Re: Re: Newbie has questions

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Ivy, I to have bee diagnosed with VVS. I am located in Maricopa AZ. The Dr. that diagnosed me is in Phoenix. He is Dr. Gordon . He is a vulvovaginal and disease doctor. I was diagnosed in April of this year. The only downfall is that he DOESNT accept most insurance plans. My first consultation with him was like $400 and each additional visit has been $136. That doesnt even include the cost of prescriptions... which aren't cheap even with insurance. Let me know if you want any other information. Hope this helps! DebbieIvy wrote: Ok, thanks again Lindsey. I appreciate it. Sedona is very far away from me, a whole days drive and due to my other health problem post herpetic neuralgia I can't sit up in a car all day unfortunately. I'm not able to travel anymore. Maybe I can find someone down here in the East Valley closer to me. Thanks Hun. Ivy -- Re: Newbie has questions Ivy, E-mail or call them and let them know of your predicament. I think that they have given that list to people in the past who are on a fixed or low income. I know it's frustrating...but the NVA is the ONLY organization out there trying to organize research and education about this problem, and they have to drum up funds one way or another. I think it's important to see a good doc who knows what they are doing with this problem from the very beginning so you don't waste your

time. Dr. Vliet might also be a good resource, or you could google "vulvodynia" and "Arizona" together and see what you come up with. This program in Sedona: http://www.myofascialrelease.com/clinics/clin_sedona.asp does physical therapy (I don't know anything about this clinic other than I saw their advertisement when I was in Phoenix visiting family a few weeks ago). Another way to raise money for the NVA is to go to www.goodsearch.com and plug in NVA into the "who do you goodsearch for?" and use that search engine for your searches, proceeds go to the NVA. Lindsey > > > > Hi everyone- > > > > I'm new here, my name is Ivy, I'm 47, married, originally from NY > and have > > lived in AZ for 17 years or so. > >

I had a hysterectomy (complete) at the age of 24 due to adhesions. > > > > I've always had a problem with what I thought were yeast infections > and > > cramps. I was recently diagnosed with vulvar vestibulitis and > possibly > > lichen sclerosis. (She hasn't taken a biopsy yet because I'm scared > to do > > it). My gyno put me on some cortisone vaginal suppositories over a > month ago > > The first week I used them daily, then she told me to go to every > other day > > At first it seemed to help, but then "whatever this is" came back > and now > > nothing's helping. I saw the gyno again last week for the itching, > cramping > > and irritation and I also had another

yeast infection then too. She > gave me > > diflucan and the next day I had the worst abdominal cramps I've had > in years > > It seemed to subside for a couple of days and now it's back again > and I > > took another diflucan today and I'm cramping again. > > I'm so tired of hurting and itching and cramping and so tired of > not getting > > any relief. On top of it, my gyno no longer takes my insurance and > I tried > > another gyno recently and she was horrible, I literally felt as if > I'd been > > raped and she told me there was nothing wrong with me. Worst > experience of > > my life (and I've had some bad ones...yes, I did report her). > > So now I don't know what to do

anymore. I'm still on the cortisone > > suppositories and I can't afford to keep running back to the gyno > once a > > week and pay out of pocket. I see my PCP next week so I'll ask for > another > > gyno referral but I hate to leave mine, I've been with her 10 years > and I > > adore her and her staff. > > > > So...I guess my questions are: > > 1) What does vestibulitis feel like and how do I know I have it? > > 2) Does it ever go away? > > 3) Is there anything naturopathic I can do to help myself? > > 4) Is cramping normal for having this? > > > > I'm sure I'll have a ton more questions as time goes on so I guess > that's it > > for now. > > Thank you

for having me here. I'm very frustrated, scared and angry > because > > of the v.v. > > Hugs- > > Ivy > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > Thanks for your cooperation! ** > > ***

[Guest guest]

Dr. Gordon used to publish on the internet. I saved several of his

articles and they are on our website at:

http://health.groups.yahoo.com/group/VulvarDisorders/files/

scroll down to DAVISG.doc and you can access them.

Ora

[Guest guest]

Thank you Ora!

Ivy

-- Re: Re: Newbie has questions

Dr. Gordon used to publish on the internet. I saved several of his

articles and they are on our website at:

http://health.groups.yahoo.com/group/VulvarDisorders/files/

scroll down to DAVISG.doc and you can access them.

Ora

**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

Thanks for your cooperation! **

***