Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 Hi Diane, You are right to be concerned. I've not heard of pulmonary hypertension being treated with Cytoxan. There are several drugs that are commonly used among them are Bosentan and Sildenifil (Viagra). Have they suggested a right heart catherterization to confirm the PH? Have you considered consulting a cardiologist? I've not ever heard of treating the lung fibrosis to improve the pulmonary hypertension. I mean there is no recognized effective treatment for the fibrosis so I'm really unclear about what they are trying to accomplish with you. Do you feel comfortable discussing this with your pulmonologist? Please continue to ask questions until you get answers that make sense to you. We are all entitled to that! Good luck!! Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Breathe-Support Sent: Tuesday, November 11, 2008 6:14:07 PMSubject: RE: Sher-breathing problems Hi again-I also was recently having more breathing problems. Had a chest CT and everything showed stable and the same since Dec 07. I still have more problems so went for a echocardiogram. Lo and behold-pulmonary hypertension! !! Of course these doctors here are very slow so now I have it more moderately then slight. The pulmonologist wants to put me back on cytoxan and my Rheumatologist says absolutely not! What the heck am I supposed to do.??? Truthfully I thought by reading online they would treat the PH with cardiac meds but he believes to treat the lung. Has anyone had similiar answers??? Diane Quote Link to comment Share on other sites More sharing options...
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