Re: Re: Newbie has questions/Debbie

December 14, 2007

Hi Debbie,

Thanks for the info, but there's no way I could afford that. I live on disability and hubby might not have a job after next week as his company is selling his division and we don't know yet if they'll hire him. Things are very bad financially right now.

I appreciate the info anyway. Does he accept any insurance at all?

BTW, I live in Mesa....

Hugs-

Ivy

-- Re: Newbie has questions

Ivy,

E-mail or call them and let them know of your predicament. I think

that they have given that list to people in the past who are on a

fixed or low income. I know it's frustrating...but the NVA is the

ONLY organization out there trying to organize research and education

about this problem, and they have to drum up funds one way or

another. I think it's important to see a good doc who knows what

they are doing with this problem from the very beginning so you don't

waste your time. Dr. Vliet might also be a good resource, or you

could google "vulvodynia" and "Arizona" together and see what you

come up with. This program in Sedona:

http://www.myofascialrelease.com/clinics/clin_sedona.asp

does physical therapy (I don't know anything about this clinic other

than I saw their advertisement when I was in Phoenix visiting family

a few weeks ago). Another way to raise money for the NVA is to go to

www.goodsearch.com and plug in NVA into the "who do you goodsearch

for?" and use that search engine for your searches, proceeds go to

the NVA.

Lindsey

> >

> > Hi everyone-

> >

> > I'm new here, my name is Ivy, I'm 47, married, originally from NY

> and have

> > lived in AZ for 17 years or so.

> > I had a hysterectomy (complete) at the age of 24 due to adhesions.

> >

> > I've always had a problem with what I thought were yeast

infections

> and

> > cramps. I was recently diagnosed with vulvar vestibulitis and

> possibly

> > lichen sclerosis. (She hasn't taken a biopsy yet because I'm

scared

> to do

> > it). My gyno put me on some cortisone vaginal suppositories over a

> month ago

> > The first week I used them daily, then she told me to go to every

> other day

> > At first it seemed to help, but then "whatever this is" came back

> and now

> > nothing's helping. I saw the gyno again last week for the itching,

> cramping

> > and irritation and I also had another yeast infection then too.

She

> gave me

> > diflucan and the next day I had the worst abdominal cramps I've

had

> in years

> > It seemed to subside for a couple of days and now it's back again

> and I

> > took another diflucan today and I'm cramping again.

> > I'm so tired of hurting and itching and cramping and so tired of

> not getting

> > any relief. On top of it, my gyno no longer takes my insurance and

> I tried

> > another gyno recently and she was horrible, I literally felt as if

> I'd been

> > raped and she told me there was nothing wrong with me. Worst

> experience of

> > my life (and I've had some bad ones...yes, I did report her).

> > So now I don't know what to do anymore. I'm still on the cortisone

> > suppositories and I can't afford to keep running back to the gyno

> once a

> > week and pay out of pocket. I see my PCP next week so I'll ask for

> another

> > gyno referral but I hate to leave mine, I've been with her 10

years

> and I

> > adore her and her staff.

> >

> > So...I guess my questions are:

> > 1) What does vestibulitis feel like and how do I know I have it?

> > 2) Does it ever go away?

> > 3) Is there anything naturopathic I can do to help myself?

> > 4) Is cramping normal for having this?

> >

> > I'm sure I'll have a ton more questions as time goes on so I guess

> that's it

> > for now.

> > Thank you for having me here. I'm very frustrated, scared and

angry

> because

> > of the v.v.

> > Hugs-

> > Ivy

> >

>

> **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

> Thanks for your cooperation! **

>

> ***

December 14, 2007

Hi! I know..I wouldnt be able to afford that either. Yes, I believe he accepts medicare and medicaid. I was able to get a gap exception from my insurance to be able to see him since he is the only Dr. who specializes in my condition..so my insurance is allowing me to pay my copays until Dec. 2008. After that, I am not sure what is going to happen. You should call them and see what they say! They are so so nice there!! If you decide, their # is . They are on Indian School and 3rd Ave just off the 51 freeway. Kind Regards, Debbie Ivy wrote: Hi Debbie, Thanks for the info, but there's no way I could afford that. I live on disability and hubby might not have a job after next week as his company is selling his division and we don't know yet if they'll hire him. Things are very bad financially right now. I appreciate the info anyway. Does he accept any insurance at all? BTW, I live in Mesa.... Hugs- Ivy -- Re: Newbie has questions Ivy, E-mail or call them and let them know of your predicament. I think that they have given that list to people in the past who are on a fixed or low income. I know it's frustrating...but the NVA is the ONLY organization out there trying to organize research and education about this problem, and they have to drum up funds one way or another. I

think it's important to see a good doc who knows what they are doing with this problem from the very beginning so you don't waste your time. Dr. Vliet might also be a good resource, or you could google "vulvodynia" and "Arizona" together and see what you come up with. This program in Sedona: http://www.myofascialrelease.com/clinics/clin_sedona.asp does physical therapy (I don't know anything about this clinic other than I saw their advertisement when I was in Phoenix visiting family a few weeks ago). Another way to raise money for the NVA is to go to www.goodsearch.com and plug in NVA into the "who do you goodsearch for?" and use that search engine for your searches, proceeds go to the NVA. Lindsey > > > > Hi everyone- > > > > I'm new here, my name is Ivy, I'm 47, married, originally from NY > and

have > > lived in AZ for 17 years or so. > > I had a hysterectomy (complete) at the age of 24 due to adhesions. > > > > I've always had a problem with what I thought were yeast infections > and > > cramps. I was recently diagnosed with vulvar vestibulitis and > possibly > > lichen sclerosis. (She hasn't taken a biopsy yet because I'm scared > to do > > it). My gyno put me on some cortisone vaginal suppositories over a > month ago > > The first week I used them daily, then she told me to go to every > other day > > At first it seemed to help, but then "whatever this is" came back > and now > > nothing's helping. I saw the gyno again last week for the

itching, > cramping > > and irritation and I also had another yeast infection then too. She > gave me > > diflucan and the next day I had the worst abdominal cramps I've had > in years > > It seemed to subside for a couple of days and now it's back again > and I > > took another diflucan today and I'm cramping again. > > I'm so tired of hurting and itching and cramping and so tired of > not getting > > any relief. On top of it, my gyno no longer takes my insurance and > I tried > > another gyno recently and she was horrible, I literally felt as if > I'd been > > raped and she told me there was nothing wrong with me. Worst > experience of > > my life (and I've

had some bad ones...yes, I did report her). > > So now I don't know what to do anymore. I'm still on the cortisone > > suppositories and I can't afford to keep running back to the gyno > once a > > week and pay out of pocket. I see my PCP next week so I'll ask for > another > > gyno referral but I hate to leave mine, I've been with her 10 years > and I > > adore her and her staff. > > > > So...I guess my questions are: > > 1) What does vestibulitis feel like and how do I know I have it? > > 2) Does it ever go away? > > 3) Is there anything naturopathic I can do to help myself? > > 4) Is cramping normal for having this? > > > > I'm sure I'll have a ton more questions as time goes on so I

guess > that's it > > for now. > > Thank you for having me here. I'm very frustrated, scared and angry > because > > of the v.v. > > Hugs- > > Ivy > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > Thanks for your cooperation! ** > > ***

December 14, 2007

Thanks again Deb. I'm going to wait and see what happens with hubby's job in a week or so. Then I'll know if I still have insurance or what's going to happen. This is so stressful it's unreal.

That's a long way to travel from Maricopa to Phoenix. Longer even then from Mesa to Phoenix. How long does it take you to get there? I never even heard of the 51 freeway, lol. I won't drive the freeways out here, I take local roads, lol.