Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Hi Deb I don't have an answer for you, I wish I did because I am in the same boat. I am raising cynomel for the second time. I got up to 125 mcg a while back, two and half months ago, with my highest ever daily average at 98.37, then downhill from there. I tried reducing HC and crashed at 35. Then I dropped T3 to 87.5. Now I am at 45 mg HC, finally restabilized my temps at 98 and have recently gone up to 112.5 mcg cynomel and yesterday I was at 97.96. My April FT3 on 87.5 mcg. was lower at 3.8 than my February FT3 at 4.21 on 75 mcg. My iron panel looked good and I am also gluten-free. And I am on one tab florinef. Maybe we can find the solution together. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Hi Deb I don't have an answer for you, I wish I did because I am in the same boat. I am raising cynomel for the second time. I got up to 125 mcg a while back, two and half months ago, with my highest ever daily average at 98.37, then downhill from there. I tried reducing HC and crashed at 35. Then I dropped T3 to 87.5. Now I am at 45 mg HC, finally restabilized my temps at 98 and have recently gone up to 112.5 mcg cynomel and yesterday I was at 97.96. My April FT3 on 87.5 mcg. was lower at 3.8 than my February FT3 at 4.21 on 75 mcg. My iron panel looked good and I am also gluten-free. And I am on one tab florinef. Maybe we can find the solution together. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Deb, Have you been on t3 long enough to clear the receptors? I know high cortisol can sometimes make temps go lower, too, but I don't think that's probably your cause as you're not on that much. Stil, what happens if you lower HC? The only other thing I can think of is how do you FEEL? Dr Lowe claims his temps never did raise and that with some people they don't and he uses other indicators of metabolism. Kathleen > > Meds: 27 mg HC, 132 mcg cynomel, PET s*x homones, lots of celtic sea salt and 90 MEQ potassium, gluten and fructose-free. > > I cannot get my temps up! My daily averages range from 98.0 to 98.1 and basals are 97.7 to 97.9. A year ago, I had an aldosterone test and it was 15, but I recently did the flashlight test, which I fail. I am not quite sure what to do. Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. > > I am stumped as to what to do. I will try to raise slowly again and see, but you would think that my temps would rise slowly. The only time they seem to get up is if I am working, which obviously I do not have it to be able to be active all day. > > I did try decreasing my T3 dose and that was the wrong way to go as temps really dropped into the low 97s. > > Thanks for any help, > Deb in MI > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Deb, Have you been on t3 long enough to clear the receptors? I know high cortisol can sometimes make temps go lower, too, but I don't think that's probably your cause as you're not on that much. Stil, what happens if you lower HC? The only other thing I can think of is how do you FEEL? Dr Lowe claims his temps never did raise and that with some people they don't and he uses other indicators of metabolism. Kathleen > > Meds: 27 mg HC, 132 mcg cynomel, PET s*x homones, lots of celtic sea salt and 90 MEQ potassium, gluten and fructose-free. > > I cannot get my temps up! My daily averages range from 98.0 to 98.1 and basals are 97.7 to 97.9. A year ago, I had an aldosterone test and it was 15, but I recently did the flashlight test, which I fail. I am not quite sure what to do. Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. > > I am stumped as to what to do. I will try to raise slowly again and see, but you would think that my temps would rise slowly. The only time they seem to get up is if I am working, which obviously I do not have it to be able to be active all day. > > I did try decreasing my T3 dose and that was the wrong way to go as temps really dropped into the low 97s. > > Thanks for any help, > Deb in MI > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Deb, Have you been on t3 long enough to clear the receptors? I know high cortisol can sometimes make temps go lower, too, but I don't think that's probably your cause as you're not on that much. Stil, what happens if you lower HC? The only other thing I can think of is how do you FEEL? Dr Lowe claims his temps never did raise and that with some people they don't and he uses other indicators of metabolism. Kathleen > > Meds: 27 mg HC, 132 mcg cynomel, PET s*x homones, lots of celtic sea salt and 90 MEQ potassium, gluten and fructose-free. > > I cannot get my temps up! My daily averages range from 98.0 to 98.1 and basals are 97.7 to 97.9. A year ago, I had an aldosterone test and it was 15, but I recently did the flashlight test, which I fail. I am not quite sure what to do. Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. > > I am stumped as to what to do. I will try to raise slowly again and see, but you would think that my temps would rise slowly. The only time they seem to get up is if I am working, which obviously I do not have it to be able to be active all day. > > I did try decreasing my T3 dose and that was the wrong way to go as temps really dropped into the low 97s. > > Thanks for any help, > Deb in MI > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Yes, I have been on T3 only for a year. I also forgot to post BP os 115/55 and pulse of 88. I feel hypo still. I still have thick skin - myxedema, and sore feet among other things. I don't have any of the signs of high cortisol either. That is why I was wondering about aldosterone and trying florinef? Thanks, Deb in MI > > > > Meds: 27 mg HC, 132 mcg cynomel, PET s*x homones, lots of celtic sea salt and 90 MEQ potassium, gluten and fructose-free. > > > > I cannot get my temps up! My daily averages range from 98.0 to 98.1 and basals are 97.7 to 97.9. A year ago, I had an aldosterone test and it was 15, but I recently did the flashlight test, which I fail. I am not quite sure what to do. Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. > > > > I am stumped as to what to do. I will try to raise slowly again and see, but you would think that my temps would rise slowly. The only time they seem to get up is if I am working, which obviously I do not have it to be able to be active all day. > > > > I did try decreasing my T3 dose and that was the wrong way to go as temps really dropped into the low 97s. > > > > Thanks for any help, > > Deb in MI > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Yes, I have been on T3 only for a year. I also forgot to post BP os 115/55 and pulse of 88. I feel hypo still. I still have thick skin - myxedema, and sore feet among other things. I don't have any of the signs of high cortisol either. That is why I was wondering about aldosterone and trying florinef? Thanks, Deb in MI > > > > Meds: 27 mg HC, 132 mcg cynomel, PET s*x homones, lots of celtic sea salt and 90 MEQ potassium, gluten and fructose-free. > > > > I cannot get my temps up! My daily averages range from 98.0 to 98.1 and basals are 97.7 to 97.9. A year ago, I had an aldosterone test and it was 15, but I recently did the flashlight test, which I fail. I am not quite sure what to do. Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. > > > > I am stumped as to what to do. I will try to raise slowly again and see, but you would think that my temps would rise slowly. The only time they seem to get up is if I am working, which obviously I do not have it to be able to be active all day. > > > > I did try decreasing my T3 dose and that was the wrong way to go as temps really dropped into the low 97s. > > > > Thanks for any help, > > Deb in MI > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 I guess you can always try! Have you ever tested aldosterone? Mine tested low and I was on it for a while. It did seem to help and for the life of me, I can't remember why I stopped taking it. But I would rather take bioidentical aldosterone as florinated dexamethasone doesn't sound appealing to me... I want to test again as I think raising my HC has lowered my aldosertone and is giving me symptoms of that now. I have read that Florinef helped people who still continued to have symptoms. What do your labs show for ft3? Is it in good range? Does it look like you're pooling? I am pretty sure you take temps and are on a proper HC dose, so it makes sense that trying aldosterone would be the next logical step. Apparently that makes the difference for some people. I also hate to ask, but are you sure you don't have anything else going on like Lyme's or EBV? When I had a reactivating EBV (which I'm sure I got due to being hypo so long) I could not feel better no matter what and the adrenal strain was so great I could not raise t3. Kathleen > > > > > > Meds: 27 mg HC, 132 mcg cynomel, PET s*x homones, lots of celtic sea salt and 90 MEQ potassium, gluten and fructose-free. > > > > > > I cannot get my temps up! My daily averages range from 98.0 to 98.1 and basals are 97.7 to 97.9. A year ago, I had an aldosterone test and it was 15, but I recently did the flashlight test, which I fail. I am not quite sure what to do. Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. > > > > > > I am stumped as to what to do. I will try to raise slowly again and see, but you would think that my temps would rise slowly. The only time they seem to get up is if I am working, which obviously I do not have it to be able to be active all day. > > > > > > I did try decreasing my T3 dose and that was the wrong way to go as temps really dropped into the low 97s. > > > > > > Thanks for any help, > > > Deb in MI > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Oh, wanted to add. As you're on 27.5, are you sure you don't need more HC? I know you said you felt wired last night when you took more, so figured it was too much for you. But I must tell you my story. Believe me, I do not push HC, as I'm actually scared of it, but the last few months, things were not right. I was on a very low dose of HC and I did try taking more a few times, but one thing that made me think I didn't need more is that when I did take more,I would feel jacked and panicky. I asked Val about this and she said it's because it lowers your own cortisol and so you go lower than you were before you increased and that it stops once you raise the HC high enough. Well, she was right, as usual. I also want to add that my temps were stable but low even though I had low cortisol symptoms. But my labs showed t3 was pooling and my high basals seemed to indicate high night cortisol but then I guess I didn't have enough cortisol for the t3 to get into the cells the rest of the day. Just throwing some thoughts out thre. Kathleen > > > > > > Meds: 27 mg HC, 132 mcg cynomel, PET s*x homones, lots of celtic sea salt and 90 MEQ potassium, gluten and fructose-free. > > > > > > I cannot get my temps up! My daily averages range from 98.0 to 98.1 and basals are 97.7 to 97.9. A year ago, I had an aldosterone test and it was 15, but I recently did the flashlight test, which I fail. I am not quite sure what to do. Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. > > > > > > I am stumped as to what to do. I will try to raise slowly again and see, but you would think that my temps would rise slowly. The only time they seem to get up is if I am working, which obviously I do not have it to be able to be active all day. > > > > > > I did try decreasing my T3 dose and that was the wrong way to go as temps really dropped into the low 97s. > > > > > > Thanks for any help, > > > Deb in MI > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Hi Deb We have more in common. My BP was 110/50 on Monday and I feel hypo. On the rare days when my afternoon temp gets to 98.6 I feel good- like a normal person. I have no high cort symptoms--can't gain weight. I feel like I have gotten a mixed message: 1) 45 mg HC is too much for a woman and I shouldn't need that much, and 2) Increase HC until temps stabilize. So I wonder if our problem is adrenal. And BTW--did you read on the chat group that the greater the difference in the two BP numbers, the more hyper one is? According to that criteria, I am hyper, even though my temps are low and pulse in the 70s. Heidi > > Yes, I have been on T3 only for a year. I also forgot to post BP os 115/55 and pulse of 88. > > I feel hypo still. I still have thick skin - myxedema, and sore feet among other things. I don't have any of the signs of high cortisol either. > > That is why I was wondering about aldosterone and trying florinef? > > Thanks, Deb in MI > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Heidi, I was on 40 mg of Hc for almost a year. It is only in the last month or so that I have been able to reduce it, especially in the late afternoon. I WISH I couldn't gain weight, but at least am stable. I thought I read that the wide difference in BP numbers was another cause, not hyper. Well, hopefully someone can help us and maybe we will have to post over on the adrenals group when it opens again. The fact that your pulse is low means you are hypo. My pulse is about right. I just thought the fact that my temp wouldn't rise was T3 related, but I am not really sure where else to look since I have looked around the net and not found anything. It is comforting to know that you are out there as well. Thanks for posting, Deb in MI > > Hi Deb > > We have more in common. My BP was 110/50 on Monday and I feel hypo. On the rare days when my afternoon temp gets to 98.6 I feel good- like a normal person. I have no high cort symptoms--can't gain weight. > > I feel like I have gotten a mixed message: 1) 45 mg HC is too much for a woman and I shouldn't need that much, and 2) Increase HC until temps stabilize. > > So I wonder if our problem is adrenal. > > And BTW--did you read on the chat group that the greater the difference in the two BP numbers, the more hyper one is? According to that criteria, I am hyper, even though my temps are low and pulse in the 70s. > > Heidi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Heidi, I was on 40 mg of Hc for almost a year. It is only in the last month or so that I have been able to reduce it, especially in the late afternoon. I WISH I couldn't gain weight, but at least am stable. I thought I read that the wide difference in BP numbers was another cause, not hyper. Well, hopefully someone can help us and maybe we will have to post over on the adrenals group when it opens again. The fact that your pulse is low means you are hypo. My pulse is about right. I just thought the fact that my temp wouldn't rise was T3 related, but I am not really sure where else to look since I have looked around the net and not found anything. It is comforting to know that you are out there as well. Thanks for posting, Deb in MI > > Hi Deb > > We have more in common. My BP was 110/50 on Monday and I feel hypo. On the rare days when my afternoon temp gets to 98.6 I feel good- like a normal person. I have no high cort symptoms--can't gain weight. > > I feel like I have gotten a mixed message: 1) 45 mg HC is too much for a woman and I shouldn't need that much, and 2) Increase HC until temps stabilize. > > So I wonder if our problem is adrenal. > > And BTW--did you read on the chat group that the greater the difference in the two BP numbers, the more hyper one is? According to that criteria, I am hyper, even though my temps are low and pulse in the 70s. > > Heidi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Heidi, I was on 40 mg of Hc for almost a year. It is only in the last month or so that I have been able to reduce it, especially in the late afternoon. I WISH I couldn't gain weight, but at least am stable. I thought I read that the wide difference in BP numbers was another cause, not hyper. Well, hopefully someone can help us and maybe we will have to post over on the adrenals group when it opens again. The fact that your pulse is low means you are hypo. My pulse is about right. I just thought the fact that my temp wouldn't rise was T3 related, but I am not really sure where else to look since I have looked around the net and not found anything. It is comforting to know that you are out there as well. Thanks for posting, Deb in MI > > Hi Deb > > We have more in common. My BP was 110/50 on Monday and I feel hypo. On the rare days when my afternoon temp gets to 98.6 I feel good- like a normal person. I have no high cort symptoms--can't gain weight. > > I feel like I have gotten a mixed message: 1) 45 mg HC is too much for a woman and I shouldn't need that much, and 2) Increase HC until temps stabilize. > > So I wonder if our problem is adrenal. > > And BTW--did you read on the chat group that the greater the difference in the two BP numbers, the more hyper one is? According to that criteria, I am hyper, even though my temps are low and pulse in the 70s. > > Heidi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 >My April FT3 on 87.5 mcg. was lower at 3.8 than my February FT3 at 4.21 on 75 mcg. My iron panel looked good and I am also gluten-free. And I am on one tab florinef. > Maybe your body is getting more through to the cells with adrenals and iron behaving and you need more T3 still Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 >My April FT3 on 87.5 mcg. was lower at 3.8 than my February FT3 at 4.21 on 75 mcg. My iron panel looked good and I am also gluten-free. And I am on one tab florinef. > Maybe your body is getting more through to the cells with adrenals and iron behaving and you need more T3 still Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 >My April FT3 on 87.5 mcg. was lower at 3.8 than my February FT3 at 4.21 on 75 mcg. My iron panel looked good and I am also gluten-free. And I am on one tab florinef. > Maybe your body is getting more through to the cells with adrenals and iron behaving and you need more T3 still Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 >Oh, wanted to add. As you're on 27.5, are you sure you don't need more HC? I know you said you felt wired last night when you took more, so figured it was too much for you If you feel wired adding extra HC that's a sign that you had T3 pooling and the extra HC let it through to the cells in a rush You may need to lower the day's T3 by 20% or more, raise the HC, and then add more T3 Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 > Last week, I had raised up to 137 and all it did was cause adrenal stress. My last ferritin was 100 and the saturation was 37% so it wasn't falsely elevated. Spread the T3 out thinly through the day, it's kinder on the adrenals. You may have to go to 137 and support adrenals more, if you are increasing HC drop the T3 a little first in case it's pooling in your blood Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 >Nick Thank you for responding. I went up a 1/4 tab to 112.5 mcg 4 days ago and so far I feel more tired and my temps are still hanging around at 97.9-98. Is it normal to feel MORE TIRED at first when increasing cynomel? When should I increase again? Feeling more tired may be adrenal, are your average temperatures stable from day to day? Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
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