Re: Re: MRI

[Guest guest]

Noah's MRI story: When Noah started getting seizures two years ago, his neuro requested he get an MRI. So we went to Miami Children's Hospital, where he started freaking out, adamantly refused to let them hook up an IV (no surprise) and fought like crazy to prevent them putting a mask over his head to put him under anesthesia. Once he was under, the nurse told me that although normally they undress the patients because there can be no metal objects under the MRI machine, Noah had on a t-shirt and basketball shorts so it was obvious he wasn't wearing any metal. After this ordeal was over, and the results showed nothing, we were on our way home in the car when Noah complained that his iTouch didn't work, the iTouch which had been in his pocket all along...No, we didn't

re-take the MRI. To: "sList " <sList > Sent: Wednesday, August 8, 2012 10:29 AM Subject: Re: Re: MRI for a 3 year old

I felt the same way about my son. Why put my son through all of this if it isn't going to change one thing. The Dr. thought I was crazy. In my son's case, it was a problem with his eyes and the Dr. wanted to know if it was in his brain.After cataract surgery and countless eye exams, he seems to be okay. Sometimes I wonder if these Drs. know what they are putting the parents through. Anyway long/short never got an MRI and he is fine. From:

Shiri To: sList Sent: Tuesday, August 7, 2012 8:34 PM Subject: Re: MRI for a 3 year old

My son had a very bad reaction to propofol and we are still trying to figure out how to get a MRI without sedation. He started hyperventalating and convulsing so bad they couldn't stabilize him enough to get a clear picture. It took him three days to recover from the vomiting and wasn't able to even hold his head up for days. I realize that this is not a typical response but it does happen. My son was also a regressive case of autism. Mri's are done for autism in order to rule out any comorbid conditions. For us, my son has markers for Neurofibromatosis so they wanted to rule out neurofibromas in the brain. Just wanted to share our experience.

>

> Hello Listmates,

> Our neurologist has recommended an MRI for my 3 year old son with autism, and I’m having a really hard time deciding if this is in his best interest or not. I hate the idea of drugging him up with propofol to have this procedure done. I did not get clear answers on what can be done if something is found. If it's not going to change anything, why put him through that ordeal?

> The reason the neurologist is recommending the MRI is because of continued regression. I took my youngest son to Early Steps to be evaluated because his older brother has HFA. At 14 months he had a full evaluation with Early Steps and he did not qualify for any services - NT. At 19 months, I took him back to Early Steps and the only delay was in communication. All other domains, including social were in the normal range. At 22 months he was using about 15-18 words, and saying “Ready, set, goâ€. Before age 2, he was saying “lollipopâ€, after age 2 he would only say “pop†and then a few months later he stopped talking. He has been getting 8-15 hours of therapy per week for more than a year and progress is painfully slow. His evaluation with the school board at 35 months he showed as significantly delayed in every single area. Now at 40 months he only uses 2 words without prompting including “No†and

“Bye†both for escape

> situations. It has been so devastating witnessing him regress (and I can’t even get him into Baudhuin- but that’s another story).

> Has anyone else had an MRI for their child? Are there any benefits to doing this? Any insights here will be helpful.

>

[Guest guest]

When my daughter got diagnosed her neuro. requested an MRI. After the MRI got done she couldn't turn her neck to the left for like a week! I guess they positioned her on an awkward way or something! I was so angry!!! Everything was normal, tk goodness because I don't think I will have her go through an MRI test again.Sent from my iPhone

Noah's MRI story: When Noah started getting seizures two years ago, his neuro requested he get an MRI. So we went to Miami Children's Hospital, where he started freaking out, adamantly refused to let them hook up an IV (no surprise) and fought like crazy to prevent them putting a mask over his head to put him under anesthesia. Once he was under, the nurse told me that although normally they undress the patients because there can be no metal objects under the MRI machine, Noah had on a t-shirt and basketball shorts so it was obvious he wasn't wearing any metal. After this ordeal was over, and the results showed nothing, we were on our way home in the car when Noah complained that his iTouch didn't work, the iTouch which had been in his pocket all along...No, we didn't

re-take the MRI. To: "sList " <sList > Sent: Wednesday, August 8, 2012 10:29 AM Subject: Re: Re: MRI for a 3 year old

I felt the same way about my son. Why put my son through all of this if it isn't going to change one thing. The Dr. thought I was crazy. In my son's case, it was a problem with his eyes and the Dr. wanted to know if it was in his brain.After cataract surgery and countless eye exams, he seems to be okay. Sometimes I wonder if these Drs. know what they are putting the parents through. Anyway long/short never got an MRI and he is fine. From:

Shiri To: sList Sent: Tuesday, August 7, 2012 8:34 PM Subject: Re: MRI for a 3 year old

My son had a very bad reaction to propofol and we are still trying to figure out how to get a MRI without sedation. He started hyperventalating and convulsing so bad they couldn't stabilize him enough to get a clear picture. It took him three days to recover from the vomiting and wasn't able to even hold his head up for days. I realize that this is not a typical response but it does happen. My son was also a regressive case of autism. Mri's are done for autism in order to rule out any comorbid conditions. For us, my son has markers for Neurofibromatosis so they wanted to rule out neurofibromas in the brain. Just wanted to share our experience.

>

> Hello Listmates,

> Our neurologist has recommended an MRI for my 3 year old son with autism, and I’m having a really hard time deciding if this is in his best interest or not. I hate the idea of drugging him up with propofol to have this procedure done. I did not get clear answers on what can be done if something is found. If it's not going to change anything, why put him through that ordeal?

> The reason the neurologist is recommending the MRI is because of continued regression. I took my youngest son to Early Steps to be evaluated because his older brother has HFA. At 14 months he had a full evaluation with Early Steps and he did not qualify for any services - NT. At 19 months, I took him back to Early Steps and the only delay was in communication. All other domains, including social were in the normal range. At 22 months he was using about 15-18 words, and saying “Ready, set, goâ€. Before age 2, he was saying “lollipopâ€, after age 2 he would only say “pop†and then a few months later he stopped talking. He has been getting 8-15 hours of therapy per week for more than a year and progress is painfully slow. His evaluation with the school board at 35 months he showed as significantly delayed in every single area. Now at 40 months he only uses 2 words without prompting including “No†and

“Bye†both for escape

> situations. It has been so devastating witnessing him regress (and I can’t even get him into Baudhuin- but that’s another story).

> Has anyone else had an MRI for their child? Are there any benefits to doing this? Any insights here will be helpful.

>