Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 > About 3 months ago I read stop the thyroid madness, did the pupil > test, and started with cortisol, I felt incredibly well for a few > days and then I slowly declined and crashed. In fact, I call all my > attempts to cure myself as " crash and burn " . Someone on this list had > alerted me to the fact that as I was taking cortisol, I was finally > using up the T4 and T3 that was around, and that soon it would go > down and would feel fatigued again. She was right, a little while > after this I started taking armour and the problem corrected itself a > little. > What is next? What else do you guys who suffer from CF do? I am > taking the usual supplements, but I had to cut down on some as I was > getting a rash. What is there left in the bag of tricks? How did it > go for you? How much relief did you get from this treatment and how > did you tweak it? Anything you cas say is important to me. > Raquel Hi Raquel, The Armour 'guru's' on the Natural Thyroid List are quite clear. You need to get your Armour dose up to AT LEAST 3-5 grains. They say as soon as you start using thyroid hormone you thyroid back's off producing its own thyroid and you need to make sure you provide a full replacement which is 3-5grains/day. This seems to happen in stages. So they advise that once you are on adrenal support raise your thyroid by 1/4 to 1/2 a grain every week until you are at three grains (180mg). Then raise it every 4-6 weeks by another 1/2 grain until you feel good or reach hyper symptoms (then you back off). 3-5 grains is common, and some need as much as 8 (rarer). It is a slow process. You can't raise it too fast or you boost your metabolism and burn your adrenals out. Your thyroid dose is way too low according to this. I have discovered I have very low temperatures to my surprise. This is called 's Low Temperatures, and I would encourage you to look into that. Sustained release T3 is used in cycles to help reset the thyroid gland. I have been using Armour because I have been unable to get sustained release T3 in South Africa. http://www.wilsonssyndrome.com/ The reason why I feel it is so important is that if your temperatures are low then many enzymes stop working. Enzymes have a narrow temperature range in which they work. It can cause an impressive array of symptoms. I instinctively know that I need to correct my temps using the 's protocol, but am stumped for the moment. The Natural Thyroid list don't like the 's protocol, they simply say raise your Armour and you temps will rise. Mine haven't yet But raising Armour is their classic response to most questions. Good luck, and stick with us, we will find a way eventually :-) Dean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Raquel: " What is next? " I would get your thyroid tested again, because you just might need to increase the Armour, you could try raising it and see if you notice anything. Dr. Lowe www.drlowe.com has good info on thyroid and fibromyalgia. One grain is a small amount of Armour for FM. -Olif Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 > For about 2 months, I have been taking HC daily in 3 doses, and 60 > granules of armour. However, I am still very fatigued, still unable > to focus Hi Raquel, Sorry you're having such a tough time. I just climbed out of a bad fatigue hole just this week. What was helpful for me was getting the full thyroid and adrenal panels from Diagnos-Techs, which showed that I was taking too much HC, and even on 150 mgs of Armour, not getting enough T3. I lowered the HC which made the Armour work better (I hadn't realizd that too much as well as too little HC can foul up Armour). The tests also pointed to a possiblity of gluten intolerane (surprise! lol) and going gf has helped my energy a LOT. The other thing I'm doing that's helping is taking some iodine. Do you have a friendly doc who can order those tests for you? I got them through Mark , who does telephone consulting. I didn't think the actual consultation was worth the money, but the tests were invaluable. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 I think hormone support is an art. I haven't mastered it by any means, but I have learned that once you throw a new hormone (or other treatment that effects hormone levels) into the mix, you may throw off the level of something else. You have to keep trying things in order to learn what you need and how to improve it. Some hormones like DHEA, pregnenelone, progesterone cream can convert into multiple other hormones as needed by your body, so these are good things to consider because you may be able to provide raw materials and let your body decide which hormones to make. I am only taking a small amount of DHEA, and I had to get it in a transdermal cream, but I " feel it " and it has helped my brain and my energy more than cortisol did. I have also found an electrolyte drink really essential to keeping my blood pressure at a good level. This also helps with my mood and emotional balance. I take licorice and adrenal glandular in addition to cortisol. I am not sure if the glandular helps subjectively, but I think it provides support for healing the adrenals. The licorice definitely improves how I feel. Getting good saliva testing to see where your hormone levels are at can be helpful. But you can also just make some guesses about which ones you are low in based on information in Andy's book or other reading, and then try some experiments with those hormones. It may be more helpful to experiment a little first, to see what feels good, and then do some testing to see where you are at. -- > > Hi all, > > I got a question so I include a little history: I have been dealing > with debilitating chronic fatigue for over 7 years, and I have been > chelating on Andy's protocol for 3 years, that is 96 rounds with DMPS > or DMSA and ALA every 3 hours for 3 days and nights. > > About 3 months ago I read stop the thyroid madness, did the pupil > test, and started with cortisol, I felt incredibly well for a few > days and then I slowly declined and crashed. In fact, I call all my > attempts to cure myself as " crash and burn " . Someone on this list had > alerted me to the fact that as I was taking cortisol, I was finally > using up the T4 and T3 that was around, and that soon it would go > down and would feel fatigued again. She was right, a little while > after this I started taking armour and the problem corrected itself a > little. > > For about 2 months, I have been taking HC daily in 3 doses, and 60 > granules of armour. However, I am still very fatigued, still unable > to focus or do the mental work required of my former profession, > teaching. A day sitting in court, just sitting, (yesterday) knocks me > out (today, lots of fatigue, fybromialgia, twice my normal mental > fog). > > What is next? What else do you guys who suffer from CF do? I am > taking the usual supplements, but I had to cut down on some as I was > getting a rash. What is there left in the bag of tricks? How did it > go for you? How much relief did you get from this treatment and how > did you tweak it? Anything you cas say is important to me. > > Warmly, > > Raquel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 have you looked into viral issues or immune support? Sometimes CFS can also be due to Epstein Barr. Also what supplemnts are you taking to support yourself during chelation? B vites are important for fatigue. > > Hi all, > > I got a question so I include a little history: I have been dealing > with debilitating chronic fatigue for over 7 years, and I have been > chelating on Andy's protocol for 3 years, that is 96 rounds with DMPS > or DMSA and ALA every 3 hours for 3 days and nights. > > About 3 months ago I read stop the thyroid madness, did the pupil > test, and started with cortisol, I felt incredibly well for a few > days and then I slowly declined and crashed. In fact, I call all my > attempts to cure myself as " crash and burn " . Someone on this list had > alerted me to the fact that as I was taking cortisol, I was finally > using up the T4 and T3 that was around, and that soon it would go > down and would feel fatigued again. She was right, a little while > after this I started taking armour and the problem corrected itself a > little. > > For about 2 months, I have been taking HC daily in 3 doses, and 60 > granules of armour. However, I am still very fatigued, still unable > to focus or do the mental work required of my former profession, > teaching. A day sitting in court, just sitting, (yesterday) knocks me > out (today, lots of fatigue, fybromialgia, twice my normal mental > fog). > > What is next? What else do you guys who suffer from CF do? I am > taking the usual supplements, but I had to cut down on some as I was > getting a rash. What is there left in the bag of tricks? How did it > go for you? How much relief did you get from this treatment and how > did you tweak it? Anything you cas say is important to me. > > Warmly, > > Raquel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 > About 3 months ago I read stop the thyroid madness, did the pupil > test, and started with cortisol, I felt incredibly well for a few > days and then I slowly declined and crashed. In fact, I call all my > attempts to cure myself as " crash and burn " . Someone on this list had > alerted me to the fact that as I was taking cortisol, I was finally > using up the T4 and T3 that was around, and that soon it would go > down and would feel fatigued again. She was right, a little while > after this I started taking armour and the problem corrected itself a > little. > What is next? What else do you guys who suffer from CF do? I am > taking the usual supplements, but I had to cut down on some as I was > getting a rash. What is there left in the bag of tricks? How did it > go for you? How much relief did you get from this treatment and how > did you tweak it? Anything you cas say is important to me. > Raquel Hey Raquel, After amalgam removal, I was having such a bad time with heart palpitations and flips (I'm talking " thumps " in my chest every third heartbeat), that I decided to go off my thyroid hormone altogether. I take an amino acid blend that includes Tyrosine, which helps the thyroid to function. Before having my amalgams out, they were around 97.6. After they were out, my temp went up to normal. I went off the thyroid and they continued to remain in the normal range. However, after starting chelation, they have tended to fluctuate, with low temps in the morning, and normal temps throughout the day. I do notice a dip in temps when I'm chelating and I can tell the mercury is moving. Those days, it tends to dip a litte. I started to take hydrocortisone cream to help with the adrenals, and that has helped the symptoms, too. Hope this helps. --------------------------------- Be a better Globetrotter. Get better travel answers from someone who knows. Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 Yes, I have a super nice doc. How much did the test cost? Raquel > > > For about 2 months, I have been taking HC daily in 3 doses, and 60 > > granules of armour. However, I am still very fatigued, still unable > > to focus > > Hi Raquel, > > Sorry you're having such a tough time. I just climbed out of a bad fatigue hole just this > week. What was helpful for me was getting the full thyroid and adrenal panels from > Diagnos-Techs, which showed that I was taking too much HC, and even on 150 mgs of > Armour, not getting enough T3. I lowered the HC which made the Armour work better (I > hadn't realizd that too much as well as too little HC can foul up Armour). > > The tests also pointed to a possiblity of gluten intolerane (surprise! lol) and going gf has > helped my energy a LOT. > > The other thing I'm doing that's helping is taking some iodine. > > Do you have a friendly doc who can order those tests for you? I got them through Mark > , who does telephone consulting. I didn't think the actual consultation was worth > the money, but the tests were invaluable. > > Nell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 Hi, Thanks, Epstain Barr negative. Viral stuff, I have been taking lysine daily for the last 1 1/2 years, so I guess they are controlled, although I know I am quiet sensitive to them. My B's were too high a while ago and I was a bit agressive so I cut down. During chelation, with each dose, that is, every 3 hours, I take buffered C, 750mg, and 70mg of milk thysle. Then whatever sups I am taking at the time, including vit E, selenium, zinc, CLO, adrenal support ... > > > > Hi all, > > > > I got a question so I include a little history: I have been > dealing > > with debilitating chronic fatigue for over 7 years, and I have > been > > chelating on Andy's protocol for 3 years, that is 96 rounds with > DMPS > > or DMSA and ALA every 3 hours for 3 days and nights. > > > > About 3 months ago I read stop the thyroid madness, did the pupil > > test, and started with cortisol, I felt incredibly well for a few > > days and then I slowly declined and crashed. In fact, I call all > my > > attempts to cure myself as " crash and burn " . Someone on this list > had > > alerted me to the fact that as I was taking cortisol, I was > finally > > using up the T4 and T3 that was around, and that soon it would go > > down and would feel fatigued again. She was right, a little while > > after this I started taking armour and the problem corrected > itself a > > little. > > > > For about 2 months, I have been taking HC daily in 3 doses, and 60 > > granules of armour. However, I am still very fatigued, still > unable > > to focus or do the mental work required of my former profession, > > teaching. A day sitting in court, just sitting, (yesterday) knocks > me > > out (today, lots of fatigue, fybromialgia, twice my normal mental > > fog). > > > > What is next? What else do you guys who suffer from CF do? I am > > taking the usual supplements, but I had to cut down on some as I > was > > getting a rash. What is there left in the bag of tricks? How did > it > > go for you? How much relief did you get from this treatment and > how > > did you tweak it? Anything you cas say is important to me. > > > > Warmly, > > > > Raquel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 Hi Dean, You gave me a great answer and I think it is on the money, this is what I am going to try. Raquel > > > > About 3 months ago I read stop the thyroid madness, did the pupil > > test, and started with cortisol, I felt incredibly well for a few > > days and then I slowly declined and crashed. In fact, I call all my > > attempts to cure myself as " crash and burn " . Someone on this list had > > alerted me to the fact that as I was taking cortisol, I was finally > > using up the T4 and T3 that was around, and that soon it would go > > down and would feel fatigued again. She was right, a little while > > after this I started taking armour and the problem corrected itself a > > little. > > What is next? What else do you guys who suffer from CF do? I am > > taking the usual supplements, but I had to cut down on some as I was > > getting a rash. What is there left in the bag of tricks? How did it > > go for you? How much relief did you get from this treatment and how > > did you tweak it? Anything you cas say is important to me. > > Raquel > > Hi Raquel, > > The Armour 'guru's' on the Natural Thyroid List are quite clear. You need to > get your Armour dose up to AT LEAST 3-5 grains. > They say as soon as you start using thyroid hormone you thyroid back's off > producing its own thyroid and you need to make sure you provide a full > replacement which is 3-5grains/day. This seems to happen in stages. So they > advise that once you are on adrenal support raise your thyroid by 1/4 to 1/2 > a grain every week until you are at three grains (180mg). Then raise it > every 4-6 weeks by another 1/2 grain until you feel good or reach hyper > symptoms (then you back off). 3-5 grains is common, and some need as much as > 8 (rarer). It is a slow process. You can't raise it too fast or you boost > your metabolism and burn your adrenals out. > > > Your thyroid dose is way too low according to this. > I have discovered I have very low temperatures to my surprise. This is > called 's Low Temperatures, and I would encourage you to look into > that. Sustained release T3 is used in cycles to help reset the thyroid > gland. I have been using Armour because I have been unable to get sustained > release T3 in South Africa. http://www.wilsonssyndrome.com/ > The reason why I feel it is so important is that if your temperatures are > low then many enzymes stop working. Enzymes have a narrow temperature range > in which they work. > It can cause an impressive array of symptoms. I instinctively know that I > need to correct my temps using the 's protocol, but am stumped for the > moment. The Natural Thyroid list don't like the 's protocol, they > simply say raise your Armour and you temps will rise. Mine haven't yet > But raising Armour is their classic response to most questions. > > Good luck, and stick with us, we will find a way eventually :-) > Dean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 > > Yes, I have a super nice doc. How much did the test cost? I can't find my records. But I think it was a bit less than $200 for both the ASI adrenal tests and the thyroid panel. There are quite a few other things incuded -- DHEA, insulin, gliadin antibodies, SIgA, progesterone.... Nell Quote Link to comment Share on other sites More sharing options...
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