Re: Vulvar Vestibulitis/Vulvodynia Study

[Guest guest]

Hello Amy:

I think what you're doing is wonderful.

No but.

I can't participate in your study since I have never

been diagnosed. U of M is studying our problems

too. I know that's probably my best bet but I have

wasted so much time and money going to doctors who

have told me it's in my head or it's IBS...so I'm not

diagnosed.

Good luck to you! It's encouraging to hear about

foks like yourself who are making a difference.

Lu

--- abraksmajer6 wrote:

>

> My name is Amy Braksmajer, and I'm a graduate

> student in sociology

> at the State University of New York at Stony Brook.

> As part of my

> dissertation research, I'm studying the social and

> cultural aspects

> of vulvodynia/vulvar vestibulitis. I've also been

> a member of this

> group for quite a while – mostly as a lurker – as

> I've had

> vulvar vestibulitis for approximately 10+ years.

>

>

>

> Earlier in the year, with Dee's kind permission, I

> posted study

> details on the Vulvar Disorders Yahoo Group. Many

> of you responded,

> which was very encouraging; unfortunately, at the

> time, I did not have

> permission from my university to conduct phone

> interviews.

>

>

>

> I've since received this permission, and am

> reposting my study

> details in the hopes of recruiting more

> participants. If you think you

> might be interested in participating, please see the

> study details

> listed below, which includes my contact information.

>

>

>

> Thank you – and I hope to be able to speak to you!

>

>

>

> Sincerely,

>

> Amy Braksmajer

>

>

>

> -----------------

>

> Do you have vulvar vestibulitis?

>

> You may be eligible for a study which will explore

> the ways in which

> women experience and cope with the condition.

>

> To be eligible, you must:

>

> * have been diagnosed with vulvar vestibulitis; or

> * have experienced pain in the vaginal entry during

> sex that limits

> or prevents intercourse.

>

> As a participant, you will be asked to:

>

> * Complete a 90-120 minute confidential interview in

> a location of

> your choice (or, if not in NYC, over the phone).

>

> For more information, please contact Amy Braksmajer

> at

> or at abraksmajer@....

>

>

__________________________________________________