Re: Fibromyalgia and Exam stress

January 24, 2008

Please have her cortisol checked. Her response to stress would

indicate low cortisol function.

At the very least, have the doctor do an AM cortisol test with blood

work, after fasting overnight.

Better yet, do a 4 point saliva cortisol test.

Fibromyalgia and CFS have been shown to be due to low cortisol.

check out the www.stopthethyroidmadness.com website for labs you should

request.

Good luck. There is hope. Especially since she has you to help her!

January 24, 2008

this sounds liek adrenal fatigue, which aloong with thyroid is a

MAJOR cause of FM. There is no fast cure. 1% HC cream MAY help but it

myst be started low and worked up to a useful dose, agian I fdo nto

think this will help this quickly. In the meantime I would order slaiva

testing for cortisl through www.canaryclub.org they test cortilsl four

times in a day and DHEA, and thyroid at the tissue levels and sex

hormones all a part of the adrena;l fatigue syndrome. We have some good

inof in our files to start educating yourself about this problem and it

is very common but seems to be showing up wiht larming regulaity in

younger and younger people. Which scares me to death. But at any rate

there is hope for her future to be pain free and wiht proper treatment

some people can get off the HC in a couple years and lead normal lives.

Have you noticed her having any shakes or nausea before stressful events?

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

January 24, 2008

,

On a couple of fibro lists I'm still on I have read of so many adverse

mental effects from Lyrica that I urge you to google it and see if it

might not be better to wait until after her exams for her to try it.

And you might like to read around at http://www.drlowe.com/

sol

Owens wrote:

> I just want to know if anyone has some advice on how to help her get

> through this next week of stress when her fibro is still acting up, because

> we just started her on Lyrica and a pain medication called Ultram.

>

> We are just pretty desperate to help her pass her classes...something that

> I never thought I'd have to worry about in my high honors student!

>

January 24, 2008

Cherie,

No, homeschooling is not an option. The main focus of her education is

music and art I know nothing of either. She's basically finished almost

all her academics except for state requirements that are the easy classes.

I think if we can get her past exams she will be fine. We've cut back her

academic schedule drastically for this spring semester and next year (her

senior year) should be a breeze. Her whole motivation is social...so that

is why I never considered home schooling, for I know she wouldn't work if

she didn't have friends around to motivate her. She's done the hard stuff

already except that three of her exams could be very tough next week and

I'm just trying to get her where she won't be so stressed about taking them

and where she can study this weekend. She seemed better right before bed.

Her health has bounced around a lot but generally spring is a very good

time, and the pressure at school is all in the fall.

I appreciate the idea, though. You are not the first person that has

suggested that, but it just isn't feasible when what she is wanting to do

is be a music major and get into the music college of her choice.

Her standardized tests have bounced around like crazy her whole life, going

from 99th percentile to 20th, depending on which year and which subject

area, and this had nothing to do with that year's performance in school but

has related to how close she was to being sick. Curiously, her math and

verbal scores were negatively correlated and significantly negatively

correlated.

Her body just doesn't seem to regulate stress whether that stress comes

from illness or life issues. As a musician, she has always handled stress

well, but not this past year...

Does anyone here know much about how a possible vitamin D deficiency could

enter in? I saw that Mercola's site said something about vitamin D

regulating tyrosine hydroxylase in the the adrenal gland.

I did do a test this last week of giving her vitamin D amounting to 800 iu

given over about three hours. It did raise her temperature very close to

normal. I'm thinking this may be an important thing for us, as practically

nothing has budged her temperature up, though illness has sometimes put it

as low as 94...only once. We see 96 a lot.

At 12:54 AM 1/25/2008, you wrote:

>Hi ,

>

>She should get the salvia test done before she goes on any type of HC

>treatment be it cream or prescription. You must be off of any and all HC and

>adrenal support for at least 2 weeks before taking this test or the results

>would be skewed. Once she starts on it, it will be REALLY hard for her to go

>off long enough to get a test done. She really sounds like her adrenals are

>really fatigued. You may not want to consider this option right now, but

>have you thought about homeschooling her for the rest of the year? Not

>having to get up and actually go to school and deal with everything would

>probably be helpful in healing her adrenals. Depending on what state you

>live in the laws vary. You might could even get a doctor to sign something

>saying she needs to do home study for awhile. If you did that, she would

>still be associated with the school. If she's old enough, she can pretty

>much guide herself in learning what she needs to learn while going at her

>own pace. Then if she feels better (which she probably will if the adrenal

>stuff and thyroid stuff get addressed) she could go back in the Fall. If you

>would like anymore info. on homeschooling you can e-mail me privately at

>hspurplemom@... .

>

>Cherie

>

> Experience: that most brutal of teachers. But you learn, my God do you

>learn.--C.S.

>

> >

> > ,

> >

> > Should I try the hydrocortisone cream before I get the lab report

> > back? Exams are next week!

> >

> > Is this something one can buy over the counter?

> >

> > I have talked and talked to doctors about getting her saliva tested but

> > they keep putting it off...

> >

> > I see this place is a direct-to-the-patient thing.

> >

> > I have seen her have the shakes. It scared me to death when she broke up

> > with her boyfriend.

> >

> > Do you think I should try the hydrocortisone cream now? How

> > slowly do you

> > increment up?

> >

> > Any advice gratefully received!

> >

> > At 10:11 PM 1/24/2008, you wrote:

> >

> > > this sounds liek adrenal fatigue, which aloong with thyroid is a

> > >MAJOR cause of FM. There is no fast cure. 1% HC cream MAY help but it

> > >myst be started low and worked up to a useful dose, agian I fdo nto

> > >think this will help this quickly. In the meantime I would order slaiva

> > >testing for cortisl through www.canaryclub.org they test cortilsl four

> > >times in a day and DHEA, and thyroid at the tissue levels and sex

> > >hormones all a part of the adrena;l fatigue syndrome. We have some good

> > >inof in our files to start educating yourself about this problem and it

> > >is very common but seems to be showing up wiht larming regulaity in

> > >younger and younger people. Which scares me to death. But at any rate

> > >there is hope for her future to be pain free and wiht proper treatment

> > >some people can get off the HC in a couple years and lead normal lives.

> > >Have you noticed her having any shakes or nausea before stressful events?

> > >

> > >--

> > > Artistic Grooming- Hurricane WV

> > >

> > ><http://www.stopthethyroidmadness.com/>http://www.stopthethyroidm

>adness.com/

> >http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> >

>

>--

>Internal Virus Database is out-of-date.

>Checked by AVG Free Edition.

>Version: 7.5.503 / Virus Database: 269.17.8/1196 - Release Date: 12/25/2007

>12:18 PM

>

January 24, 2008

Linn,

She is a very picky eater and is gluten free She will eat mexican food,

hamburgers and french fries, spaghetti, and meat I fix at home in various

forms with salad but she scarcely will touch the green veggies I serve. She

gets fruit in the lunch she takes to school and meat and some chips. Her

father and her have similar aversions to a lot of foods which I've hated to

have to deal with! Things taste different to them. They are

hypersensitive to tastes. They don't even let me use spices.

Why do you ask?

At 12:17 AM 1/25/2008, you wrote:

>What does your daughter's diet consist of?

>

>Linn

>

> > Owens wrote:

> > > I just want to know if anyone has some advice on how to help her get

> > > through this next week of stress when her fibro is still acting up,

> because

> > > we just started her on Lyrica and a pain medication called Ultram.

> > >

> > > We are just pretty desperate to help her pass her classes...something

> that

> > > I never thought I'd have to worry about in my high honors student!

> > >

> >

>

----------

Internal Virus Database is out-of-date.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.17.8/1196 - Release Date: 12/25/2007

12:18 PM

January 25, 2008

you are wanting a quick fix for a LONG term problem. If you

" cheat " and give her HC before testing she may not be ABLE to get off it

to do that testing which is SO necessary. I would encourage her to ty

rto gget through these exams wiht some GOOD support meds such as Celtic

sea salt 1/4 tsp twice a day in water or juiice. CUT the carb in her

diet! From what I am reading she is eating a HORRID diet. ALl whites

potatioes, whits bread and rice are VERY bad for her. Adrena;l fatigue

predisposes people to blod sugar issues and the way she is eating she

could become Diabetic as well.YES Diabetes happens to people thta are

not seriously overweight too!

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

January 25, 2008

I asked because first and foremost what we eat effects how every cell in our

body

functions. Most of us don't give diet a lot of thought, when it should be the

first place to

look. Fibromyalgia, arthritis, and many others similar problems can be caused

by diet or

highly exacerbated by diet. It sounds like she's eating a ton of carbs which

unless she's

extremely active are not a good choice and she won't burn off or utilize well.

Do you have

any idea of what kind of percentages she's getting of fat, protein and carbs?

What types of

Mexican food? Is the spaghetti a rice based product? Gluten free products like

this are

extremely high in carbs. Chips are made of some of the worst kinds of fat one

could

possibly put in their body. What types of fat is she getting? Fat is vitally

important in

one's diet, in particular to a growing adolescent.

If she's asking for these high carb types of foods it's probably her body trying

to

compensate, it's looking for energy. Problem is that those carbs, especially

refined carbs

like that, are not going to provide it. Refined foods are difficult for the

body to break

down, they're not really food, it takes an enormous amount of one's energy just

to break

down these types of food. Fat, protein and a much smaller amount of complex

carbs work.

Whole foods for carbs, veggies and fruits, not processed food.

Is she taking any kind of supplements? Does she eat pasteurized dairy, cheese,

etc.? How

about soy? What kind of processed products does she consume? Does she drink

diet

drinks? What other kind of beverages does she consume?

There's a great resource online called FitDay where you can input food and it

calculates

out the percentages for you plus lots of other info. It's free to use, you can

access it at:

http://www.fitday.com

I would also caution you about the prescription meds. You are covering up the

symptoms

with these, that doesn't solve the problem and will only make it worse in the

long run.

Magnesium supplements can help tremendously with the pain from fibromyalgia and

I

would highly recommend checking into systemic enzymes for her. These are taken

in

between meals on an empty stomach and are great for helping with pain.

Linn

>

> >What does your daughter's diet consist of?

> >

> >Linn

January 25, 2008

I asked because first and foremost what we eat effects how every cell in our

body

functions. Most of us don't give diet a lot of thought, when it should be the

first place to

look. Fibromyalgia, arthritis, and many others similar problems can be caused

by diet or

highly exacerbated by diet. It sounds like she's eating a ton of carbs which

unless she's

extremely active are not a good choice and she won't burn off or utilize well.

Do you have

any idea of what kind of percentages she's getting of fat, protein and carbs?

What types of

Mexican food? Is the spaghetti a rice based product? Gluten free products like

this are

extremely high in carbs. Chips are made of some of the worst kinds of fat one

could

possibly put in their body. What types of fat is she getting? Fat is vitally

important in

one's diet, in particular to a growing adolescent.

If she's asking for these high carb types of foods it's probably her body trying

to

compensate, it's looking for energy. Problem is that those carbs, especially

refined carbs

like that, are not going to provide it. Refined foods are difficult for the

body to break

down, they're not really food, it takes an enormous amount of one's energy just

to break

down these types of food. Fat, protein and a much smaller amount of complex

carbs work.

Whole foods for carbs, veggies and fruits, not processed food.

Is she taking any kind of supplements? Does she eat pasteurized dairy, cheese,

etc.? How

about soy? What kind of processed products does she consume? Does she drink

diet

drinks? What other kind of beverages does she consume?

There's a great resource online called FitDay where you can input food and it

calculates

out the percentages for you plus lots of other info. It's free to use, you can

access it at:

http://www.fitday.com

I would also caution you about the prescription meds. You are covering up the

symptoms

with these, that doesn't solve the problem and will only make it worse in the

long run.

Magnesium supplements can help tremendously with the pain from fibromyalgia and

I

would highly recommend checking into systemic enzymes for her. These are taken

in

between meals on an empty stomach and are great for helping with pain.

Linn

>

> >What does your daughter's diet consist of?

> >

> >Linn

January 26, 2008

> I wanted to chime in again and let you know that the provigil may

> actually

> contribute to her adrenal fatigue. I'm not saying to take her off

> of it

> right now, but look into it when you get a chance. I took it from

> June 2007

> until Dec. 2007. At first it did help my energy levels. Then it got

> so that

> I couldn't do without it.

Good God - that's what I wondered - does Provigil screw with the

pit and HPA somehow?

> I'm still working on the caffine! ;-)

I read a paper that said that caffeine (in some dosage, I think IV

too) actually shortened the time for prednisone withdrawl. Now this

a high dose of a synthetic steroid, and it's not clear if it would

apply to low-dose at all, or if it would work through the digestive

tract (but I'd think it would). Nor do I think it speculated on WHY

it worked. But caffeine does stimulate ACTH, presumably outside of

the cortisol-feedback loop (this is perhaps why it causes a hyper

effect - because of cortisol) But if it does stimulate ACTH outside

of the feedback loop (as I think 'eustress' does, this might help the

pit re-establish the proper functioning of the networks that control

natural secretion and feedback. I'll pull up the PMID tomorrow

(well, later today - the cortisol wean and AF disrupts my sleep/wake

pattern - A LOT..)

JIm

January 26, 2008