RE: Re: How long have we got?

[Guest guest]

,

You are bringing our average up a little

with a PSC history of 24 years or so. ;-)

Welcome to the group,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of petteri_s

Sent: Tuesday, May 01, 2007 14:45

To:

Subject: Re: How

long have we got?

Looks like psc developes with very different speeds in

different cases. And like pointed out

earlier, new diagnostic methods have made the time of dx much earlier in many

cases and

new medications and procedures (UDCA and dilatations) have made the progress

slower. I

would say, that 10 years as a prognosis is old information. And even that is a

average. We

know, that for some people the desease developes quite fast. That means there

must be

some people, where the desease takes much longer time to develope.

Looks like the disease also sometimes developes faster and sometimes slower in

the same

person. Or like Barb writes, one can almost see a remission or a quiescent

disease in the

developement of the desease. Why? I believe, that this is something that all

PSC patients

would like to know more about.

Best greetings

UC/small duct PSC '83, large duct psc 97