Guest guest Posted August 7, 2012 Report Share Posted August 7, 2012 Most children on the autism spectrum have normal MRIs. A qEEG would be able to tell you much more information or a SPECT SCAN on the brain showing oxygen flow into the brain. Contact www.brainhealingcenter.com in Coral Springs - Neurologist Wand 954 344-9772. Hello Listmates, Our neurologist has recommended an MRI for my 3 year old son with autism, and I’m having a really hard time deciding if this is in his best interest or not. I hate the idea of drugging him up with propofol to have this procedure done. I did not get clear answers on what can be done if something is found. If it's not going to change anything, why put him through that ordeal? The reason the neurologist is recommending the MRI is because of continued regression. I took my youngest son to Early Steps to be evaluated because his older brother has HFA. At 14 months he had a full evaluation with Early Steps and he did not qualify for any services - NT. At 19 months, I took him back to Early Steps and the only delay was in communication. All other domains, including social were in the normal range. At 22 months he was using about 15-18 words, and saying “Ready, set, goâ€. Before age 2, he was saying “lollipopâ€, after age 2 he would only say “pop†and then a few months later he stopped talking. He has been getting 8-15 hours of therapy per week for more than a year and progress is painfully slow. His evaluation with the school board at 35 months he showed as significantly delayed in every single area. Now at 40 months he only uses 2 words without prompting including “No†and “Bye†both for escape situations. It has been so devastating witnessing him regress (and I can’t even get him into Baudhuin- but that’s another story). Has anyone else had an MRI for their child? Are there any benefits to doing this? Any insights here will be helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2012 Report Share Posted August 7, 2012 Have you had his heavy metals tested? If you need more info feel free to contact me off list. MRI for a 3 year old Hello Listmates, Our neurologist has recommended an MRI for my 3 year old son with autism, and I’m having a really hard time deciding if this is in his best interest or not. I hate the idea of drugging him up with propofol to have this procedure done. I did not get clear answers on what can be done if something is found. If it's not going to change anything, why put him through that ordeal? The reason the neurologist is recommending the MRI is because of continued regression. I took my youngest son to Early Steps to be evaluated because his older brother has HFA. At 14 months he had a full evaluation with Early Steps and he did not qualify for any services - NT. At 19 months, I took him back to Early Steps and the only delay was in communication. All other domains, including social were in the normal range. At 22 months he was using about 15-18 words, and saying “Ready, set, goâ€. Before age 2, he was saying “lollipopâ€, after age 2 he would only say “pop†and then a few months later he stopped talking. He has been getting 8-15 hours of therapy per week for more than a year and progress is painfully slow. His evaluation with the school board at 35 months he showed as significantly delayed in every single area. Now at 40 months he only uses 2 words without prompting including “No†and “Bye†both for escape situations. It has been so devastating witnessing him regress (and I can’t even get him into Baudhuin- but that’s another story). Has anyone else had an MRI for their child? Are there any benefits to doing this? Any insights here will be helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2012 Report Share Posted August 7, 2012 My daughter has had both a CT scan and an MRI and she was not sedated for either one.She was 6 months old for the CT scan and older for the MRI. Both tests were performed at Joe DiMaggio in Hollywood. The staff there are fantastic! I had the same concern about sedation. The nurses at Joe DiMaggio told me to keep her up late the night before and not to feed her too much the day of the test. By the time we got there, she was exhausted and hungry and slept through both procedures. Now, it might sound mean to do it that way, but it was very effective and she did not have to take on the risks of sedation. I won't tell you it was fun (cause it wasn't!) but I fed her right after the test and all was well. Hope this helps! Jean Hello Listmates, Our neurologist has recommended an MRI for my 3 year old son with autism, and I’m having a really hard time deciding if this is in his best interest or not. I hate the idea of drugging him up with propofol to have this procedure done. I did not get clear answers on what can be done if something is found. If it's not going to change anything, why put him through that ordeal? The reason the neurologist is recommending the MRI is because of continued regression. I took my youngest son to Early Steps to be evaluated because his older brother has HFA. At 14 months he had a full evaluation with Early Steps and he did not qualify for any services - NT. At 19 months, I took him back to Early Steps and the only delay was in communication. All other domains, including social were in the normal range. At 22 months he was using about 15-18 words, and saying “Ready, set, go”. Before age 2, he was saying “lollipop”, after age 2 he would only say “pop” and then a few months later he stopped talking. He has been getting 8-15 hours of therapy per week for more than a year and progress is painfully slow. His evaluation with the school board at 35 months he showed as significantly delayed in every single area. Now at 40 months he only uses 2 words without prompting including “No” and “Bye” both for escape situations. It has been so devastating witnessing him regress (and I can’t even get him into Baudhuin- but that’s another story). Has anyone else had an MRI for their child? Are there any benefits to doing this? Any insights here will be helpful. -- Have a lovely day! Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2012 Report Share Posted August 7, 2012 My son had a very bad reaction to propofol and we are still trying to figure out how to get a MRI without sedation. He started hyperventalating and convulsing so bad they couldn't stabilize him enough to get a clear picture. It took him three days to recover from the vomiting and wasn't able to even hold his head up for days. I realize that this is not a typical response but it does happen. My son was also a regressive case of autism. Mri's are done for autism in order to rule out any comorbid conditions. For us, my son has markers for Neurofibromatosis so they wanted to rule out neurofibromas in the brain. Just wanted to share our experience. > > Hello Listmates, > Our neurologist has recommended an MRI for my 3 year old son with autism, and I’m having a really hard time deciding if this is in his best interest or not. I hate the idea of drugging him up with propofol to have this procedure done. I did not get clear answers on what can be done if something is found. If it's not going to change anything, why put him through that ordeal? > The reason the neurologist is recommending the MRI is because of continued regression. I took my youngest son to Early Steps to be evaluated because his older brother has HFA. At 14 months he had a full evaluation with Early Steps and he did not qualify for any services - NT. At 19 months, I took him back to Early Steps and the only delay was in communication. All other domains, including social were in the normal range. At 22 months he was using about 15-18 words, and saying “Ready, set, goâ€. Before age 2, he was saying “lollipopâ€, after age 2 he would only say “pop†and then a few months later he stopped talking. He has been getting 8-15 hours of therapy per week for more than a year and progress is painfully slow. His evaluation with the school board at 35 months he showed as significantly delayed in every single area. Now at 40 months he only uses 2 words without prompting including “No†and “Bye†both for escape > situations. It has been so devastating witnessing him regress (and I can’t even get him into Baudhuin- but that’s another story). > Has anyone else had an MRI for their child? Are there any benefits to doing this? Any insights here will be helpful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2012 Report Share Posted August 8, 2012 I felt the same way about my son. Why put my son through all of this if it isn't going to change one thing. The Dr. thought I was crazy. In my son's case, it was a problem with his eyes and the Dr. wanted to know if it was in his brain.After cataract surgery and countless eye exams, he seems to be okay. Sometimes I wonder if these Drs. know what they are putting the parents through. Anyway long/short never got an MRI and he is fine. From: Shiri To: sList Sent: Tuesday, August 7, 2012 8:34 PM Subject: Re: MRI for a 3 year old My son had a very bad reaction to propofol and we are still trying to figure out how to get a MRI without sedation. He started hyperventalating and convulsing so bad they couldn't stabilize him enough to get a clear picture. It took him three days to recover from the vomiting and wasn't able to even hold his head up for days. I realize that this is not a typical response but it does happen. My son was also a regressive case of autism. Mri's are done for autism in order to rule out any comorbid conditions. For us, my son has markers for Neurofibromatosis so they wanted to rule out neurofibromas in the brain. Just wanted to share our experience. > > Hello Listmates, > Our neurologist has recommended an MRI for my 3 year old son with autism, and I’m having a really hard time deciding if this is in his best interest or not. I hate the idea of drugging him up with propofol to have this procedure done. I did not get clear answers on what can be done if something is found. If it's not going to change anything, why put him through that ordeal? > The reason the neurologist is recommending the MRI is because of continued regression. I took my youngest son to Early Steps to be evaluated because his older brother has HFA. At 14 months he had a full evaluation with Early Steps and he did not qualify for any services - NT. At 19 months, I took him back to Early Steps and the only delay was in communication. All other domains, including social were in the normal range. At 22 months he was using about 15-18 words, and saying “Ready, set, goâ€. Before age 2, he was saying “lollipopâ€, after age 2 he would only say “pop†and then a few months later he stopped talking. He has been getting 8-15 hours of therapy per week for more than a year and progress is painfully slow. His evaluation with the school board at 35 months he showed as significantly delayed in every single area. Now at 40 months he only uses 2 words without prompting including “No†and “Bye†both for escape > situations. It has been so devastating witnessing him regress (and I can’t even get him into Baudhuin- but that’s another story). > Has anyone else had an MRI for their child? Are there any benefits to doing this? Any insights here will be helpful. > Quote Link to comment Share on other sites More sharing options...
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