Re: Newly Diagnosed with PSC

April 10, 2007

Eve,

I had the same surgery you did and had UC. I had itching and got a stent put in my bile duct. No itching since.

Marsha

PSC 1998See what's free at AOL.com.

April 10, 2007

I had a stent out i nthat didn't work, so now I have a bilary

drainage tube. Unfortunately I still have severe itching. I wake up

each morning with new battle wounds. It's crazy! But hopefully we

will find out more once I have the biopsy. ly I am quite nervous

and scared. I was already in the hospital for 3 weeks before they

could calm the nausea and itching enough for me to be able to go

home. I just can't believe how fast and hard this all came. It has

only been 2 months for me. It is so refreshing to hear and read all

the uplifting support there is in this group. I find you all to be a

blessing. Good health and happy days to you all!!

>

> My name is Eve, 31 years old, and I was recently diagnosed with

PSC. We

> are thinking I am one of the few who get it due to Ulceritive

Colitis.

> Which in the past 2 years I've had an ileo and reversal.(J pouch)

>

> I am so frustrated and tires. There are days I can not even drive

my 5

> year old daughter to school. I go 4/20 for my biopsy to see how far

the

> disease has progressed. I currently take 3 types of meds to prevent

> nausea and 3 med for itching(surely wished those ones were working).

>

> I came to find support because I often find myself in tears trying

to

> cope and figure what is next. It was refreshing to see that there

is

> such a warm loving group out there for me to communicate with.

Thank

> You for just being here!!

>

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