > Walden > Mom to 3 yr (moderate to profound, LVAS) > > _________________________________________________________________ > Is your PC infected? Get a FREE online computer > virus scan from McAfee® > Security. > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 > > > > All messages posted to this list are private and > confidential. Each post is the intellectual > property of the author and therefore subject to > copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 We live in the DFW area. Our daughter is 17 mos old. She has bilateral cochlear implants. We use Bliss ()for AVT therapy & there is another AVT therapist in town s that I know of. The Callier center - which is affiliated with the Univ of Texas at Dallas - fitted our daughter with hearing aids (before she received her implant) and also adjusts her cochlear implant has a HOH preschool program, but I don't know too much about it. The Callier Center's phone number is and they are located on 1966 Inwood Rd in Dallas (off hwy 35E.) They also have a location in North Dallas if you are moving to that part of town. --- Walden wrote: > Our family is moving to Dallas, Texas and I'm > wondering if anyone can help > me find information about services there. > Especially for therapy and > preschool. > > Thanks! > > Walden > Mom to 3 yr (moderate to profound, LVAS) > > _________________________________________________________________ > Is your PC infected? Get a FREE online computer > virus scan from McAfee® > Security. > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 > > > > All messages posted to this list are private and > confidential. Each post is the intellectual > property of the author and therefore subject to > copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 We live in the DFW area. Our daughter is 17 mos old. She has bilateral cochlear implants. We use Bliss ()for AVT therapy & there is another AVT therapist in town s that I know of. The Callier center - which is affiliated with the Univ of Texas at Dallas - fitted our daughter with hearing aids (before she received her implant) and also adjusts her cochlear implant has a HOH preschool program, but I don't know too much about it. The Callier Center's phone number is and they are located on 1966 Inwood Rd in Dallas (off hwy 35E.) They also have a location in North Dallas if you are moving to that part of town. --- Walden wrote: > Our family is moving to Dallas, Texas and I'm > wondering if anyone can help > me find information about services there. > Especially for therapy and > preschool. > > Thanks! > > Walden > Mom to 3 yr (moderate to profound, LVAS) > > _________________________________________________________________ > Is your PC infected? Get a FREE online computer > virus scan from McAfee® > Security. > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 > > > > All messages posted to this list are private and > confidential. Each post is the intellectual > property of the author and therefore subject to > copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 I don't know where you are moving to in Dallas. There are several places for service. Dr s is an ENT at Medical City Dallas on Forest Lane. Dr. Roland is also in Dallas. Dr. s works with s and Gage for speech therapy. There is also the Callier Center that works with children. All of these are good places but of course there are pros and cons for each. Your child would get good service at any of these. Quita Farley Mom to Rebekah 13 (profound has CI and HA) [Norton AntiSpam] (unknown) > Our family is moving to Dallas, Texas and I'm wondering if anyone can help > me find information about services there. Especially for therapy and > preschool. > > Thanks! > > Walden > Mom to 3 yr (moderate to profound, LVAS) > > _________________________________________________________________ > Is your PC infected? Get a FREE online computer virus scan from McAfee® > Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 > > > > All messages posted to this list are private and confidential. Each post > is the intellectual property of the author and therefore subject to > copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 My friend lives in the DFW area and also goes to s and Dr. s. Her son has bilateral implants. Elaine Quote Link to comment Share on other sites More sharing options...
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