Re: New from Charlotte, NC

[Guest guest]

Staci,

What a small world. We are actually not far from Tega Cay. We live

right over the border in Charlotte off of 160. This area is great.

It is great to see your son is getting great results. I just wish it

could all be done in the first band. Our son, , is also

considered severe. His CVA is at 22 and SBA at 18. The funny thing

is, when we look at him and other people look at him, you really

don't notice unless you mention it and they still question us for

even saying it. I know it is there because I know what to look for

and in that wrong light, you can see it. I am very excited to see

how the band will work.

How did you son do with the first helmet? Did he have a lot of

problems with the heat? I am a little bummed out because it is

warming up and I worry about taking him out in the warm weather. I

am going to have to find a way to get him outside because of my 2 1/2

year old. I guess we will take that day by day.

Oh, we are seeing Kathy at CT. She seems very nice and is good with

kids. I guess you have to be if you are in this business.

Thanks again.

Jenn

> >

> > Hi everyone. My son, who is 7 months old, was just casted today.

> We

> > should be receiving our Doc band on April 9. The casting went

> much

> > better than I expected. My DS only cried for a minute, when his

> milk

> > ran out. What a trooper he is. Other than that, it didn't really

> seem

> > to bother him. Now I am just waiting to get the band and get

this

> > process rolling.

> >

> > I see around about how many mm the baby's heads are measuring.

Is

> that

> > cranial or skull asymmetry? I was just curious because I was

> wondering

> > how severe my son is. I don't really understand the measurements

> I am

> > looking at.

> >

> > Are there any folks from the Charlotte, NC area? Let me know if

> there

> > are and maybe we can discuss how things are going. It would be

> nice to

> > have a local support group in the area. Oh, I also have a 2 1/2

> year

> > old son.

> >

> > Thanks,

> >

> > Jenn

> >

>