Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Let me pitch hit for Dr. Aubrey since I looked at vaccines before my recent transplant. It is important to be up to date on the usual vaccines (the transplant programs should collect this information on you and bring you up to date): Influenza Hep A Hep B Tetnus/Diptheria/Pertussis Measles/mumps/rebella (depending on age) Pneumonia Papaloma virus (for young women) Meningitis (for those in college or military that might live in a dormatory, or if spleenectomy considered) H. flu (important if spleenectomy) see: http://www.cdc.gov/nip/diseases/adult-vpd.htm#schedule There is a new varicella vacine for adults that prevents shingles. It hasn't been tested pre-transplant or immune deficient but it makes sense to me and I had it for about $200. My transplant program didn't have it on the list and didn't have an opinion on it yet because it is so new. If you choose to get it make sure you get the adult dose and when your insurance denys it because you are less than 65 years old,request an exception. There is no good herpes vaccine yet. " Kline Beecham recently released the results of their study regarding a new vaccine attempt for genital herpes. Sadly, the results indicate that any benefit from the vaccine seems to be limited to female patients who have never had a type 1 herpes simplex infection AND who do not have genital herpes currently. This seems to mean that the vaccine only offers partial protection from acquiring type 2 genital herpes. " The anticancer vaccines are experimental and not used for prevention. I've never heard of one for lymphoma but there is one for melanoma which if ever developed for prevention would be a good idea. Good luck Von Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Let me pitch hit for Dr. Aubrey since I looked at vaccines before my recent transplant. It is important to be up to date on the usual vaccines (the transplant programs should collect this information on you and bring you up to date): Influenza Hep A Hep B Tetnus/Diptheria/Pertussis Measles/mumps/rebella (depending on age) Pneumonia Papaloma virus (for young women) Meningitis (for those in college or military that might live in a dormatory, or if spleenectomy considered) H. flu (important if spleenectomy) see: http://www.cdc.gov/nip/diseases/adult-vpd.htm#schedule There is a new varicella vacine for adults that prevents shingles. It hasn't been tested pre-transplant or immune deficient but it makes sense to me and I had it for about $200. My transplant program didn't have it on the list and didn't have an opinion on it yet because it is so new. If you choose to get it make sure you get the adult dose and when your insurance denys it because you are less than 65 years old,request an exception. There is no good herpes vaccine yet. " Kline Beecham recently released the results of their study regarding a new vaccine attempt for genital herpes. Sadly, the results indicate that any benefit from the vaccine seems to be limited to female patients who have never had a type 1 herpes simplex infection AND who do not have genital herpes currently. This seems to mean that the vaccine only offers partial protection from acquiring type 2 genital herpes. " The anticancer vaccines are experimental and not used for prevention. I've never heard of one for lymphoma but there is one for melanoma which if ever developed for prevention would be a good idea. Good luck Von Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Let me pitch hit for Dr. Aubrey since I looked at vaccines before my recent transplant. It is important to be up to date on the usual vaccines (the transplant programs should collect this information on you and bring you up to date): Influenza Hep A Hep B Tetnus/Diptheria/Pertussis Measles/mumps/rebella (depending on age) Pneumonia Papaloma virus (for young women) Meningitis (for those in college or military that might live in a dormatory, or if spleenectomy considered) H. flu (important if spleenectomy) see: http://www.cdc.gov/nip/diseases/adult-vpd.htm#schedule There is a new varicella vacine for adults that prevents shingles. It hasn't been tested pre-transplant or immune deficient but it makes sense to me and I had it for about $200. My transplant program didn't have it on the list and didn't have an opinion on it yet because it is so new. If you choose to get it make sure you get the adult dose and when your insurance denys it because you are less than 65 years old,request an exception. There is no good herpes vaccine yet. " Kline Beecham recently released the results of their study regarding a new vaccine attempt for genital herpes. Sadly, the results indicate that any benefit from the vaccine seems to be limited to female patients who have never had a type 1 herpes simplex infection AND who do not have genital herpes currently. This seems to mean that the vaccine only offers partial protection from acquiring type 2 genital herpes. " The anticancer vaccines are experimental and not used for prevention. I've never heard of one for lymphoma but there is one for melanoma which if ever developed for prevention would be a good idea. Good luck Von Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Hi Barb, I'll pitch hit for Dr. Aubrey since he hasn't logged on for a few days. He told me that he takes a break from the list from time to time because he has been at it so long. My practice is General Internal Medicine since 1989. Doctors don't always agree on everything about PSC because precious little is known for sure so some times we extrapolate from similar things or have had different experience. Anyway there are no dumb questions. Here is the CDC chart for adult immunizations (it hasn't been updated for the new adult varicella vaccine) http://www.cdc.gov/nip/recs/adult-schedule.pdf Everyone in the general public should have the childhood MMR if they missed it as kids The meningitis indications are listed. Since it is so rare it is not recommended to the general public but just to those that might live in dormitories (military, students) or lab workers or locations that have had outbreaks etc. Most people having a transplant do not have the spleen removed so wouldn't need the meningitis or Hib. Why is his team recommending spleenectomy ? Ask your team to explain the reasoning for it so that it makes sense to you. I don't want to step on any toes but it may not be a good idea in a standard transplant. There are Japanese teams that when doing living donor Tx, tie off part of the blood supply to the spleen if it is more than 50% of the liver size to reduce portal hypertension and not give a small graft too much blood. To actually take the spleen out requires more operating time and higher risk of bleeding and infection. The Herpes Simplex (cold sores and genital ulcers) vaccines just haven't been effective. The Herpes ZOSTER vaccine is the varicella vaccine. Acylovir can be used for prophalaxis or treatment of Herpes Simplex. My team in Denver didn't want to treat cold sores right after transplant because they usually clear anyway and they didn't want any side effects during that crucial phase. CMV is treated with antivirals if patients have no antibodies from previous infection (this is a pre-transplant blood test) and the donor was exposed. Ken is lucky to have such an involved, and proactive and inquiring mom! Von > > Most probably stupid questions..but still want to know answer. > > *IF* these vaccinations are suppose to protect Ken against bacterial > infections, (after they remove his spleen) why don't they give them to > everyone undergoing a transplant? > > Why not give them to the general public like the childhood ones? > > Barb in Texas - Together in the Fight, Whatever it Takes! > Son Ken (32) UC 91 - PSC 99 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2007 Report Share Posted June 2, 2007 -----Original Message----- Stay calm, be brave, and wait for the results. Thank you very much Aubrey. Don’t know what I would do without your advice and willingness to share your expertise. Actually, right now, I’m not worried; we have had so many mistaken diagnoses (some really nasty) over the years, that I’ve learned to wait and see proof for myself. But…..the coordinator didn’t mention the findings, not sure she ever would have (or if she even read the report). Now, armed with your opinion, I know if they don’t make a quick move to investigate it further, I’ll have to “help” them along ;-) Ken is still #1 in the AB group at Baylor, but I sure don’t want him to get the call before they find out what the nodule is. Thank you so much Dr Aubrey, Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (33) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2007 Report Share Posted June 2, 2007 Barb, Sorry to hear about this. I hope it isn't anything serious, but of course the thought of it being serious can't be helped. I'll be thinking about you and your family, and hoping this isn't serious. -Marie P.S. The results of my CT scan from last week are in - everything was okay. But I'm not sure if this is the best test for CCA. > >Ken had an ultra sound done on Wednesday. We just got the results back >and they saw a " 2.5 nodule near the gallbladder fossa " , this is >something new and wasn't there 6 months ago. Radiology recommends an >MRI and correlation with AFP (his last AFP was done on 1/15, and was 2.7 >- normal). His Hepatologist is out of town until Tuesday (naturally), >but his coordinator thinks he will want to order the MRI & AFP. > >My question - could something nasty have popped up in just 6 months >time? > >Barb in Texas - Together in the Fight, Whatever it Takes! >Son Ken (33) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas > > _________________________________________________________________ Need a break? Find your escape route with Live Search Maps. http://maps.live.com/default.aspx?ss=Restaurants~Hotels~Amusement%20Park & cp=33.8\ 32922~-117.915659 & style=r & lvl=13 & tilt=-90 & dir=0 & alt=-1000 & scene=1118863 & encType=\ 1 & FORM=MGAC01 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.